Dealing with pain from trauma

[Thisismyusername]

I've had peyronie's disease for at least 3 months following trauma to my penis during sex.  The trauma was not severe enough to cause me to lose my erection, and there was no immediate pain, only discomfort.  However, I have had chronic pain on my flaccid penis throughout the day for the last 3 months, which I believe to be due to the original trauma that caused peyronie's disease, not the disease itself.  Sex and masturbation irritate my penis and I have completely stopped both for over 4 weeks, yet the pain persists.  At this point even having erections for a prolonged period of time seems to irritate my penis.  I also am experiencing mild urinary pressure throughout the day.  in the past 4 weeks I have had mild pain on erection, probably due to the peyronie's disease.  

I am taking 600 mg ibuprofin 3x a day at my PCP's suggestion, which seems to do little or nothing.  I also have been taking 800 mg pentox and 2000 mg L-arginine for peyronie's for the last 4 weeks or so, which so far have done nothing.  It took me a while to find a urologist who would help treat my peyronie's disease, but even he would do nothing to help me deal with this pain.  Does anyone have any advice for dealing with this pain or to help my penis recover?  To me this is the first step towards treating this condition.  

[LWillisjr]

Some members here have had some success with Pentox. There are some articles located on the forum here:

https://www.peyroniesforum.net/index.php/board,10.0.html

[Thisismyusername]

Thanks, but I'm already taking pentox with no noticable effect after 4 weeks.  I know some people say it takes longer to feel any effect, but unfortunately the medicine seems to be interfering with my quality of sleep.  On 1200 mg per day I am an anxious sleep deprived wreck.  On 2 pills a day I'm still having anxiety and feeling tired, but not as severe.  I'm considering reducing to 1 pill or even stopping pentox entirely because I don't feel that I can be productive and function like this.  The problem is that if I stop pentox I feel like I have no defense against potential worsening of my condition.  Currently the curve is only about 10 degrees, but I am experiencing significant chronic pain all day long, not associated with erection.  What I'm asking about here is not pain from peyronie's itself, but rather from the original trauma that caused me to develop peyronie's.

[james1947]

Thisismyusername

You may be right regarding:

is not pain from peyronie's itself, but rather from the original trauma that caused me to develop peyronie's.

and in my opinion you should try some other pain killer.
Regarding Pentox, if I miss the dad line of 6 PM, I am not taking it. Yes it still making me tired after more than 18 months taking it, but I see it as defending me from further progress of the disease.

James

[0x5555]

Get to a urologist and tell them you are experiencing this pain.  Be really clear that you are experiencing pain which is not normal.

Likewise, get them to refer you to a pain management clinic.

I suspect that your sleep is not being affected by the pentox but by the pain.  Chronic pain is a VERY subtle 'disease'.  I had pain for over a year and a half (and still have pain).  I should have been to a pain clinic far far sooner and like you no doctor gave me anything more than some OTC pills.

Good choice to stop masturbating and other things.  See if you can let your body heal up.

[Thisismyusername]

My urologist appointment is this week.  In the meantime I called my urologist who prescribed tylenol 3 (300 mg acetaminophen, 30 mg codeine).  Unfortunately it does little or nothing for the pain.  Sometimes I think the pain is improving, but just about everything irritates my penis including driving, walking, wearing jeans, washing it in the shower, or getting erections, so the pain always seems to come back.  Also, the curve seems to be getting worse.  I have been avoiding erections because they make the pain worse, but I'm worried that not getting erections will cause the curvature to get worse since the scar tissue won't be stretched out.  I'm having a hard time dealing with this all.  

[George999]

I would certainly NOT quite or even reduce the Pentox in this sort of situation.  My initial Peyronie's pain was intense and it lasted for months and NOTHING the docs gave me made it better.  I only wish I had the opportunity to use Pentox because it is the best Peyronie's anti-inflammatory on the planet bar none.  Even if you don't notice a reduction of pain, it is almost certainly helping.  In my case, later on, combining it with 300mg per day Ubiquinol helped increase the pain reduction to the point of stopping my pain completely.  So in this situation, I would recommend you try full dose of Pentox with full dose of Ubiquinol and see what that does.  And think twice about stopping the Pentox, things can get worse.

[Thisismyusername]

George, thank you for your reply, but I don't think you realize how difficult the sleep deprivation is for me to deal with.  Please read my post https://www.peyroniesforum.net/index.php/topic,3656.0.html

How long would you say it takes to start seeing improvements from pentox, and how significant do you feel the improvements are?  

I am even worried that pentox is making me worse because the sleep deprivation must be bad for the natural healing process.  

[elro]

my personal recommendation is heat therapy, it works for me because i can target the penis behind the pubic bone with it, each case is different though so it's important you keep trying things til you find what's right for you, best of luck

[james1947]

Thisismyusername

I have not revised my "forum research" from March 2012 but I am proposing you to read it:
PENTOX effect on Peyronie's - Forum Experience - Peyronies Society Forums

James

[Thisismyusername]

I had my appointment with the urologist.  He thinks that if the pain were from trauma then 6 weeks without sex or masturbation should have been enough to heal, so he thinks that the pain is from something else.  Because I also have urinary pressure (peeing every 30 minutes or hour throughout the day, sometimes also every hour or two at night) he thinks I have prostatitis.  He felt my prostate and it hurt like F~@< on my penis.  I don't know what that means, but something is definitely weird going on with my pelvic area.  I also have had pressure in my rectum and sometimes in my perenium.  He gave me an antiobiotic called sulfamethoxazole to take for a month.  It's been 4 days so far and it hasn't helped.  I don't really believe that I have a bacterial infection, but I do think something is wrong with my pelvic area in general, in addition to peyronie's disease and possible left over damage from trauma.  I'm going to read this book A Headache in the Pelvis, a New Expanded 6th Edition: A New Understanding and Treatment for Chronic Pelvic Pain Syndromes: David Wise, Rodney Anderson: 9780972775557: Amazon.com: Books
hoping that it offers some suggestions that can ease my symptoms.  I think the pain on my penis is from some combination of trauma, peyronie's disease, and pelvic inflammatory disorder.  

I have been sleeping very poorly due to pain and anxiety.  I've stopped pentox for a few days to  see if I start sleeping better, but so far it's hard to say.  I think my sleep deprivation might be in part from pentox but I also believe there are other contributing factors.  

I was also prescribed vicodin to help with the pain.  I will try taking one pill today to see if it helps.  
I am in pain and discomfort all the time and I feel hopeless.  If the pain doesn't go away I will never have sex again and never be happy again.  I'm only 28.

[james1947]

Thisismyusername

If the pain doesn't go away I will never have sex again and never be happy again.  I'm only 28.

I understand you 100% and please find as soon as you can a Peyronies specialist because the uro you have seen don't have any idea how to treat Peyronies! (My private opinion).
Also I never heard about taking antibiotics for one month. As I know, maximum 7 days, some just 3 days.
Regarding bacterial infection, he can find very easy with a simple urine test. If you have prostatitis can be diagnosed also by urine test and not "he thinks" you have. Again, my advice, find an other uro.
Regarding:

I also have urinary pressure (peeing every 30 minutes or hour throughout the day, sometimes also every hour or two at night....also have had pressure in my rectum and sometimes in my perineum

I am fighting with those problems more than 5 years:
* First uro put me on Finasteride because of enlarged prostate, my prostate was in the range that don't need treatment. It made me ED and black hair growth all over my body.
* Second uro made me a TUNA treatment to shrink the prostate, my prostate was in the range that don't need treatment. It made me Peyronies (together with injury, in the past I had injuries that cured alone in days)
* Third uro made me ESWT to broke my bladder stones, he says this is the reason of my urinating problems. After the treatment, no any improvement.
* Fourth wanted to make me surgery to take out the bladder stones. I refused!!!
* Fifth, a young internist doctor in a simple basic hospital (don't have even one uro where I am living now, the area have some 2 million people, can't make money from simple people so no uro) told me that today to broke the bladder stones don't need ESWT or surgery, have medication for that, I am 3 weeks on the treatment.

It just shows why I am so much suspicious with doctors (I have many other examples in other health areas).
Thisismyusername, DON"T LOSE YOUR BELIEVING. You are young and you can be over those problems, just need to find the correct treatments.

James

[funnyfarm]

"made me a TUNA"

Good advice !

[james1947]

TUNA - Trans Uretal Needles Abrasion
They are heating the prostate with low wave radio frequency and like the uro explained me, the prostate shrinks like the hamburger on the barbecue
(Hope I am not wrong with my English writting)

James

[Old Man]

James:

TUNA is the term for Trans Urethral Needle Ablation. It is a tricky procedure so it must be done correctly. Otherwise complications can and will occur. If the urethra is punctured, it causes another surgery to repair it.

TURP is the term for Trans Urethral Resection (Reduction) Procedure. It also is a tricky procedure and must be done correctly. Same applies here if the urethra is punctured.

I had one TURP done prior to my radical retropubic prostatectomy in 1995. It was no fun and took a while to heal before urination would not burn like fire each and every time.

Anyway, I don't relish having either of these procedures done. Now that I have no prostate, don't think I will ever need one.

Old Man

[Thisismyusername]

An hour after taking the vicodin the pain was reduced, but after I got stressed out about something the pain returned full force.  When I relaxed again it reduced again, but only while sitting.  When I got up to walk around the pain was full force again.  I guess even vicodin 7.5-750 isn't enough to significantly help.  I don't think it's worth taking an opiate for very mild pain relief.  I'm going to try to get another appointment with a different urologist (I'm moving out of state) and have them do an ultrasound.  I'm also going to try to get a referral for a pain management clinic.  I don't know how I'm ever going to recover from this pain.  I can't even get a few hours of relief with prescription pain medications.  

[funnyfarm]

OM does missing the prostate still allow you to have sex ?

James, you meant to say "gave (or adminsitered) TUNA".  It sounded like he turned you into a tuna (large fish).  But no worries, we can understand you fine.

TIMUN, there are things that can help with prostatitis, but generally not opiates.  And yes stress will cause an inflammatory cascade.  I would focus on diet, sleep, relaxation first, and see if you get any benefit.  The RX pain killers will take a toll on your system over time and not get to the root problem. Ice an cold baths, can  be helpful.  Herbs are good for sleep or spasms. Likely your body is having a sensitivity to something you are eating, or something in your environment.

I did not get any help from the book you mentioned, but it does help a few guys.   I would recommend a doctor that specializes in prostate issues.  The antibiotic may not work, but diagnostically it will rule out an infection which is helpful.  I strongly recommend taking a probiotic and eating a few fermented foods to help heal your gut which may be very aggravated from the RX drugs.  Hang in there.

[Old Man]

Funnyfarm:

YES!!! I use a VED when needed to achieve a very hard erection by using the restriction bands that come with the VED. I can also achieve a natural erection through foreplay and then apply the restriction bands to hold up the resulting erection. Most of the time I can achieve a natural erection through manual manipulation of my penis and then placing the restriction band on while it is still erect. BTW, I will be 84 years old in September this year and even with the prostate surgery, I can still have sex anytime I can get the wife interested!!

Even though the prostate gland has been totally removed, I can reach a climax, achieve ejaculation effect (no fluid ejaculates since the prostate is no longer there) and get a satisfying feeling, etc. Just because the prostate gland is no longer there does not mean one can not achieve the feeling of reaching a climax.

However, I had a nerve sparing surgery by a very competent urologist who was an excellent surgeon as well. Had he not spared the nerves, I probably would not be able to reach a climax and have the ejaculatory feeling as I now have. It all depends on the expertise of the surgeon.

With the advent of the robotic prostate surgery, the above becomes a bit more sophisticated procedure. And, the robotic surgeon must be very careful to spare the nerves to achieve the same result as I had with an open incision. I am told by my personal urologist (now a lady doctor who has done many surgeries) that both surgeries must be done by a competent surgeon to achieve good results. (BTW, my urologist sponsors me in her program to counsel patients who need advice from a cancer patient who has had surgery.)

Hope the above helps and if not let me know and I will answer any questions you might have.

Old Man

[funnyfarm]

Thank you for the information OM.  Glad  you found the right doctor and the result was v good considering this not an easy surgery.  

[inkhorn]

Funnyfarm- I can confirm what Old Man said. I started having sex with the VED about two months after my prostatechomy. I too can have a rock hard erection with the VED and the cock rings and have what I like to call an electric climax. Unlike OM there is no natural erection without the VED,(way to go OM!). Concerning pain, I have none,THANK GOD! Regards Inkhorn  

[Old Man]

Inkhorn:

Thanks for the ''way to go'' comment! Yeah, I have had Peyronies Disease for about 60 years now and ED since the age of 55. I started using cock rings at 55 when I realized that a more firmer erection could be achieved by using them. In addition, it gave my wife a better sensation because it ''rubbed'' the clitoris and made for more intense climaxes for her as well as myself.

ED and Peyronies Disease symptoms are a very devastating problem with any and all men as well as their wives and/or partners. Each case of Peyronies Disease and/or ED takes own a ''mind of its own'' and one must endeavor to find a viable solution for their individual case.

So, bottom line, these problems must be approached with an open mind and keep trying different approaches until success is achieved.

The above carries my usual caveat = let the buyer beware!!!

Old Man

[IhatePD]

Old Man, you are an inspiration to all of us!

[Old Man]

IhatePD:

Many thanks for the kudos! Yeah, I consider myself a very lucky man to be alive for long! Also, to be able to have sex at my age is somewhat of a miracle, huh?

If you only knew how many surgeries and medical problems I have endured in my nearly 84 years, you may not believe it.

Again, I just try to do my best to help any and all with this crazy and horrible mess called Peyronies Disease.

Best to you, Old Man

[newguy]

thisismyusername - I echo the comments of others with regard to pentox. In your shoes I think I would continue taking pentox and try other strategies to deal with the anxiety and sleep issue. It might be that you can find a balance or a way to reduce the side effects through a strategy such as that. You might be thinking "easy for you to say" and you'd be right since I didn't have many side effects while on pentox, but I thought I'd make a contribution anyway. Aside from that maybe topical ibuprofen on the affected area might help? I gave that a try for a while since it's more I was concerned about taking too many of the oral form.

[Thisismyusername]

I'm going back on pentox starting today.  We'll see if I get bad side effects or not.  I'm trying desperately to schedule an apt with a urologist who can do an ultrasound so that I can see where the plaque is and if that is the area where pain is the worst.  If so I'm pretty sure the pain is from plaque and that might help me treat it.  I'm also trying to get an appointment with a pain management clinic but it is turning out to be very very difficult and slow.  Meanwhile I'm suffering and I'm trying to hold my life together but its hard.  

[james1947]

My advice for Pentox:
Take it during your meals, not after or before.
Start with one daily (400mg) in the morning.
Increase to 2*400mg after a week or so when your body begin to be used to Pentox.
Increase to 3*400mg after an other week or so when your body begin to be used to Pentox.
The last pill not later than 6 PM. If too late, skip on the third pill.

James

[funnyfarm]

I have been using this lately it has helped with my nerve pain:
Herb Pharm ST. JOHN'S WORT (Hypericum perforatum) Oil (For External Use Only)

I also ordered this for inflammatory pain:
Herb Pharm TRAUMA OIL™ Compound For External Use Only

It may or may not work for you depending on how deep the effected tissue is (closer to the skin surface = easier to treat)

[Thisismyusername]

I've been taking pentox once per day for about a week now and seem to have either no or manageable side effects so far.  I'm planning on increasing to 2 pills per day starting Saturday.  I'm also taking 1000 mg l-arginine with the pentox and 300 mg coQ10 per day.  The pain actually decreased for about a week but then by accident while I had an erection I hit the head of my penis sending pressure down the shaft and the pain has increased significantly since then.  I think I may have been on the way towards healing.  I'm hoping that in another month or so they pain will decrease again, and this time I am going to be extremely extremely careful about doing anything with an erection.  

I'm slightly hopeful that the pain will go away on its own within a few months.  I have noticed a trend of the pain improving after about a month without significant irritation, but then being very easy to flare up again if I bump into my penis or have sex or masturbate.  My current plan is to avoid any possible significant irritation for a few months and see how things are.  I have a urologist appointment for sep 10th and I'm hoping to get an ultrasound.  Haven't had sex or masturbated for maybe 2.5 months now.  Hoping I will be able to have sex again at some point in the future without pain.  

[james1947]

Thisismyusername

Just keep with your treatment. I think your pain will go away in short time.
Pentox is the key for that.

James

[Thisismyusername]

funnyfarm, can you explain how you used the st john's wort oil?  Do you just rub on your penis?  Is the pain relief immediate?

[funnyfarm]

Yes, just rub it on the scar tissue, it will ease the pain in about 5min, but not completely eliminate it.