new member... old story

[actionnotsorrow]

Hi there folks. I'm erm, me. I have had (this is starting to sound like an AA meeting) peyronies since I was 12. Yep, you read that correct, twelve. I also know how it happened, fell awkwardly off my bike... ouch. The doctors xrayed my head but being a shy guy ( still am, can't imagine why) I never ever mentioned 'this' problem which became apparent within days to anyone until about 25 years later when I finally started dating seriously (told you I was a shy guy )

I told my doctor who agreed to refer me to a urologist and I attended an initial appointment. However I baulked at the suggestion by him of having a injection induced erection so he could assess the true degree of curvature ( about 55 degrees ). I also missed my second appointment. Truely it's a curse being shy, and I mean genuinely shy, not the regular minor embarrassment that most people feel, but the run out the door and not looking back because a girl talks to you, type stupid shy. Perhaps a psychologist would argue that it's shyness not peyronies that is my greatest disability when it comes to sex, but that's probably not a subject for these boards.

Anyway, I did nothing more about it, the peyronies (or the shyness) and my sex life remained a flop (excuse me for using humor - it is at least directed at me, and it's a coping mechanism) . Fast forward another 10 years. One more serious relationship with almost no intercourse at all which proved perhaps more upsetting to my girlfriend than me as I had become resigned to my fate.

But now a new relationship beckons. I haven't mentioned either Peyronies Disease or the ED which has crept upon me to the new love of my life and though I know it's deceitful, I really don't want to. I'm taking a wild chance I know, but I'm wishing upon a star. Hoping that a new regime I started two months ago might reduce my Peyronies Disease enough, and if natural supplements fail, then prescription meds to help my ED. So I am surfing for ideas, and ended up on this site, and after reading a page or two the persistent nagging to register has worked.

I've spotted that one of my ideas isn't new but already in use by members; combination stretching and VED. When I can figure out how to jig it, I want to try combining both together, i.e. vacuum while stretching. I figure this might work better than the other protocols because it is only when erect that the penis shows any curvature therefore simply stretching it while flaccid probably isn't gonna hit the spot. As to the various additional supplements I've seen mentioned here, that depends on time and money. I did try vit E years ago but with no effect seen at all. I'm one of the unfortunates who don't tolerate drugs like  Cialis, so thats one avenue I'll not investigate further. I started taking CoQ10 for general health reasons a year ago, but not seen any effect on Peyronies Disease, but then I didn't know there was any possible benefit in that department. I'm mindful of synergistic combination of supplements so will shortly review reported benefits and will load my medicine cabinet accordingly. Though whether that results in me just having more expensive pee as the saying goes, who knows. I will report any definite improvements, and I thank you all in advance for suggestions, encouragement and your welcomes.

sincerely yours,
a.n fellow sufferer.

P.S. I tried putting 'Vulcan' but it wouldn't let me.
P.P.S Never knew till recently that President Clinton was also similarly afflicted.  

[NeoV]

Welcome! I like your name "actionnotsorrow"

I also had two bike falls which may have accelerated my case when I was young. 12 is very young but not unheard of.

To be completely honest with you, shyness is more of an issue than Peyronie's in 90% of cases in my opinion. Peyronie's can really mess you up but it very rarely, from my experience, messes up a relationship. Usually it's how you handle it yourself that makes the girl leave. I find that being very open works best, even open to a point of absurdity.

This is hard to do as I am still a shy guy and struggle letting go all the time. You have to actually talk about your penis and Peyronie's and shyness with a kind of grin and laugh, to demonstrate to the girl that you accept it yourself. Don't make it a serious talk, smile and say "yeah it's very bad! but I have to enjoy my sexuality somehow and it isn't going to stop that."  Do what you can, accept it, commit, and the rest doesn't matter : )

If she seriously walks away because you can't have sex with her enough, just let her, she isn't worth it at all.

As for treatment, things really do get expensive, but I think traction and VED are truly indispensable. Otherwise I have to say, definitely see a specialist see if you can get an ultrasound to confirm the plaque if you haven't. You may want to try pentox and cialis if you can as they prevent fibrosis and scarring.

I look forward to your review of supplements, sounds good!

[Jonbinspain]

Neo is right. If you want to overcome this affliction, you will have to try and conquer your shyness over this matter.

All is not lost. However, as you seemingly have had the disease for so long, it may be that supplements will not help.

I'm afraid that an injection is necessary to induce an erection. This enables the Urologist to assess not only the degree of curvature, but blood flow to the penis and any possible leakage causing ED. I've had it done more than once it's not unbearable, honestly.

If you can afford to go privately, I would recommend that you see Dr Kuehhas at London Andrology Centre. He's very approachable and will give you an honest opinion of what can be done to help you.