This sucks, but I have hope, hello.

[Ands]

Hi! I'm Ands. I've been posting on the traction board but feel like I may as well do an intro post as I'll probably be here for a few years. It's nice to have somewhere to talk/vent about this. I've told some close friends and family, but can still be tough to have them grasp how tough it is.

I'm 31, got about a 35-45 degree bend to the left, when 10/10 erect, I feel like it's closer to what looks like 70 or so. I'm single, which makes it easier to do all the traction and such. I don't have to deal with sex troubles, and it sucks because I'd like to enter a relationship in the future but it definitely holds me back in a way from wanting to.

First noticed after I got back from a vacation to Japan about 6 months ago. Was in denial about it being 'that bad' and figure it was just my congenital left curve. But masturbation was really seeming like a pain in the ass, excuse my crude language but stroking was difficult, and I remember having erections that were so tight and definitely painful now looking back (feel like I justified the pain as just being 'really hard').

Eventually I took a picture with my phone from the front with a full erection and was honestly a bit horrified. It really set in that my penis was deformed. I started googling about peyronies but was still in denial so I figured I just needed to do exercises/stretching for pelvic floor    .. I tried some on my own then figured I'll be half serious about this and go to a pelvic floor therapist, they told it's standard to do an internal examination, I ended up just opting to do exercises, did one appointment and never went back haha.

so after a month of goofin around - I went to the doctor, I really wanted to figure it out and not wait until I turn 40 to do anything about it.

Doctor ruled out anything cancerous and agreed peyronies was likely. Referred to urologist at Rush in Chicago (thankfully I live here) same day, and he checked it and agreed as well, I mentioned the pelvic floor stuff i was exploring and he was like "yeah don't waste your time with that, that isn't your problem", felt kind of relieved to be honest, to be past self diagnosis as that's a never ending worm hole of confusion/frustration. - anyhow - he refused to treat me and instead told me to just book with Laurence levine. Again really grateful given I live in the same city as his clinic.

So I had the appointment with Levine and the assistant, they were professional and all went well, they confirmed peyronies and injected with trimix to check, I only got like a 6/10 or 7/10 erection but it was enough to show the curvature.

Levine told me I have a 30 degree curve, got me going on
- Penimaster pro
- l arg / l citr / l carnitine supplement
- h100 gel

Been on that for 2 months and so far I would say the pain is mostly gone, I don't see much of a difference in curvature, maybe a slight reduction in torsion I've noticed when very hard.

Anyway, I'm babbling, just wanted to do an official introduction and honestly just journal my thoughts down somewhere.

We're all going to get better, I still have hope and taking my health in my own hands made me a lot more serious about this and dedicated to struggle thru it.

[Ukguy1234]

Welcome brother. Good on you for being proactive and going to the doctor.

Any idea what may have caused this for you? Any injuries you can recall or medication you are taking?

Out of interest, did Levine think the Penimaster pro could make a reasonable difference? Did he mention surgery?

All the best

[Mikel7]

Welcome Ands and thank you for your detailed post! Please fill out your signature line -->Signature Line . Then if you haven't done so please download our survival guide -->Survival Guide . This will give you a better understanding about peyronies and it's different treatments.

Dr Levine is my Dr also and he started me on the PMP and I can say that I do like him and his approach. I did have success with the PMP and then I eventually incorporated the Restorex to address my upward curvature.

You are doing everything correctly and just keep on keeping on. I also used heat therapy to help with pain and accelerating healing. Are you also using Cialis? It helps with erections and bringing in fresh oxygen and reducing inflammation. Welcome!  
      Mikel7

 

[Ands]

Hey! As for what caused it, I can't think of any event I can pin it down to that may have caused immediate damage. He did mention surgery is usually a later option to go to - I grimaced and said that the idea of that makes me uncomfortable and can't see myself doing it. He said it's an irrational response and that surgeries on a case like mine are usually very successful. To be honest I still feel the same but I think he was right given his experience. Just hoping to get through things with traction.

He said with the PMP that you basically need to treat it like braces, it takes time to change things and said to try and maximize my time wearing it.

He even suggested wearing it to bed once comfortable wearing it for a longer period of time, I can see his angle on that but the idea of that still kind of scares me after reading some stuff online where people get morning wood and it causes bruising / cell death potentially? / etc

[Ands]

Welcome Ands and thank you for your detailed post! Please fill out your signature line -->Signature Line . Then if you haven't done so please download our survival guide -->Survival Guide . This will give you a better understanding about peyronies and it's different treatments.

Dr Levine is my Dr also and he started me on the PMP and I can say that I do like him and his approach. I did have success with the PMP and then I eventually incorporated the Restorex to address my upward curvature.

You are doing everything correctly and just keep on keeping on. I also used heat therapy to help with pain and accelerating healing. Are you also using Cialis? It helps with erections and bringing in fresh oxygen and reducing inflammation. Welcome!  
      Mikel7

Hello! Agreed, it was honestly so relieving to get a professionals take on it and it seems like he's dedicated himself to this area. I have my 3 month follow up appointment (from my initial), in 2 weeks. I'm honestly a bit worried about the outcome of that given pmp hasn't yet produced many visible results, mostly just reduced erection pain, which I won't complain about!

But hope he doesn't just try to push me toward surgery as I'm not ready to go down that route. But it'll probably be fine ha.

I will say I've been curious about using restoreX for my case, almost all of the tissue on my left side of my penis is tighter feeling - so it seems like it'd be more effective. especially with the comfort grip being released it seems appealing, before I wasn't too excited about clamping my glans with the base model. Would you say this aligns with your experience? PMP was only helping by a small percentage for the actual curvature hence you introducing restoreX?

What are you using for heat therapy? I've just been using a rice sock like NeoV has always mentioned, but not sure how long to keep the heat on it, under the penis, over the penis, etc.

Levine held back on prescribing Cialis, just the aminos for now. though I am curious if that'd be a good addition. He said my arterial peaks / blood flow looked good based on the ultrasound. Though I've reduced my masturbation to 1 time a week so maybe less blood flow by virtue of that, or penis just getting cold while I have pmp on - are the things that make me wonder if it would be good.

sorry for the wall of text, hopefully that made sense, appreciate your input!

[Ukguy1234]

Your response to want to avoid surgery might not make sense from a surgeons perspective but its an absolutely normal emotional response from any man.

It absolutely makes sense to explore conservative approaches first.

As for the PMP, I am surprised he mentioned wearing it at night. Don't us men get multiple erections during sleep? I dont see how that one would work personally. Haven't heard of anyone on here wearing it to bed either.

Did he talk about Restorex at all?

[Ands]

As for the PMP, I am surprised he mentioned wearing it at night. Don't us men get multiple erections during sleep? I dont see how that one would work personally. Haven't heard of anyone on here wearing it to bed either.

Did he talk about Restorex at all?

yeah agreed, makes me wonder if Levine has tried that himself haha. No disrespect to him but it's as you say - it's your penis and you only get one.. are you sure you want to chance it.

He did not talk about RestoreX and while I preferred PMP in the beginning, and honestly mostly still do given it's comfort for long term use. I do wonder if RestoreX would be a good addition for targeting certain plaque locations, and maybe could be a good addition to a PMP routine? (rip wallet, haha)

Not sure but I have an appointment coming up in 2 ish weeks so planning to ask his thoughts on it.

[Ukguy1234]

From my personal use with the Restorex so far, I found that the point at which it bends, sits higher up on my shaft. However my plaques are located in the very middle and at the base...so it doesnt come close to targeting it.

Dr. Trost claims that it doesnt matter but I find it hard to believe. It just makes sense that the closer you get to the plaque, the better the outcome.

We are all different though. You might find it works slightly better for you. I'm likely going to do the reverse and try the PMP next year...so if you have any pointers I'd love to hear haha. The one thing I was concerned about was the need to buy extra sluices and accessories because they wear out. Is this the case?

[Ands]

From my personal use with the Restorex so far, I found that the point at which it bends, sits higher up on my shaft. However my plaques are located in the very middle and at the base...so it doesnt come close to targeting it.

Dr. Trost claims that it doesnt matter but I find it hard to believe. It just makes sense that the closer you get to the plaque, the better the outcome.

We are all different though. You might find it works slightly better for you. I'm likely going to do the reverse and try the PMP next year...so if you have any pointers I'd love to hear haha. The one thing I was concerned about was the need to buy extra sluices and accessories because they wear out. Is this the case?

Yeah that seems to be the real tricky part of peyronies.. there is so much individual variation, there isn't one answer for everyone and you gotta be your own scientist.

Based on your sig it sounds like we have similar properties - mine is a left curve but I noticed you list out fibrous bands.. I have a half-circle like band which is the plaque that Levine detected on the ultrasound. honestly though It feels like I have 2 more running closer down to the base as well.

anyway, regarding PMP pointers - It really is a comfortable device, there is a learning curve so you need to be really paying attention to things and figure it out as you go. I have not had a single issue with the sluices, but the diaphragms have pissed me off. So after 30 days maybe more, the diaphragm eventually rips - and I've had it happen during my max length extension, and also from over pumping when applying the vacuum. It honestly has scared the crap out of me each time it has happened, but.. it doesn't actually hurt at all, it's just sudden which makes me panic like I broke my dick lol.

Other than that, once you got the diaphgram on and consistently able to apply it (trick seems to be pumping twice, or 1 and half pumps, so it's past the glans), for the next 30 days, you can put it on in under 1-2 minutes, then can chill like 1 hour and half, 2 hours, longer if you work up to it (up to 3 listed by pmp manual). take it off for 10-30 mins to warm back up, re apply, and keep wearing. That's really the flow of it throughout the day, I just put my phone timer and pause when i take it off for breaks. I think someone claimed you don't need the diaphgrams, I may look into that soon. (maybe it was Mikel?)

Otherwise man if I was in your shoes, had money to spare, and aren't going to stay committed to RestoreX. I think PMP is a great option to keep the penis stretched, which is obviously very important in peyronies. I would buy it.

Hope that helps.

[Ukguy1234]

I have several bands also. One urologist brushed them off as veins and another didnt even notice...but I know they are there. If I run my fingernail over the skin, they feel gritty underneath, which definitely doesnt feel like a soft plushy vein.

Out of interest, do your bands correspond with where your curve begins? Mine seem to do so, as well as some narrowing in girth.

Eugh, its such a nightmare. I'm doing my best to keep it a cool head about it but I do at times feel like im getting a touch of body dysmorphia going on. It doesnt look like my own dick anymore.

Regarding the PMP - thanks for those pointers. I'll look into picking up a few spare diaphragms. I wonder if there are third party ones that do the job, instead of buying direct from the manufacturer.

[Ands]

Yes, the band appears to line up with the curve, but ofc it can be hard to tell since the plaque isn't palpable after I have an erection. But I can see a slight curve / difference in tissue when flaccid by the band.

I think it has also broken down slightly or changed shape since I first felt it, feels like the middle has a slight deterioration... making it feel less band-like, but it does form a semi-circle from the left side of the shaft to the front.. which may explain my slight torsion when erect?

Though that's all really speculating if we're being honest, just caught my attention, who knows how much or if it's changed. Maybe Levine can provide some answers there.

Also if going with PMP - you can use Astroglide, water-based, thicker formula. The amount of lubricant given by the PMP company is pretty small if considering long-term use, other users have recommended the same.