in phase 1. sex or no sex?

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egghead

I found a lump on top of my unit. About an inch from my base. I know it's Peyronies Disease because I had it 10 years ago, but further down the shaft. Recovered from that bout pretty well. I'm 42 now. Should I refrain from sex for 8 weeks? Thanks, Steve

james1947

egghead

We had in the past some debate in the subject and the opinions are splitted.
From one side, abstaining from sex is not good because the blood flow and stretching the sex makes.
From the other side, you may be more prone to additional injury right now.
So my conclusion is to continue to make sex, but more carefully not to cause a new injury.

By the way, you have mentioned you had a lump 10 years ago. How you had recovered? You made some treatment or it gone alone?

Welcome to the forum
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

skunkworks

Absolutely agreed on the above.

The erections are very important to maintaining the health of your unit.

Just go slow and always be in positions where you are in control of the movement. No woman on top stuff etc, and never withdraw completely.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

LWillisjr

Quote from: egghead on August 31, 2012, 09:41:12 AM
I found a lump on top of my unit. About an inch from my base. I know it's Peyronies Disease because I had it 10 years ago, but further down the shaft. Recovered from that bout pretty well. I'm 42 now. Should I refrain from sex for 8 weeks? Thanks, Steve

Can you fill us in a little more on what happened 10 years ago?
Was it from an injury?
Was there any pain or curvature?
How do you know it was Peyronies Disease?
Could it be something besides Peyronies Disease?

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

egghead

Thanks for the welcome all. I recovered from peyronies years ago from heat compression, stretching, and using it a bunch with my girl. It was bent up and dented on the side. About a year after recovery I had an accident mid sex, where I cracked it at the tip. I didn't fully recover from that episode. I still have some scar tissue there... I have really good luck in general, but some really bad luck with injuries..

I personally think my peyronies is from inflammation. I don't take great care of myself. Stressful work. Family. Binge beer sessions once in a while. I need to cleanse my body and fix this most recent flare up.


Skjaldborg

If you can maintain firm erections and it is not painful to do so, go ahead and have sex. Use lots of lube and no girl on top stuff, as was mentioned below.

Have you tried pentox yet? It has been shown to reduce calcified scar tissue (i.e. scar tissue that has been there for awhile).

Best regards and good luck,

Skjaldborg

ashtown

I am relatively new to Peyronies so this question is of interest to me as well. Although I am able to have sex with my wife I have to be very careful during insertion and basically hold my penis around the middle to avoid buckling where the plaque is. Once inside it's not too bad but afterwards it feels pretty hammered for about a day and I have the impression there is inflammation following the workout. Since I'm getting nocturnal erections without the physical battering my gut feeling is that sex is currently not a great idea, though the inflammation does go down after about a day. Obviously I'm curious to hear other opinions.  
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

Skjaldborg

Ashtown,

If you feel that sex causes a risk for buckling or you feel pain afterwards, you might want to pause on the intercourse for a bit. Give the inflammation a chance to subside and take pentox if you aren't already. In the meantime, use this time to explore other forms of sexual touching like oral sex, gentle touching, etc. with your partner. You don't need to slow down your sex life at all, just take penetrative sex off the menu for a bit.

Best,

Skjaldborg

finarod

Skjaldborg,

Oral sex could put much more pressure to the inflamed tissue compared to intercourse. Natural lubrication and muscular activities in penetration could prevent injuries. However, "sucking" of the unit, as a part of oral sex, gentle or not, could be rather dangerous.

finarod.

ashtown

I'm hoping to see a new urologist in the next week or so who seems to have a good reputation among Peyronies Disease patients, so I'll be sure to ask this question and report back on his opinion, though sometimes I think you could study Peyronies Disease for an entire lifetime and still never really understand what it's like to live with if you don't experience it personally.  
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

fubar


Skjaldborg

Finarod,

I was picturing very gentle oral sex rather than what one typically sees in pornography. There are oral sex techniques described that are recommended for men with little or no erectile function that are very gentle (to avoid injury) that would likely be OK for someone with Peyronie's. You are correct that injury or rough sex of any kind should be avoided.

-Skjaldborg

fubar

Finarod

Still silly no oral sex could cause the damage that actual vaginal penetration. In all its different positions and variations. Maybe if someone decided to bite down then i could see this as a problem.  Although i find oral sex pleasurable i find it disturbing as topic for Peyronie's.  A vagina is a is like an armor tank it can do damage on its own and much stronger.

Anyway having Peyronie's you should know what hurts, what is dangerous and what can cause more damage to your condition. This is not a sex forum it is a forum to inform and educate those with the disease.

Fubar
 

finarod

Quote from: fubar on September 02, 2012, 09:33:33 AM
Finarod


Ridiculous!

Fubar

Insightful contribution to the debate, thanks for your comment.


Quote from: fubar on September 02, 2012, 01:07:22 PM
Finarod

Still silly no oral sex could cause the damage that actual vaginal penetration. In all its different positions and variations. Maybe if someone decided to bite down then i could see this as a problem.  Although i find oral sex pleasurable i find it disturbing as topic for Peyronie's.  A vagina is a is like an armor tank it can do damage on its own and much stronger.

Anyway having Peyronie's you should know what hurts, what is dangerous and what can cause more damage to your condition. This is not a sex forum it is a forum to inform and educate those with the disease.

Fubar

Causing more damage to the condition and being alert with pain could be a good criteria valid for each unique case for dos an do nots.

Peyronies Disease is a sex-related condition and we should admit that speaking about issues that are directly related to sex should be well tolerated. There is no pornographic, no erotic content in my comment, i simply say that vaginal intercourse, due to relaxation of muscles and natural lubrication could prevent injuries if done with caution, without any rigorous attempts. However, penis is not firstly designed for oral sex, gentle forms which imitate intercourse patterns with caution, or forms that just involve other forms of stimulation with tongue could be indeed safe but what I meant was different, even a small degree of pressure applied to the erect or semi-erect penis with "sucking" could immediately affect blood flow and may end up draining, to a certain extent, blood that is present in erectile tissue. This sudden change could be traumatic. That is my point. I do never and ever refer to something that is due to excessive speed or pornographic attitude.

I think I make a sufficient effort to remain within the boundaries of informative and educative language, rather than using words such as "ridiculous" or "silly" in my reply.

finarod.

james1947

To all

I would like to cool this debate down a little bit .
First, I want to remind everyone that on our forum everyone can express his opinion free, without censorship.  This is one of the things that makes our forum special. 8)
Second, as no one violated the forum rules, not to use offending words or expressions and to keep our conversations civilized and to the issue. I don't see any reason to take action, I just want to encourage all of us to answer to the subject :)

To the subject itself, I agree that in both cases you should be careful  not to make additional damage ;D

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Hawk

???

Sex or no sex. To be specific, erections are helpful in my opinion and sex is what most men do with erections.  This means that normally, safe sex is helpful.  Keep in mind some people have the idea of sex as having a women jump off the dresser onto their erect penis.  You can find people that call almost anything sex.  You have to use common sense.  I thought I have had an active interesting sex life over decades but I cannot imagine oral sex damaging Peyronies Disease.  Lets be realistic.  A VED used properly helps rather than worsens Peyronies Disease.  No human can can begin to apply the suction of a VED.

I also think most intercourse is safe if an effort is made to keep it safe.  Woman on top can never be safe because a man cannot control the movement, or get out of the way, or recoil, if you come uncoupled.  Accidents can happen with a woman on top even when both parties are careful as many on this forum can testify.

If your bend is too severe for intercourse and you experience any pain or obvious physical stress on your penis then don't do it.

Also, do not have intercourse if your penis is not erect enough to keep it from buckling, or from collapsing like an accordion with each thrust. Both of these cause repeated trauma. Lots of lubrication is always important and it especially helps if you are close to falling into the last category where buckling or collapse is at risk.

Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

skunkworks

Fubar I agree with you about the advice, but no need to get aggravated about it.

Suction (via a mouth) is not going to cause any harm nor 'suck blood out of erectile tissue'. If anything it would increase the amount of blood present.

But if a girl gets too eager with the bobbing up and down, the penis can get bent in the same fashion it can during sex. So slow and steady is the way to go.

At the end of the day we just need to let common sense and pain (or lack thereof) be our guide.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Hawk

I am aware of the tension of disagreement in this thread and it serves no purpose.  No one has had more vigorous debate and passionate disagreement on this forum than I have but I have never felt offended or angry over those debates.  In fact most of these debates have been with some of my closest most respected friends here such as George, Liam, and Tim468.  It is clear from my post that I fully agree with Fubar's view that oral sex is far less likely to be damaging than masturbation, intercourse, or a VED.  All of these are likely to be safe with caution and common sense however.

I would like to refer Fubar and Finarod to read our forum rules Read This Post First - Important Forum Rules and Member Rights - Peyronies Society Forums especially rule number 4.

While I agree that Finarod's view of oral sex made little sense, it was no more offensive to me than Fubar getting upset over it.  It would have be fine to simply reply "that makes no sense to me.  I completely disagree".  Out of 35,000 posts over 7 years, I have only had to explain the rules 7 or 8 times.  You should be able to disagree without being offended or without moving the discussion away from Peyronies Disease and to your personal feelings.  When someone finds they can't do that then it is time to either find a forum that engages in that behavior or start your own.  I feel confident however that this minor issue is past and we can all get back to dealing with Peyronies Disease.   ;)
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

skunkworks

Quote from: Hawk on September 04, 2012, 06:27:25 AMI have only had to explain the rules 7 or 8 times.

And 6 of those were about bee venom!  :)
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

james1947

As someone that lived in a communist country under harsh censorship  :(, I am a big fan of freedom of expression :)
We were even taught what and how to think and how to price the BIG LEADER that he knows everything :(
Fubar, how can I ban you from the forum ;D I think your contribution is important and your posts are not falling in the category for banning someone 8) They are just expressing anger sometime, but it is OK, we all are humans 8)
I hope Hawk will not ban me, as my post is somehow political ???

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Hawk

Quote from: james1947 on September 04, 2012, 07:38:31 PM

I hope Hawk will not ban me, as my post is somehow political ???

James

Off to the Gulag!  >:(
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

finarod

Hawk and James,

Thank you for your posts that try to deal with this minor issue kindly and respectfully.

I've never thought about a comparison between VED's suction and suction within oral sex. Though I still think that caution and pain should be our guide, I admit that I've a bit exaggerated the extent of danger in oral sex. That is the bottom line.

However, fubar, instead of trying to reinforce his argument as you guys do, he called mine "silly", and "ridiculous", moreover adviced "not to refrain from oral sex, if you do so, you'll gonna lose that girl". I think that difference of attitude demonstrates the level of his "insight" as I had already praised in my first reply to his comment.

It is time to move on and cope with Peyronies Disease. Fubar seems to be under guest status now. I do not see any kind of necessity for him or for me to leave the forum. We can live together.

ashtown


Quote from: Hawk on September 05, 2012, 09:23:00 AM
Just a follow-up to my last post.  Apparently Fubar decided to delete his membership... I regret his decision and had hoped for a little more maturity. It is a let down when you lose respect for someone.  Maybe he is just letting this disease mess with his head.  Since he chose to delete his membership some of his nonsense posts along with my replies will likely be deleted.

Hawk
Administrator



Given that this is one of the very few places on the net where you can talk to other men with Peyronies I struggle to see the sense in that decision but I guess that is his choice and the forum will carry on as usual. In any case I wish Fubar good luck in his battle like everybody else who has been hit by Peyronies Disease.  
Dec 2013 - Replaced all prescribed medicines with plenty of fresh vegetables, sleep and exercise

skunkworks

Quote from: Hawk on September 05, 2012, 09:42:18 AM
Quote from: Hawk on September 05, 2012, 09:23:00 AM
Just a follow-up to my last post.  Apparently Fubar decided to delete his membership... I regret his decision and had hoped for a little more maturity. It is a let down when you lose respect for someone.  Maybe he is just letting this disease mess with his head.  Since he chose to delete his membership some of his nonsense posts along with my replies will likely be deleted.

Hawk
Administrator

What an odd turn of events. He must be having a really hard time in his day to day.

Pity to lose him, hopefully he'll come back when his head settles down.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

james1947

I am in very close relations with Fubar and I know that he is under huge pressure and stress. :(
I suppose this is the reason for his anger and he expressed that in a certain way. >:(
This is the reason I was not offended by his posts related to me (shallow, spread etc') :)

So, lets go back to the subject (if it is not clear yet) Sex or no Sex (To be or not to be, Two beer or not two beer and so on) 8)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum