Quote from: Hawk on August 12, 2007, 09:21:34 PM
We[re] those your numbered points or was it copied from some other source.  I am specifically interested in #2 above and any source documentation.

They were my numbered points representing my composite of information I have gleaned over time.

Documentation for point #2:

Quote from: NatureA recent statistical analysis of biopsy specimens showed that the tunica albuginea tissues in Peyronie's disease contain significantly decreased amounts of elastin fibers.

http://www.nature.com/ijir/journal/v14/n5/full/3900866a.html

Quote from: NatureAnother study found higher than normal levels of anti-elastin antibodies in the serum of patients with Peyronie's disease, suggesting an autoimmune etiology.

Quote from: NatureThe tunica albuginea is composed of fibrillar (mainly type I but also types III and V) collagen in organized arrays interlaced with elastin fibers. Peyronie's plaques are also composed almost entirely of types I and III collagen. While collagen has a greater tensile strength than steel, it is unyielding. In contrast, elastin can be stretched up to 150%, of its length. It is the elastin content that allows the compliance of the tunica albuginea and helps to determine stretched penile length.

http://www.nature.com/ijir/journal/v14/n5/full/3900875a.html

I could go on at length here with various research citations, but I'm sure from this you will get the picture.  Lack of elastin is not the only component of Peyronies, but it is an important component that must be considered, in addition to the abnormal collagen factor.  Only a repopulation with normal elastin cells will restore the TA to a normal condition.  That is the bottom line and has to be a factor in considering how to deal with the disease or any other fibrotic disease for that matter.

- George

Ok... This is definitely an off-topic question... I have a picture and I would like to know if it could/would be considered peyronie's disease... Where can i post/send this too?

Roy, I might be wrong on this, hopefully somebody will correct me if that is the case, but my feeling is that most of us are not doctors around here, and none of us that I know of are uros.  I really think that the correct person to evaluate your pic is a real honest to goodness urologist who has an interest in Peyronies.  While this is a great place for all kinds of Peyronies centered chat, I suspect it is not a particularly good place for serious diagnoses.  I know a lot of us have taken stabs at it, in an informal way, but most of that has probably not been very useful and perhaps, at least in some cases, may well have been counter productive.  It is really best to leave some things to the professionals who deal with this stuff everyday.  Especially in cases like Peyronies.  - George

George, I appreciate you being diplomatic. However, I am not going to be using these opinions for a "diagnosis," because that is exactly what they are, opinions. I do believe that some informed opinions from people who have experience with this particular problem could encourage another person to visit a urologist.

Also, I have a question regarding vasoconstrictors. Vasodialators seem to be a key ingredient in the battle against peyronies... But what about a person who is required to take a vasoconstrictor regularly? A friend of mine is ADD, and must take prescription amphetamines daily, apparently causing notable restricted bloodflow to his member.

Not even the top Peyronies Disease specialist would diagnose from a picture.  A curve is just one symptom of Peyronies Disease.  It is the symptom of several other conditions as well.  Lets say you posted a picture and several members said, "Yeah, it looks like Peyronies Disease to me."  Then what?

Without seeing it, I say no it's not Peyronies Disease.  I read a previous post describing your condition.  Now what?

I don't understand your reluctance to see a doctor who is the only one who could possibly diagnose you.  But, you are willing to send a picture to a stranger.  
Consider yourself encouraged.

Hi Roy.

I didn't remember your posting before, but went back and saw that you have posted a handful of times since you originally came here over one year ago. You started off with a confusing (to me) post about your symptoms that did not seem to suggest Peyronie's to me. But you asked in response to our responses to you basicly "what's the point?" in terms of going to a urologist.

You also said, on July 31, 2006:

"But is there anything else anyone can recommend? I know this isnt the proper section for it, but the other ones are convoluted. Any other supplements? herbs? whatever's clever...

Any feedback would be greatly appreciated."

Well, here is some feedback. Go to a urologist. Why on earth would you NOT go to one? Embarassment? Shame? It's embarassing - big deal. It is your penis here you're talking about, not a fingernail.

When you post that a place for pictures would be helpful, that suggested to me that you were trying to find ways toget a diagnosis without going to a doctor. I was about 21 when I developed Peyronie's and I went to my Dad (a doctor) and he got me right in to see a urologist. The upshot was that I learned that either I would stay pretty good (I did), or I would get worse, in which case he would fix me surgically. I was depressed - but I knew what I had.

So why not go? Has it been a year since you first came here, and still no trip to the doctor?

Tim

How else can we say this?  Having someone look at this picture is NOT going to help things.  If you search Peyronies on Google or even Wikipedia, you will find pictures illustrating the effects of Peyronies.  This should tell your friend as much as anyone here could tell him by looking at his picture.  The important thing is that he get himself to a urologist who is knowledgeable about Peyronies.  The fact that he is taking a vasoconstrictor just makes this all the more important.  Yes, a vasoconstrictor would seem to be contraindicated by Peyronies.  But the ADD has to be addressed as well.  This is a MEDICAL problem which is crying out to be addressed by competent physicianS.  No one person can solve this.  It going to take a physician who understands Peyronies working together with a physician who understands ADD, unless he hits a rare situation where he encounters a physician who is competent in both (which I really doubt).  I think I know a quite a bit about herbs and supps and nutrition, but I wouldn't dare try to suggest anything in a complex case like this.  What Tim said applies to your friend just as much as it does to you.  HE NEEDS TO GET SCHEDULED TO SEE A UROLOGIST WHO CAN WORK WITH THE DOC PRESCRIBING THE ADD PRESCRIPTION TO SORT THIS OUT!  KAPEESH?  - George

Hi guys.

I am back with update of my condition..I visited another private doc this week..he was really fantastic, I have never met an urologist like him..we were talking to each other like we were friends for a long time
Btw, he wrote several articles about Peyronies Disease here in Slovakia.

So I underwent a USG of my penis and he was explaining me everything what was on the screen during the survey. It was really amazing but he told me there was no visible scar tissue on the tunica..he also told me, that it could be better seen if there was an erection, but generally there was nothing bad. Told me to come again next month and we would see then.

But all those changings of my penis I described in my first post are still present and maybe a bit worse..so I am afraid what it really is.

Now I would like to ask you, have you ever heard about any success of urinotherapy in treating Peyronies or other conditions related to penis? Yesterday I read very interesting book about this therapy and there was a little chapter about Dupuytrens Contracture and how to treat it in this way.

R3

Urinotherapy is described as ingesting or otherwise using urine to help heal what ails us. It has not been borne out as helping anything, ever.

I hope that you might have meant something other than urine...

Tim

Check out this interesting discussion on the future of eliminating scars:

http://www.acne.org/messageboard/index.php?showtopic=157005&st=20

Hey guys,
I'm 17 and I'm pretty sure I've got peyronies disease. I'm not really sure when i first had it, but its been over a year, and the mental stress I'm feeling is killing me. The idea maybe not even being able to have normal sex is just such a killer, and my future partners reaction is probably just gonna be worse.
My penis bends to the left with about a 45 degree curve.
It's really hard, being young and all (and maybe even one of the youngest), and being affected by a disease which is usually common with people around 30.
What are my best options, i don't feel I'm up to telling my parents and asking for surgery, but if i don't i would probably have to wait till I'm 18 or over and earn enough money to see a urologist.
Could anyone offer me some advice, for e.g. whether they are still able to have sex properly even with such a serious bend, or some psychological advice.
Thanks.

p.s. if you could, could you also pm your replies, because i fear i may forget to read this forum because i am so secretive of my condition and clear my browsing history.

Anonymous,

It is much better that you remember to check www.peyroniesforum.net

You can be guided by collective effort rather than 20 people duplicating info.  When we respond on forum we can build on info you already received which means you get more in-depth information.  In addition it is there to help others that read the forum.


Hawk

Anon,

If it is at ALL possible, talk to your Dad. If there is any sort of love between the two of you, his heart will break for his son and he will have a large amount of sadness and empathy for you, but he will be able to help you with the things that you do not yet know how to do (like figure out coverage under a health care plan). You may be better off getting it fixed as a congenital condition rather than as Peyronie's (and it may be congenital). It may require surgery.

So scrunch up your courage, make a time to talk with your Dad, and then tell him what is happening to you. Starting out with honesty will pay off large dividends down the road - believe me.

I know you don't want to discuss sex with your parents.  Instead realize it is a urological problem.  Maybe that will make it a little easier.

I'm with Tim.  Talk to dad.  I also agree it may be a congenital (since birth) curve.  If you have to, make up a symptom for the folks, then tell the urologist your real problem.  When you have the facts, it may be easier to talk to dad.  Honesty is always better, but I remember how I felt (and still do) about talking with family about that kind of stuff.

BTW, unless you did something extremely bizarre, masturbation did not cause this.

While I agree with the previous posters that the best course of action would be to talk to dad about this, if you absolutely can't bring yourself to do that, the alternative might be this.  Try to make up some creative, but honest as possible excuse to get an appointment with your doctor.  Explain the situation forthrightly with your doctor, and ask your doctor to explain the situation to mom and dad AND to set you up with a specialist who can help you out with this.  And remember Liam's advice.  It is EXTREMELY unlikely that ANYTHING you have done could have caused this, so don't feel like you have to make some kind of confession of guilt over it.  It is a somewhat unusual medical issue, but it is a medical issue none the less and not some sort of moral issue.  Any competent physician will treat it as a medical issue.  We wish you the best.  May God grant you wisdom in sorting all this out and in finding support in dealing with it appropriately.  - George

Anon:

If I may add my 2 cents worth to the issue. You have been given some very, very good advice on the three previous posts. You would do well to follow their lead, get the appointment with at least your family doctor. Then, explain the whole situation to him/her and ask for referral to whatever specialist he/she recommends.  I know that trying to discuss such personal matters with your father or mothe can be a traumatic experience, but DO IT SOON!

I have been in similar situations in the past, but since my father died early on in my life, I had to rely on help from other men for my personal and sexual problems.

So, bottom line, get busy and do something about this soon.

Respectfully, Old Man

QuoteIt's really hard, being young and all (and maybe even one of the youngest), and being affected by a disease which is usually common with people around 30.

Add 20 years  

Quotep.s. if you could, could you also pm your replies, because i fear i may forget to read this forum because i am so secretive of my condition and clear my browsing history.

peyroniesforum.net  -  very easy to remember.  It's a forum about Peyronie's on the net.  Great mnemonic.  

hello - I have been suffering with Peyronies Disease for a while now and lately I am on Pentox, VitE, SAN VASOFLOW (based on the good references from this forum)

I have a nother checkup with my URO soon. He ordered an ultrasound. Now, that requires an injection as far as I know? My question is does this injection have a risk of further scarring and plaque formation ? Is the risk worth the benefits ? In my mind the result of this study will not change the treatment options but I could be wrong.

I do really appreciate all the work that went into this forum and the help that is given through the good advice of the participants. Thanks

Pal,

Welcome to the forum and thanks for the kind words.  Also, thanks for registering as a member and posting.  This is all that makes the forum work.

You ask a good question.  It is so good in fact, that it has been asked by 2 other members on the forum within the last few weeks.  You will notice a number on every post right under the header.  This post is #668.  Scroll down the page of this topic to post # 625 and you will read a post by "ThisSux"  Starting there, just read the next posts by him and me on this topic.  I think we each posted about 3 times discussing this.  See if that helps.  If not just yell out and we will be here.

Welcome again.

Hawk,

Thanks for the reference. I think I don't want to risk it, so I may ask to cancel my ultra-sound at the risk of upsetting my URO. What do you think ? Thanks again

It is hard to say what I would do in your situation Pal much less to say what you should do in your situation.  I do not have a phobia of a single injection especially if a drug other than papaverine were used.  It certainly is not painful in the least.

I think I would question just what difference this test will make, how will the information be used and will it alter the recommended treatment or does it just satisfy some curiosity.  I may not use the last phrase since some Uro might take offense if he is overly sensitive, but you get the point.  My guess is that when it comes right down to it that he has no other treatment that he would offer and that you would agree to.  For instance, he may recommend surgery but if you would not consider it anyway, it is irrelevant so you gained little or nothing.  He could say he wants it for comparative purposes to compare to a later ultrasound after treatment.  Your reaction may be that the deformity is your only rule to measure progress by so changes in ultrasounds are irrelevant information when it comes to measuring progress.

I would ask the question however and give him a chance to state his reasoning as to how that ultrasound will be helpful in the process of improving the deformity.  When he was done I would either tell him that he did or did not sell you on the value vs the investment or risk.  

As opposed as I am to routine injections for ED purposes, I feel the risk from a single injection is slight.  I would guess I gave myself about 80 such injections.  He should have to make a sale on the value however and I don't know what it could be.

I will be interested in hearing the sell, your decision, and his reaction.

Dear Pal,
    I also trained as a surgeon and surgeons are trained that "if surgery won't treat it, I don't treat it."  Surgeons see the world through a mask.  To them, a chance to cut is a chance to cure.  Any disease process that has no known cause and numerous "treatments" is a goldmine for surgeons who are trained that "a chance to cut is a chance to cure."  Let them do their personal research on someone else, thank you.  I agree that any test that is done is to plan a surgical intervention.  You and he know that you have Peyronies Disease AND you and he know that you are not having surgery.  You can SEE the deformity or feel the same plaque that he can see or feel.  Doing an expensive (and debatedly harmful) test that he does not know what to do with the results is foolhardy at best.  Will he guarantee his results?  Does HE have Peyronies Disease?  MOST urologists have no clue about Peyronies Disease and its treatment.  The fact that he did not give you clear reasons for the tests means that he is STILL clueless.  One must be brutally honest with your priest, your lawyer and your doctor.  They will have to decide what to do with the information and give you good advice in YOUR best interest.  Informed Peyronies Disease patients are not easy prey for a surgeon's knife.  Until they can guarantee results in at least the 50/50 category, I say "You first, doctor."  Read and study this forum as it is the best advice and source of information out there BAR NONE.  I know, I have looked.  Good luck and keep on learning and fighting.  It is YOUR penis and no one cares for it more than you.

Dear Pal

Talk to the urologist. If he wants to gauge progress, that is a good thing. However, one could argue that one should wait longer for results (good or bad) with your regimen. That is why we don't take an xray every day with a casted broken bone just to see how it's doing.

OTOH, if you and he had decided to give it a finite amount of time (ie three months and to do an interim analysis, then inject away. Just remember that in the first cases of fibrosis being treated with Pentox, the two guys went for more than a year and one elected to go for more than two years, since progress was so slow (but it was progress!).

Remember this too - if you are actively diseased (ie getting new curvature or plaque), then surgery is not a good option for it will just come back to your recently operated upon penis. For many men, Peyronie's is a sort of one time deal - it happens and then it is stable. Those are the better surgical candidates. Until you know if you are or are not one of those guys (and that takes time) - wait.

Tim

It might be good just to have a picture of what is going on.  I haven't had an ultrasound and I'm not going out of my way to get one.  But, I think, if my doc suggested it, I might go for it.

The only reason, though, would be to satisfy my curiosity.  I would love to see what I've been feeling for years.

Both Bert and Tim offer great advice.

Dear all,

Thanks for the advice. I think I may just skip the ultrasound for this appointment and discuss it with him first since we have not had that discussion yet.

He is a good Uro and to be fair he did not even mention surgery. At any rate , I wont do surgery at all right now.

I will keep you updated with my situation and how the meds are working

Again, thank you all for the thoughtfull responses !

Pal

I haven't read many comments posted on this topic, but I thought I'd share it.  Since stopping the pentoxifylline treatment after 4 months and seeing no improvements, I lost all pleasureable sensations during orgasm.  After it happened a couple times, it was weird but thought nothing of it.  Now it has been a full 2 weeks, and I still have zero pleasureable sensations when I orgasm.  Ejaculation is fine, but I couldn't tell I finished unless I saw the "proof".  This is really freaking me out, and I find it strange to happen right after I gave up on the pentox.  It might be just a coincidence, but I'm at a total loss the cause.  Besides prolactinoma, what other physical causes could be responisible for this?  Could penile fibrosis or damage cause nerve damage, which could cause this problem?  I did loose more penile sensation during the first week I quit the pentox as well, and I doubt both are unrelated.  Does anyone know whether orgasm is influenced by penile or prostate nerves, or is orgasm completely controlled by the brain?  If it is, aside from depression or anxiety or prolactinoma, what else could cause this?  

Well, I think it is a very safe bet it has nothing to do with Pentox.  Pentox is not new and not a rare drug.  Its side effects are known and documented.  Clearly if that were a side effect that was that significant it would be very widely known. Without being too graphic, ejaculation occurs with a muscle spasm in the prostate area propelling the semen down the urethra.  It is one thing to feel reduced sensation in the penis because of impaired nerve function.  One could speculate that plaque or something was screwing up the nerves carrying the impulse, but to not feel the spasm and ejaculation deep from within seems to be a whole different issue.  

In fact, back on the first issue, if there is not the build up and transmission of intense pleasure, then what would drive the orgasm.  I am sure you can not sit and meditate an orgasm.  If you said I have a loss of sensation and have trouble reaching orgasm, I could easily understand that, but this entire thing puzzles me.

Hawk,
There is indeed pleasure driving up to the orgasm, but at the "point of no return", there is no normal pleasureable finish.  You are right, it probably is unrelated to stopping the pentox, but I thought I would just share the experience.

QuoteDoes anyone know whether orgasm is influenced by penile or prostate nerves, or is orgasm completely controlled by the brain?  If it is, aside from depression or anxiety or prolactinoma, what else could cause this?  

See a doctor.  It could be a tumor on your spine or a brain tumor.  Only one way to know.  Get my point.

First of all, I do not want to diminish the necessity of seeing a doctor and discussing this. It is imperative that this be discussed with a medical professional, which I am not. But I am a psychologist and I have heard this from people before. Intense depression can bring about anhedonia, but I would expect it to bring about a disinterest first. I took Lexapro for half a year and found my orgasms diminished, are you on an SSRI? Anti-psychotic drugs can occassionaly cause what you describe. Usually they result in erectile dysfunction first but the brain is not understood by medical science yet. There are a wide range of responses. Alcohol can induce reduced sensation during orgasm, and this is a well known fact. Do you drink regularly?
So are you on any other drugs? Discuss side effects with your doctor. If you drink regularly, try going several days without alcohol to see if there is a difference.
Though do see a doctor, while I am trying to give you more info I don't wish to detract from that urgency.

Liam, I'm definately going to another doctor to get this checked out.  I doubt I have a tumor, because I have no pain, but anythings possible.  
PJ, I havent taken any SSRIs, but I have taken them in the past, but never experienced anything like this.
Never taken anti-psychotics, and don't use alcohol or drugs.  I appreciate all the help.

Just joined - and spent the last hour plus going through the threads on the forum.  I've been diagnosed with Peyronies Disease for a year and, living in Bangkok, found two urologists who have studied with Lue and others in US.  Nothing we tried worked (Vit E and an anti-inflammatory) and was told that the next option was the Nesbitt procedure. I've been feeling a bit despondent with the diagnosis and not seeing a way forward and was desperate for RELIABLE INFORMATION.  Your forum has been a website - one which I will track regularly.  Thanks for all the work...

Welcome Brillo,

Glad you found the PDS, and glad you posted

When you say nothing we have tried has worked, does that mean, only the Vitamin E and anti-inflammatory you mention?  I personally would consider that no more than a very minimum starting point that would be the response from any doctor?


How severe is your curve ?

Hawk

Has anyone tried this?

htttp://treatpeyronies.com/







Link deactivated - Hawk

Grf,

Welcome to the forum...you'll find LOTS of good information all over here.  In fact, we've got a thread going on Verapamil https://www.peyroniesforum.net/index.php/topic,26.0.html where this device and others have been discussed in the past.  This is known as Iontophoresis.  I don't remember any recent postings regarding these devices, but if you read back in that thread, you're bound to find other's experiences.

Good luck in your research, and again, welcome to the forum.

Steve

Price $1,305.00  

QuoteDr. Carroll has kindly agreed that visitors to this website will not be charged the usual phone consultation fee of $78.
Use this unique opportunity to speak personally to Dr. Carroll for free.

Well that was nice!  

BTW,

Sawatdee Khrab Brillo.  Have in-law from Udon Thani.

NOTE: This price and the quote come from GRF's posted link two posts down
The ending line is a Thai salutation to Brillo 4 posts down who is from Bangkok
 

Thanks for welcome notes folks.  While I haven't been measured my urologist estimates the curve at about 35%.  As he has done research on Peyronies Disease in the US he had a slide show on some of the patients he's worked with - which put the fear of god into me when I saw the levels of severity.  So, since it's been a year, I've been hoping that my condition was close to being stabilized.  He reviewed the options: Vitamin E, Topical Creams (Verapamil), Intralelsional Injections (various kinds i.e. interferon) and surgery.  He didn't mention VED.  He gave me all the statistics he was aware of regarding the effectiveness of the pre-surgery treatments and stated that none were higher than 30% effective and thus didn't feel that any were worth the financial investment given that my insurance company wouldn't reimburse for any of the "investigational" treatments and all had low success rates.  Given what I've read in the Forum he doesn't seem far off base.  His recommendation is to sit tight until either new treatments are developed with a higher success rate or when intercourse is not possible or too painful.  At that point he recommends the Nesbitt procedure which he states is an outpatient procedure, high rates of improvement, and the only side effect being losing 3mm of length per some percentage of curvature.  So that's what I know and that's why I fully appreciate the forum to track  other's experiences and new information.

I think it helped me to stabilize a new wound to the penis that was starting to bend quickly, and stopped and went back to the way it was. However, it did nothing for the older areas of plaque/curvature. I did the combination of decadron and verapamil as discussed in the original literature, and then I went to higher dose verapamil that I got compounded (made up specially). That did not work either.

I have a nice cheaper unit for sale though

Also (BTW), I am a doc and we are not allowed to bill for phone calls at all. We cannot be reimbursed by third party insurers either.

Tim

Quote from: Tim468 on September 19, 2007, 08:03:07 PM
Also (BTW), I am a doc and we are not allowed to bill for phone calls at all. We cannot be reimbursed by third party insurers either.

Is that an AMA rule or what?  I curious where that "usual $78... fee" came from.  Doesn't sound like it is that "unique" after all.  

Doesn't Dr. Levine or Lue charge a phone consultation?  It seems someone posted that one of them did.

IS this a reputable site we want to promote with an internet hyperlink???

I know that we are not allowed by my employer to bill for telephone advice. It is difficult to get paid or reimbursed, and it is easy  to be found at fault on audit for doing it wrong.

Here is a statement (of sorts) regarding this from the American Academy of Pediatrics:

"In summary, the issue of reimbursement for telephone care represents a significant challenge to pediatricians. Faced with the task of meeting the expectations of parents and health plans, physicians find themselves compelled to manage complex medical problems over the telephone, dedicate practice resources, and expose themselves to liability risk with little assurances that these efforts will be compensated. Given the multitude of financial pressures that pediatricians and the health care system at large face, what is a reasonable way to proceed in resolving this issue?

"At a local level, pediatricians are encouraged to work together to gather utilization data and engage the local health plans in discussions regarding this issue. One approach may be for pediatricians who have not billed for telephone services to begin this practice by regularly documenting and billing for telephone care. This will raise awareness among payers and possibly help set the stage for negotiations for reimbursement for this important component of pediatric care.

"At the national level, the issue of reimbursement for telephone care has evolved into a policy priority for the AAP. At this year's AAP Chapter Forum, a resolution addressing adequate reimbursement for telephone care management was ranked in the top 5 (of 90 submitted by the membership) in terms of importance and worthiness of immediate attention by the AAP Board of Directors. Within the Academy, the Committee on Coding and Reimbursement and the Sections on Telephone Care and Administration and Practice Management are working to gather data and develop a strategic approach to improve reimbursement for telephone care. This may include the expansion of existing CPT codes or development of new codes that better reflect the costs and value of telephone care provided by physicians and nurses in pediatric practice. As in all health service-related funding questions, accurate data are a critical tool. Multisite practice studies examining the characteristics and financial impact of telephone care in pediatric practices are needed to support the development of payment methodologies for telephone care and inform these discussions. The Provisional Section on Telephone Care in the AAP can serve as a vehicle to gather and pool utilization data. This data will assist AAP committees and sections as they evaluate and implement strategies to improve reimbursement for telephone care."

http://pediatrics.aappublications.org/cgi/content/full/109/2/290

I paid for a telephone consultation with Dr. Levine in April or May of 07 , seems like it was about $225 for 30 minutes. It may seem crazy to do that, but I had been to 2 urologist previously and they both told me there were no treatments for Peyronie's Disease. Also, Dr. Levine recommended a young wunderkind urologist in Atlanta that I currently use.

D

Thankx for the kind welcoming remarks ... wish I wasn't here.LOL

Sounds like I may just go with Vitamin E for now.  

The deal with Dr. Carroll sounded like it was good - logically.  

Just can't find anyone with a positive experience.

Dahc,

Your not crazy, I've spent well over $1,000 on peyronies doctor visits, and treatments, and have seen three different urologists.  There are some things in life you will do anything to protect, or spend your whole savings on to save if necessary, thats normal in my opinion!

Comeback

No, doctors are not "forbidden" to charge for a phone call consultation.  Yes, a doctor would have to be a fool to do one.  My liability insurer will not cover me for stupidity such as giving advice over the phone.  Doctors can and do get sued for advice they give on the street, on the phone or over the internet.  The best specialist to be is a proctologist because no one will ask you in the middle of dinner or church to "take a look and tell me what you think."  Remember too, advice is no more valuable than what it cost.  You only get what you pay for, IF you are lucky.  Doctors "sell" information and peace of mind.  All else is window dressing.  If you want your doctor's honest time and attention, pay him.  If you want him to remember you, don't.

Tim's words got me thinking as well. not just for Peyronies Disease but also for other problems that we as men might suffer from. I can think of premature ejaculation as being another troublesome issue.

Hitman,

Since I could make no connection between your post and my review of Dr. Levine's book, I moved your post to this topic.

I just saw this message in my inbox today:

QuotePeyroniesDisease • Peyronies Plaque
Messages In This Digest (1 Message)
1.
Group will be closed/shut down From: Todd
View All Topics | Create New Topic
Message
1.
Group will be closed/shut down
Posted by: "Todd" [email protected]   plaque_is_bad
Thu Sep 27, 2007 4:56 pm (PST)
Group will be closed/shut down

Lack of activity and a lack of time on my part, this group will be
deleted on or after September 30th

Todd

I'm sure glad that we don't have a lack of activity!

Here is a link to a Webcast from AUA annual meeting. There is a 20 minute lecture from Dr. Levine about Peyronies Disease, click on the link: Non-Surgical Treatment of Peyronie's Disease. Liam, there is something I think you'll agree with about Peyronies Disease resolving spontaneously. And Tim, there seems to be some development on a Peyronies Disease questionnaire sponsored by Auxilium, should we be skeptical? Please keep working on yours Tim.

http://webcasts.prous.com/AUA2007/article.asp?AID=87&CID=YY&CLID=2

I found the links on erectile dysfunction very informative too.