introducing myself

[gayguy]

Six weeks ago i self diagnosed myself with peyronies. The nitwit doctors here weren't much of any help (shocking really) but they have confirmed it.
So now(since 6 weeks) I am doing everything possible on both sides of the fence (regular and alternative medicine). Pentox and celetrex have reduced the pain from a 7 to a 1(thank you forum otherwise I would never have known and orderd it from my doctor). The cialis I dropped because they were over stimulating my still regular fine, sometimes painful hardons. Besides this I use all the supplements, creams and what not the alternative scene has to offer. I am throwing at it everything I can find. I have started VED protocol treatment and yesterday I played around for the first time with a Phallosan Forte to see if stretching can be usefull.
I am still in the active stage. I can feel the subtle activity like a little alien (from the movie Alien) inside me. The nodual has up till now continued to slowly grow and the bend has increased to in the last month from 30 to 40 degrees showing no signs of relenting and i now feel sad with tears in my eyes as i write.
I know this disease can be a long and arduous thing and it has been good to read on this forum that we need to be patient, diligent and kind to ourselves. So on we go. Here in holland Xiaflex is not being offered to people with Peyronies. It is something i am also looking into. So maybe i should end this writing with a question which is on my mind now. Can any of you reading this recommend a Xiaflex proven doctor in New York or Boston? I think i should do my research and get acquainted with someone just in case the rest isn't going to work. My love and warm regards to you all. Yours sincerely Gayguy.

[nocturn]

hello Gayguy,
Guess we're on the same boat.... I diagnosed myself with Peyronie's about 4 months ago. Went to the doctor about 2 1/2 months ago...explaned what's happening. He felt a little, and was like "ok, don't think something is wrong, what do you think is going on?" So I started about Peyronie's, he actually googled it to explane it to me and advised me to keep it like that and see what will happen...That was about it.... Not the 'treatment' I had in mind! I googled myself again and again, and started with VED....hope it will help. If you find a doctor in the Netherlands who is willing to listen AND help us out, I would be glad to hear!

Greetings!

[rodolfodelatorre]

This is something about certain doctors that I flippin hated. They didn't even think I had it, and were ignorant of the disease. Because of this, I prolonged my treatment for a couple of years. I advise looking for a good doctor or urologist, and not some a$$hole, like the "Read this first" page tells us to do.

Anyway, I'm also in the same boat, and I wish you the very best. This s h i t is a freakin curse from I don't know where, but I think there is always hope to overcome it, no matter who you are.

Peace and love brother

[walrus67]

i feel your pain, i am three years on my penis is goosed its huniliating enough without using a pump, or taking the countless drugs that may work
i am having a prosthetic fitted soon will let you know when, and how it works once done, extreme , yes ..options for me? ..zero..
stay strong

[kuaka]

Keep with the VED and traction to try and keep the scar tissue from shortening one side.  It sounds like you are throwing everything at it that you can.  

Whatever "injury" stimulated the start, do what you can to avoid continuing that "injury".  I quote "injury" because all it takes for scar tissue to form is a perceived injury.

Good luck

kuaka