How much have you spent on treatments?

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BentKnob

Treatments are costly and add up.

So far I have spent.

Shockwave therapy ESWT - £4,000
Xiapex collagense injections - £6,000
Vacuum pump SOMMAcorrect VED, Comfort Grip, Traction device RestoreX, Comfort Grip and Replacement parts -  £1,000

Total - £11,000

This doesn't even include Tadalafil and Supplements.
Be interested in others sharing their cost and experience.
36 yrs old
Married & open relationship
In 2023 injury by repeated trauma, first noticed in early 2024
20-30° up and left curvature
RestoreX BentKnob Journal

Ukguy1234

I have probably spent about $3500 AUD on all the various doctors appointments, scans, pentox, cialis scripts and Restorex / comfortgrip / accessories. Probably more if I factor in near daily use of a heatpad that I heat in the microwave and NSAIDs painkillers.

I'm guessing the Xiaflex is too punchy to consider more rounds?

Would you ever consider a plication just to put this crap behind you?
Diagnosed
Symptoms Jan 25
1cm Lost Length
25-30° Upward Curve
Multiple Plaque Bands, Lumps, Dents
Started Restorex July 2025 - Zero results so far
RestoreX Ukguy1234 Journal

BentKnob

I've decided I've thrown enough money at this problem as it is with limited results.

I'm making do for now.

Gonna have to start up RestoreX again soon when I can get more replacement parts after mine broke.
36 yrs old
Married & open relationship
In 2023 injury by repeated trauma, first noticed in early 2024
20-30° up and left curvature
RestoreX BentKnob Journal

Ukguy1234


Thats fair enough.

I'm going to give RestoreX one more chance, like a full year of commitment throughout 2026.

If that doesnt do anything at all, I may consider plication. Surgeon said I would lose 4mm to correct my curve, which is around the same as yours. Obviously far from ideal but the option is there.

I really dont want to be lurking this forum and the peyronies sub-reddit for years to come. It's become a borderline obsession at this point. Definitely not healthy.

Wish you the best anyways
Diagnosed
Symptoms Jan 25
1cm Lost Length
25-30° Upward Curve
Multiple Plaque Bands, Lumps, Dents
Started Restorex July 2025 - Zero results so far
RestoreX Ukguy1234 Journal

PleaseFindACure

I spend c a. 1000 Euro on doctor visits. I payed out of pocket to be able to see a top Peyronie's expert in Germany and to do hormone blood panel without a 6-12 month waiting list.

I payed 2000 Euros for a CBT Psychotherapy.

I payed c.a. 500 Euros on traction and vacuum devices.

I pay c.a. 400 Euros a year for Cialis and Supplements (I need Vitamin D, Zink, Magnesium and Fish Oil to help boost my male sex hormone production).

I started to spare 100 Euros a month in a surgery/implant account so that I have some money if I need it in the future. It is a strategy to reduce the anxiety of things becoming worse in the future.

---

So the 3000 Euros for medical professionals should have been covered by health insurance, but it is just so difficult in Germany to get good treatment in the public health insurance program in due time.
Mid 30s. 2021 Diagnosed Peyronies Disease&ED, 2023 Chronic.
Dorsal Plaque behind Glans with Hourglass, 1.5cm
Shortening and 25deg Curve up and left, OCD. Functional with Meds
Since 2023: Daily Manual Traction, heat & 5mg Cialis, L-Arg., CoQ 10, Antioxidants.