I was 67 when diagnosed with Peyronies. My insurance (Medicare & TriCare) would not pay for Xiaflex injections. I have VA care, & they do pay for injections as well as for a traction device. I got a single injection at the VA and experienced an apparent allergic reaction. Very swollen scrotum and my penis literally disappeared into the swollen tissues. It was difficult to pull out the head to urinate. Swelling lasted a week to 10 days, with my swollen sack turning black & blue before the swelling eventually subsided. My female PA at the VA contacted the manufacturer and they confirmed that it's rare for a patient to have such an allergic reaction, but that I was apparently in that category. So, my civilian urologist suggested surgery as an option, and I said "absolutely not." My wife and I have only had intercourse about 5 times in the last 10 years, and none in the last 4 years. Yep, woe is me. She is uninterested in sex, and I have no clue how my new disease would affect her pleasure (or lack thereof), since we haven't had relations since this condition occurred. I have about an 80-85 degree upward curve, and have lost 1-2 inches (length). I can still get rock hard, without pain, only very slight discomfort. However, I can only achieve sexual release via masturbation. I sometimes wonder if the curve would provide pleasure to a woman's g-spot, and the female VA PA said that it's quite possible. But, unless my wife submits to my advances, I'll never know. There are many more pleasures in life than sex, and I refuse to get angry or depressed about it. It's just where I'm at in this stage of life. This is my story.

It is just shockwave technology with a new face and design. The original shockwave therapy was very costly and did not prove to correct or heal peyronies disease at all. Although Dr's made a lot of $$$$ off of it.

Peyronie IS a niche where most urologist lack training.
But anyway, this was not the goal of the post
Hope to hear any stories from other members using AI.

How could you be sure that this wasn't related? I mean, clamping a penis, stretching it and bending it.........isn't it logical that there is the potential for harm and that urethral stricture or any urethra injury is plausible? I'll see how things are without the restorex and might be able to form some conclusion in a week or so.

You wouldn't get issues with your urethra because of this device. Not to say that there isn't a possibility of an injury, but never heard anything about this nor read on the device manual or even Dr. Trost's/pathright medical youtube channel.

Lot's of things can cause ejaculation issues... self-diagnosing is not a good thing, more often than not.

Better than a general urologist.... maybe in certain topics which are considered more niche where they might lack the training. On specific issues like peyronies..... i don't think so.

Thought I'd get as much lead time on this as possible and bought the restorex and 5mg Cialis daily.
Really unconvinced with the restorex-I mean without Peyronies Disease, surely a urologist would warn against this kind of thing-especially the bending.
I've got to position 3 and whilst it's uncomfortable, the pain improves. BUT, I've developed ejaculation issues which I can only attribute to this device. I've read up on utheral stricture which basically is narrowing of the urethra due to trauma and may cause scarring. That would make sense i suppose so I'm taking a break and following up with the manufacturer's

I checked the Coloplast site and a Dr I saw 4 years ago at the onset of my symptoms is on their list.  He's in Denver, trained at the Mayo Clinic and the Cleveland Clinic.  I'm going to contact his office to see what his experience is in terms of how many he does in a year.  If it sounds promising, that would be good.  That's an hour and a half drive.  Also,  I've started to look at Dr Lentz.

Quote from: PleaseFindACure on November 28, 2025, 09:52:22 AMI had the same LLM give exactly the opposite advice on one Supplement in two chats. I think it is nice for inspiration, but I am always checking with my doctor.

Indeed it's not to follow blindly.
The good advice for me was about NSAIDs and not to constantly check and  test. Also food advice to calm inflammation is usable.

In my initial episode doctors adviced on having sex during the peak of the active phase. That was terrible advice. If then someone (or something) would have clearly explained what is physically happening and to let it rest for weeks and try to calm the inflammation, this would have been useful. Hate to say that in general LLMs are better at peyronie than a general urologist.

You're lucky you have a good doctor.

I had the same LLM give exactly the opposite advice on one Supplement in two chats. I think it is nice for inspiration, but I am always checking with my doctor.