Peyronies or hard flacid or CPPS. What do I have?

[xrt]

I have recently learned that the following three conditions are potentially linked:

1. Peyronies
2. HF (Hard flacid)
3. CPPS (Chronic Pelvic Pain Syndrome)

To start the conversation I'll start off by saying that I don't have a hard lump or nodule anywhere in my penis. But the whole left hand side (or chamber if you call it that) is hard, and has small indentations in a few locations.

I also developed hard flacid around 5 years ago. I have 3 indentations on the left hand side of my penis, and hourglassing at the top. My right hand side is fine. There is a 60 degree bend to the left in total.

The hard flacid came first. The bending, indentations and hourglassing came a year or two later. I have had them for almost 4 years. I am 27.

My penis is soft, hard and very cold when it is not erect.

Here is the thing however: I have had 2 ultrasounds in the past two years and have been told that there were no plaques discoverable. One Urologist said I must therefore not have Peronies. The other said I might have a 'variation' of peyronies. I was confused at this point because I thought that Peyronies was only diagnosable with a hard plaque or nodule.

From reading about hard flacid, apparently it can cause hour glass deformity and indentations.

I have not read up on CPPS and do not really understand the difference between it and HF,

So my big question is how do I know which one I have?

I could do the advised treatment for all of them!! But by golly gosh, that is a lot of pills/exercises to be doing! (I will do it if I have to though  )

Note: I am taking the board's recommended peyronies oral cocktail and have started the VED 26 week protocol 2 weeks ago.

[NeoV]

Did you ask a Peyronie's expert? And can he tell you if the deformity is caused by fibrous tissue? That's what you would need to know for a good diagnosis. That's frustrating. I also hate multiple insentations yet mine are all on the underside.

If hard flaccid is hypoxia and fibrosis then surely the fibrosis could cause hourglassing. I really hope you can get some kind of improvement. My case is bothering me lately and again faced with some unknowns.

[welshwales]

When you say you are taking the board's oral cocktail, does that include pentox and daily Cialis? If you are taking the Cialis, how much are you taking?

[LWillisjr]

I have recently learned that the following three conditions are potentially linked:

1. Peyronies
2. HF (Hard flacid)
3. CPPS (Chronic Pelvic Pain Syndrome)

Potentially..... but don't assume. Related or not you need to treat each of these differently as separate conditions.