I was wondering if anyone has advice for how to proceed with my condition

[BobBobert]

Hello, I decided that I should probably start posting on this forum because I search it often and am just not able to figure out exactly what I have.  I'll give you a little background information on what lead to where I am and hopefully someone will be able to help me figure out what I should be doing right now because sitting around waiting for my girlfriend to fall out of love with me is really taking its toll on me.

So about ten months ago I was having sex with my previous girlfriend and I missed the target somehow as we were having intercourse and I let out a yelp but still finished.  I did not break or snap my penis and there was no bruising.  That was the last time I had sex with my Ex and over the next few weeks I was in pain but it was manageable.  It was very hard to stop masturbating despite the pain I would feel afterwards.  I would feel pain in my shaft at a few different points and it was a constant pain throughout the day.  The less I used it the less pain I would be in but it was hard to quit masturbating completely.

So about two months later I was masturbating fairly hard but nothing harder then I normally would have before I injured myself.  Afterwards I felt a sharp pain in the head of my penis it felt like a small pin sized part inside my penis had been pulled or snapped or something it is very hard to describe.  This is the problem that has made sex painful for me.  At first it wasn't so bad I just had to go easy on the right side of my dick while bateing and I was still having sex but it would take about two weeks for the pain to go away which worked out because I entered into a long distance relationship where we would only see each other every two weeks.

So the original pain I had started to get better over the next few months and seems like it was going away and it pretty much has gone away in certain areas but about three months ago me and the girlfriend were having sex and she is very tight and I think honestly something pulled inside my dick.  Like I cannot figure out if it was the bucks fascia or what.  It feels much different then the original pain I was having which was a gnawing pain inside my shaft.  The new pain is like I have pulled a muscle and it is not able to heal.  It feels like I have scrapped my knee in between the skin of my penis and the tunica.  A week after the new pain started I was bateing and I felt like I have removed a bit of something from under the skin.  I now can feel what I think is a dent in my penis but it feels like I caused it and it was not from scar tissue forming and disappearing like I feel peyronies normally does.  

This is when my penis started to curve while flaccid and semi erect.  Sometimes the curve while semi erect would be so bad it would look like a hook.  I still continued to have sex but it would be careful sex but it was good sex no the less.  About a month after the new pain started I had a long session and then bated and it was becoming clear that I was not going to stay sexually active and heal this at the same time.  I went to a urologist and he examined me and said there was no plaque that he could feel and said that he could order an ultrasound and I said lets try that.

I went to the ultrasound and they stabbed my dick with a needle and I didn't even get it half way up.  I have had no ED except for pain and I think they just didn't use enough of whatever they injected me with to give me an erection.  So after the ultra sound me and my girlfriend had sex once again and this time I developed a slight blue spot over the "dent" I feel I created.  The blue spot has been there in varying shades since it happened. Sometimes it is very hard if not invisible then other times it is easily visible.  It is not a deep blue like a bruise but a very light color like I could have always had it.  Anyways I am just trying to figure out what I may have done to myself and what I should be doing now to try to get back to being able to someday use my penis without it being in pain.  I have been not bateing or having sex for 2 months now.  I slipped up and had 3 blowjobs and 2 very slow polite sex sessions and one regretful masturbation session that I think really set me back.  I just could not resist bateing like I had nothing wrong with me 3 weeks ago and honestly my erection has not changed at all.  The only thing that has changed is the pain that I feel near the head of my penis and following when the bottom of the head meets the shaft.

Anyways here are my symptoms typed out not in a wall of text:

-   pain started after missing the hole during sex, pain was originally half way down the rightside of penis, pain was then worse at the base of penis for a few months but mostly has resided.

-   New pain started two months after original injury and is near the head of penis and inside near the opening of the penis at the top.  This has gotten worse and is not really healing it seems.

-   Erection quality is the same there is no curving while erect only while semi erect mostly.

-   Pain is in one area when it feels like something has been pulled or torn and has a slight blue coloration above that area.

I have been abstaining from everything but I was wondering if anyone could tell me exactly what is happening cause my symptoms don't seem to match others.  

Anyways thanks for reading this, I know I f'~c<+d up, anything from anyone is greatly appreciated.

[kuaka]

There are many varied "symptoms" which fall under the umbrella of PDS.  It sounds like you have some vein damage as well though, and for that vein damage to heal it may be necessary to abstain for a period.  I would say that you definitely injured yourself, and have not had time to heal.

If you could avoid sexual activity to completion, but get erect for a few minutes daily, that would be what I would do.  Don't get "hard" erect, but enough to ensure that the tissues are expanded close to their normal size in an erection state.

The problem is that when an injury occurs to a member which is intended to expand, and healing causes scars, these scars then don't expand.  That is the very root of classic PDS.  I would consider doing what you can supplement wise to help keep scar tissue soft while healing.

You definitely need a specialist...even a normal urologist may not be specialized enough to take care of what sounds like a complicated injury.

Good luck.

kuaka

[BobBobert]

Ok thank you very much for your response.  I have been following the doctors wait and see if it fixes itself and pay me 400 dollars for a few minutes of my time healing method.  I have been getting normal erections throughout the day and at night.  I know there are specialists that exist who break up scar tissue in muscles I just don't know where I could find one who would be able to work on my penis.  I honestly would give that a try cause it sounds like what I need to do but idk if it exists.

[kuaka]

James should pipe in here with a list of Peyronie's aware Drs...I can never seem to find the link.  Hopefully you will find one in your area you can use.  "Wait and see" is malpractice in my mind concerning this condition, as it is highly unlikely to "go away" on its own.  As long as you get "normal"-ish erections at night/morning wood and such, you are at least there.  Try and let the tissue rest from serious activity, and look into the supplements selections for scar softening agents.  Pentox is a prescription one I am now using.  It works better with daily cialis, but that might be counter indicated by your "normal" erections.  I am also dealing with erection difficulties due mostly to excessive pornography use over the years, but my story is perhaps more complicated than most...or maybe just as complicated.  We all seem to be a bit unique.  If you are getting "normal" erections, you are ahead of most of us here.

[james1947]

On the forum "Home" page, "Other Peyronies Disease Discussion Boards", have a board named "Urologists and Other Doctors".
Click on it to get in.
Pinned on the top of the board you have "Peyronies Doctors – LIST", click on it and you will get:
https://www.peyroniesforum.net/index.php/topic,4063.0.html


James

[Pfract]

Hi... This might be of interest to you....

Hidden penile fracture: An unusual presentation and review of literature

[BobBobert]

Thank you guys I will be making an appointment with a urologist that specializes in peyronies and I will keep this updated so that if someone else has something similar to me they can hopefully find my experience helpful.  The hard part for me has been finding people with similar symptoms as me.