May my penis RIP

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user of no names

The pain and suffering of this horrible disease reminds me constantly of the slow death I live.  I sit here typing this while looking back at the impact peyronies has.  I hold out hope that things will improve or science will cure this but the wait seems like it will long outlive myself.  Trying to decouple the impact on my quality of life has proven difficult.  Acceptance is part of the grieving process.  I lost a close friend in my penis a long time ago and wished death would come early but something occurred to me.  There is more to life than my penis.  I will use the physical and emotional scars to motivate me to a place I am unfamiliar with, happiness.  I have a choice and I choose life.  May God grant me the courage to continue on this path.

bent forward

chandnitare

You are not alone on this path. Hope is there indeed. People are there for 20 or more years with this condition and still gardening the earth to make it bit beautiful.

LWillisjr

So what are exactly your issues now? I went back and read all your posts. In one you describe some curvature including rotation, but you said the biggest issue was the pain. But in another post you stated that you go to hookers to have sex. I know you have been on Pentox for quite some time, but is there anything else you have done or tried?
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

NeoV

The way Peyronie's effects us says a lot about our values. A lot of us place too much important on sex, and sadly we may never understand that others simply do not feel the same. In my case, the more sexual experiences I have, the more free I feel and the less I need sex all together. I tell my partners about my Peyronie's, and will even show them, though they aren't able to tell. They understand that sex has to be slower and careful, and this usually makes the experience better for her anyway.

I've also shifted my sexual urges from penetration to pleasuring a women orally or with my hands. When I see a hot girl, that's the first thing that hits my mind. It's also the first thing I do for her once the clothes are off, sex then becomes about her. Having this as a sexual goal, and then reaching it with the beautiful women I actually desire makes me feel potent, and am I not? All of us are potent lovers. Change your values, change your focus, there's so much to be learned and experienced outside of your obsession with the shape of your penis.

This is about losing your selfishness. Women want to accept their own bodies just like we do our own, this has nothing to do with your penis.
The girl in the mini skirt and heels wants to feel sexual. Get her home with you and in front of a mirrior, show her how to love her body and it doesn't matter what you or your penis look like.

Decades will go by and some day you may realize that all that you had perceived as suffering and pain, simply never existed in the minds of those you love and adore. The only thing worse than intense suffering, is to realize that it was all unwarranted in the end. Don't let it be too late.

-V

chandnitare

NeoV,

Spellbound! That's the reality, I believe my wife had sex with me in real sense after I had Peyronies Disease. All that I did before was for me. Now I am doing for us!!!!

Regards,

Chand

james1947

Sometimes your posts NeoV, make me to think that you are much older than 26 :) :) :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

welshwales

Quote from: NeoV on May 16, 2014, 06:09:04 AM
Quote modified by moderator. Please read the forum rules!!!
Spot on advice! It's how I prefer to engage in sexual activity. I feel that pleasuring my partner is the most important aspect making love. While I can't get a viable erection, I have other body parts which can last far longer than an erection could! And to be honest, if my partner isn't ultimately satisfied after a sexual experience, then neither am I.

LWillisjr

Quote from: chandnitare on May 16, 2014, 06:43:47 AM
All that I did before was for me. Now I am doing for us!!!!

Chand

I really don't want to hijack this thread and go off in a different direction but I really like Chand's comment. I must add that my wife and I do counseling for couples through our church. And these are men who are fully functioning without Peyronies Disease. And their problem is also that they make love for their own pleasure and 'expect' their wives to enjoy it. It is a different mindset to think about brining pleasure to your spouse, and not for yourself. But in the end you both enjoy it even more. Such a simple concept that so many couples don't get.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

james1947

Quote from LWillisjr post:
QuoteSuch a simple concept that so many couples don't get.
I was changing it to:
Such a simple concept that so many man don't get.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

membaka

Please hang on there, i understand your pain. Technology are developing super fast, i think that in a couple of generations we are going to live... beyond imagination. New medical treatments will hopefully be available soon for this disease.