Life Is A Tapestry Of Pain -- My Intro.

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osage9

Here I am.  What life or path could I have ever imagined would bring me to this strange disease, this lunar mindscape, this PDS forum?  About me:
    I am 65.  I am single--with a "thank god" thrown in there!  I have undiagnosed Peyronies.  I don't feel I need to go to a physician to know what is going on with my penis.  I have read the information and literature, perused the PDS forum, looked at and examined my penis both flaccid and erect.  The diagnosis seems simple.  The prognosis unknown.  As much as I appreciate this forum's information and testimonials, it is like playing the stock market.  Everyone has an opinion, a story, a prediction, and a recommendation, but no ONE person has a definitive answer.  What I just said is not a criticism; it is just the way life is.  The best that I could ever ask of this site is that it tells me I AM NOT ALONE.   If this moment is the summation of all my past thoughts, behaviors, and actions, then maybe my condition and being here is not so much of a surprise as I might have imagined.
    My greatest empathy is for those of you with this disease who are young and those of you who have lived with this disease for many years.  My heart goes out to you.  I have only had troublesome symptoms for the last three months.  I thought I had protatitis, but it turned out to be the onset of Peyronies.  I had some ED for a number of years proceeding the build up and deformity caused by Peyronies, but it did not seem serious enough to complain.  I am very hesitant to seek medical advice or treatment for this disease.  Most of the literature and information appears to be conjecture, uncertain, and negative.  I have started taking vitamine E and B-complex, using mild heat, and gentle massage.  I do not trust the medical community to be of any value or help , based on previous medical problems and the information I have gathered about Peyronies.  Of course, I could be wrong about that view.
    At my age (65), I am inclined to accept this disease, be grateful for the sexual experiences I have had without this condition, and go quietly to my death.  LOL  That does not mean I will not "Rage, rage, against the dying of the light." (Dylan Thomas)  I wish you all the best.

       

Stabler

Hello Osage9,

I am glad that you have found our forum and I am hoping we can be a source of support for you when and if you need it. While you say you are not seeking medical advice or help for the Peyroines I would like to suggest that you reconsider. We have a great list of urologists that specialize in Peyroines,

Forum List of Peyronies Specialist Urologist:
https://www.peyroniesforum.net/index.php/topic,4063.0.html

There are plenty of treatment options that could be of benefit to you and our members here are happy to help you with leaning about them. You are right, you are not alone. This forum is built with the concept of those who suffer with this disease are the ones that help with this disease, it is of course filled with differing opinions as to "what works best" but not everything works for everyone the same way. Each member can offer you help.

Again, I am glad that you have found us.

Stabler67
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

Jonbinspain

Osage69;

Each to his own way of dealing with things. However, I'm 66 and no way was I giving up on my sex life, I love it too much!  I've just had surgery to correct my Peyronies curvature and am looking forward to getting back in action.

See a urologist, get a Doppler ultrasound done, find out what the prognosis is for your case. Yes, it sounds like a bit of a lottery. That's because no two cases of this disease are the same.

You can find a list of Peyronies aware Urologists on this site.  

Pey-penis

Welcome in the club osage9! The first thing You should do is to assess what is the reason of Your problem as there is no single cause of this disease is and there is not one advice for all. You have only Your fingers to examine so use Your doctor as a tool to using more precise tools has defined Your problem. The reasons may be many as a lot of people describe it their cases. Depending on the reason You need to look for appropriate treatment. I am your age and do not intend to give up the sex and also do not advise to You. If You can not reverse it then You need to try to stop this disease as early as possible.

Ksjeff

Life IS pain, that's a fact that we should all learn early and then get over it. Your post hit a nerve with me, since I have had many of the same thoughts on the subject that you have written about here.

First of all - please don't give up. Sex is just too much fun to stop. You deserve to glean as much enjoyment out of your life as you can possibly get. There are partners who are attracted to you as I type this, and everyone needs intimacy to some degree.

I was also planning on "retiring" my willy until a friend stopped by yesterday unexpectedly. One thing led to another and pretty soon we were going at it. Everything changed in my mind after that moment! I intend to fight this fight until the last possible resource has been expended.

Even though I don't know you, I wish you the VERY BEST outcome. Please let us know how your feelings (and hopefully treatment) are progressing. It all starts in the brain, and develops from there. Attitude is, as always, 80% of everything.

Best wishes.

Jeff