Dear Hawk, dear Tim,

thanks first of all for taking the time replying to my posts. i had realized before that my posts include some contradictions. these are due to changes of knowledge, judgement and priority.

I'll try to clarify the major contradiction right away: today I do not know whether I have Peyronies Disease or not. the first time i saw a curve was after taking trazodone. however, i saw that curve afterwards too. but it's (in contradiction to what I said) minor and appears only at a certain level of bloodflow in my penis, it doesn't appear when I'm erected, neither when I'm flaccid - only in a in-between-state.
I decided for now to not focus too much on that curve, because even if it's Peyronies Disease I'm 90 % sure that it's a reaction to my ED, and not the other way around. after all, during about two years I hardly ever used my 'tool' and had almost no erections at all. I therefore decided to concentrate on my ED and in order to avoid too much confusion in my posts, I neglected having Peyronies Disease, which is neither a lie nor the whole truth.

I mentioned hardly having any erections during two years. I had given myself up, thought I'd just keep on living like that for a few more years, waiting for something to happen, and if nothing will happen, I'll just kill myself. I changed my mind, went back to internet-researching, found this forum and was amazed by the number of remedies that are said to have positive effects on bloodflow, erections etc. it's true that after trying some of them, I thought I'd see  quick improvements, I might have over-interpreted some of them, in retrospective they none of the things I tried did too much. apart from Vitamin E, I swear that it increases bloodflow in my penis within days.

as to the incident with the antibiotic, i told it exaclty as it happened - to me it looked like it blocked some bad thing out. as to the 'perfectness' of the erection I got, I was talking about fullness, and the strong need to relieve my self, sth I hadn't felt in years. BUT even then deformities were noticeable, i have lost girth at the base of my penis, making it look like this:
_
(  )    (glans)
|  |
|  |
\  /     (base)

now please don't get on me saying that calling it perfect first and not so perfect afterwards is another contradiction, the erection was the best I got in a long time and that's what I tried to focus on in my post.

to me there is no doubt about the physic nature of my ED and other weird things happening in my penis.

i hope I could clarify some thing. i will be less hysteric and more cautious in interpreting things in future. thanks for your understanding.

MMM

Quote from: meanmrmustard on May 18, 2007, 07:11:34 PM
as to the incident with the antibiotic, i told it exaclty as it happened - to me it looked like it blocked some bad thing out.

MMM,

I have no doubt that you posted it exactly as it happened.  My point is that the antibiotic you took had absolutely NO physiological impact on your erection IN THE LEAST!  It could not have blocked some "bad thing out"  This is clear because:

There is no credible evidence that Peyronies Disease is associated with Bacteria.
Even if it was, an oral antibiotic has no impact on bacteria within hours of taking it.
Even if these statement were false, killing the bacteria would not change the structures that have been causing ED
The sequence of events leading to an erection are clearly understood. Antibiotics do not impact any of these events.

So what we have, is that during the course of your day you; ate, brushed your teeth, rode in a car, took an antibiotic, watched a program on TV, talked to people, went to bed and....

You got an exceptional erection.

You somehow singled out the event of taking the antibiotic with your erection.   The antibiotic had NO association with your erection unless it had a placebo effect because you believed in the back of your mind it might have some effect.  This all indicates that your penis is very capable of an erection with or without antibiotics.  All the structures necessary for erection are present and functional.  It also indicates that your ED is likely psychologically based.  This is actually good news for you.

The only exception I can think of is:

If you have had a back injury that may be impacting a nerve trunk AND if your erection vanished within 2 minutes of you waking up.

For what it is worth, Puritan Pride http://www.puritan.com/ is having the best pricing it ever has on supplements.  Problem is, this (Sunday) is the last day of the 3 day sale.  I have never seen a competitor beat these prices and they alway test out among the best in consistent potency and being free of impurities.  

That site also has a very good nutritional guide and drug interaction section.  http://www.puritan.com/vf/healthnotes/HN_live/index.htm?Hcontent=All_Index

Excuse my ignorance, but is there a gallery featuring images of peoples curvatures? I've seen the occasional pic linked to externally, but would it not it be useful to post progress pics, or before/after style pics? If no-one is interested, I would at least urge people to document progress for themselves so that is easier to tell if actual progress is occuring or not. I have taken a few pics and am hoping/praying that in a years time I will have updated images that show a marked improvement in my condition.

Not many men feel comfortable with this.  There are some who have photographed the curve for a doc.  

Here are some links I posted recently.

https://www.peyroniesforum.net/index.php/topic,70.msg9477.html#msg9477

Try using the search tab above between help and admin.  It is pretty powerful and will hook you up with some other links.

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Its like body modification without paying for it


AND..............................

Its always about the drugs.

AND..............................

Terror is such a bloody terrible word.  Ivan was terrible.  
Calamity has a nice ring.  Calamity Jane was a folk hero.

QuoteAge - 18

Age at onset of Peyronies Disease - Also 18, its not been a great year so far  

Very First Symptoms -pain in erections and then the lumps and the interesting new direction my penis decided to take in life

My Peyronies Disease progression, Treatments (in order), Doctors, Psychological Stages, observable changes - things getting worse, Uro was useless, only Vit E at the moment, no effect whatsoever, so.... my psychologist, fearing for my mental state wants to take me back to another uro, try other treatments. Have been a nutcase for several years anyway, severely exascerbated by recent onset of 'oh F^@% my johnsons stopped working' disease. So now, highly mentally unstable with a broken penis, still get erections though, although, what with the pain thats not really very helpful.

Where I am today, future plans - Today, im actually in my house, doing nothing, very limited future plans outside of drink myself to madness. Just generally go round causing terror. oh I should be somewhat better with my anti-depressants though

WELCOME ARNDAY  (if I were Barney I'd say welcome Arnj)

GUYS 23 hourglass sometimes when flaccid, worried of a bend forming what drugs should i take, or creams, or vitamens .......should i see a uro first? dont really have the $

See a Urologist.  Self diagnosis is dangerous.

Good Luck!

hey guys found a specialist in chicago where i live, one of the best i guess for peryonies he even does surgeys...anyway i dont have insurance and before your 1st consultation u need to get a penile duplex ultrasound... im just wondering how much you guys think this app will cost me

Go straight to the source.

He'll give you an answer you'll endorse.

People yakity-yak a streak and waste your time of day.


You young whipper snappers have a way of typing thats a strain on my eyeses.  I think spelling doesn't matter and punctuation is an option.  Please remember your audience is over 40 (many much over), with family and jobs.  The time we devote to this is precious.  Use a period every now and then and throw in some caps.  Please help us help you.

Wanksta,

I have a question for you.  You said

Quote"He is one of the best I guess.  He even does surgery."

Lots of butchers do surgery and have permanently ruined lots of people, so that is no basis for assuming someone is "one of the best".  This doctor may indeed be the best in the world but I am interested in how you know that.  Also, there is no way we could guess their specific charge without insurance.  I think a phone call to them would give you a very accurate answer.

After reading your first post, I have the opinion you should go to a family doctor, or a free clinic.  Let them tell you if you have something that needs a urologist before you spend too much money.  Your symptoms do not make me think of Peyronies Disease.

Sorry for the bad typing guys. I just called the Uro's office and asked about his qualifications, and hes been working with Peryonies since 1991 and is considered 1 of maybe 3 actual Peryonies specialist in the Country, and was named best doctor in the country a few times. His name is Dr.Levine in Chicago.It was 500$ for the ultrasound before the consultation, and like 75 for the consultation. So im not going to get the ultrasound

Wanksta,

I was hoping that Dr. Levine was the doctor you were in reference to.  He is in fact one of the most informed on the subject of Peyronies Disease in the country.  

Quote from: wanksta1 on May 28, 2007, 01:24:10 PM
GUYS 23 hourglass sometimes when flaccid, worried of a bend forming what drugs should i take, or creams, or vitamens .......should i see a uro first? dont really have the $

See a family doc.  I am sure it will be less than Dr. Levine.  You need to let someone who has at least some knowlege determine if you have Peyronies Disease.  What can it hurt?   An hourglass appearance sometimes is not necessarily indication of Peyronies Disease.

Write down all (I mean all) of your symptoms (or any change).  Discuss this with the doctor.  If you are a student, the university often has a clinic which is free for students.  You are making the jump from vaguely similar symptoms to going to see the leading urologist in the field too quickly.  I can only tell you what I'd do in your situation.

Good Luck!

Thanks for the typing!!!

well thanks for responding guys its really great to be able to talk about this. Liam i saw a doctor and he looked at me and did a physical exam using his fingers for about 2 min, and said he thinks im healthy and it was a normal exam, and said the hourglass shape which ive had for around 4 or 5 years now might be small tears or scars but doesnt think its peryonies. After the exam i just didnt feel satisfied because everyone on here says that doctors dont know anything about this condition and you have to see a Uro to be sure.

It is true that many Urologist are not as well read as they could be about Peyronies Disease.  Just be aware you are reading a forum full of men who have varying degrees of curve and plaque.  Many have pain and many more have ED.  We openly complain about how little is known about this disease.  There is one thing I will say.  Its a case of "when you got it, you know it".  And based on what you said here and what your doctor said, you are lucky enough not to have it.  The odds are you never will.  I hope this puts your mind at rest.

Most (very, very, very, high percentage) men with Peyronies Disease have a curve and (and/or) plaque (I believe 100% have fibosis or plaque but thats a different discussion).  You have neither.

PARTY TIME!!!!!!!

Just as a note to members and guest, it is OK to trust your doctor.  Never think this forum, as a group, has anything less than high respect for our medical professionals.  Having said that, its always a good idea to understand what is happening to your own body.  This is done through real research and study.  This forum is great.  It should lead you to do research and study.  We also reprint studies done, from time to time.  However, never take anything you read on this forum, or anywhere, as having more validity than what your doctor says.  You have to weigh statements based on facts.  This includes things I say.  Your doctor can see you and do tests and ask questions.  We can't.

Wanksta,

I am glad Liam stated so well what needs to be occasionally stated.  Most of us are older and have been through many conditions with both ourselves and love ones.  Most of us take an active role with our own health care.  Focusing on a personal medical condition for weeks as an informed patient means we often find things a physician missed during his 20 minutes of analysis.   In almost every case however, we miss several things they consider, and they respond to the things we point out.  That is why it is a team effort.  

If you considered and present a case for a Peyronies Disease diagnoses and he considered it, in the absence of obvious manifestations of the disease, I think you can relax.

There is not enough time or space here to list the outstanding performance we have often seen from the medical community so we often focus on the areas that need some improvement.

Well i agree with you guys, i tend to not trust doctors or believe them and find myself searching the internet to find more things wrong with me. Im going to trust my doctor until i see otherwise. Thanks for thoughts its really comforting to know theres people in the world who are willing to listen and help without even knowing the person. Wish you all the best

Glad we were able to offer support.  

QuoteIm going to trust my doctor until i see otherwise.

Good advice!

Liam

Just my two cents...

I'd think about finding a way to pay for an ultrasound (or I would ask if he would be willing to see you without it) and then I would pay the 75 for a visit (that sounds too cheap to me - was it 750?)(which sounds too high...).

I think that if you have early disease that you might benefit from an informed opinion, since you might be better able to actually heal from an early problem compared to a later in it's course problem.

Finally, ANY problem that changes the resting or erect shape of the penis requires investigation.

Tim

I agree we should actively pursue a diagnosis that is conclusive.  If a condition is perceived with uncertainty and has not changed in 6 years, then a physical examination by a medical doctor reveals no abnormalities, how conclusive do you need to be?

Peace of mind is priceless, agreed.  But......

Better safe than sorry springs to mind.  Oops, gotta go get screened for bubonic plague  

Liam

Liam, I disagree with you on this one.

We have heard again and again about brush-offs from doctors who are intellectually too lazy to really take a history, or to do more than a cursory examination, or who give bad or out-of-date advice. Again and again we hear about this.

If a man has a condition and it has not been diagnosed, then he needs to seek help until he gets a diagnosis, IMHO.

I see patients with lung disease. I cannot count the number of times that patients have presented to their doctor with a cough, been treated for asthma, and then not gotten better. And then the most amazing thing happens. Their doctor gives up. He or she says something like: "Well, it isn't getting better - you have to live with it", or "Keep on using the albuterol - it should help", or "How bad is that cough, really?"

IOW, the doctors check out of the intellectual process of problem solving because it gets hard.

It's frigging unbelievable...

The only thing I do differently is switch gears a bit and say "If that drug did not work, why not?" - and then go on to test my hypothesis (ie wrong drug, too low a dose, wrong diagnosis, etc).

In Peyronies Disease, what I see is a tendency for a doc to palpate briefly, and if it "feels normal" to state that it is normal - simply because he can't feel the problem!!! If the problem falls even slightly outside the realm of "usual", they check out in their thinking and seem to default to "nervous patient who needs reassurance" instead of "Hmmm - if I can't feel it, then what is it?".

I am making a few assumptions here for I truly do not know what goes on inside the brain of a doc who simply stops thinking. But I have seen evidence of this so many times as to be certain that this limitation in thinking/behavior exists.

I am not sure I have all the details of "wanksta's" [koff koff] condition straight, but I think that if his penis looks different than it "should" look (or more precisely, used to look), then he ought to go to a doc to find out what it is. If a doc is going to call it normal, then he has to come up with an explanation for why it looks different or he is not doing his job.

Tim

Well said Tim,

I think I agree.  It all comes down to the skill of the physician and the level of involvement in the patient.  I have a GP who is very thorough.  He found my prostate cancer when another doctor had said, "Its a little large nothing to worry about."  I am more trusting with him.

Another doctor diagnosed my frozen shoulder as "your getting older...we'll try a little physical therapy"

I was lucky with the prostate cancer.  With the frozen shoulder, I took the lead because the level of discomfort was too great and I had done my homework.  I found a new doctor who listened.

When I was diagnosed with Peyronies Disease, I had zero doubt something was wrong.  If a doc tried to dismiss me, I would have gone to another doctor.

On this particular case, I suggested trusting the doctor because our friend 1) was not clear about symptoms which were at best atypical 2) had experienced no change, no new symptoms, etc. in several years since a painful experience masturbating at age thirteen 3) had a physical exam (2.5 min palpating a penis seems too thorough to me   ).  There has to be a point when a person says I'm satisfied.  Its time to move on.

I do hope that everyone (including myself) pays attention to this exchange.  Do not let a doctor (or anyone, for that matter) convince you of something you know can't be right.  However, consider how sure you are that something is really wrong.  Many a medical student has developed symptoms to some strange diseases just by reading about them.  And, these are some otherwise "smart cookies".  I guess trusting a diagnosis is like jury instructions, "Beyond a Reasonable Doubt".

BTW, I know Tim has been on this board a long time and he knows my posts.  I worry that someone new might think I was being a jerk.  I tease all the time.  Sometimes I seem like a smarta** and I guess I am.  But, I think Tim is  a GREAT guy.  I would choose him as my doctor if he were in my home town and would be honored to have him as a friend.  Imagine, a doctor who believes his patients and is diligent in diagnosing and treating.  What a concept!

I also feel, after we have exchanged posts, I walk away with new insights.  Thats what this forum is about.  Thanks Tim!!!

hey guys its me again, the reason for my worrying is because ive been having alot more sex recently and dont want anything to change that. I went on the internet and looked up peryonies again, this is the second time in 3 years ive looked this up in the web. 3 years ago the uro i went to didnt find anything but told me to use MSM cream, which i never bought.
Here are my symptoms
--hourglass shape sometimes usally when im nervous or cold or after(kinda weird) diarreha
no change for about 5 years or so
when erect i can see a bump on the side of my shaft soft like a vein but bigger going about a quarter of the way around my shaft
--little tiny bumps on the shaft most are hair folicls but some go higher like a string of them up the shaft, some are hard
--recently i have noticed when i wake up in the middle of the night to go to the bathroom my penis bends alittle like a bananna, seen this 3 times now twice to the left once to the right. I can shake it right out when peeing to being straight.

Still no problem with straight erections. Also my penis has never been relaxed when flaccid ever since i was around 7, always been really uncomfortable

                       

What did the urologist say MSM creme was for?

im sorry it wasnt msm, it was like veri something cant remember sorry

verapamil?

"had a physical exam (2.5 min palpating a penis seems too thorough to me    There has to be a point when a person says I'm satisfied."

Usually, with a little work, I can be satisfied in 2.5 minutes, but I like that it takes longer than that usually!


Wanksta - I do not have a clue what it is that is going on with your penis. However, I had some thoughts.

If I had to guess, I would think that you have fairly high adrenalin levels (increased stress) and that you penis likes to retract for that reason (like it does when it is cold). A way to see alternatives is A) how is it in the warmth of summer, B) how is it after a relaxing bath or after masturbation or sex. If it "hangs loose" at times, then probably it is simply a matter of increased adrenergic tone - you might think about relaxation techniques.

If it never loosens up and is always uptight and outa sight, then it may simply be that your tunica prefers to contract down when not engaged in expanding with an erection.

The curve to the right OR left suggests a slight difference in relaxation and engorgement rates of left to right when you are getting an erection.

In no event does it seem that you have a problem when fully erect, so you do not seem to have Peyronies.

Just my two cents worth.

Tim

I found this article from the Journal of Urology again.  It is from 2005.  The information is still good.  


http://www.urotoday.com/prod/pdf/reviews/BJU1_apr2005.pdf

Excerpt:

QuoteOf concern is the belief by some that even the
most recent data underestimate the true
prevalence of Peyronies Disease. Men might be reluctant
to report a condition that they consider
embarrassing, and older men might often
accept their symptoms as insignificant
consequences of ageing. Many physicians
agree that the true prevalence of Peyronies Disease has
become more apparent since the advent of
oral sildenafil, which has seen a marked
improvement in community awareness of
erectile dysfunction [1].
Unfortunately, the quality of epidemiological
data on Peyronies Disease remains erratic, with one
contributing factor being the various criteria
used by researchers to define the condition.
The most accepted objective measures include
the number, size and location of plaques,
as well as induration and curvature.
Nevertheless, epidemiological data have been
used to propose risk factors associated with
Peyronies Disease. Hypertension, smoking, diabetes and
hyperlipidaemia have all been suggested as
risk factors, but these are more likely to be
related to erectile dysfunction in general, and
current research has shown no substantial
relationship between these factors and the
severity of penile curvature [3].

Read the whole thing

Here is a new publication - the upshot is that younger men present sooner in their diseae process than older guys. I believe this is due to more frequent sexual activity, and less ability to roll with the punches (or to wait and hope it will get better on it's own, as older men are want to do). Also, younger men may have more comorbidities like diabetes. I think this is a real association and not due to, as the previous reference suggests, " more likely to be related to erectile dysfunction in general, and current research has shown no substantial relationship between these factors and the severity of penile curvature..."

Although the severity is not due to commorbidities like diabetes, the presence of Peyronies Disease is definitely more related to such things (ie diabetes). Therefore, I strongly suggest a thorough health evaluation for atherosclerosis and diabetes is you develop Peyronies Disease at any age, but particularly if you are under 40. (Yup - that was their cutoff for young).

Tim


U Deveci S.  Hopps CV.  O'Brien K.  Parker M.  Guhring P.  Mulhall
 JP.
IN Department of Urology, Weill Medical College of Cornell
 University, New York Presbyterian Hospital, New York, NY, USA.
TI Defining the clinical characteristics of Peyronie's disease in
 young men.
SO Journal of Sexual Medicine.  4(2):485-90, 2007 Mar.
AB INTRODUCTION: Peyronie's disease (Peyronies Disease) is usually seen in men in
 their fifth decade of life. AIM: In this study, we investigated the
 characteristics of the disease in young men. MAIN OUTCOME MEASURES:
 The demographics, clinical features, and associated comorbidities of
 the patients with Peyronies Disease were retrospectively reviewed. METHODS: The
 findings were compared between men with the disease who were under
 40 years of age with those over 40 years. Statistical analyses were
 conducted to define differentiating features between these two
 groups. RESULTS: Of the 296 patients, 32 were under the age of 40
 years and 264 over 40 years. The mean duration of the disease was 2
 +/- 4 and 6 +/- 8 months in the respective age groups. Fifty-six
 percent of the patients under the age of 40 years and 75% of the
 patients over this age presented with curvature (P < 0.01).
 Thirty-seven percent under 40 years and 12% men over 40 years had
 more than one plaque at presentation (P < 0.01). Dupuytren's
 contracture was seen only in patients over 40 years of age. Pain at
 presentation was found in 75% under the age of 40 years and in 65%
 over 40 years (P = 0.03). Trauma history was found in 18% under 40
 years and in 5% over this age (P < 0.01). Statistical significant
 differences were found between the groups under and over the age of
 40 years for hypertension (P < 0.01) and dyslipidemia (P < 0.01).
 Diabetes was noted in 50% of the patients under the age of 40 years
 and in 18% of the patients over this age (P < 0.001). Multivariate
 analysis of conditions associated in men with Peyronies Disease under 40 years of
 age showed statistical significant differences for diabetes (P =
 0.015), presentation within 6 months (P = 0.004), and having
 multiple plaques (P = 0.008). CONCLUSIONS: Young men with Peyronies Disease are
 more likely to present at an earlier stage of the disease, to have
 diabetes, and to have more than one plaque at the time of
 presentation.
PT Journal Article.

Quote from: Tim468 on June 01, 2007, 04:39:17 PMThe curve to the right OR left suggests a slight difference in relaxation and engorgement rates of left to right when you are getting an erection.

good to hear an alternative to the common curve=Peyronies Disease diction. i also experience slight curvatuare during a stage in the process of getting an erection w/o having palpable plaque and w/o having a curve when erect

They are always there during erection with Peyronies Disease.  They are there when flaccid.  They're just not as noticeable.  

If it comes and goes, its not Peyronies Disease  .

ya my penis looks most normal when either becoming erect or erect, it only really gets the hourglass shape (which can be severe) is when i have really bad anxiety or sometimes after sex, and all it takes to make it go away is either to urinate or massage the bloodflow.....i know this all sounds strange guys.
The really bad thing is its been controling my thoughts and feelings for the last 3 weeks, i have a terror feeling whenever i look down there and see that, and its bring whatever anxiety i use to have in the past, (which was really bad) some back worse right now.....lifes great sometimes

Wanksta,  My observation has been that hourglass shape is very common in semi-errect penises and is nothing to be concerned about.  I have experienced it for years before I ever had Peyronies and I am sure it had nothing to do with getting Peyronies.  I really wouldn't worry about it at all.  Its completely normal.  I would be far more concerned about getting my anxiety under control.  Part of that is getting information, which is what is happening here.  But part of it also might be to discuss it with a medical professional.  Also, a good diet and LOTS of aerobic exercise can do wonders in terms of anxiety.  Taking aloe vera softgels got rid of my anxiety problem.  But each case is different.  I really doubt that you have Peyronies.  What you are describing just doesn't sound like Peyronies at all to me.  Also, if you are having indiscriminate sex with multiple partners, you are putting yourself at risk for things far more serious than Peyronies, you have reason for anxiety and you should be dealing with your irresponsible behavior.  

...how did you guys know you had peryonies?is it something that you cant really miss? is it a hard lump soft lump? can you have peryonies without a curve?

the hourglass-shape is an indication of reduced blood-flow in the penis, isn't it? even if that has no consequences on 99,9 % of penises, isn't it possible that it favors Peyronies Disease or other developements that lead to a unhealthy penis?

as for me, I experienced the hourglass about the same time my ED problems came on

Response to MMM - The ONLY time the 'hourglass' is a concern is when it occurs when you are fully erect.  As for the 'lack of blood flow issue', I think this horse has been beaten for a long time on this forum, but I personally doubt that it has much to do with the onset of Peyronies.  In the first place, the kind of blood flow issues that would be involved with Peyronies would not be visible to the casual observer and certainly would not take the form of the hourglass phenomenon.  ANYONE with a near normal erection who is worried about this issue is really wasting their time worrying.  Sure, you can have this manifestation and later develop Peyronies.  But that does't indicate that it caused or was even part of the cause of the Peyronies.  I am sure that a lot of people experience this and NEVER EVER develop Peyronies.

To Everyone (if the shoe fits, so to speak) - So IF YOU HAVE A NEAR NORMAL ERECTION you all can worry about these things if you like, but you are just wasting your time and trying to invent a disease to justify your presence here.  Sorry to sound so harsh, and if someone else here is able to help you, that would be great, but I think you are looking for help in the wrong place.  So, go see a urologist.  And if you don't like what he says, get a second opinion.  But if the two agree, do yourself a favor and put Peyronies out of your mind and either rejoice that all is well or see another type of specialist who is better equipped to help you with your problem.  IF YOU HAVE PEYRONIES, YOU WILL EXPERIENCE NOTICEABLE DEFORMITY IN YOUR ERECTIONS AND YOU WILL BE ABLE TO FIND HELP FOR THAT RIGHT HERE.

(modified 06-17-07 by George in attempt to add clarity)

Any significant level of Peyronies is difficult to miss.  It typically manifests itself as a pronounced deformity of the erect penis.  That deformity may change gradually over time, but if your penis bends in one direction one night and in the other two weeks later, you probably don't have Peyronies.  Slight bends in the erect penis are fairly common and usually normal.  Unless I have a fairly significant bend, hourglass, or loss of length and/or girth when COMPLETELY ERECT, I would not be too concerned.  As one who has been diagnosed with Peyronies by a trained and licensed urologist, those are my observations.

When you get it there is no doubt!  My first "noticed" symptom were two small "nodules".  I now have an up and to the left curve and plaque on the majority (>60 % of dorsal side) of my penis.  The "hourglass" that counts is when its erect.  The only thing I would add to George's list of symptoms is the plaque (nodules) although some on the forum don't seem to be able to find them.  Most with Peyronies Disease are very (often painfully) aware of the plaque.

Also, the order of appearance is plaque, curve and/or hourglass, then ED.  Sometimes I think the curve is noticed before the plaque.  The ED never comes first, at least related to Peyronies Disease.  I mean someone could have ED and then develop Peyronies Disease.  But, ED doesn't show up as the first symptom of Peyronies Disease.

Guys, at the risk of being blunt, a flaccid penis will change shape continuously for no apparant reason.  Thats just the way they are made.  So called "hourglass while flaccid" is perfectly normal.

Quote from: George999 on June 06, 2007, 03:52:49 PMI think you are looking for help in the wrong place.  So, go see a urologist.  And if you don't like what he says, get a second opinion.  But if the two agree, do yourself a favor and put Peyronies out of your mind and either rejoice that all is well or see another type of specialist who is better equipped to help you with your problem.

I already have put Peyronies Disease out of my mind, however that doesn't change the fact that I can learn a thing or two here

MMM:

At least, you will have some idea of what to look for and what not to look for, huh? You are right, the informed person is armed with knowledge to combat most any situation.

Old Man

Why would anyone want to spend time on this forum that doesn't have Peyronie's or have a loved one with Peyronie's?  

came for Peyronies Disease info, stayed for ed info (supplements and stuff)

Hello Mustard,  Actually, I was responding to Wanksta.  I really see your situation differently.  If you really are having increased bending when fully erect, that certainly sounds like Peyronies to me.  I think it is important to note that it is possible to have Peyronies without having palpable plaques and I think a lot of urologists are simply not aware of that.  Usually, if they can't feel plaques, they conclude it is not Peyronies.  But the tunica can become abnormally thickened creating distortion without creating palpable plaques. So, in your case, I would not conclude that what you are experiencing is not Peyronies.  -George

Guys,  we all have done it but lets not neglect clear Subject lines.

If we are posting in reply to Zorro who cut his penis off and wants advice on reattaching it, our subject line on our post should look like this -

SUBJECT: Re: Zorro - Reattaching Penis

In the above instance it shows who our post is directed to, and the topic.  If your post is not directed to anyone in particular, then just include the topic since that is all that is needed.

Thanks!  I will butt out now.

I'm new to this forum as of today, but not new to Peyronie's.  I came up with the symptoms in late 2004 and it progressed from there.  Small plaque on the top with inflammation and pain, then bending to the left and now reduced penile size with some hourglass effect.  I can still get and maintain an erection at the moment though but who knows what to expect in the future.  I'm 57 now, so I guess I've taken it better than maybe someone who is younger.  When i came down with the disease, I visited a urologist who diagnosed it and prescribed vitamin E 400 IU.  I researched on the internet and began taking 2 grams daily of acytl-l carnitine.  I've always taken fish oil tabs and other antioxidants.  I subsequently have seen two other urologists.  The first increased my E intake to 800 IU.  The second told me that what I have is what I will end up with.  My research shows that he may be wrong, it could go to ET.  I hope not, but all I can do is take whatever measures I can to try to prevent that.  Here is the kicker.  I also have dupuytren's disease in my hand and plantar fibromatosis in my feet.  I've always been a long-distance runner and was about 3 weeks away from completing training for a half marathon when I developed pain in my left instep.  Walla.....found the bump which I had never noticed previously and the podiatrist diagnosed it as plantar's.  By what I read, they are all related.  I never give up on these things and I'm glad I found this forum.  Being up-to-date on anything is really important and it seems you guys are.  Other things I have taken....Nattokinase, Serrapeptase and Fibrozym.  Didn't really see much of a difference with those....but who knows.....maybe they have helped prevent it getting worse.  My urologists all told me to have sex and keep it stretched...as someone else said on one of the posts here.  Who knows?  Maybe it does help.  But I would think that holding down the inflammations would be a good step...one which I have tried to work on.  My best wishes to all of you.  I know the mental side of this and it is like any other loss....we have to go through all the stages or mourning.  As I said, I am going to be happy to be a participant here.

Hi Califman
Interesting you should mention your foot. I have recently developed a lump on my Achillies tendon which I believe is fibrous tissue. Maybe this  is connected with my Peyronies Disease too.
Regards,
Percival

Thanks Hawk for that reminder.  I have gone back and modified a subject line of one post and the text of another to try to make them more clear.

There are links between the various forms of fibrosis.  There are also links between Peyronies / Plantar problems AND beta blocker drugs commonly prescribed for hypertension and heart problems.  Beta blockers alter certain inflammatory responses by artificially redirecting blood flow along with other effects and are suspected of instigating certain fibrotic conditions as a result.  But this is so low on the pharmacological radar screen that it is not listed as a potential side effect.