Hello everyone

[peter210]

Hi all

I hope I have posted in the correct place??

My name is Peter, I am 55 years old and have been married for 33 years.

I was diagnosed 2 weeks ago with Peyronies by a consultant at a private hospital, I first noticed I had a problem a day after having sex with my wife, I basically woke up with an erection that was very painful, and the rest as you all probably know is history.

I first put it down to a rather heavy sex session, 2 weeks later still the same pain

After 5 months I decided to go to the doctors and told him what I thought it was as I had already done research on the internet, he basically told me there is nothing wrong if it persists go back.

2 months Later I went back and had a different doctor and he agreed it probably was Peyronies.

6 weeks ago I went back and got a letter to see a consultant, he has suggested getting a vacuum pump, do they work?, can I use one now even though It is still getting worse.

I have a very understanding wife with lots of support, but it's still very demoralising and sometimes I do not feel like talking much, all sorts of thoughts keep coming in my mind, it's something I think of constantly other than my wife nobody knows

And now I have found this site which gives me great heart

Looking forward to reading what people have to say on the forum

Peter...........

[kuaka]

Recent member here too.  I've had the issue for a few months now...no official diagnosis, but I'm smart enough to know that this is what my problem is.  Honestly, why pay a Dr. to "practice"?  I might be willing to pay for "performance"...you know, like a professional musician or athlete, but "practice"?  

Anyway, I'm here to learn too.  I'm doing a home made traction device and working on adding appropriate nutritional supplements for now.  May try and get an Rx for Xiaflex if I get nowhere with what I'm doing.  I'm comfortable with self injection...do testosterone already due to old injuries, but that is just one part of my complex story.  

Welcome to the gathering of those who would rather not need to be here.

[wonderbread1662]

Hello Peter and welcome to the forums! I'm really new myself as I was just diagnosed yesterday. I just wanted you to know that you're not alone and I hope you have a full recovery. Peyronies is an awful condition but atleast there are options.I hope you find a medication/device that works for you. Hopefully overtime it will diminish or go away completely with treatment. Also a 33 year marriage is amazing! Congrats on that and i'm glad to hear you have a loving and supportive wife.

[Jonbinspain]

Peter210;

You don't say anything about what the Uro has prescribed, or suggested apart from VED therapy. Was that it?

What is your current condition?  How bad is the curvature?  Is sex with your wife possible?

Normally, an ultrascan is needed to gauge the extent of the plaque, if there is calcification etc.

Blood flow to the penis is essential. VED will help with this, so yes, go for that. Oral treatments include, Pentox, ALC, Citrulline malate, CoQ10 or Ubiquinol, if you can afford it. Low dose Cialis has also been shown to help. Read all you can here, it will educate you into what you're dealing with. There is a huge wealth of accumulated knowledge about the disease here.

The sooner you start treating this the better your chance of minimaising the damage.

[peter210]

Hi Jonbinspain

My urologist also suggested vitamin E
As for curvature, it curves to the right about 10 deg at the moment, Sex is still possible but a little bit painful
Getting a erection is no problem, stills gets very hard.
I will check out Pentox and all the rest, also I think I will order a VED

Thank you for your swift reply

Regards

Peter...

[Jonbinspain]

Oh dear, Vit E.  I'd suggest, if possible, to find another Urologist. Vit E is treatment from the dark ages. It won't do you any harm, but equally will do nothing for Peyronies.

Your condition doesn't sound too bad at the moment. Now is the time to start fighting this before it gets a chance to progress.