Peyronies Society Forums
Other Peyronies Disease Discussion Boards
Our Histories - Meet the forum members and read our stories
Welcome to the Peyronies Forum
0 Members and 1 Guest are viewing this topic.
December 09, 2016, 12:46:51 PM
Hello, this is mi story:
I noticed a lump on my penis. At the beginning it was only a lump, but a couple of weeks later I started to feel pain during erections, so I went to an urologist. He said I had Peyronie's disease and he gave me vitamin-E 400x2 (and enantium for the pain), and ordered me to make an ultrasound. The ultrasound revealed calcified plaques and the urologist said to keep on with the vitamin-E and come back after 3 months.
Soon after I started to feel a new lump and small deviation of the penis, and still pain during erections even though the enantium I was taking, so I went back to the urologist, who said that this was normal in this disease and told me to take it easy and keep on with the vitamin.
I decided to visit another urologist to have a different point of view, and he told me the same: vitamin E + wait and see. I was trying to be objective and confident to the doctors, but inside me something was telling me that vitamin E was doing nothing and I decided to find a third urologist. This one also told me to take vitamin E, so I thought: "well it seems that is the only way" and feeling worst day by day.
After a couple of months the lumps were bigger, and I developed new ones. The curvature increased and started to annoy me very much. I was very worried thinking 24 hours a day: "what's going to happen? When will this stop? Will I be able to have sex? How will be my life? Why me?...".
I went for a new ultrasound that revealed that the calcifications had grown and there were new ones. After that I went back to the first urologist (who had a lot of prestige in my town) and I told him that my condition was getting worst and worst, and that I was not happy with the results of taking only vitamin E, and that my wife (who was so supportive) had find on the internet about the existence of a new drug called "
". But he told me that xiaflex was not good for my case, and he prescribed me Cialis and to continue with vitamin E. We have to wait until it´s stabilized to perform then surgery if needed. He even said "don't worry, if you develop
I will implant you a
like this" (showing me one). He said he was the Spanish doctor who had implanted more prosthesis in the whole country.... (I was about to cry...)
I left the doctor's consultation thinking about running out there and never go back. Don't forget his name: Mariano Rossello. He claimed to be expert in
, but I started to look for information on the internet about the disease and I started to discover how wrong he was.
I read the European Association of Urology and the American Urological Association guidelines to check for treatments, and then I discovered this forum. I had very little time and my English is not so good, so it took me too much time to have all the information I needed, but when I got it, and with the advice of some Spanish members of the forum (thank you guys!) I decided to visit two real expert doctors, and I finally got a xiaflex cycle with Dr Martinez-Salamanca in Madrid.
You can see the final results on this link:
FORUM XIAFLEX RESULTS (Results only, not a discussion board) - Peyronies Society Forums
Before finding this last urologist I felt desperate for the uncertainty, depressed... Now I feel much better, specially on the psychological part, more confident.
Sometimes I regret about the time I lost on the
phase, thinking what could be my condition now if I had gone to a good specialist from the beginning. But I try not to think too much of it, I'm accepting the way my penis is now (not the same as before, but still ok). I can have sex with my wife, and I'm not worried about the future.
I would like to thank all the members of this forum for the help they bring and the knowledge they share , and I will be glad to help other people if they need me via PM, (even though I don't enter the forum daily).
Terms and Rules
Go Up ▲
SMF 2.1.4 © 2023
ProCurve Theme Made By : TwitchisMental