Progression of Peyronie's Disease

[Old Man]

ocelot556:

I experienced some of the same numbness at the plaque/indentation site when my Peyronies Disease was so bad. My uro said that it was caused by the nerve sensation being blocked by the damaged tissue. Whether or not this is your case, have no clue.

There may be others who can share their experience with this problem.

Old Man

[MUSICMAN]

When I started with my Peyronies I had the pain & hourglass on the left side about 1\2 the way up the shaft, When I went to the Euro he said he could not feel any plaque. Got the bend and then the plaque started to develop. Odd
that the main plaque is on the RIGHT side and also the bottom but I bend
80 -  90 deg to the LEFT.  Is this common???  If I develop much more
plaque I think I will have a permanate erection. Is my situation about right
or more than normal.  Using supplements and VED ( I think I do have some
improvement with this. After 3 years I don't see why I seem to have more
plaque developing on the underside. I can get nocturnal erections but
things don't work during the day unless I use Viraga,andthen what can you
do with a horse shoe?? I do understand that the VED and such take a
long time but what about this large amount of plaque???  Input??
                                                                           Musicman













i

[Ned43]

Hi everyone,
I'm glad I found this forum.  I was diagnosed with Peyronies Disease 8 years ago at the age of 29.  I developed a plaque on the left side causing an initial bend to the left, but not severe.  After the initial bend, I have pretty much returned to a relatively straight erection, but with a slight twist of the shaft to the head.  It is odd, but I normally experience hardly any pain during an erection/sex.  However, in a normal flaccid state I do at times have a dull ache in the scar tissue or even a slight burning sensation that at times extends into the testical below the plaque.  So, to make a long story short, I have a couple of questions that I was hoping some of you could answer:

1)  Does it make any sense to have varying discomfort while not erect?

2)  Also, I've always read that Peyronies Disease is a progressive disease.  However, since the initial onset 8 years ago, I have experienced no progression.  Is it true that with Peyronies Disease that I should expect it to progress as I get older or is it possible that it may not?

Anyway, thanks for all your help and I look forward to hearing any helpful input you may have.

Sincerely,
Ned

[jackp]

Ned
My first sign of Peronies was almost 15 years ago. Plaque on the top just behind the head, curve up about 20 degrees. Went to the Uro for a prostate infection and he said I also had Peronies.
He put me on Vitamin E and Potaba. About 18 months later the curve was gone but had lost size.
No it not uncommon for the curve to get better for some of us. I have not had a relapse of Peronies and plaque. Have had Loss of size,  Low Testesterone, ED, Venous Leakage and corporal fibrosis I believe as a side effect of Peronies.
I did not have pain but was taking 800 mg of ibuprofen for arthritis and that may have helped.
Hope this helps.
Jackp

[Tim468]

Hi Ned,

Interesting questions - odd that they did not prompt any answers here!

Many of us have degrees of discomfort when erect or flaccid - so you are not odd at all in that sense. Your second question is impossible to answer, or perhaps to answer it in the way we would like - with certainty. IT is possible that it can get worse later in life, and it is possible that it may never change again. For most of us who got it early in life and are now older, it has flared now and then along the way. For me, it has gradually worsened, for Old Man it has waxed and waned and is now as good as it has ever been (I think) and for others it has not changed much at all.

Tim

[pjchap]

okay i'm a new member and heres my story... i'm 25years old i developed guillian barre syndrome GBS in 2005 i was treated while i was travelling in australia and made a full recovery by september 2005..
Then whille making my way home with my ex girlfriend in febuary 2006 i noticed a slight bend in my penis to the left side.. this worsened over the next few months and i went to one doctor he said it was normal then it got worse i went to another uro and he diagnosed me with Peyronies Disease about a year and a half ago..
i have no pain but at first it just bent to the left and now its bending towards me from jst under the head!!
MY penis has gone very narrow just under the head always flops to the left and is like a banana when erect to the left with the head curved towards me..
The uro said 5 months ago it wasn't bad enough for surgery try vitamin e and thats all yo can do really..!!
i am currently taking herbs i got off a doctor on those Dr china shops but i cant see it fixing it...!
what do i do at this stage..? will i ever get back to normal..? is surgery a big risk..? is GBS related..?

[Tim468]

Hey PJChap

Welcome. Sorry you're a member of the club...  

I'd go to work with the VED. I had no clue when I developed Peyronie's a bit younger than you did - what I instinctively did was to get hard as often as possible and to "use it or lose it". I really do think that helped a bit - in that it stretched it out nice and hard often.

Now I would recommend using the VED to get it hard and straight (when you get an erection, there is no "correcting force" applied to the penis that might make it straighten out, like there is in the VED. It is no cure-all, but it might slow things down and leave you in a better place.

Although you might be a surgical candidate, you had best be aware that you are going to get one, maybe two, shots at surgery, so make it one of the best surgeons i the country if you chose that route. Also, you can always opt for that later.

Hang in there. This is a tough problem emotionally. I am glad we are here to help you.

Tim

[gwar]

YIKES
SO THIS IS WHAT I HAVE?
i have watched my penis going continually to the L
I am taking Propecia
any comments
This is scary
Gwar

[pjchap]

Do some men fully recover.? and some men say oh they have Peyronies Disease but don't have a bend.. like what is Peyronies Disease without the bend?
my understanding is plaque formes in the shaft of the penis restricting blood flow and pinching nerves causing bending and less rigidness.. am i right? if so if i just get the plaque taking out will my penis pop back straight and blood flow normal again...? why does that seem obvious and simple to me  

[Old Man]

pjchap:

No, Peyronies Disease does not go away as simply as you stated in your post below. As far as I know, Peyronies Disease never goes away in its entirety. I have had it for over 50 years now and there are still some small symptoms left in my shaft: a slight indentation where the major plaque was located and some slight plaque on the top portion of the penile septum area.

You should take an aggressive approach to some form of therapy as soon as possible. Would suggest that you see a qualified Peyronies Disease urologist to determine if you actually have Peyronies Disease and then start out on some form of therapy quickly.

Peyronies Disease is a rather devastating disorder in men and will affect each person differently. At best, it is a very hard matter to deal with, but one must accept the fact they have it and take quick action. Prolonging some form of therapy will only add to the agony of the matter.

We are all here to help, so feel free to ask any and all questions.

Old Man

[Tim468]

Dear Gwar,

From what I have read here and on Propecia boards, it may play a direct role in your having developed Peyronie's Disease. It does not seem to be a prominently advertised feature of this medication!

I'd stop it. I'd rather be bald and able to have sex, than with a full head of hair and a dick that didn't work.

You have a LOT to learn about this disorder. I'd start by spending some serious time reading the "Child Boards" here for a lot of "catching up with what folks here have to say" time, and I would schedule an appointment with a urologist ASAP.

Blocking testosterone effects can have a devastating effect on penile anatomy - I would stop the Propecia right now.

Tim

[pjchap]

thanks old man! i'm from ireland and i have already seen Dr ted mcdermot in dublin .. but i havent been back to him since febuary he didnt really leave me with much advice... like if i could just get equal pressure on both sides and plaque removed i'd say i'd be fine..!
i went to a chinese medecin doctor and i've started taking what he gave me , its called SHENGJINGGUBBEN WAN {dont ask!!} anyways its for blood flow etc.. so hopefully it has some effect..!! or am i wasting my time..?
what about homeopathy..? oh yea one other thing do testicals suffer at all from this ..? i don't know if i'm being paranoid but my right testical is uncomfortably higher than the left...?

[Old Man]

pjchap:

Remember that we on this forum are not doctors, just ordinary folks with a problem of your penises called Peyronies Disease. As you may or may not know it was identified as a disease/disorder way back in the 1700s. And, to date there appears to be no definitive treatment/cure for it. Each person has a different set of symptoms that present themselves. So, each person must find something that works for his particular case of Peyronies Disease.

Said all of that to say that you must take whatever action you deem necessary to find the right therapy that might work for you. This will include trying different methods and approaches to the problem. This forum has many topics/threads that cover a wide spectrum of things that guys have tried. Some find success with their approach and others do not and have to move on to other therapies.

So, bottom line, since you have seen a uro already and may or may not have gotten the answer you were looking for, maybe you should try to locate another uro that has some background treating Peyronies Disease. Ask the question up front when you get an appointment if the doctor has experience treating the disease. If he does not, then move on to another one. There may be a shortage of uros in your part of world and this could be a difficulty for you.

Search through all the topics you can on the main forum to see you can find something that will lead you in the right direction for you. In my case, the VED helped solve my Peyronies Disease symptoms and this was after many years of trying wide and varied therapies/treatments. My history is posted elsewhere on the main forum along with many others. Take a look at these also.

As for whether or not Peyronies Disease can affect the hang of your testicles, I have no clue. However, I have found that just about every person that I have worked with in the Peyronies Disease and prostate cancer world has a different hang, etc. So, one being held higher than the other should not be caused from Peyronies Disease, but, who knows!

Hope the above helps some way. Let us know if you have further questions that we can help get you answers.

Old Man

[George999]

pj,  Old Man has made some really good comments regarding your question.  I would just add, that no matter what part of the world you are from, doctors can be really helpful even if they don't always seem to be.  Sometimes you just have to do some foot work and learn all you can on your own and thoughtfully and respectfully bring some of what you learn to the attention of the doctor.  And sometimes you also just have to ask the doctor the right questions, like "Doctor, do you know of another doctor in our area who might know more about my problem?  Or even perhaps another doctor who might know of a doctor who would be better able to help me?"  All it takes is the right information or the right question to open doors.  Also, take the time to carefully review as much of the information on this forum as possible.  Especially note the names of key doctors in this part of the world who are experts on Peyronies.  Unfortunately, most of the research in Europe regarding Peyronies seems to be coming out of southern Europe in places like Italy and Spain.  But the more you learn and the more questions you ask, the further you will get in dealing with Peyronies.  - George

[thunder]

I just descovered last night the symptoms of this disease. I had noticed pain but was shocked when I saw an obvious bend. Looked it up on the internet and discovered what I now believe is Peyronie's Disease. Should I stop having sex and/or jacking off for awhile??? Been reading posts and will look for a good Dr, I live in Cleveland Ohio. Any advice is apreciated!

[LWillisjr]

My understanding is that sex does not worsen the disease. In fact, I would think that having erections would help to strecth the plaque if at all possible. If it isn't too painful, then I would think by all means you should try to stay sexually active. The disease will play on you mentally enough. Trying to maintain life as usual is best. You will find a LOT of information on this site. Several types of oral med and therapy suggestions here.

Are you able to estimate the amount of curvature in degrees?  

[thunder]

My understanding is that sex does not worsen the disease. In fact, I would think that having erections would help to strecth the plaque if at all possible. If it isn't too painful, then I would think by all means you should try to stay sexually active. The disease will play on you mentally enough. Trying to maintain life as usual is best. You will find a LOT of information on this site. Several types of oral med and therapy suggestions here.

Are you able to estimate the amount of curvature in degrees?

Thanks for your thoughts, I apreciate it. I always had a VERY straight erection and now it  takes a slightly sharper curve toward the middle. i never heard of this disease but am starting to think i have had it for some time but only recently realized a big difference. i guess the middle curve is at least 20 most 30 degrees.

[Tim468]

Dear Thunder,

At this point, there is no consensus on what to do in terms of sex. You are probably in an "active" phase of Peyronie's and therefore might cause more injury without taking care. That might mean gentle handling, but it should probably include getting an erection to maintain "stretch" of the penis. Stretching things out is good it appears (i.e. long periods of time without erection can be associated with development of Peyronie's).

So getting hard is probably good, but hard wanking might not be so good.  

I am confused by the second post - you said you had a "very straight" erection, but that the curve is "slightly sharper" and that the curve may have been there for "some time". So, I am confused - but are you saying that the erection has gone from very straight to slightly curved to (now) more curved? If so, that would suggest that this is not so new.

Tim

[Tim468]

pjchap,

You have made a duplicate post, which is a no-no here.

In general, when no one responds to what we said, it has simply failed to hit the "response" nerve properly and will probably not do it if it is merely posted again.

With that in mind, here is why I did not respond to it the first time you posted.

1) the diagnosis is not in doubt - you have Peyronie's and have been to a doctor so my first line of advice (go to a doctor) is not needed.

2) "what do i do at this stage..?" Start the VED and see a doc who is willing to start you on therapy that might help, including nitric oxide (NO) donors/NO enhancing drugs like Viagra (no, it is NOT for getting erections, it is to enhance NO production)

3) "will i ever get back to normal..?"  I don't know - no one knows. That is a question that does not require an answer because no answer will be "right".

4) "is surgery a big risk..?"  Generally speaking it is more risky than not having surgery. As has been discussed here before (this is why reading the boards and catching up has it's advantages) surgery is appropriate for a discreet lesion without change for more than one year - at least. Otherwise avoid it (and even then it is risky).

5) "is GBS related..?" Again we would be speculating. Seems it could be - but more than that, how could anyone answer that question?

So, I see a bunch of questions that are either impossible to answer, or ones with pretty obvious (at least to me) answers with multiple previous posts answering them for others. In either event, I bet that is why no one went to town discussing them.

However, none of this I have written is going to make this easier for you. Believe me, the guys here understand how frightening and awful this process is to go through. People are interested in helping each other (I am sitting here at 9:30  at night typing away to you, after all).

So here is my advice:

Read the Child Boards and get "caught up" on what folks here have said and think. "Lurk" a bit and listen to the advice you get and that is given to others. I think it can help you to get through this scary and lonely time.

Tim

[Hawk]

I welcome you to the forum.  As Tim pointed out, the rules under "Read this First" do not allow duplicate posts.  In addition "our histories" topic is not for back and forth dialog so it is not a good place to ask questions.  That topic is the one structured topic on the forum.  Due to that I deleted the duplicate post there.  I do encourage you to post a history there following the recommended format.

Welcome again.  I hope you find some answers and support here.

Hawk

[MUSICMAN]

I am sure that some were in the forum is the answer to this question
but here it is.  How does a person know if the plaque is turned calcified
or not?                                           Musicman

[Old Man]

Musicman:

It is my understanding that calcified plaque presents itself as a very hard irregular shaped plaque formation. It is usually very hard and does not feel pliable like some of the early plaque formations in the penile shaft.

Others may have a better description of it, possibly George999 or Dr. Tim.

Old man

[outashape]

 Hi all new to this site...well new to register and post. I have been reading through all of this and have to say I am scared of what I have been reading, but glad that you are all here and helping others get through this. I have only had this for maybe a couple of months and I guess that is what has me so concerned. How fast is this supposed to occur? I am 47 and we (wife) and I first noticed that my semen was kind of lumpy and thick, then a few days later I started having painful erections like the skin was being pulled down or stretching tight is the best way to describe it. A week to ten days later is when we saw the bend and felt the mass in my shaft. Mine is right behind the head and feels like it is 1/4 inch wide by about 1/2 inch long and the bend to my member is 45 degrees up, right behind the head. I know from reading the child forum  that everybody is different but is it "normal" for this to progress this fast. No rough sex, the only blow I can remember is my  4yo kicking me in the groin while I was relaxing on the couch. I have not seen a Uro yet, kinda embarrassed and afraid that he's gonna tell me the vitamin E thing and wait.        

[bodoo2u]

Outashape,

Being embarrassed and waiting to visit a uro is the worst possible thing you can do, and even when you visit one it's not certain that he or she will know anything about the disease other than what it is, and that people take Vitamin E for it (and I'm not kidding about that). The good doctors will tell you that they don't know much about it, and you can wow them with the knowledge that you gain here. I talked to a uro I visited recently and got a three-moth supply of Pentox for it.

In short, the best thing you can do is become proactive at the beginning of the disease, and you could be one of the 3% who gets well. I wish I was in that category, but I'm not.

[Tim468]

Dear OUtaShape

Changes in semen are not part of Peyronie's. Go to a urologist NOW and get checked out. IT seems that you might have had an inflammatory or infectious disease that caused a change in your semen (ie prostatitis) and that should be treated too. If it is a trigger for Peyonrie's disease then you will not know unless you look for it. Time to do a semen analysis and urine test for evidence of GU tract infection and getting started on diagnosis of Peyronie's if you have it.

Why wait?

Tim

[George999]

I am 47 and we (wife) and I first noticed that my semen was kind of lumpy and thick

Tim is right on this.  In all likely hood this is nothing.  Semen can change its consistency all the time.  I have observed all kinds of weird things.  BUT, at your age it could easily be a prostate infection.  These are quite common in men in their 30's and 40's and they are nothing to fool around with.  Go get checked as soon as possible.

, then a few days later I started having painful erections like the skin was being pulled down or stretching tight is the best way to describe it. A week to ten days later is when we saw the bend and felt the mass in my shaft. Mine is right behind the head and feels like it is 1/4 inch wide by about 1/2 inch long and the bend to my member is 45 degrees up, right behind the head. I know from reading the child forum  that everybody is different but is it "normal" for this to progress this fast. No rough sex, the only blow I can remember is my  4yo kicking me in the groin while I was relaxing on the couch. I have not seen a Uro yet, kinda embarrassed and afraid that he's gonna tell me the vitamin E thing and wait.      

Again, get it checked out.  The classic interpretation is that "plaques cause bends".  The reality, I believe is far more complex than that.  I believe that inflammation can cause lumps that may go away or may progress to plaques and then may progress from there to calcifications (which are the most difficult to deal with).  The beginning point is usually simple inflammation which is the easiest to deal with.  DON"T WAIT TO FIND OUT!  START DEALING WITH IT NOW!  And I believe that even inflammation can cause bends if it is severe enough and focused enough.  Don't diss Vitamin E either.  A good quality Vitamin E with at least 300mg of Gamma Tocopherol can be helpful to many people.  So can things like Acetyl L Carnitine and Mangosteen Pericarp Extract.  You need to do something to can the inflammation as quickly as possible though to lessen the likelyhood of the inflammation progressing to full blown Peyronies.  - George

[outashape]

Thanks guys for the response!! I am looking for a Uro now, I was in panic mode and I guess I wasn't thinking right. My wife was saying the same things as you all but being a man I was just gonna self diagnose with the help of my computer...you know I can fix anything . I live in the Ann Arbor, Michigan area anybody know of a good Uro around here. I don't have a regular Doc I can ask, and I haven't been to a Doc in 15 years. I do have the U of M close. I will get "him" checked out and I will post the results here so others that my be in my shoes can maybe benefit from it. Keeping the fingers crossed and hoping for a breakthrough for this disorder. I had never heard of it before this happened to me. After MANY hours spent on the computer searching and reading all I could find I have learned a lot. I read a study out of Europe that concluded that this may be as high as 15% of the population but because of shame fewer than 3% seek help. Thanks again for this website I have looked at MANY and this one seems to be run and populated by compassionate guys looking to help. Many that I visited were just trying to sell me "Their" cocktail of vitamins as a cure. Well ...I'm off to see the wizard....    

[LWillisjr]

Outashape,

Not just any urologist will do. I think you will find 3 different categories of urologists. I'm not knocking any of them but you need to understand the following:

1. Many urologists are general. They may have heard of Peyronies during their studies. But probably treat more general male urological disorders. This may be true of many uros who have their own practice.

2. Group practices. Look for Urology groups. Often within the group each urologist may specialize more in a specific area like prostate disorders, cancer, urinary tract, etc. There may be one in the group who is more familiar with Peyronies than the others.

3. Specialists. You want to find someone who truly is up to date, has experience with, and knows how to treat Peyronies disease. This is what we are all looking for and they are few and far between. I know of one in Chicago, but not in your area. Maybe someone else here in the forum may know. There is also a web site you might try www.peyroniesassociation.org as they list a a "Find a doctor" feature.

There is much information on this site regarding different types of therapies, and everyone's case is different and therefore not all treatment regimens work for all people as well. But approaching this with knowledge is far better than walking down a blind path.

[rydf]

how can i measure degree of bent down? and from what degree a surgery is needed?
and can a traction  device and/or pump help me instead of a surgery?
thanks!

[beginer]

just wondering details on how this progresses, I noticed the dent and curvature 10 days ago, it apears to maybe forming another dent, I don't know if I'm just paranoid or if it is really happening.

How long does it take to fully develop to the degree of curvature it will ultimately reach and is there a chance more curves will develop, thanks all.

B

[Tim468]

beginer,

It sounds like you have Peyronie's from what you write. To be sure (for some folks self-diagnose and get it wrong), it is time to find a urologist willing to help you and willing to treat you aggressively.

Read the "Child Boards" and you will find a lot of helpful information. Hang in there - you will see that a lot of potential help is there - for most of us we have faced several defining issues:

Have you been seen by a good urologist? "Good" is subjective, but many of us need to search to find one willing to provide us supportive help.

It would probably be of value to start with a VED every day to stretch out the tissue that is contracting and forming a dent. Just like a car, dents can be hard to "pull" out. In a sense, a hard erection can "push out the dent" by the blood pushing against the resistent tissue. However, if that was enough to fix Peyronie's Disease, anyone who was able to get hard erections would never have a problem, and we know that is not true.

I think that for most of us, the "pulling" of the VED on the tissue that is dented helps pull it out better than an erection-filled chamber pushes it out. Hope that makes sense...

Some data (and comments in articles) suggest that pentoxifylline ("Pentox", or brand name Trental) might be of greatest value during an active phase, or for those who have long term active disease. Therefore it might be good to speak of this now - right now - with an urologist to get him helping you sooner than later. If you find someone unwilling to even consider Pentox (not ever), then get another doctor.

Welcome! Read up here and I hope this post helps.

Tim

[beginer]

Hey Tim thanks a lot for the information, is it common to continue to worsen from this stage and the curve to increase or more to form?

As for the urologist I am an independent contractor and have no insurance I don't know why, so I was planning on getting some in two months after I return from an expensive work trip, plus from what I have read they don't know much more then most people here and most of the information is taken from here and then only approved by them so it seems like a waste of time and money, but I guess I need to get a prescription for the drug you mentioned or maybe order from a canadian pharmacy. So I will look into all the above.

I really appreciate your help, this is acceptable if it did not get much worse but this is really depressing, I hope I can treat and limit the severity.

Thanks
B

[Tim468]

Having read reports of cancer masquerading as Peyronie's, I think an examination is always worth it. You might want to weigh the relative costs of being wrong with the monetary damages of a $3-400 visit paid out of pocket. You are right though - a lot of guys come away from those visits unsatisfied.

As for the other questions - I cannot predict what is going to happen.

Tim

[beginer]

ok thanks I will go ahead and go for it, I guess its not worth the risk. I don't know where the child boards are though I would like to see what your talking about for more information.

Thanks for your help on this matter, this really sucks.

B

Is there any truth that some cases actually go away naturally, have u personally heard of this happening?

[beginer]

nevermind about the child boards I found it.  

[hornman]

This talk of cancer really scares me.  My urologist barely looked at me.  I guess if it was in fact cancer I'd be having other symptoms like weight loss, etc.

[George999]

Hornman, Where do you live in a general sense?  - George

[hornman]

I'm about 20 miles north of Philadelphia, Pa.  If anyone knows of a good Uro w/Peyronies experience in my area please let me know.

[alcohen]

Here's a question to anyone...  what does it mean if the pain begins to get stronger and stronger?  I felt this thread about Peyronie's disease progression would be the best place to post this.  I saw some internet sites that said the progression of the disease involved inflammation, then scarring, then pain followed by increased curvature.  As I tried in vain to be put on something that would help me I watched as my condition slowly worsened.  I was told by two urologists that I was perfecty fine and that it was all in my head!  EVEN when I told them that when erect I saw a pronounced scar on the middle of the top of my penis that went from the base nearly to the top. I was told that was perfectly normal and I needed to stop looking at myself as I would drive myself crazy.  Gah I wish I had a voice recorder for this crap.  The other urologist even told me that I was imagining things when I told him that it felt like my penis laid on my left leg now when flacid and was curved to the left when erect.  He said that is not something that happens.  I hate stupid doctors.  I am thinking of writing to the board of urology on these two morons.  

But I digress...

I now notice an hourglass looking shape every now and then while flacid when taking a piss.  I have the obvious scar when I have an erection and I also curve to the left.  I am really worried about the ED as well.  I can look at something when I am by myself or think only of my girlfriend and I feel everything getting hot.  I feel great, I feel like things are going well, and then I reach my hand down.  My penis has not even begun to be erect.  I can feel blood trying to go there but it is not working at all.  This is very upsetting.  

The main point of this though is the semblance of the increasing pain.  Does that mean that my scar is starting to harden and will soon begin to contract as mentioned by some of the websites I have gone to?  I am really worried about waking up one morning soon and seeing an even bigger problem than I have now.  For me, the curvature is horrible enough.  But coupled with the pain, the complete ED, and the fear of more curvature is a living nightmare.  

Any thoughts?

[George999]

alcohen,  I had immense pain initially from the tip of my penis all the way back to my bladder.  And, at the time, my urologist told me he could find nothing wrong.  That was as far as it went because, at the time, I didn't know anything about Peyronies.  I also had pretty total ED during the several months the pain lasted.  It was only months later, when the pain eased, the ED let up, and the scar appeared that my urologist identified the problem as being Peyronies.  So I don't see your situation as being too atypical.  The pain IS indescribable.  No doubt about that.  But I think you ARE ahead of the game by having the Pentox.  HOPEFULLY, that will prevent future damage.  In the mean time, just try to do everything possible to suppress the inflammation.  I would suggest stuff, but I know you already have accumulated enough suggestions.  - George

[Racecar]

Discuss progression of symptoms from the very first sign of Peyronies Disease to calcified plaque. This includes curvature, pain and other manifestations including improvement of these conditions. Include time frames and other relevant information.

[Tim468]

Racecar, are you confused? I am unsure what your emoticon means.

Tim

[Hawk]

I think we have a new member that quoted the first post in this topic in an attempt to post.

I will pm him with this link https://www.peyroniesforum.net/index.php/topic,316.0.html.

Hawk

[George999]

I think perhaps Racecar's intention is to RE-ASK that same question.  And, of course, there really is no answer, because each case progresses somewhat uniquely since the progress of Peyronie's is very much tied to surrounding environmental factors (certainly in my opinion!).  Our goal, of course, is to modify those environmental factors as much as we can to guide our Peyronie's in the direction of healing rather than in the direction of intensifying.  Hopefully, Racecar will find his tongue and begin to dialog with us so that we can be more supportive and helpful.  Welcome Racecar!  We are listening.  Speak!  - George

[nab]

Hey guys, very glad to have found this forum. Perhaps you could offer some advice? If i've posted in the wrong spot, I apologise, I did quite a bit of reading on the forum but wasn't too sure where to post... anyway...

About 8-10 weeks ago I badly injured my penis during intercourse. There was a loud pop and immediate swelling. I slept for a few hours with difficultly and in the morning applied ice. Made a doctor's appointment etc. When I went to the doctor she wasn't much help but ordered an ultrasound, which I attended. The ultrasound revealed a large-ish hematoma in the shaft of the penis but no rumpture of the corpos cavernosum etc. (no penis fracture). I asked them about what to do and the radiologist said that my body would reabsorb the blood eventually. Stupidly, I thought the problem would resolve so I had no follow-up appointments...

Now, after all the bruising and pain has dissipated, there is a hard lump as described in diagnoses of 'Peyronie's disease', the same size as the hematoma that appears to be staying relatively stable in size. My 'functionality' is only about 65-75%. The penis goes erect, but not rigid, and feels very unstable where the lump is located. There is perhaps a slight leftward curvature, but nothing of note, and no pain. Overall, this is very worrying. It sounds to me like the onset of Peyronie's disease. I definately kick myself for not acting faster and going back to the doctor.

I will be making an doctor's appointment next week but the time it will take to see a specialist may be valubale time I can use for treatment. Is there anything I can do on my own that might reduce the build up of plaque and help prevent worsening the problem.

Thanks in advance,

nab

[Tim468]

Hi nab,

It is quite possible that you will heal without doing anything special at all. To reduce the odds of a bad outcome, and to promote what you are looking for, it might be worth trying the following:

1) Broad spectrum vitamin E, and consider D3, and a time release vitamin C
Stop smoking if you do and sleep well and eat well and drink lots of fluids.

2) Strongly consider using the VED to promote complete filling of the penis with blood to a good tight erection tightness, and use this daily to enhance erectile function, to promote flow of good oxygenating blood to the tissues, and to stretch to induce healing.

3) Speak to a urologist and get going on Pentox if at all possible. There is theoretical data to support the notion that this may be precisely the time to start it (not in ten years).

4) Consider a daily dose of an NSAID to reduce inflammation. If possible, try one of the ones like Piroxicam.

5) Avoid rough sex for a while (seems like a no-brainer, but many guys do this to prove they are OK and make things worse).

Good luck!

Tim

[Hawk]

Nab,

The only thing I would add is a couple things that couldn't hurt and may help.  Acetyl L-Carnitine Supplement available on line at places like Puritan.com or at any health Food Store.  Possibly L-Arginine.  If you cannot get exactly the NSAID Tim recommended, get what you can.

Ginko may help until you can get your hands on Pentox (Trental) (Pentoxifylline) which requires a prescription and a knowledgeable urologist or a doctor willing to listen to research ideas.

Something that could help at this stage and could also hurt if you go overboard is hyperthermia.  If you limit it to soaks in hot water at a temperature you can stand to sit in you will be fine.  If you apply heat or soak just to the penis (such as infrared heat or hot water in a glass) be careful not to apply too high of a heat or for too long.  You can over-do heat.

Searching on these items with the forum search feature will supply you with a ton of information.  Also reading in the Child Board (sub-board) you can read forum highlights.  It is not a place to post but is designed to bring you up to speed quickly. https://www.peyroniesforum.net/index.php/board,18.0.html

[LWillisjr]

Nab,
Get to a specialist! You obvisouly injured your penis and need to get this properly diagnosed. Too many are assuming any injury or trauma is automatically self diagnosed as Peyronies Disease. Load pops, rips, tears and penis don't go together in my book. The recommended meds won't hurt, and may help in reducing inflammation and scarring. But I would get checked out and not take any chances.

[nab]

Thank you, I really appreciate the feedback. I started on Vitamin-e (iu500) and ginko cause this was all I could find on the weekend. I also started using a cream called Lasonil which is a bruise treatment cream containing heparinoid. I did this to see if it may indeed still be a very bad hematoma, and it seems to have had a positive effect on the size and density of the lump. A bath in epsom salts (for a sore back, lol!) seemed to be beneficial too. But there is still a very sizeable lump. I will look for Acetyl-L-carnitine and an NSAID as well. But definately lwillisjr is right I need to see a specialist and get a proper diagnoses. I have a doctor's appointment tomorrow and I'll take my ultrasound along, I'm sure I'll just be referred to a specialist.

I definately made some mistakes early on by rubbing the area to 'break-up' the lump, and also by having sex too soon afterward. This seemed to worsen the problem, or prolong it. But I have found this injury to be quite psychologically challenging at times and thse activities were certainly a response to that.

Thanks again for your help I'll let you know how it goes.

nab

[ocelot556]

Have many people experienced a numbing of the penis because of Peyronies Disease? It seems like the tough plaques that run up the length on both sides of my penis feel as if they're in between me and the nerve endings - all sensation on them feels 'dull'. The head of my penis, also, although not having any scar tissue accumulated, seems in the past few days to be less sensitive. This is causing me some mild ED issues, the first of my Peyronies Disease experience.

Is this common? Are there steps some of you have taken that was successful in restoring sensation?