Highlights of General Comments (that won't fit under any of our other topics)

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This area contains highlights from the main Peyronies Disease Discussion Forum topic on "General Comments (that won't fit under any of our other topics) ,...".  This area contains questions that are not covered under any of our current topics.

As with all the topics on this newly diagnosed board, these topics are read only highlights copied from the main forum.  Go to the main forum to join in the exchange by posting questions and comments.
"I don't ask why patients lie, I just assume they all do."


The following is a one-post compilation of highlights from hundreds of posts in the General Comments (that won't fit under any of our other topics) thread. Individual posts have been copied into this page and no grammar or wording has been changed from the original post. Entire posts have been copied where possible to retain the context of the original post. The posts are entered in chronological order from the top of the page to the bottom, so the oldest posts will be read first and the most recent posts will be read last. This IS a work in progress and will be added to and edited so check back often.

          Highlights of General Comments (that won't fit under any of our other topics)

Crayzymoose5000   Reply #88 on: September 07, 2005, 09:42:03 PM »    Quote

my penis has been curved to the left side for as long as I can remember, but never had painful erections.  Is this still considered as peyronie's disease? 

Also, what is considered as excessive curvature?  Would having a penis like the shape of a banana considered excessive?  Or would excessive be considered as those penises that bend close to a 90 degree angle?

Bob    Reply #89 on: September 08, 2005, 04:18:42 PM »    Quote

My two cents:

I was born with a 'banana' - a downward shaped one, and no, it was never considered a big deal. We get a fair number of questions of this type. There are curvatures that are congenital and there are ones that suddenly show up, owing to Peyronies Disease and (I think) a couple of other disorders.

Lucky me, I now have both.

I never took a protractor to my congenital curvature so I couldn't really say how much exactly it drooped. I never thought twice about it until I was 13 and my cousin informed me that it was a bit abnormal. Nobody else ever said a word about it and a urologist once told me not to worry about it. I was quite content with it; so was my wife, not to mention a couple of girls from my long years as a single guy.

Now a lateral bend is an entirely different matter. Mind showed up about a year ago along with all the other Peyronies Disease symptoms (pain, a plaque, a thinning or 'waisting' right at the bend point, have a fair amount of difficulty with penetration during intercourse, and the all-time favorite, a one-inch penile shortening).

If your curve has been around for as long as you can remember, and there's no other symptoms associated with it, chances are it's not Peyronies Disease and it's not a problem.

Barry    Reply #90 on: September 09, 2005, 03:51:04 AM »    Quote


Bob seems to have hit the nail on the head. With that having been said please allow me to elaborate on a few other issues.

Congenital means that you were born with a penile curvature. From the views of doctors and those with personal knowledge, excessive curvature would be when vaginal penetration is no longer possible, or is possible but with pain.

I had a 50 plus curve to the left in the beginning years of Peyronies Disease but penetration was not impossible and not painful to my wife or me. However, I now have a 60-degree curve looking right up at me. This is "excessive" for my wife due to pain. Something that is rarely mentioned is the type of curve that we have. For example, mine is sudden just past the halfway mark of my shaft. Others are 60 degree but extend the entire length of the shaft. Big difference I'm sure you can see. I hope I was of help to you.


J     Reply #104 on: December 18, 2005, 12:29:34 PM »    Quote

Roadblock, some of your story is familiar to me. I'm in my 50s and have Peyronies Disease along with the related conditions of Dupuytren's and Lederhose. The symptoms began with Dupuytren's around age 40.  But, before any of that started, I had a moderate bend - left at the base, maybe 25 degrees, which as I recall appeared arounddeljewe@earthlink.net my late 20s. I paid little attention to it and it was never a problem, just required a little steering at times, and I simply accepted it as one of the normal asymmetries and imperfections that everyone has. I suppose it could have been early onset Peyronies Disease but I doubt it - no pain, no other symptoms, and Peyronies Disease doesn't normally show up until much later in life.  Curves and bends are normal, and I suspect that part of our physiology continues to change in some ways well past adolescence. No doubt it also gets traumatized and just plain sore once in a while after active use .

With all the information that's now available on the net, I get the feeling that any younger guy who notices a bend or curve may quickly jump to the conclusion that he has progressive, early-onset Peyronies Disease.  Even urologists may be making that assumption. But they never actaully attempt a lab analysis of the tissue,  looking for those tangled, abnormal collagen deposits and related cellular changes. So I suspect Peyronies Disease is on its way to becoming an over diagnosed condition, like ADHD in children.

My point to you is, you may not even have Peyronies Disease - and a 25 degree bend, in itself, is not a big deal as long as the plumbing still works.

Old Man       Reply #106 on: December 24, 2005, 11:57:23 AM »    Quote

Hold on to your shorts my friend! Getting Peyronies Disease is not the end of the world. Believe me when I say that because I first developed Peyronies Disease at the ripe old age of 24, now 76 plus and still going strong in the sex department. Even after prostate surgery in 1995 I can still perform in the bedroom.

There are many and varied treatments that have been tried. Some work, some don't, but one just has to keep trying things to see if it does. Read all the threads on this forum that you can on the various subject matters dealing with Peyronies Disease, treatments and other items related to it.

You will find that you are now in a club that is constantly looking for some relief from this horrible mess. Some recover spontaneously and others do not, but do not despair. You can find something that helps if you seek long enough. We all know that there is no "cure" available so far, but some have found an answer for their individual cases and it possible for you too.

Hope that you can find some relief, and if there is anything the guys on this forum can do to help, just let us know.

Sincerely, Old Man

Roadblock     Reply #107 on: December 31, 2005, 01:56:02 PM »    Quote

I just wanted to agree with bentley that the members of this forum sharing the burden of Peyronies Disease through discussion is great. For me, this forum has certainly made dealing with everything easier, and has lead to the discovery of new treatment options.

I want to encourage everyone, especially the new members (of which I am one) to continue to post and get involved with the discussion. Post a profile. Send a personal message. You'll feel better!

Have a wonderful New Years!

ComeBackid         Reply #143 on: June 10, 2006, 04:06:08 PM »    Quote

Hey guys,

I know I saw at least one post of a guy who was doing injections of interferon.  Is that guy seeing any results or sucess?  I'm wondering though what is the difference between interferon and collagenese as I saw this atricle online.

"Interferon: The use of these naturally-occurring antiviral, antiproliferative and anti-tumorigenic glycoproteins to treat Peyronie's disease was born out of experiments demonstrating the antifibrotic effect on skin cells of two different disorders — keloids, overgrowth of collagenous scar tissue and scleroderma, a rare autoimmune disease affecting the body's connective tissue. In addition to inhibiting proliferation of fibroblast cells, interferons, such as alpha-2b, also stimulate collagenase, which breaks down collagen and scar tissue. Several uncontrolled studies have demonstrated intralesional interferon's effectiveness in reducing penile pain, curvature and plaque size while improving some sexual function. A current multi-institutional, placebo-controlled trial will hopefully answer many of the questions about intralesional therapy in the near future."

Does anyone know what "current multi-institutional, placebo-controlled trial"they are talking about?

Wantitstr8         Reply #144 on: June 10, 2006, 07:46:00 PM »    Quote

As I recall from my research, interferon has been shown to be about as effective as verapimil.  The only problem is that interferon also comes with some significant post injection side effects...that's why most doctors elect to use verapimil.  However, I think someone on the board is currently going through the interferon injections.  I'm sure he can provide more information.

ComeBackid       Reply #158 on: June 22, 2006, 06:09:54 PM »    Quote

I've read and J has stated that steroids can cause tissue atrophy.  Since IONO uses decadron in its mixture, which is a steroid, could this cause tissue atrophy?  I read some reports online and it seems like they are talking about tissue atrophy when used via injections.


Tim 468        Reply #159 on: June 22, 2006, 06:46:54 PM
Quote from: ComeBackid on June 22, 2006, 06:09:54 PM
I've read and J has stated that steroids can cause tissue atrophy.  Since IONO uses decadron in its mixture, which is a steroid, could this cause tissue atrophy?  I read some reports online and it seems like they are talking about tissue atrophy when used via injections.

No - it won't do that.

ComeBackid                 Reply #166 on: July 06, 2006, 06:50:32 PM »    Quote


Found this out of the wikipedia, a great resource for those who are doing research.

Penis Enlargment

Some things I found interesting from this literature.

"Penis enlargement pills" or ointments are commonly offered over the Internet; for the most part, are scams. At best, they promote blood flow to the penis in one way or another, temporarily resulting in a slightly larger erection. Herbal ingredients have included ginkgo biloba, a stimulant and vasodilator, and yohimbe, a sexual stimulant. While both of these ingredients may increase energy and sexual performance in the short term, neither is capable of increasing the length or size of the penis over time.

Jelqing & Clamping
Another method is known as jelqing (or jelquing). Jelqing is a technique intended to enlarge the penis by increasing the blood pressure in the penis, with the goal of permanently increasing the maximum erect size of the penis. This technique, also called "milking", involves wrapping the thumb and index finger around the penis while semi-erect and repeatedly drawing them away from one's body to force blood into the glans, thus encouraging more vascularity in the corpus cavernosa and associated tissues. Whether jelqing actually works or not is a subject of controversy.

The word (and technique) is rumored to have various Arabic origins (from the word "milking"); other sources claim the technique has its roots in tribal Africa (particularly Sudan); however, still other sources claim that it was an American invention and these rumors are simply rumors or propaganda meant to sell jelqing instructions. (According to wiktionary, entering جلق (jelq or jalgh) returns جلق زدن (jalgh zadan) meaning "to masturbate" in Persian. Persian and Arabic use the same basic script.) Still others maintain that this was ancient Russian tradition, practiced by midwives, and mothers for their sons early in life, as this was thought to enhance the size of the genitals. (Such techniques reportedly are the reason for Rasputin's massive organ) .Though there is a growing body of anecdotal evidence, and just one tiny non-blind study with very few participants that seem to suggest that it works, but otherwise there are no really definitive scientific studies to support the assertion or refute that this technique works, or that it is safe.

A study was performed in the late 1970s by Dr Brian Richards in the UK. It was published in the British Journal of Sexual Medicine and showed increases in 87 percent of the test subjects. Increases in penis length of up to 1.4 inches and girth of up to 1 inch were recorded.

Jelqing is inherently dangerous, and even if done correctly can cause injuries, from irritated skin and burst blood vessels to scarring and impaired penile function, including partial loss of erectile function and inability to maintain an erection. It should not be attempted by anyone without a complete understanding of the risks involved.

Another nonsurgical method to lengthen the penis is by employing devices (or one's own hands) that pull at the glans of the penis with continuous tension for extended periods of time. This is known as penis stretching or traction. If the applied tension is too large injury to the tissues or nerves of the penis can result. This is not recommended because it can forcibly tear off the vessels and other neurological nerves thereby reducing the erectile functions of the penis.

Origins of traction can be traced back to thousands of years. Many tribes in Africa still use traction to expand certain body parts such as ears, lips and necks. Many penis enlargement companies use traction as a means of expanding one's penis. Most sites claim to produce permanent results, however, hard evidence on the accuracy of this statement still does not exist.

An experimental method is a complete penile transplant. With modern techniques and anti-rejection drugs, this certainly should be possible, but there has been no record of a successful attempt until very recently. An unverified report from India stated that a penis was taken from a male infant with two penes and attached to another male infant lacking a penis.[citation needed] The overwhelming drawback to this method, apart from the necessity to ever after take immunosuppression drugs, which carry numerous side effects and restrictions in lifestyle, is the unfortunate fact that, performed on an adult, there is no guarantee that significant sensation, if any, would develop in the transplanted penis. Evidence from hand transplant cases suggest that limited sensory input would be available, at best.

MrBLBC        Reply #186 on: August 09, 2006, 08:30:47 PM »    Quote

Quotefrom: Angus on August 08, 2006, 11:26:50 PM
    Welcome, MrBLBC! So glad to have you on board.

    I hope the shoulder heals up in a timely manner.

    Don't worry about one finger typing... I have heard from a reliable source that Hawk, Christine and Liam do not have secret software to check our typing speed   

    Truly.... warm welcomes to you.

Hawk, Liam and Angus,

Thanks for the warm welcome.....J

I know that you've met the wife, some more than others because she very active on the ladies board......

It's not just about us guys, our partners, wifes, mates,etc  deserve more.....

This is going to be an interesting journey, to be successful requires 100% from both parties.......

Maybe a topic subject.....

"What do you do to involve your other half in your health dilemma......."

Also wanted to let you all know that I told all my family including my mum.....

The more support the better.......[/color]

Caring        Reply #191 on: August 10, 2006, 11:50:32 PM »    Quote



I applaud you for telling your friends and family. I can picture your friends with their fingers in ears...TMI TMI.  Of course they didn't want to hear it. It runs too close to home, something may happen to them, someday, or it may already have- but they can't tell anyone. Who wants to know  about .....Peyronies Disease..............shhhhh.

Who knows where your openness may lead.

For me, being a woman, it was very difficult to talk about Peyronies Disease to anyone. However, I can sort of relate to your experience.
I have a very close friend who has complained of the lack of affection in her marriage and physical changes in her husband,  so I did what any responsible Peyronies Disease involved person would do, talked to her about it and then drug her rear to a Peyronies Disease meeting. When we left, she asked how in the world I knew about this (Peyronies Disease), so I told her. I got the TMI- TMI too. But, in the long run, she now understands the disease and has a new understanding of what her her husband has silently been going through. No, he has never seen a URO and to this day, 3 yrs later, he still does not know she went with me to that meeting.  He would never admit, even to her that he has any problem.
Occasionally I get a  phone call, wanting more  information, and just the other day, she said that she may have talked him into finally seeing a Dr. For this macho, redneck man, that is a huge step. Fortunately, he is going to make an appt. with the Dr. we heard speak.
I tell you this so you can see an example of what your willingness to open up to others about Peyronies Disease can have. One day, someone may come to you and ask for help, and you will know exactly where to send them.
Helping others while helping ourselves.

Old Man          Reply #250 on: October 20, 2006, 11:23:54 AM »    Quote

Note to all:

Injuries to one's penis can and does sometimes happen during surgeries. During my double hernia operation (local anesthesia done) the scrub nurse, accidentally used the wrong clamp (forceps of whatever) on my penis and caused a whole heap of pain. The surgeon removed it and then used the right one. But, about two weeks later, nodules appeared in the exact spot where the clamp was used. It was Peyronies all over again.

IMHO, injuries can be done during surgeries. However, I firmly believe that most are not caused by negligence, but just things like that just happen sometimes.

So, bottom line, we have no control over what happens to us while under anesthesia, either total (put to sleep) or by locals, etc.

The above is just my personal observation. BTW, the surgeon apologized for it all.

Old Man

DannyOcean              Reply #283 on: November 06, 2006, 12:15:56 AM »    Quote

This is interesting as I was about to post something of this nature tonight.  I don't have any discomfort in that region but one thing I have noticed is that the temperature of my penis tends to be cooler than I remember it being.  It's not cold really but definitely not warm either.  So here's a bit of a pet theory I'm developing...

I wonder if one of the things that might be a contributing factor to Peyronies is some sort of circulation problem.  This could be caused by a number of things including some sort of structure problems which are contributing to insufficient blood flow to this region.  If there was a structure problem this might help to explain your pelvic/lower back discomfort problems. 

It's interesting that the most promising drug for Peyronies Disease is Pentox which encourages circulation.  I wonder if there could be more to this.  Perhaps many of us who have Peyronies Disease have problems with circulation in this area.  Because of this we might be more likely to have had a traumatic injury than others. 

And here's something else to ponder.  I wonder how "well-endowed" those of us with Peyronies Disease are (or were before our injury).  Personally speaking, I'd say I'm average to slightly below average.  I wonder if there are any people here who are very well-hung with Peyronies Disease or if we're all a bit on the small side.

I'm trying to ponder all this stuff for a possible connection.  It's out there I know but my gut tells me there could be something here.

Hawk                     Reply #284 on: November 06, 2006, 08:24:56 AM »    Quote


Circulation is very much an established factor. 


However, you are likely paying much closer attention to your penis than ever before, and some of these "discoveries" are no doubt normal.

Hawk                        Reply #297 on: November 07, 2006, 07:07:08 PM »    Quote

Welcome Tamarack and a special welcome for actively participating.

At this time, I will address only a few issues I feel somewhat confident about.  This is not meant to discourage you but to give you accurate information.

Instead of 30% resolution it is much closer to 10%, maybe 15% tops, and probably 8% in actuality.  I have never heard a urologist of any renown with Peyronies Disease that placed that number above 15%.

As you are developing deformity, you have inflammation regardless of pain.

If you have had Peyronie's less than 6 months, I would bet the farm you are still in the acute stage with inflammatory response.

Due to time constraints, I will end for now and let others jump in.  Good luck! You could not be in a better place than this group of members at this stage of your Peyronies

Angus           Reply #302 on: November 08, 2006, 05:37:55 PM »    Quote  Modify  Remove


   Hello Tamarack, and welcome to the board...

     Tim has summarized a good approach for you. I did want to jump in and mention that the Thackers Formula has been cussed and discussed for years. It was tried by many men (myself included, years ago) out of frustration and willing to try anything. How the formula actually came about and its hoax factor was discussed for the longest time and now isn't discussed much because of lack of data and other things have caused a lot of us to put Thackers on the very back burner. It did not help me at all, and I don't know of anyone in the past years who claimed it worked for them. I don't think anyone really knows the long term consequences of DMSO application, if there are any. The things to use in Tims post are much more recent than the Thackers Formula, but it's your decision on what to try. In summary, we just don't want you to burn valuable time on things that don't have a good track record. There is much information here on VED use as well... you could begin with the Highlights of VED's read-only thread in the Child Boards (under development). There is a link to these on the home page. This would give you a good foundation on the general thoughts here on VED's and their use.
    Again... welcome to the board.

Tim468                Reply #321 on: November 14, 2006, 10:06:44 PM »    Quote

A tiny bump on the surface skin of the shaft of the penis is not Peyronie's Disease. A quick way to tell is to see if the lesion" moves with the skin, or if it is "stuck" to the shaft. If it slides up and down with the skin then it is most likely a healing pimple, or ingrown hair follicle shaft. It might be impetigo (minor skin infection).

It is abundantly clear, "howcanthisbe", that you are living in a near state of panic, and that you still ahve not gotten adequate diagnosis or help from a medical professional. Unless you like the pain of living in uncertainty, change that.


George999                   Reply #331 on: November 15, 2006, 11:51:29 AM »    Quote

Tim, thank you so much for your excellent post.  I have been told by more than one doctor (other than you) that faulty self diagnosis is a trap that even doctors fall into and a critical issue in medicine and medical diagnosis is a degree of detachment on the part of the physician.  Some people wrongly assume that education and training are the only key factors to good medicine, but the fact is that it is extremely difficult, due to the normal machinations of the human mind, for even the most educated and well trained physicians to reliably care for themselves.  One physician commented to me that it was not uncommon in medical school for one or more class members to abruptly 'come down' with just the affliction that they happened to be studying at the time.  Its a matter of reading up on some dread disease and suddenly coming to the realization of 'Oh my God.  I have that disease.  I have all the symptoms. I just know it!'  And the reality is of course, its all in their mind, which only becomes apparent after a brief consultation with a psychologically detached professional who is able to rationally ask all the right questions and perform a few simple inspections.  So I would say to HCTB:  You are not alone in what you are experiencing and a brief visit to a professional can go a long way in bringing relief from your fears.  So WHENEVER you have concerns and people on this forum advise you to get professional help, do yourself a favor and follow through.  There is only so much anyone here can do, you need to see someone who can EXAMINE you physically and advise you.  And as Tim has suggested before, you also need to have a counselor in whom you have confidence who can guide you in the right directions on these issues as well.

- George

Johnnyboy               Reply #338 on: November 16, 2006, 01:03:02 PM »    Quote

I appreciate everyone's lifestyle suggestions, but can someone please give their input on my Peyronies Disease-related situation?
Do you think I have done permanent damage already?
What would be the best course of action to let me body repair and heal?

I'm just looking for input and opinions about my situation and how it may progress.

Old Man                      Reply #339 on: November 16, 2006, 01:12:31 PM »    Quote


We have given you good advice on what you should do about your situation. The guys on the forum, except for Dr. Tim, are only laymen in the medical field. However, quite a lot of us have had many years of experience with Peyronies and mens health problems. I have a background in counseling with guys

Again, my best advice to you is to get yourself to the best qualified urologist who has experience with Peyronies and get a thorough examination. Only then will you know for sure (and sometimes maybe not know) whether or not you have the disorder.

The things that you related in your posts certainly have the potential for causing major problems with you most prized possession. So, bottom line again, get professional medical help for a solution.

Also, you might consider getting some counseling toward correcting your lifestyle and what you intend to do with your life in the future. If any of us can help you in any way, feel free to call upon use at any time.

Best regards to you, Old Man

George999         « Reply #449 on: April 07, 2007, 11:56:16 PM » Quote 

litningwlf, my advice would be:

1) General advice:
   A) Get and read the book "You: On a Diet" by Roizen and Oz and learn how specific foods affect your body and impact your health and adjust your diet accordingly.  Especially make sure you concentrate on anti-inflammatory fats as opposed to inflammatory fats which feed Peyronies.
   B) Get plenty of appropriate exercise.  It will greatly benefit not only your physical health (via systemic Nitric Oxide Synthesis stimulation), but also your emotional health.
   C) Make sure you get sufficient and regular sleep.  To much partying is not good for Peyronies.

2) Peyronies specific advice:
   A) DO the stuff that Lue recommended (Pentox, Viagra, Arginine).  If you do the Pentox and Viagra with food that will help you to tolerate it.  As for Arginine, I recommend SAN VasoFlow.  Unlike other Arginine formulations it is not harsh and it contains synergic compounds as well which means you get a lot more bang for a given amount.  You want to knock out things like TGF-beta-1, PDE-5 and Arginase and stimulate Nitric Oxide Synthesis which is a powerful plaque disolver.
   B) I would also recommend Broad Spectrum E containing not only Alpha Tocopherol, but also Gamma Tocopherol plus traces of all the other six Tocos.  I also recommend Cocoa (nut) which has been shown to soften vascular tissue and rejuvenate elastin.  Nattokinase is another good supplement.  It knocks out excessive amounts of fibrin in the blood stream.  Fibrin, along with collagen is a key component of plaque.  NOTE that Pentox, Vitamin E, and Nattokinase can all cause bleeding, though via three different mechanisms.  So be sure to discuss their use with your physician and be careful not to overdo either the Vitamin E or the Natto.
   C) Consider acquiring and using a VED.  Check out the VED section of this forum for more information.

The best thing you've got going for you is 1) you are young.  Young people are much more likely to recover from these kinds of things relatively unscathed.  And 2) its only been three months since your injury.  That close in the Pentox/Viagra/Arginine is MUCH more likely to be effective in knocking this thing out, even if it wouldn't otherwise heal on its own.  You need to get out of the panic mode and get into the action mode.  The worst thing you can do is to fixate on the horror stories.  Instead make up your mind that you are going to beat this affliction and DO the stuff you are being advised to do by Dr. Lue.  I really doubt if the herbs you took have really worsened your condition in any way, but I doubt that they have been helpful either.  You need to forget about your 'sensitive system' and make use of those substances and therapies that have been shown by legitimate research to be helpful in dealing with these types of issues.  And don't listen to the people who will try to tell you not to use this and not to use that because it will somehow permanently damage you.  None of the above approaches are likely to damage your future erectile capabilities but doing nothing very well might do just that.

I wish you the very best!

- George

Tim468               « Reply #452 on: Yesterday at 08:47:56 AM » Quote 

I could try to encourage you at length, but I believe that George's post has EVERY single bit of important and relevant information that you need to heal as completely as possible. I see no point in reiterating it.

One of the hardest things for us all to do is to live with the "What if's" in life. Oftenwe put a great deal of energy into anxiously worrying about what if, only for it to not turn out the way we thought it would. All that energy spent worrying!

Right now, it's funny how life turns. My daughter (a teenager) is battling depression, and I am sitting here catastrophizing like crazy. I have her living on the streets in 3 years, in my mind. I am VERY anxious about it - in fact, I can share with you that the pain of this worry is greater than that I had at the onset of Peyronie's, which hit me when I was 21 years old. So do what I say - not what I do!

Really, though, experience has taught me the futility of thinking this way. I am trying this morning to come up with a gratitude list. Today, I have to try to come up with things my daughter did yesterday that helped her (because she did some things that did not help her, and I am pretty angry about those choices). Similarly, you might be able to comprehend how it could have gone - you could have decided that you were fine (based on your injectable erection, and not injuring yourself in the clinic) and gone out clubbing, ended up having rough sex, and injuring yourself worse.

IOW, there are MANY ways that life can turn out. The way your life is right now is not the worst that it can be - but it is a challenge.
It might help to:
1) simply accept that it is not the way you want it to be right now,
2) accept that you have a plan of action that might (in fact, probably will) help you get better,
3) attempt to make up a list of gratitudes about your life every morning,
4) try to journal in the morning before you have done virtually ANYTHING ELSE by writing three pages at least in a journal (we call this the "morning pages",
5) set aside some time each morning to meditate (5-20 minutes) to calm you mind and to prepare for the day,
6) REREAD George's post regarding diet and EXERCISE - even a walk on a daily basis will promote healing and less mental pain,
7) If it works for you in your heart, pray for God's will to be done in your life, and for it to be revealed to you what this is happening for. I say it like that because I do not think of God as being a pinch hitter who comes in to bat when we are tired and to save the game! I am not religious, but my belief that there is some guiding force to the universe has helped me at times,

Finally, come here and rant all you want. You are articulate and in pain - I expect to hear more from you, and that is OK. One thing we can offer when the medical stuff is not helping for sure yet is to offer support for how it feels. None of us ARE YOU, but we have suffered in similar ways, and if you recall how we are all similar, it will help you do better as you walk down the road that you are already on.


ps - for all the anxiety I have had about my erectile quality, new "dents", progressive disease and so forth, I note that last night love making happened without cialis or viagra with great erectile quality, and the path I am on finally seems to be helping me get better. So hang in there - it may take a while but it can change.


dahc                        « Reply #699 on: October 01, 2007, 12:34:05 PM » Quote 

Here is a link to a Webcast from AUA annual meeting. There is a 20 minute lecture from Dr. Levine about Peyronies Disease, click on the link: Non-Surgical Treatment of Peyronie's Disease. Liam, there is something I think you'll agree with about Peyronies Disease resolving spontaneously. And Tim, there seems to be some development on a Peyronies Disease questionnaire sponsored by Auxilium, should we be skeptical? Please keep working on yours Tim.


I found the links on erectile dysfunction very informative too.


Tim468     « Reply #703 on: October 01, 2007, 08:36:38 PM » Quote 

The talk by Levine was pretty good. The Flash Streaming Video of the talk included a short clip regarding injecting the verapamil. He stated that he makes as many as "seven or eight" puncture wounds but as many as "eighty to one hundred passes" into the plaque. That strikes me as much more likely to be like the Leriche technique than simply due to injecting the verapamil.

In the clip it was clear that the penis he was holding had a firm nodular plaque that he could actually grab a hold of and gradually fill with Verapamil. I realize (now) how different my Peyronie's is than that sort of disease, and how little there is that is palpable. I noted that the original Leriche technique article does not think it works as well for non-plaque disease. This makes sense since it the technique consists of multiple stroking motions across the surface of the plaque to leave a lot of tiny partial thickness cuts in the plaque that allow it to stretch out (which is different than multiple puncture wounds). Nevertheless, I wonder how much of the improvement is due to increased stretchiness of the plaque as it gets "Swiss-cheesed" into submission.



Liam     « Reply #705 on: October 02, 2007, 05:57:23 AM » Quote 

The video should be required viewing for all men here.  Good info!!!

    GOOD JOB DAHC!!!   

it gets "Swiss-cheesed" into submission
  LOL Well said, Tim! 

Hawk and Tim,  I thought the same thing after seeing the injections.  He poking the heck out of that plaque.