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MHB

I'm 67 y/o and have been diagnosed with Pyronies disease for almost two years I guess. I have talked at length with my wife about this but am reluctant to talk to other men about my condition who are not familiar with it. So, I've come here. I hope I've reached the extent of how much it's going to affect me. I have developed a severe hour glass shape pretty much at the base of my penis. When erect it leans profoundly to my left and both the length and girth of my erection has been greatly diminished. My urologist tells me there's nothing much I can do about it. The pain of having an erection has diminished greatly since the onset but it still hurts a little bit. Well, that's my story. I look forward to talking about it with other guys that are similarly afflicted with this condition.

Jonbinspain

Find another Urologist. The one you have been seeing is clearly an uncaring idiot! There are several things you can try. First of all you need a Doppler ultrasound to determine the extent of the plaque and if there is any calcification.

Read the sections on Pentox, low dose Cialis, ALC, Ubiquinol. You should also consider traction and/or VED.  

QuackAttack

MHB,

Jon is correct, there is plenty you can do, especially with traction and/or VED. Send a PM to Old Man on the VED since you have an hourglass deformity. Since you are in the US, there are plenty of specialists that deal with Peyronies. I am in Maryland and Johns Hopkins has a specialty group in the Baltimore area, being military, I go to Walter Reed and Dr. Dean is the specialist there. If you are within a reasonable drive to Chicago, Dr. Levine is one of the top Peyronies specialists out there. There is also a list of doctors link on the home page. Also, the Peyronies Association website, they have a list of specialists. Definitely fire that doctor and find somebody with more knowledge.

The two things that I believe are key and I say to all new members is: You have to have the attitude you are going you are going to kick the cr@p out of this condition and you need to have a positive attitude, as hard as it might be.  

Stabler

Hello MHB,

I have sent you a PM with links to important areas of the forum one being a good list of qualified urologist, please go and check that one our. the urologist you are seeing now is doing you no good there is plenty that could have been done for the last 2 years and that you can start doing right now with the proper physician. The Survivors Guide is also a great tool for someone new to Peyronies and should be used before seeing a qualified urologist, it helps you know what to go in asking and what you can expect to happen throughout the visit, so please view that as well.

The forum is filled with information and the members here are filled with first hand knowledge so ask questions.

We are certainly glad that you found the forum.

Stabler67
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

MHB

Quote removed by moderator. Please read the forum rules!!!

Thank you VERY much. I can't tell you how much I appreciate the support I've gotten here. Thanks again..

Jimbruski

MHB,

I'm in a similar situation as yourself and about the same age.  However, I have had a great urologist.  Regardless, I'm interested in your success with a new doctor.  Please continue to post as you fight this and let everyone know what has worked for you.

Good Luck