New Here - Any Guest Blogger Here?

[LibrianFriend]

First time I used these forums when I was searching some valuable sources about Peyronies Disease. And honestly, I found some real people talking about Peyronies Disease here.

Now, I started to talk with other members here and hope that it will be fruitful. Thanks  

[james1947]

LibrianFriend

Welcome to the forum, happy you found information here and hope you find it valuable for you.
Can you give some detail regarding your Peyronies? It may help other forum members to understand how can they help you.

James

[LibrianFriend]

Hi my Fellow Peyronies Disease forum members!

I am working on a peyronie's disease blog and it will be great if I find a volunteer to share their experience, thoughts about Peyronies Disease. You may visit this blog and see that what I already posted and how it will be good if you contribute.

Note: I am not promoting any products or showing any ads on this blog, so its not for commercial purposes. I will be grateful to read your comments. Thanks

[james1947]

LibrianFriend

I think that a blog on the subject can be a good idea, but to be so it needs to be accurate as possible.
From going thru your blog (I must admit superficially) I have seen a few sentences that are completely wrong.
For example:

Peyronie's Disease Waiting Period

DON"T have such a thing in Peyronies!!!

Vitamin E supplement, alone or with colchicine both have collagenase enhancing effects, stopping progression or even resulting in regression of plaque

I doubt that vitamin E will stop the progressing of the disease and regressing it.

By the way, Pentox is not even mentioned in your blog as treatment for Peyronies, today is considered by many Peyronies specialists and other urologists as first line treatment for this disease.

I am proposing you to read the forum posts carefully (all the posts if you can, as I have done) and take notes to be able to make a good and not misleading blog.

One more remark:
We very rarely post links on the forum , and only in cases that they have real value for the forum members.

James

[Hawk]

LibrianFriend,

I will help if you can please help me understand why we would want to spend time rebuilding another support or information site on Peyronies Disease from scratch when we have already invested the better part of a decade, several hundred dollars, and many thousands of hours, building the biggest web presence on Peyronies Disease in the history of the internet?  
How would a new blog with questionable information help anyone?
How would it help anyone to have two weaker sites rather than one large properly managed site?

Next, do you have any understanding of common internet etiquette or common manners, that you would register on another's forum to post links to your site without contacting the administrator for approval or even reading the rules for the site?  That conduct by definition makes you a spammer which is considered a scourge and the lowest form of internet presence.

If you had even taken the time to read our forum rules, you not be ignorant about common courtesy. Rule number 9 states.
9. We allow those selling items for profit to declare their intent and make statements and answer questions about their product after making full disclosure to the administration.  However, anyone suspected of posing as a Peyronies patient to influence a commercial transaction (a shill), is subject to an immediate and permanent ban.  Spamming the forum with promotions, links, or trolling for membership will not be allowed.

Your may or may not be well intentioned but you have an incredible amount to learn about Peyronies Disease and about building a site, not to mention a lot to learn about common decency and respect.

Hawk
Administrator

[LibrianFriend]

Dear Admin,

I think there is no need to mark my post as a promotion of the blog.
I don't need it, there are many many ways to promote it by setting an autopilot.

I learned good info from the discussions in these forums when I was writing a book about peyronie's. Now this book is live on Amazon. So, I am not an ignorant joe in Peyronies Disease.

Why to blog when you already invested a lot?
There are thousands of information resources online with similar content. For instance, wikipedia.com founder may ask others that I am hosting the definitions of everything for free, so why you people are making these efforts, do something else?

My only purpose of posting here is to read comments of 'real' people dealing with Peyronies Disease. Nothing more, nothing less.

James, I am grateful for your help and I will edit these errors.

[Hawk]

I echo my previous post about internet respect, reading rules of forums you post on and planting links on other forums (a problem we fight daily).  You say your post was not a promotion of your blog which is puzzling because anyone that reads can see it is nothing but a promotion of your blog with an unauthorized link to your blog.

While your intention may be good, I am astounded if your qualification for writing a book about Peyronies Disease is that you read a lot of stuff on the internet.  I would not presume to write a book and I have researched and lived this disease for a decade.  I have spoken with leading doctors and communicated with well known counselors and had dialog with hundreds of men and women affected by Peyronies Disease.  I have been solicited by a publisher for a leading doctor to read and write a review for his book.  Rewriting something you read on the internet is hardly adequate background for a book.  That and the misinformation in your site give me cause for concern.  You have a responsibility for everyone that visits your site if they either get an impression that is false, or fail to get information that is available from another site because they assume you know what you are talking about.

[LibrianFriend]

Admin, Can I ask you that why you removed my blog address from my signatures?
Is it ethical and allow you to alter member's CP.

These forums are not to help people with Peyronies Disease but a moderate effort to promote some products and services.

Otherwise, you never attempted to remove my signatures.

[skunkworks]

Hehe hilarious thread. Guy comes here to spam about his blog, under the guise of asking for reviews.

Blog is reviewed, found extremely wanting and actually misleading. Does not even mention Pentox!?!?!?

Gets cranky when his useless, possibly dangerous (to peyronies sufferers) blog is removed.

[james1947]

LibrianFriend

Our forum policies are very clear defined in:
Read This First - Guests and New Members - PDS - Peyronies Society Forums
Regarding your opinion on our forum? It is a free world (almost) and everyone can have his opinion.
Regarding your blog, as skunkworks has stated:

Blog is reviewed, found extremely wanting and actually misleading

Personally, I really don't want to make an effort to correct things on your blog, but you may do it by investing more time learning the subject of Peyronies.
No one on our forum tried or trying to make money out of Peyronies sufferers.
People that tried to do that (like you) were banned from the forum, I wander why Hawk is so indulgent with you

James

[ashtown]

I know some guys who do web marketing and they are always on the lookout for what they call quality backlinks. Call me suspicious, but in this case it sounds to me like somebody wanted backlinks plus other people who could create content for Google. The fact that he mentions being able to do this on autopilot says it all because that's how web marketers AKA spammers work.


There is quite enough bad information on Peyronies Disease including a gem I read the other day which said I could have avoided it completely if only I'd eaten more fish oil but it wasn't too late to fix if I bought some from their store... I have a pretty low opinion of web marketers who try to exploit sick people.