Just diagnosed with Peyronies disease

[Alfonso]

 I have been experiencing some pain during erections for the last two months but in the last two weeks the pain has gotten so strong that I don't want an erection. I had never in my life heard of Peyronie until I went to my urologist last week. He asked me if I had any trauma in that area and I said no. Never had any problem of this sort. No one in our family ever had this. I thought this was some kind of infection that penicillin would get rid of in a few days, but the doctor told me that it may take 6 months to a year and it would just go away on its own. He also prescribed Pentoxifylline 400 mg 3 times/day, Vitamin E 400 twice/day, and Arginine 500 mg 3 times/day. He grabbed my penis, felt it all around and said to continue treatment. During my erection I have a slight bend - almost can't see it - but the pain is too much. I'm 56 yrs old and enjoy good health - never been hospitalized, but feel very powerless now. I tried making love and the pain was so severe during the penetration that I had to stop immediately. This is terrible. I'm having a real difficult time dealing with this. I see myself avoiding my wife, since I'm afraid of getting an erection and the pain won't let me do anything. I feel useless.

Is this treatment my urologist prescribed the normal route everyone goes through? Are there any other things I can do to speed up the process?

Please advise,
Al

[Jonbinspain]

Alfonso;
I think this will be moved to the introduce yourself thread. However;

What you are experiencing is not unusual. In a large number of cases, the pain will subside or go after a time. The chances are, unfortunately, that the Peyronies will not. So, prepare yourself to be in this for the long term.

Your Urologist is on the right track with the Pentox and the Arginine. The Vit E won't hurt you, but is unlikely to help much either.

You sound as if you are in the early stages of this disease, so now is the right time to fight back. I would suggest on top of what you are taking, ALC, Ubiquinol, possibly low dose Cialis, and when the pain allows, VED or Traction to counteract any curvature that will probably develop.

You can fight this!  Read all you can on this site. There is no magic cure for Peyronies and what works for one guy may not work for another. It's really all about learning as much as you can about your enemy, and what is most effective for you personally in your fight against it.  

[Alfonso]

Thanks for the advise, this is so recent that it's taking some time to realize the seriousness of what I've got. One of my concerns is taking any medication long term and hope I will be ok. If erections hurt, is Cialis ok?  

[Jonbinspain]

Low dose I.e. 5mg should be ok.  Hopefully, the pain will fade or go soon, as it does in many cases.

Yes, unless you are very lucky and get a rare spontaneous resolution of the disease, you are in this for the long haul. What you need to concentrate on is first arresting the progress of the Peyronie's.

In my own case, the pain didn't last very long. If, however, it doesn't subside with the use of Pentox, check out the Coping with pain section on the site.  

[Alfonso]

I really appreciate your comments. For now I will review the coping with pain section and concentrate on fighting this new challenge.
Take care!

[welshwales]

Hi there, welcome to the site and commiserations on your diagnosis. You're definitely on the right track with the meds your uro has prescribed and you are in the best position to fight the disease being in the early stages. However I can't help but think your Dr has been a tad irresponsible in telling you that it will go away in 6-12 months. Unfortunately for many men the battle can last years, with only about one in ten cases self resolving. But the pain should subside during the stable phases of the disease. As for additional therapy I thoroughly recommend moderate VED usage (see the VED board) and low dose cialis to make sure your blood flow into the penis is adequate.

[Alfonso]

Thanks Welshwales & Jonbinspain for sharing with me, I must admit that when my urologist told me this may take 6 months to a year I was very disappointed because I felt it was going to take too long. Then after I came to this site last week and started reading others peoples stories I realized that it takes a lot more time than I thought. I have been staying away from my wife since she's the one now kind of chasing me around. I don't feel like trying to start something I won't be able to finish -

I get angry because I can't even enjoy sex anymore without pain and I can't get myself healed fast enough!!
I know I'm not alone and I'm glad for this site. I will spend more time here learning more about this new challenge.
I appreciate any ideas or comments as I'm new to this forum and have no clue.

[Jonbinspain]

Alfonso;

Sit your wife down and explain to her how you feel, what your problems are - both physical and mental. Most people's wives or partners are sympathetic to your plight.

I realise that you're impatient and that you want to be rid of this pernicious disease. We have all been through that. However, you must try to accept that, unless you're very lucky, you're in this for the long haul.

Once, hopefully,  tha pain subsides, sex with your wife should be possible again. Most of us here have some penile curvature, shortening, etc. Most of us have found a way to continue with a sex life. But, you will need your wife's patience and understanding. Don't alienate her.  

[Alfonso]

It took me a couple of days but I sat with my wife and discussed my situation. At first she thought that this was a contagious illness that I picked up there somewhere but the more I explained what little I know about Peyronie, then we sat in front of the computer to read others peoples stories on this site, the more we both understood. This site has a lot of information, along with a lot of people that want to help you.
I've never joined any help group before and we were both amazed at how everyone supports one another. I see her reading more than me so when I got home from work yesterday she was talking to me about VED, as if I had a clue. We also discusses oral sex for now because she said the last thing she wants to do is hurt me in any way. Isn't she sweet?

I have been taking this very hard. I had never experienced anything like it, then all of a sudden this pain came out of nowhere when we were having sex but I decided to keep silent and force myself through the pain, in order to finish what I started. Then mu urologist said I had Peyronies disease and told me it would go away on its own, maybe would take 6 months to a year. I felt I was half the man I used to be. Felt very useless. Can't have sex. what's a man to do? I looked up support groups and joined here. I then start to read and realized this is not really going away that fast!! I was reading about others that had surgery, even saw some pictures and I freaked out. Those same folks that went through all this somehow were writing about their experience with a positive attitude. Wow. That made me think a bit and realize that I'm in the early stages - it's been about a month - so I'd better stop feeling sorry for myself and start doing something about this new evil.

Please feel free to share with me anything that will help me. It's very important to me. I spend more time at work than I really want to but now I can really say that I'm ready for this new challenge with everyone's help.

AL

[Alfonso]

I just finished reading my own post and I see I need to read it before I post it as I misspelled some words while some sentences didn't sound right. I wasn't sleeping at the time I wrote this   Seems I was thinking and typing, then I just discovered something at the bottom (called spell check). Oh well, I promise I'll use it next time.  

[Peyroniedevice]

I'm 25 and i had the same problem .I fixed using traction device .

there are lots of people who are cured from Peyronies disease .Dont not be sad . it is something you can fix it .
Justin

[Alfonso]

I'm glad to hear that you are fixed! Did it take a long time? I would imagine everyone healing time is different. Today I was feeling my pennis all around and it seems that the most sensitive area is on the left from the middle to the head, on the muscle, not the vein.

[james1947]

We don't have muscles in the penis.
It was maybe better to have, but we don't.

James

[NeoV]

Yup, only a bit of smooth muscle.

More interesting is the fact that other mammals including our close relatives chimps and gorillas have a penile bone called the baculum, which aids intercourse. Humans evolved purely hydraulic erections, as penile health was closely correlated to a man's health and men who didn't require the bone as much ended up procreating more. Since then the penis has become a true barometer of human health, to a fault! Now when we get injuries, nature says "farewell" and we only wish we had our penis bones from aeons past! : (

[Old Man]

NeoV:

According to my urologist, the erectile tissue in humans consists mainly of ''smooth muscle'' and therefore has no regular muscle quality.

Therefore, man rely only on blood flow to produce an erection. Any injury or damage to the corpora causes the blood flow to slow down thereby causing ED. In addition the reduced blood flow can and will cause deviations in the penile make up, hence Peyronies Disease symptoms.

Old Man

[Alfonso]

I thank you all for your comments. We're all in this together and need all the help I can get.
I've been taking my Pentox 3xday, Arginine 3xday and vitamin E 2xday as prescribed by my urologist. For someone who doesn't take any pills to suddenly take this many kind of worries me a bit, especially where this will take a long time. Are there any dangers, addictions or damage to any organs related to taking these meds long term? Are there any others vitamins I should also be taking that my urologist hasn't prescribed?

[LWillisjr]

We limit introductory topics to a few posts. I'm going to lock this topic but continue to post any questions in the appropriate section of the forum.