My results as for now

[casey57]

I had my first shot of Xiaflex this past Monday. The doctor used xylocaine to numb the penis. He did this by doing what is called a dorsal block. They do this on newborns for circumcisions. It made my penis quite numb, which made the injections basically pain free.

When I got up off of the table, I noticed immediately that I was very light headed. Not like a vasovagal fainting spell that a person had with having blood drawn, but feeling very strange. I had to sit in my car for a while before driving home. I should have told him I felt that way, but I just wanted to get out of there.

When I got home I was initially OK. The strange feeling subsided. I noticed a lump forming over my pubic bone. To make a long story short, the xylocaine shot hit an artery and bled. Some of the xylocaine got into my circulation causing my feeling like passing out. I developed a large hematoma over my pubic bone, extending up both sides to my lower abdomen. Very painful and alarming to look at indeed.

The next day they called me and I told them how bruised I was. My penis was bruised, which I expected. They told me it was normal, but I knew they had no idea what I was talking about. I decided to blow off any more shots, thinking that I could not tolerate the pain, and did not want to add to the hematoma.

I went in today for my 2nd shot, which I told them I would not be having. The doctor looked, and immediately saw that my problem was from the numbing shot, not the penile shot. He said that it was badly placed, and was the cause of my light headedness. He asked me to reconsider about the 2nd shot, which I finally did. The jury is still out whether I made the right decision. This time he used a cream to make the penis numb. It worked well, and my penis is still numb 2 hours later. They just got this cream in today (what he tells me anyway). I go back in tomorrow for modelling.

So far, this process has been somewhat of a nightmare. The pain from the suprapubic hematoma is intense. These types of hematomas can take a few weeks to resolve.

[james1947]

casey57

Thank you for your post. I split your post and open a new topic that other members will refer to it.
Please post your experience on the link bellow in the format at the start of the topic:
FORUM XIAFLEX RESULTS - Peyronies Society Forums

James

[hope4all]

Hi Casey57, thanks for posting your experience. I am going to use this blanket statement, having had my fair share of syringes  in my penis over the years. FOREGO any numbing shots and suck it up, bite a towel, scream, etc. DO NOT take the numbing shot when it comes to the Xiaflex treatment. My doctor does not use numbing shots at all and I agree 100%.

For Verapamil shots I would say yes definitely have the numbing shot because those shots are much more forcefully administered. The Xiaflex solution administered is far less than Verapamil so the needle doesn't stay in your penis that long. With Verapamil there can several entries and a more stabbing entry into the plaque in several locations to try causing the swiss cheese effect. With Xiaflex the doctor is more careful in it's placement and usually only has enough solution for 1 or 2 locations.

If you get the numbing shots your pain afterwards will likely be worse. Just accept that you will be sore and bruise beyond anything you've seen in that region even without numbing shots.

Also, some doctors induce and reduce an erection prior to subsequent rounds of Xiaflex to see how the curve is progressing and where to place the next shot. DO NOT let your doctor do this. Take pictures on your mobile phone of your VERY erect penis the night before your next round of shots. Take pictures from the left, right and on top if the curve is dorsal, like most. Yes, it feels creepy but it's better than having unnecessary shots into your penis that may cause more plaque and added bruising and pain afterwards.

Anyway, sorry for the long post but doctors are all over the place with how they administer Xiaflex and it's maddening to me. I know they want patients to be as comfortable as possible because, let's face it, seeing and feeling a needle going into your penis is an outer body experience the first time it happens and freaks most people out. For those that have lived through worse Peyronies treatments, this is a walk in the park.

Best of luck and please keep us informed and don't forget to post in the results section as you go.

[Fairmount]

I'm going for my first Xiaflex injection tomorrow. I appreciate your advise about the numbing injections and don't think I will let the doc numb me. I think I can handle a few seconds of pain.  I am scared to death however about the bruising. Is it really that bad? I almost want to cancel the appointment. What am I getting myself into?  

[bummedout]

I feel ya' man....I'd be scared crap too.

[LWillisjr]

I personally preferred the numbing injections. It seemd to me that as these are done with a smaller needle then the pain would be less. These injections were sort of a strong stinging sensation. I was completely numb then for the actual Verapamil injections. I think like Xiaflex these are done with a larger needle with a 'sewing machine' type motion to create a swiss cheese effect in the plaque. I never had one done without the numbing injection, but I can't begin to imagine what it would have been like. Levine told me up front that I would appreciate being numbed first.

I also put an ice pack between my legs for a few hours follwing which I think also helped. And always for the next 36 hours saw shades of blue I never knew existed in nature ;-)

[hope4all]

Yes, I could not imagine having the Verapamil shots WITHOUT the numbing shot. There would be no way I could stay on the table and I'd likely hit the doctor from the pain. I had serious bruising with Verapamil but it's a different more intense bruising with Xiaflex even though it involves less solution and fewer injection sites than the VI.

The experience I've had with my doctor injecting Xiaflex has been pretty good as far as pain tolerance goes without numbing. Perhaps the doctor's skill has something to do with this, I don't know. I do remember him saying the needle was larger than it needed to be and that the design of rubber stopper makes it difficult to get the entire solution into the syringe. He says he's gotten good at it and can even get slightly more than the recommended amount.  

[yyy]

That's BS..walk in the park??
My unique xiaflex shot was incredibly painful also with the numbing..I cant imagine without it

[kuaka]

NOTHING about Peyronie's is a walk in the park.  While there are as many minor variations to the issue as there are men with it, and therefore as many variations on therapy, none of it is drop dead simple.

[Tunemaker02@aol.com]

This is all so disturbing.  I want to tell you of what you already know (I assume).  No urologist will tell the truth of what my naturopath recommends: that vit. E oil and dmso(absorbtion chemical agent that is innocuous) will correct the curvature without surgery.  Surgery is a last option, and I assume so is xiaflex.  I want to try xiaflex, but I have a lower spinal injury, and acute injury to the pereneum and penis itself.  From what I've seen of the posts here, xiaflex seems no different than the trauma of surgical removal of scar tissue, with no effect on nerve damage whatsoever.  My urologist told me to see a neurologist
Jamison

[james1947]

Tunemaker02@aol.com

From what I've seen of the posts here, xiaflex seems no different than the trauma of surgical removal of scar tissue

Completely wrong and misleading. How you get to conclusion that surgery and Xiaflex are inflicting the same trauma?
It will be good if you will edit your post, you have posted a few lines with a lot of empty space.

James

[Pfract]

the post above is a complete piece of rubbish. Naturopath? serious? and on your first post? a troll for sure, that will try to sell something or a clone of somebody....

[yyy]

Solving a curve with vit. E and dmso? are you serious man? sorry to say you are a troll or worse you are a dreamer. no offence

[kuaka]

Vitamin E is pretty useless as a supplement...but...I'm not going to completely discount the use with DMSO as a carrying/absorption agent.  Not promising, but cheap, easy and safe.  I might try adding this to some VED therapy...I don't think it would impair my other efforts.  Perhaps a lubricant of Vit-E oil and DMSO for VED use.