Newly diag & Change in diagnosis

[reynell]

 

[james1947]

Easy to have a conversation with you  

James

[reynell]

about to leave Dallas TX. The Dr here said i do not have peyronies but just as bad of symptoms.  I have many problems, Too much tissue under the pubis area causing hidden penis, too much scrotal tissue inside and out.
The penis has stayed in that position so long the spongy area of the penis has been compromised thus loosing its ability to expand. Results about the same as peyronies.  The only treatment is surgery. There is no plaque to inject etc.

I wants to take out some tissue in the publis and the scrotum take out some skin, a kinda public lift and anchor the penis at the base to keep the turtle neck from happening. He said its like sleeping with your arm in a kink and it falling asleep due to lack of circulation and or use.  The problem is that the pain is due to the hourglass shape and the inability for blood to flow properly through it. And the only way to fix that is with implant.

Did my research and feel confident with him, he uses the AMS 700xlg or the titan.  I am leaning toward the AMS after doing the research although i hvnt been asked my opinion.  Stayed up all night reading.

Only problem is my ins. It doesn't say it wont pay for it but it doesn't say it will. Very vague.  Dr is going to do his best to get it pushed through. It says unnecessary surgery is not covered, but it causes severe pain. If it didn't cause pain i might see it but I'm going to let the Dr talk to the ins co. I feel good about them paying for  it.

We should know something in the next week or so. Hes got a surgery date set for jun 8 to do at least the nip and tuck and the implant if oked. but i know he at least will do the nip and tuck.  i and he doesn't know how much he can correct if he only does the nip and tuck and not the implant. He said about the only thing i can say for sure is that it wouldn't get any worse. But he said i do need the implant to get to normal.

Got long drive home.  Don't know what to feel right now just want it over with and back to normal.  

[james1947]

Reynell

Very interesting diagnosis and you should be happy not having Peyronies.

Why still you need an implant? The implant is mainly for ED, lost of length and girth.

Do you get positive information about the doctor? Like how many people are pleased with his surgeries, how many implants per year he is doing etc'

James

[newguy]

From reading through your history, I see penis pain, hourglassing and the like. In some ways it sounds like peyronie's. Anyway, whatever is going on if it's stable, I can understand you thinking over the options in a considered way. There are certainly men here who attest to an implant being the right choice for them. Whatever works.

[reynell]

James

that's what i thought too. He said "you really don't have peyronies but a LOT of other problems"
Ive had hidden penis all my life even when i was thin. He said my situation is common mostly do to weight but some times it is hereditary and you carry more tissue  fat or muscle or skin down there. I have too much loose skin in the scrotum too much fat and tissue behind the penis and too much skin over the pubic area.

Even though Ive been like this all my life in 2006 my wife and i were on anti depressants and having problems between us. She was brain washed in a way by her parents about sex being not lady like etc. Not blaming by no means !  But from 2006 till this year i had relations may be twice or three times a year. He said it was like putting a deflated balloon in you pocket for years and then trying to inflate it. If just causes long term irreversible damage to the spongy part of the penis.

He said that having so many tissue problems and not having erections for so long the spongy material in the penis has basically lost is ability to expand and hold blood.

But even if he corrects skin and extra fat and tissue the damage has already been done and can not be corrected without an implant just like peyronies. He said he it isn't typical peyronies. Insted of blunt injury mine was caused by lack of natural blood flow.

I still have questions, he said he uses AMS and the Titan. But i am leaning towards the AMS. If i have any input, But i have read that AMS has 700 and 600 and CX. If I'm reading it right the cx is the maluable implant and i DONT want that one. I have read allot on the AMS 700, about the base extenders and the expansion into the glans. Ive read the draw backs on the Titan and that's not for me.

And the main prob right now is my insurance, if its approved it will be totally paid for. should know something in a couple of days.

But he said you might as well have peyronies you have the hour glass deformity severe pain inability to have a good sex life and the treatment is the same. "The mechanism of on set is different."

I'm going to call Monday and make sure they don't plan on using the maulable implant. I dint want to have a hinged erection the rest of my life.

Jack,....... i want your input on the maluable vs the 700 or even the 600. You have mentioned both the AMS and the titan be. What have you heard about the maluable type? I didn't think that anyone with any kind of active life could use one like that.

[james1947]

Reynell

I understand what you are writing regarding your problem.
My private opinion is that you are right and just an implant can help in your case. (same as in my case).

I hope that Jack will be online and will answer your questions. In any case, Jack have a blog regarding his implant that is extremely helpful to understand all the process and not just "dry" information regarding the implant.

The AMS 700 LGX™ cylinders are designed to expand in both length and width. (girth).
In mean time, read the information from AMS website:
http://www.americanmedicalsystems.com/mens_erectile_restoration.html
It will help you also to understand the differences between the implants.

One more point. As Jack has advised me I am doing VED every day to increase the flexibility of the penis tissues. The outcome of the implant is better if you are on the VED a few months before the surgery.

James  

[reynell]

I have read as much as i could on both ams and colopast, Both have inflatable and non inflatable. But the ams has more advantages like the extenders and the filling of the glans.

did i send you the site of the coloplast? or was that some one else?

any way the big seller for me is the exptenders and the fullness into the glans of the AMS. But i do have a question for Jack when he gets on.  Don't understand that advantage or dis in the 3 part vs the 4 part, the one has the resv in the abdomen and the other one doesn't but still is inflatable. Where is the saline stored, in the bulb in the scrotum? I understand the difference, one less part but don't understand the advantages and dis advantages.

[james1947]

Reynell

I search also the Coloplast website and many comparisons on the web regarding the AMS700LGX and the Titan. Different people, different opinions but my conclusion is AMS700LGX will do better job for me.
An other point is that some doctors are doing just Coloplast, some just AMS but some are doing both.

Regarding the differences between 2 & 3 parts (not 3 & 4 parts) is that the 2 parts have the cylinders and the pump that is also the fluid reservoir, the 3 parts have the cylinders, the reservoir in the abdomen and the pump in the scrotum. I think the 3 parts is newer model than the 2 parts.
You can read more information on AMS website.

James

[reynell]

I agree  James

By what I've read the 3 piece gives a more  natural look when flaccid but more complicated to place. My Dr uses both didn't have chance to ask which he wanted to use. I'm pushing the ams 700 but will have to see. Hvnt heard from jack yet but i know he like the 700 best.

tks

[jackp]

Hi Rey

The one question you did not ask in your email but asked here is about the difference in the two piece and three piece implant.

In the 2 piece the saline is stored in the pump, in the 3 piece the saline is stored in the reservoir.

By the way AMS has about an 80% share of the world wide market for implants.

Any other question let me know.

Jackp
http://jackp-penileimplant.blogspot.com/  

[reynell]

And by the way i read it is the flaccid state of the 2 piece does not lay as flat or as natural as the 3  piece due to the residual saline in the implant  vs the saline reservoir of the 3 piece in the abdomen?  Am i right?

[jackp]

Yes the 3 piece implant is much more natural than the 2 piece.

I have the 3 piece AMS 700 LGX with the MS pump. I can get the fluid to return to the reservoir for a natural looking and feeling flaccid penis.

The satisfaction rate for the 3 piece is much higher than the 2 piece. For the 2% of men where the reservoir can not be placed in the abdomen it is preferred over the mailable implant.

Jackp
http://jackp-penileimplant.blogspot.com/

[james1947]

Jack

A technical question.
To pump up the implant to full erection, how many time you are squeezing the pump?
How long time it takes to make it fully erect?

James

[jackp]

James

I have a 15cm implant with a 60ml reservoir. It takes me 9 squeezes on the pump to become fully erect. That is less than 30 seconds.

Some of the bigger boys with the 18cm and 21cm implant with the 100ml reservoir take from 12 to 20 squeezes of the pump.

This is full compressions of the pump. Some you hear that it takes a lot more squeezes on the pump do not fully compress the pump. With a little practice it becomes second nature. I usually inflate mine during foreplay and my wife does not even notice.

jackp
http://jackp-penileimplant.blogspot.com/  

[james1947]

Jack

Thank you for the answer. I was afraid that somehow it is a complicated and long procedure

James