Peyronies Disease resolved and came back 12 years later

[egpd]

Hey, everybody. I posted a few messages here almost 13 years ago when I had problem that I suspected was Peyronies Disease but was never officially diagnosed as such. I had a hardened spot on the top of my penis maybe 2/3 of the way down the shaft from the base. That spot then expanded into symmetrical "wings" partially around the circumference on either side. I went through all sorts of confusion with my doctor who at one point suspected cancer, which made no sense. I ended up getting a biopsy that was negative so the cancer thing was totally off base. The doctor still wouldn't diagnose me with Peyronies Disease, however, since I had no real curvature, but prescribed Pentox anyway that I only took for about a month.

During that time, I also went on a raw foods diet because I heard that creating an alkaline environment in the body prevents calcification so I did that for about a month before going off of it. Eventually after about a year, the hardened area of my penis had softened to the point where couldn't even feel it. Yet something still seemed a bit "different" about the area. Anyway, I was able to resume normal sexual activities and all was fine until March of last year when the same problem came back.

Just like the first time, I'm certain that my problem was caused by being too rough with my penis during sex. I would bend it, strain it and go for a very long time without ejaculating. There was no specific injury, just the build-up from repeated trauma eventually taking its toll.

Because the problem eventually resolved itself last time I figured the same thing would happen again if I just abstained from sexual activity for a while. I tried to do that, abstaining several weeks at a time but I would inevitably fold and have sex again and retraumatize the area. The area this time is a bit different. The central plaque is in the same spot, but it didn't "expand" like last time. It's just staying in that one area.

I finally went to the doctor a few weeks ago thinking I should at least do something to treat it if it doesn't go away by itself again. I was prescribed Pentox again which I started taking 3 times a day. After about a week and a half, I cut it down to 2 times a day because the side effects were too much for me (dizziness, nausea and an almost out-of-body feeling). During this time, I also tried going on a raw foods diet again but didn't stick with it fully and still ate regular foods occasionally.

Well, just last night, I was about to have sex and noticed that my erection was curving upward. This is not something I'd ever experienced before and I panicked and lost my erection. It seems that this is something that only started (or at least that I only noticed) since starting Pentox three weeks ago. I've decided to stop taking it to see if it changes anything. I didn't like the idea of taking it in the first place.

So basically, it's been about 9 months since I noticed this problem had reappeared after going away for 12 years. The last time I was dealing with this and went through all that cancer scare nonsense, I eventually decided to just stop taking all medication for it and just try to be careful and abstain from sexual activity as much as possible and try to forget about it and focus on other things. And with that, it eventually went away on it's own. It was like the inflammation eventually settled down or something. I'm thinking I'll probably do the same thing again but since I seem to have exacerbated things more this time around through sexual activity, I don't know if I'll have the same result. I just know that I when I tried to forget about it and basically forget that I even had a penis (lol) I just noticed one day that everything had softened up and was pretty much back to normal.

I don't imagine this approach would be advised here, though. I just really don't want to take any more meds and have this rule my life like it did for that dark period 12 years ago. This new curvature has me worried though. I'm just going to try to take a rest and hope for the best, unless someone has better advice to give.

[Ukguy1234]

Have you actually seen a urologist? Generally speaking, minor diet changes and oral medications supplements have very, very little impact on Peyronies.

[egpd]

Have you actually seen a urologist? Generally speaking, minor diet changes and oral medications supplements have very, very little impact on Peyronies.

Yes. Check out my old posts from 13 years ago. I saw a urologist pretty early on the first time around. I didn't see one until 9 months after my second onset because I expected/hoped it would resolve on its own again, there was no curve and I had a lot of problems at home to deal with including my wife's more serious health problems.

The first urologist 13 years ago was at Kaiser and for whatever reason he was concerned it could be cancer, which made no sense to me because it was definitely brought on by physical trauma to the penis and seemed like Peyronie's in every way other than the lack of curvature. His colleagues at Kaiser were equally clueless. He did consult with Dr. Lue at UCSF who said it seemed like Peyronie's but he still wouldn't give me an official diagnosis, I guess because there was no curvature.

That problem eventually resolved on it's own after a long period of abstinence. As I mentioned, I'd also gone on a raw fruit and vegetable diet for a month during that period. I lost a bunch of weight which continued even after I stopped the diet. Shortly after that, I also had a bout with shingles, so I'm wondering if the diet had some kind of detoxifying effect on my body?

At the time of this second flare-up, I had gained the weight back and was about 20 lbs overweight and prediabetic at the age of 53. I went on another diet this past month similar to the previous one but haven't stuck to it fully. With that and more exercise, I have lost about 10 lbs and am trying to shed the remaining 10 lbs as well.

As I mentioned in my post, I took Pentox for 3 weeks and had pretty bad side effects from it. And just a couple nights ago, I noticed significant curvature in my penis for the first time and wondered if it might have something to do with altered blood flow in my penis from the medication. I stopped taking it and now a full day after stopping, I feel better in general and my penis feels less sensitive. I haven't had a full erection yet since then and I'm kind of scared to, to be honest. I'll keep you all updated if the curve is any different now. I've seen some messages here from people who think (at least in their case) Pentox made their symptoms worse. I wonder if that might've happened to me.

For now, I think I'll just stick to the regimen suggested by NeoMan on Youtube. Abstinence, manual traction and diet in the hopes that it resolves again for me, even though it's been over 9 months since this second flare-up started. I know I wasn't being good about the abstinence part and was still having sex on occasion in a way that I know was retraumatizing the area which was really stupid. So I'm going to make a real effort not to do that from here on out and add manual traction exercises to the diet changes I've already made. I used to eat a lot of sugar, so changing that will be good for me in general.

I asked my urologist about verapimil gel and she said the Kaiser pharmacy doesn't carry it but they could possibly send some oral verapimil to an outside pharmacy to make a gel out of it.

I also forgot to answer the questionnaire:

Age? 54

What did your medical doctor conclude? Current urologist says symptoms are consistent with Peyronie's even though there was no significant curvature at the time of the appointment.

How long have you had symptoms? About 9 months. I had a previous bout with it 12 years prior which resolved on it's own after about a year.

What are your symptoms? Palpable plaque on the top side of penis. Sensitivity and mild pain in that area. A noticeable upward curve only just recently after starting Pentox.

What treatments have you tried and what were the results? Tried warm compresses which didn't do much. Changed my diet and exercise regimen which could be helping or may help more going forward. Took Pentox for 3 weeks which didn't seem to help and may have even exacerbated it, along with other undesirable side effects.

Do you have insurance or means to get medical treatment? Yes

where are you in dealing with the psychological aspects of Peyronies Disease? I'm scared this problem won't go away this time and will get even worse. I'm upset at myself for retraumatizing the area repeatedly since the second onset. But dealing with my wife's serious health issues helps give me some perspective.

Are you in a relationship? Yes

[Pfract]

How egpd! Sorry to hear that your condition came back... Some of the medication you are taking barely has any effect.. Please check this link: https://malefertilityandpeyroniesclinic.com/peyronies/treatments/

The sooner you act the better. Traction and cialis + l-arginine are very well tolerated and have actually helped some members! It wouldn't be a bad idea to try and find either a peyronies or sexual medicine specialist That you can work with to help you on this matter... .

[egpd]

How egpd! Sorry to hear that your condition came back... Some of the medication you are taking barely has any effect.. Please check this link: https://malefertilityandpeyroniesclinic.com/peyronies/treatments/

The sooner you act the better. Traction and cialis + l-arginine are very well tolerated and have actually helped some members! It wouldn't be a bad idea to try and find either a peyronies or sexual medicine specialist That you can work with to help you on this matter... .

Traction, definitely. But I think I'd go with manual rather than using one of those devices. I have concerns about oral medications because I took pentox for 3 weeks and it seemed to give me a more noticeable curve than before I started taking it. I worry that cialis might do the same. Don't these medications increase blood flow to the penis? I'm not sure if that's a problem I really have and maybe taking them would have some kind of overload effect and cause the problem I experienced.

I posted a couple replies on the oral medications forum about pentox possibly making things worse but those were on really old threads. Maybe I'll start a new one and ask if anyone else feels that might have happened for them. Someone on an old thread did say that Dr. Lue said pentox can make things worse for a small percentage of men. Anyone have a direct link to that info?

What are the symptoms of low blood flow? My penis at least feels like it has decent blood flow most of the time. I have a very large dorsal vein which might help with that.

I am interested in trying topical verapamil to try to soften up the plaque. I'd also like to get an ultrasound to see if there are any signs of calcification as that's something I'm definitely worried about.

[Mikel7]

What Pfract has stated is what has helped a lot of men here including myself. Topical lotions do not penetrate deep enough to do any good. Traction is an approved method along with Cialis and L-Arginine in helping peyronies. I doubt if Pentox did the damage. If you use manual traction you have no idea just how much force you are applying to your penis and could actually do way more damage. Getting an ultrasound can sometimes show things and sometimes not. Stick with what has worked for a lot of us members and get a Dr that you can work with.