Peyrone´s or something very related

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Sargonnas

Hello! Since 2 or 3 years ago, my penis its constantly hard when flaccid, cold and sore. From time to time I get sharp intense pains, that started only one year ago or so, which are more frequent lately. I have noticed 4 lumps in my penis that I thought very veins but I think they are scars. I cannot get it much except when I am at the bed at mornings or night and having fantasies, the erection quality its very poor in any case. Erections are stiff and painful, but it hurts more in the hard flaccid state. I recently went to the uro and he said I have corpus Cavernosum inflammation.

I did Penis Enlargement exercises 2 or 3 years ago (notice the pattern). At that year I didnt notice pains or sorenes or even hardeness in my flaccid pain but yes increasing ED (although it was much better than now). What I noticed were spider veins appearing and super bulges veins in both sides of my penis. Obviously I damaged my penis somehow and the scar tissue took some time to show up and start screwing.

On top of this I have Leaky Gut which have made start a deadly loop of autoimmunity including Hashimottos. So I think somehow I have CPPS or Peyrone´s which maybe started as trauma but the inflmmation somehow degenerated in an autoimmune response to some tissue down there.

The urologist send me to an specialist BUT IN TWO MONTHS. No recipe. No thing. I hate the doctors of Spain, I have been to dozens of them and they are criminals that will overlook your problems and encourage years of self diagnosis and degeneration. I have seen this many times, and its so sad.

I am looking forward to go to a private specialist to get the correct test to make sure if I have scar tissue or what, And hopefully get a VED and Pentox if it turns out I am really developing Peyrone´s.

james1947

Sargonnas

Pentox and VED alone will  not be enough.
I was proposing a daily treatment as bellow:
3*400mg Pentox (Trental), if too much side effects 2*400mg.
2.5 to 5mg Cialis
2*500mg Acetyl L-Carnitine
2*1000mg L-Arginine
3*100mg Ubiquinol, if younger than 40 may use 3*100mg CoQ10, much cheaper
VED, 20 minutes

You can expect improvements after six months or more, some people have faster improvement. Consistency is the key of this treatment.
I will advise you also to read the forum to understand what and how the above medications/supplements are helping with Peyronies.

Regarding the doctors? Yes you are 100% right >:(

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Hawk

Sargonnas,

I am interested in exactly what exercises you were doing and how aggressive we're you with the exercises that you feel injured your penis.  Your post will be an important warning to others that read the forum.

Thanks
Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Sargonnas

Today discovered a definite curvature while semi flaccid. Not good because it has  been hurting me for days now since the doc stroked my penis so rudely. I swear I think he damaged me further. If Peyronies was my only problem... maybe I could handle it but I also have Leaky Gut Syndrome and resulting malabsorption and autoimmunity. I weight less than 130 lbs with 5,9 feet tall, im simply wasting away. I have huge patches of eczema in the sides of the nose, some on the nose itself and all my scalp its eczema too with lots of dandruff. Peyronies itself have been discovered to have an autoimmune factor. This is the last thing I needed. Every year a new thing strikes.

Sargonnas

Quote from: Hawk on October 07, 2012, 08:04:55 PM
Sargonnas,

I am interested in exactly what exercises you were doing and how aggressive we're you with the exercises that you feel injured your penis.  Your post will be an important warning to others that read the forum.

Thanks
Hawk

The warnings are all over the Internet if you know were to look. Penis exercises are just the result of an impulsive fool that have been watching too much pornography. My penis was perfect, it was a glorious, optimal mechanism, with the appropiate size. My mission its cease the pain and restore my penis to functionality. If this cant be done I wont be sitting here in my parents house. I am not talking about suicide, but about going somewhere to have a restful existence trying to forget how I destroyed my life.

crap, here we go. I did, for starters, jelquing. The jelquing I did it like in the videos of explanation I saw somewhere. So not so strong, in the "reccomended" way. Jelquing alone started to change the appearance of my penis. Yes it looked bigger, but it was simply inflammed. Then added STRETCHING I swear this exercise was somewhere in the thundersplace forum. Basically you take your flaccid dong and stretch it but without reaching pain or any discomfort. I think this one was devastating. I cannot identify with the person that did this exercises. I was way too clouded by negative thinking and self destructive patterns. Finally I did for a brief time "Girth" exercises, which including stroking the penis with both hands. I noticed that year when I was with that girl that I was developing some ED, by the time we used to joke about it calling it "my castration". I could still joke about it because my impotence or pain wasnt really there at that time. The other thing I noticed when doing the exercises were the onset of veins in my penis, little spider veins red or purple in the shaft and very bulged green veins in the sides (dorsal veins) The theory behind those f'^+'ing exercises its microtrauma healing to create new tissue. Pure BS. I say stay away from any exercise. If you are stupid enough to do them anyway, do ONLY jelquing. While doing the exercises I would develop little dark spots in parts of the penis, supposedly exploded cappilaries. Its kind of painful and embarrassing for me to keep talking about how I injured my penis so I wont write more about it...  :'(

skunkworks

If you wouldn't mind, could you outline your general diet over the course of a week? Liquids also?
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Sargonnas

Quote from: skunkworks on October 08, 2012, 02:23:01 AM
If you wouldn't mind, could you outline your general diet over the course of a week? Liquids also?

Basically Semi-Paleo, GARD, Wilson and Low Oxalate.

I eat for breakfast quinoa with lets say parsnips that I garnish with olive oil and garlic spice. Or I eat sweet potatoes with chard, but not anymore because they are very high oxalate and I suspect they aggravate my penis pain.

For lunch I can have too organic beef hamburguers with roasted onions garnished with organic mustard that still has the seeds.
Or dark mea turkey with roasted carrots, onions, maybe cauliflower with curry and olive oil.

For the "merienda" (a meal in Spain  ;D) I will usually have another carbohydrate meal, of a whole grain or starchy vegeatble (I try to eat lots of carbs to gain weight and it somewhat works)

The dinner can be boiled lamb with broccoli and sea salt. But indeed whichever of these foods can be breakfast, lunch or dinner.

I eat fruits several times per week and cheat with other things like feta cheese or multigrain cookies from time to time. I say "cheat" because I have IgG tests proving im intolerant to everything a normal person eats daily, pork, specially milk, eggs too, casein. At this point I am also intolerant to what I normally eat I fear. With Leaky Gut, you have food intolerances which build up in the long term and are very insidious and if left untreated you will end being intolerant to every food you eat and the body will be intoxicated by the meals you are having. Crazy indeed. I have been to one very expensive naturopath specialist in Madrid for this, DrGeorges Mouton which finally diagnosed my with Adrenal Insufficiency, Thyroiditis Autoimmune and leaky Gut Syndrome and he just ripped us off, his test, supplements and diet were worthless. Then we have been to lots of normal doctors which are a much less pleasant experience.

I only drink spring water, 2 liters or so daily.

My daily caloric intake its just around 1500 calories. I know I need to work on that to at least 2000 but im usually very depressed and sometimes too much even for preparing my meals. And with this super restricted diet its so hard to keep calories high. I have acknowledged that eating cashews, chinese food, cheese, sugary things like Horchata or milk will result in penis pain and arthritis-like bouts. It could be a coincidence though. I guess I should be having 6 meals instead of 4 and that way the calories would be easily 2000. I will be all day cooking.

skunkworks

If I were you I would try going proper Paleo for a month at least. ie/ zero grain at all. The CAVEMANforum - The most popular Paleo diet and caveman exercise discussion site - Index is a good place to go if you want to sort your diet out properly.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Sargonnas

Quote from: skunkworks on October 08, 2012, 03:11:53 AM
If I were you I would try going proper Paleo for a month at least. ie/ zero grain at all. The CAVEMANforum - The most popular Paleo diet and caveman exercise discussion site - Index is a good place to go if you want to sort your diet out properly.

Thanks skunks I know of several people who are doing great in the Paleo diet. Will dip in the forum for answers.

Sargonnas

I just masturbated before abstaining for like 20 days
good news:
I can have an 80% erections with stimulation
so could have sex with a girl if needed, if we were in bed all the time I guess,
my stand up erections are much more troublesome
I had some pleasure
and the orgasm was like 5% of what an orgasm should be
better than nothing, honestly, I thought my sexual possibilities were off
so I have hope lol
I was becoming paranoid about my impotence
bad news: I dont seem to have peyronies YET my penis its pretty much normal and straight
except all the horrible looking veins but I dont care about that of course...
but I have at least three obvious lumps in my penis, like veins but they are not
they are scars from the exercises!
and they go horizontally, surrounding each of them some degree of the sides of my penis
anyone know what this can be??
If those are scar tissue, I need to make sure they are not gonna mutate in fibroid plaque right?
Thats why I need a doctor badly. Tomorrow will ponder seriously about if any of the penis docs of my city can at least make me an ecography and ultrasound and diagnose what those are.
What if they are scar tissue that have healed normally?? I hope so!! My ED can easily come too from my hormonal defficiencies and high estrogen.

Right now the pain have been aggravated yes, but guys do I needed this! Im not impotent as I were saying and believing!!!
And I wont be. I will cure this.

skunkworks

You need to get on the PAC(pentox, arginine, cialis) cocktail immediately, and coq10. Possibly vitamin D supplementation also.

Get your diet under control.

Right now you are in a very good position to treat and prevent the disease progressing further. Knowing what I know now, if I were you I would go to 20 different doctors each day until one prescribed me pentox and cialis. Print out the studies and bring them along.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Sargonnas

We are going to a private one this Thursday. I will print everything but chances that he laughs at my face are high. I will have enough if he makes me an ecography or ultrasound to confirm what I have. In any case, I can buy pentox pretty cheap online, and same for the VED. God does this hurts!  :-\

More testimonials regarding penis exercises:

"I have had ED for nearly 6 years I pretty much f'^+'ed up my erection jelqing I maybe of been a bit too hard and stretching with too much force (although it never felt painful or anything). First the jelqing injury killed my wood and the head no longer got full and erct but I think the stretches really done my erection in and I think that's what caused my (suspected) Venous Leak I can't stay hard without physically touching my penis anymore it's almost impossible. Again I am not saying PE is bad but there is no doubt i injured my dick quite badly doing these exercises (back in 2006 I believe) and yes I probably did do them wrong and I have myself to blame only. If only I could turn back the clock but crap I can't."

From the Pegym forum. Ironically enough in the PEgym forum there are some large threads of people that developed penis injuries from Penis Exerxises.

guyincog

Don't beat yourself up too much.  Many of us have similar stories of 'what was I thinking??' that are very tough to deal with.  You're not alone in injuring yourself and also not alone in having some guilt and remorse.

Just focus on what you can do to make yourself well, both physically but also mentally.  Don't let yourself get too depressed about all of this if you can.

Not to belittle what you are going through or anything like that, just wanted to let you know you're not alone.

Best of luck with your appointment.

Hawk

Quote from: Sargonnas on October 09, 2012, 06:23:53 AM
I pretty much f'^+'ed up my erection jelqing I maybe of been a bit too hard and stretching with too much force (although it never felt painful or anything). First the jelqing injury killed my wood and the head no longer got full and erct but I think the stretches really done my erection in and I think that's what caused my (suspected) Venous Leak I can't stay hard without physically touching my penis anymore it's almost impossible.

The reason I asked how you think you injured yourself is because i believe it would take some obvious abuse for a person to injure their penis unless they were already very prone to Peyronies Disease.  I cannot imagine from what you have said that you stretched your penis more than me or anyone else does who uses traction.  Maybe if you hung weights or jerked it erratically but not just with normal stretching.  My traction is the equivalent of over 3 lbs of weight and it has had positive effects.  I am not sure of the psychological aspects of jelging but it seems that done with moderate pressure that it is similar to the pressure of a natural erection or the pressure from a VED. Maybe my image of what you were doing does not match with reality.

Also, I would suspect that if you have an intimate relationship with a woman that your erection in bed with her will be much stronger than it is when masturbating and assessing your penis for Peyronies Disease.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Sargonnas

I did the exercises with quite some enthusiasm, thats what shines obvious in what I have wrote. I probably did them wrong. I dont care. Its pointless. Now I have penis pain all the day or if lucky just hard flaccid with numbness and soreness and severe ED with bulging and spider veins, plus 4 lumps in my penis. No libido, no real orgasms. The exercises did it, at least the mechanical damage, and yes it was self abuse, but in my opinion any bodybuilder or penisbuilder its beating his flesh for superficiality to some degree. What do they say? No pain, no gain etc

And please set aside the women thing. Im not doing anything in that regard until my condition improves significantly. Its not true what you are saying, I was with a girl 2 years ago (already injured) and I had ED the very first day she tried to masturbate me. And she was very hot for me actually. But overall I was much better at that time (NO PAIN) and had lots of not-complete (enough for me!) erections with her later, at morning and some spontaneous woods. As I have said it has been an steady decline.

I will put in a thread a drawing of my lumps so you guys can give your opinion of what it is. I used to draw a lot. Includig penises. Heheheh.

Sargonnas

Quote from: guyincog on October 09, 2012, 02:15:47 PM
Don't beat yourself up too much.  Many of us have similar stories of 'what was I thinking??' that are very tough to deal with.  You're not alone in injuring yourself and also not alone in having some guilt and remorse.

Just focus on what you can do to make yourself well, both physically but also mentally.  Don't let yourself get too depressed about all of this if you can.

Not to belittle what you are going through or anything like that, just wanted to let you know you're not alone.

Best of luck with your appointment.

Will need to wait a week...I have the appointment the next thursday! Ugh.

Thanks man!  :D

Sargonnas

As I was in pain when I read about the suggestion of one forum member to qunia to go to the ER I said to myself "why the F~@< not?"

And I went. The doctor, which was a good man, examined my penis, scrotum and anus and told me there doesnt seems to be any infection or inflammation going on. He simply prescribed me Nolotil (analgesic) and told me I need to go to my usual doctor to "monitorize progression".

I had to try! Next step, go to my family doc and try to speed up the appointment with the insurance uro. The private one will be the next week, the insurance one its for 2 months from now!! I am starting to suspect I might have CPPS, because my testicles and coccix/anus does hurt also and this sharp pain sounds like CPPS. Its overall penis/pelvic pain.

skunkworks

Could also be prostatitis or just simply referred pain. Speed up the uro appointment if you can, and don't leave without pentox!
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Sargonnas

Quote from: skunkworks on October 10, 2012, 06:44:20 PM
Could also be prostatitis or just simply referred pain. Speed up the uro appointment if you can, and don't leave without pentox!

I know, im curious about the Pentox. Im pretty sure it could lessen my hard flaccid state.

Sargonnas

Update!

The pain was gone for a while, but it came back lately. Its 4:55 AM here and I cant sleep because of mild penis pain (its much better than how it was in the first flare up that led me here). I have seen the first obvious bend in semi flaccid state today. I have no doubts now that my penis condition coul be going towards Peyronies. My parents and I decided to cancel our appointment with the private urologist because there is no evidence of him knowing crap about Peyronies in the internet, he just appears talking about prostatitis in one radio and it wouldnt be the first time we go to a "reputed specialist" that simply fees us 100 dollars for saying its all in my head or he cannot help my case. Anyway guys you dont know how are spanish doctors, if you knew you would understand why we decided to wait. The appointment with the specialist in Peyronies from insurance it in one month. I cannot really have access to pentox unless bought by Internet and my customs are very troublesome - and buying meds that way its highly illegal I fear. Sooo im thinking in buying Ubiquinol and Acety-L-Carnitine via iherb which always reach my home without a problem. Will this be enough to stop pain and the development of the disease?

I have four scars/bumps very noticeable in erected state. I will put a drawing so you guys can hopefully give some input.

Sargonnas

This forum its growing a lot, its incredible.

Sargonnas

I have managed to get an ultrasound doppler of my penis from our usual doc. Its this of any value? I will need to wait to the f'^+'ing appointment the 3 of JANUARY with the peyronies specialist to interpret the results anyway right?

Pain its much better but its still there.  :-\

I will wait and see if the doc of the Tuesday can prescribe me Pentox.

Hawk

The doppler ultrasound is very useful in identifying plaque and likely to tell you if it is calcified.  I am not sure of your system but these are often read by a doctor other than the urologist.  The one that reads the test usually sends a report to the doctor that ordered the test.  That doctor can give you the results.  In the U.S. a patient can go to the records office of the medical facility (hospital) that performed the test.  We can sign a waiver at the records office and get our test results even before the doctor gets a copy (two days after the test).
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Sargonnas

Quote from: Hawk on November 09, 2012, 10:42:27 AM
The doppler ultrasound is very useful in identifying plaque and likely to tell you if it is calcified.  I am not sure of your system but these are often read by a doctor other than the urologist.  The one that reads the test usually sends a report to the doctor that ordered the test.  That doctor can give you the results.  In the U.S. a patient can go to the records office of the medical facility (hospital) that performed the test.  We can sign a waiver at the records office and get our test results even before the doctor gets a copy (two days after the test).

Thanks a lot Hawk. This is an amazing and very supportive community I cannot emphasize that enough.

Yeah man here it works exactly the same!! I remember know. I will get tested and go back to this doctor and ask for the results.

Sargonnas

Btw, this last doctor looked at me like a weirdo when I told her I spent the last three night awake with penis pain. And she finally said that Peyronies has no cure and I have to drug myself with analgesics. I ignored her and asked for an ultrasound. Mission accomplished!!!!!  ;)

I also explained to that ignorant idiot that I did exercises to my penis and AFTER THE EXERCISES, this is, AS A RESULT OF THE EXERCISES I started seeing the hardened flaccid state, erectile dysfunction, lack of sensations... bulged VARICOSE VEINS in my unit. She looked very uncomfortable and skeptic with my story and then said "But varicose veins are tortous" and me "Those veins I have in the penis ARE tortous" But she didnt believed it. She concluded that bigger veins mean better blood flow haha what a damn waste.

Sargonnas

Hawk and others, can I upload, please, some pictures of my penis? I need all the insight I can gather about these spider and varicose veins and the 4 "ribs" I have in the sides. And the curvature. Im also trying to get medical attention, so dont mention it. I got an appointment in 5 weeks with an speciliast in this, and thats the best the insurance medicine will give me. I doubt any private doc in this city its better than this specialist. I cannot get Pentox by Internet because in my country everything from outside the EU will be held and I dont wanna risk being caught getting meds inside the country... Im trying to get a prescription with another doc this Tuesday.

So if I cannot upload them, can I upload explanatory drawings made by me based in the photos? I am a good drawer.

Im really pained and desperate and I would beg for being allowed to upload them or at least the drawings...

Hawk

First off, you double posted the request about pictures.  DO NOT DOUBLE POST ON THIS FORUM.
____________________________________________________________________________________

Now to your topic.  Explain how posting the pictures would help you.  What do you imagine we might be able to do or say after seeing them?
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Sargonnas

Quote from: Hawk on November 10, 2012, 10:40:42 AM
First off, you double posted the request about pictures.  DO NOT DOUBLE POST ON THIS FORUM.
____________________________________________________________________________________

Now to your topic.  Explain how posting the pictures would help you.  What do you imagine we might be able to do or say after seeing them?

Yes I did. Sorry for spamming. No need to use capital letters heheh.

I have very weird looking ribs/bumps and I need to know if anyone else has them AND if they look like plaque or collagen. This is just something to keep me going while I wait for the results of the ultrasound, which I dont know when will be set up by the hospital, waiting for their call.

guyincog

Hey man, so sorry to hear what you're going through.

I have something similar.  The part where I injured myself looked like veins at first but after a while it seems like they are really more like the edges of where I have scars.

I had really bad pain for a long time and it was crippling.  I needed medical help - both mental and also pharmacological.  I'm currently taking amitriptyline which is an antidepressant at > 50mg but is also prescribed for chronic pain at ~10mg.  I can't emphasize enough how crippling the pain because - not because of the actual pain but just because of how long it went on for and how depressed it made me.

I think you have basically a few things to figure out.  First is to get your pain under control.  That will help take your mind off things and reduce some stress.

The second is to get some mental health assistance - a good social worker or talk therapist.  I went to a CBT psycologist and it was a waste of money.  I mostly just needed someone I could talk with that could listen to me dealing with all the pain and the frustration of not getting answers and maybe give me some advice on how to cope with life given this injury.  In my country (Canada) you can get some mental health through our national program.  It helped a lot to find a good person to talk with and who could help guide me a bit in dealing with the problems I was having.

Finally, and this is the hard part, you need to keep working at getting some answers for the actual problem.  It's going to be really tough and frustrating and even the experts might not have the answers you want.  Also, in my experience the penis takes a really long time to heal and it's very frustrating.  I hope you have faith that you will get better over time, it just takes a LONG time.  I can't give you any suggestions about medical help as I think you're being very proactive and doing exactly what you need to do.  I can only offer you the advice that things WILL get better but it just could take a really long time.  Likewise doctors who are smart may not be very personable.  All my best wishes that you find an answer and some help for your problems.  You will figure this out in time.

Sargonnas


Thanks for your support man.

Im actually a whiner compared with your case. My pain only comes 1/5 of the year or so, its nothing like continous, although when it strikes it can be BAD. I have hope you know, because my penis havent lost much size or girth and I can have full erections with some proper stimulation. I like to think this pain its a healing process. Maybe naive I know, but I wouldnt say my penis have dephormed further or anything. The same bulging veins and possibly I had these lumps all the  time but never paid attention. BUT I want to make sure and cure it -I KNOW it can be cured (not completely but to a reassonable degree) so im hitting hard the Pentox and what not!!! Im gonna use a cream with Ginkgo Biloba too.

Sargonnas

Second failed doctor to get Pentox. Its a friend of my father and called me in the phone. She was very nice and agreed I can be developing Peyronies from the exercises but didnt even mention giving me Pentox and said we should wait to see the results of the utltrasound. Sadly, this  doctors its as ignorant or more than the rest of the tribe of white-coated and even said I can have ED because of the mutlivitamin im taking and said I should stop. Yeah right lets wait and see how your penis implodes in agony and THEN we will diagnose you with something that, anyway, we think its incurable.

Third attempt will happen this Tuesday. But in what I was thinking. How can you expect to convince a SPANISH doctor that isnt even an urologist to prescribe you a drug that is used for vascular support and only a FEW doctors in the world know help penis problems.

UPDATE. This doctor has agreed on prescribing me Pentox when the results of the ultrasound show I have scarring, plaque or vein problems. Looking forward to do the test in the hospital!!! Pain its much better today.

skunkworks

Quote from: Adam on November 12, 2012, 04:25:43 PM
Hi Sargonnas,

I have managed to get pentox as follows. I told my doctor I had good experiences with it to help me with my tinnitus. It is often used for this condition. I got no problems getting the prescription. Just try it.

Greetings

Hey adam thanks for posting that, it could be very useful for members having trouble getting pentox for peyronies.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

james1947

Sargonnas

Regarding:
QuoteHow can you expect to convince a SPANISH doctor
My answer is:
For your next visit to the doctor borrow a Toreadore costume and the long spade and talk about Pentox 8)
I am sure it will help.
Sorry for my humor on a serious subject, sometime we need it :)

Adam

As Skunkworks has said, your idea will help others.
Maybe you can open a new topic named " How to get Pentox" under "Oral Treatments for Peyronie's Disease" and make it sticky with the hope that other people will contribute with they ideas also.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Sargonnas

Quote from: Adam on November 12, 2012, 04:25:43 PM
Hi Sargonnas,

I have managed to get pentox as follows. I told my doctor I had good experiences with it to help me with my tinnitus. It is often used for this condition. I got no problems getting the prescription. Just try it.

Greetings

Yes its a wonderful advice. I will try it tomorrow indeed with the third doc. Thanks!

Sargonnas

Haha james... yeah spanish docs are like toros, you need to dance with them, fight until they submit and finally accept you have something serious and give you help  ;D

Sargonnas

Im having the first slight hints of what looks some indentation... Pain hasnt improved as I thought at first, it just gets better during the day and worsens at night.

Hawk

Adam,

Are you saying Pentox is prescribed for ringing in the ears ???  I had never heard that before (no pun intended)
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Jonbinspain

Quote from: Sargonnas on November 12, 2012, 06:41:47 PM
Haha james... yeah spanish docs are like toros, you need to dance with them, fight until they submit and finally accept you have something serious and give you help  ;D

Yes. I've already had my fight with the GP. finally managed to get her to take it seriously and give me an appointment with a Urologist. My fight with the Urologist is not until January, though.

Sargonnas

We are now in the same stage, I need to wait a month for my uro appointment. But this evening I will try another GP to prescribe Pentox, because the pain its driving me insane, cannot sleep, its killing me. Trying to decide how I am supposed to convince her of the tinnitus stuff or whatever. I need to do it, though!!

Jonbinspain

Quote from: Sargonnas on November 13, 2012, 11:02:33 AM
We are now in the same stage, I need to wait a month for my uro appointment. But this evening I will try another GP to prescribe Pentox, because the pain its driving me insane, cannot sleep, its killing me. Trying to decide how I am supposed to convince her of the tinnitus stuff or whatever. I need to do it, though!!

I gave up with the GP. She didn't even seem to know what Peyronie's was!..I had to get one of her male colleagues to listen to me. Re the Pentox, there was no way she was going to prescribe anything. I gave up and bought it from the River Pharmacy. It got to me ok as I seem to remember that it was mailed from Holland. Hopefully, I'll get a prescription from the Uro.

Sargonnas

I got my Pentox!!! Here its called HEMOVÁS.

Im gonna take 2 per day because this doc (a really good person and professional) prescribed me a container of 60 capsules.

james1947

I am on Pentox for 10 months by now, have almost constant ringing in the ears, Pentox not helped me until now. I do have blood flow problems because of sticky blood.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

skunkworks

Quote from: Sargonnas on November 13, 2012, 01:39:21 PM
I got my Pentox!!! Here its called HEMOVÁS.

Im gonna take 2 per day because this doc (a really good person and professional) prescribed me a container of 60 capsules.

Good work mate! Did you try the tinnitus thing or get lucky with a doctor who listened to you?
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Sargonnas

I analysed the situation and the face and attitude of the doc and ressolved it was safe and indeed the best course of action to be honest.
I simply was very lucky, because my mother knows this woman from other times and we knew she actually hears you and cares about her patients.

I have been to like 15 doctors in these 2 awful years of suffering and being some of those uros, I can say that most of them wouldnt have prescribed me Pentox... Damn doctors.

Jonbinspain

Quote from: Sargonnas on November 13, 2012, 06:31:34 PM
I analysed the situation and the face and attitude of the doc and ressolved it was safe and indeed the best course of action to be honest.
I simply was very lucky, because my mother knows this woman from other times and we knew she actually hears you and cares about her patients.

I have been to like 15 doctors in these 2 awful years of suffering and being some of those uros, I can say that most of them wouldnt have prescribed me Pentox... Damn doctors.

Might be best to start with one per day. Everybody is different, but there are some side affects that feel pretty weird. For me, it took the body over a week to get used to the drug.

Sargonnas

Yesterday I was nearly pain free... thought Pentox was doing the trick, but today I have ranging from annoying discomfort to maddening nuisance. Not the sharp pain I used to get though, thanks God.

L-arginine and phosphodiesterase (PDE) inhibito... [Nitric Oxide. 2003] - PubMed - NCBI   

Since I have ED, im pondering about adding L-Arginine and maybe Pycnogenol or Ubiquinol to the oral treatment. Dont know about Cialis, the last time I bought it the price was very abusive. Since im in pain and for money reasons, I wouldnt say a VED would be beneficial right now. Having erections will trigger more pain afterwards. The appointment with the doctor its in JANUARY. My parents have agreed that if the ultrasound that I will have done in a week or two shows something strange, we will pay a private one before. Cannot wait with this pained penis  :-\

Jonbin, so far, im only having crazy nightmares. They are fun for me though lol The first night I awoke in the night feeling like someone was stroking my genitalia, because in the dream a girl did it and I was really panicked at the feeling looool

james1947

Sargonnas

You are blessed to have understanding parents that helping you to go thru this ordeal :)
Regarding dreams, I wish you to be surrounded by all those Paddock girls from Formula1, MotoGp (all three champions, MotoGP, Moto2, Moto3 and runner ups for 2012 are Spanish) ;D 8) ;D 8)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Sargonnas

Oh yeah James, lots of hotties here. That makes my impotence and lack of orgasms more painful. Just whining. One day I will be enjoying them, ...and they will be enjoying me too lol

My pain have stopped. Hooray for Pentox! I am exploring the possibility of having TROMBOPHLEBITIS in the dorsal veins of my penis. It matchs description, symptoms and photos. Guess what? An ultrasound will tell us both if I have Peyronies or Trombosed veins... or both. So waiting for the damn hospital to do their job. Im positive that at least one side ITS trombosed, as its a very tortous, ramified and bulged vein that appeared right after the exercises (i.e. injury).

The "rib" or "ring" lumps I have are actually a symptom of Penile Veins Trombophlebitis, I have found.

guyincog

How did you find that out?  And what is the prognosis for that?

John B

Sargonnas, doesn't Thrombophlebitis heal up over time? I'm thinking I may have this... as my penis hurts when flaccid and seems swelled a lot, and the veins seem hard.