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Batgirl20

This is all new for me. I started dating a wonderful man about 2 months ago and he suffers from peyronie's.  As a future nurse medically complications are not a huge deal for me. He is very frustrated over his condition. I am here to do what I can to gather information and make him feel more comfortable with intimacy.  I want to do what I can to overcome this hurdle in our relationship because I think he is worth it.
I am as a partner of someone and I want to do what I can to make him feel more confident and comfortable with himself.  

Stabler

Hello Batgirl20

I replied to your other post and sent a private message, the men in this forum are great about helping and will be able to give you a good view of how you can help and what you can do to support your guy. The advice you get will be given from men that deal with this on a daily basis so I can promise it will be useful. Giving us more details about your guys condition will help the others help you. Things like how long he has had it, treatments if he is on any, and the extent of his disease.

Have a good day

Stabler67
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

Jonbinspain

Batgirl;

I read your other post too. Yes, you're  correct, your support is vital. This pernicious disease strikes at the very heart of our manhood, and the psychological damage is every bit as bad as the physical damage - sometimes worse!  You can feel, somehow, less than a man!

He needs to see a Peyronies specialist. Usually, an andrlogist will be more Peyronies aware. There is a list on the site. Do you know how long he has had this disease?  And what, if any treatment he has received before you met him?

If he has problems maintaining an erection, he should be checked for venous leakage. If that is not present, a PDE5 inhibitor such as Cialis should solve his problem. A worst case scenario, a VED with constriction ring will do the job. Although he may not feel comfortable with that.


Batgirl20

He had a girl be a little . aggressive while on top about 4 yrs ago and literally broke his penis. He had a huge hematoma and could not get an erection for 6 months. He has lost about 2" and some girth due to this. He has not tried any remedies as far as I can tell. He did use cialis one ti e with me but his neck swelled and started to get a JVD (jugular vein dissention) so the side effects were pretty rough for him. He is very private and very embarrassed by this. I am in this for long haul. I like him a lot. He is very afraid of not satisfying me a and that I will become frustrated and bail. Not likely.  Working in the  medical field I know things are out there to help. I'm trying to.find the best way to support him and make our intimacy as good as it.possibly cam be.

Jonbinspain

Batgirl20;


The accident you describe is a common cause of Peyronies.

He really does need to see a competent, Peyronies aware urologist. If it is Peyronies, and it sounds like it may well be, it will more than likely progress. It certainly will not get any better without treatment. A well trained Urologist will have seen this many times. It's nothing new to them, so there's no need for him to feel embarrassed.

If Cialis is giving him problems, try another PDE5 inhibitor such as Viagra or Levitra, after consulting his doctor, of course.

None of us can tell him what to do, we're just here to try and help. But, he has to start helping himself too!  

Batgirl20

He says nothing can be done and this is just a curse he has to learn to live with. So far he has been resistant to my recommendations for a urologist. I don't want to push too fast so I am sitting back and taking things slow. Letting him get comfortable with I guess the oddity of someone being supportive.  He has not had that yet so I think it may take some time for him to come around. But like I said, he is worth it I feel. I like everything else about him. And to me this is a minor issue. I know as a man it is not, but to me it is not that big of a deal.  

Pfract

So he had a penile fracture. Tell him he is not alone. I myself had one, and suffer from Ed. Not only he needs to be aware of peyronies, as he needs to go to a doctor Who is able to properly diagnose if he has is arteries inside is penis blocked due to the fracture. There might be a cure with a specific surgery, by some doctors done in the us, but he needs to be willing to get his condition assessed. In what state do you guys live? Search online, for doctor Irwin Goldstein and for penile re vascularization.  There is also a video i posted on the erectile dysfunction section on this forum of it.

SDSM - Penile Revascularization Surgery - Penile Fracture and Artery Blockage - Peyronies Society Forums

This doctor has it's practice in San Diego California.  

Batgirl20

We are just north of Indy

QuackAttack

Bat Girl,

Not that there isn't a specialist closer to you, but what is presented on the forum's list of specialists, here are the two that are closest to you. Dr. Levine is the MAN when it comes to Peyronies.

ILLINOIS
Chicago - Dr. Laurence Levine
312-563-5000

OHIO
Columbus, Oh= Dr. Riemenschneider
Riverside Urology Center.