Lemme introduce myself again: yup, I officially have peyronnies

[Mikerey]

Hi y'all Right now I need some guidance.


I was 22 years old when I had my penile fracture. I am now 41 putting the final touches together whilst healing it. I haven't jacked off to porn for about 4 months or longer.


I had 2 uros in my pocket. One of them is old, he won't return my call and he usually gets back within the same day. The other one is young and hip. He ignored my last query to see him because I think he's sick of me. He also has private practice where he treats peyronnies regularly out of pocket aka your own cash.


See I was slated for a Doppler but I got sick with pneumonia and I had the dopplar done incompetently while in hospital instead of at his prescribing dopplar date. That's why I think he dropped me , won't return calls because I did not go to his dopplar, instead someone else did it and sent him the results. Geez I could see why he's upset because I didn't go through him. I'm freaking pissed if at both of the free uros. And one has a private clinic where I don't feel welcome.


So anyway I have peyronnies, lack of size , penis pointing down to the ground and tons of flipping scar tissue.


I have a bright idea about another pay for what you get Uro. He is a cool guy. I trust him. But how much is it gonna cost for friggin shockwave?! In Canada.


What are your suggestions or recommendations. Please and Ty, Michael.

 

[Mikel7]

Welcome Mikerey to the forum and thank you for filling out your signature line. Please download and study our survival guide -->Survival Guide . This will give you a better understanding of peyronies and it's different treatments.

So it has been 19 years from your injury till now. Also congrats to quitting porn as this is can be difficult to do but you will benefit in the long run!

So it sounds like you do like your 2 Dr's that you have but you think that you upset the one because of the ultrasound mishap? So what did the Doppler confirm or show? Your physical symptoms show you that it is peyronies but how much internal scar tissue was shown on the imaging? You say that there is a ton of scar tissue.

I would stay away from shockwave therapy as it is a money maker for Dr's and it is not proven to help. Stick to traction and VED therapy and reducing body inflammation. How are your erections and do you have any pain? Getting on Cialis can help bring in fresh oxygenated blood and help keep things stretched out.  Of course getting a Dr that is educated in peyronies is good, but if you can find a doc that will work with you is better than none at all. Educate yourself on peyronies and study the forum then make yourself a list of questions for any future Dr appointments. Also adopt the mindset that this is a marathon and not a sprint which I think you understand.
 

Mikel7


 

[Mikerey]

Full previous quote removed - Please use REPLY instead per the forum rules

Mikel7 you're a stand up guy! Erections at night are painful on the ride bottom side of shaft. It feels like the sheath is strangling the penis, I can give you the dopplar results: she confirmed that nothing was wrong but she said exam was difficult due to my physical habitus: I was 370 lbs at time of the exams. Plus she told me to hold my penis , which I could not because I could not reach it with my hand due to overweight. Also she didn't touch it, she instead rolled the device on my flaccid penis on a few spots. The last time I had a dopplar the radiologist held my flaccid penis, did front back side to side plus pubis and groin areas. Much more competent than this time around lol.

I understand peyronnies has timing too. Like, it has a worse curvature at onset because the plaques may shrink or heal in some time.

I have been a sketch head since this injury, So I remain optimistic about having peyronnies because it's not as bad as penile fracture. I emailed a private doc(urologist) yesterday sharing my sentiments. I guess I gotta pay to play so to speak. BUT I appreciate the view that shockwave is bogus, it saves me a lot of money.

I've been reading up on the shockwave phoenix, but I don't think I shall buy die to my physical habitus: obese, concealment, small in size. If I can't reach down there how can I apply the shockwave you know? Plus it's like a hundred(s) of dollars!

Since this injury I only got laid once. It was done nice chick due to mercy. She wanted to help me out. Man, talk about coming back from the dead. I had an uncle who took verapimil and I would opt for oral solutions. I told dr urologist that I was not ok with certain types of treatment, but that's just come down to personal choice.

No surgery, traction devices because fear of refracture, only injections and oral tablets and cream no shockwave too is what I'm learning.

Anyway I'm staying optimistic, and I thank you for your reply mikel7. It's just a little uncomfortable putting off social events with friends until I feel a lot better. I try to stay low stress and lots of walking at the park. I must pray for this. I appreciate all good vibes too

I may as well tell you a little bit about my psych history: I developed psychosis at the onset of injury, it pushed me past the threshold of what I could handle. I have since gotten professional help. Just to an aside, I accidentally put in 50 pounds due to doubling of my medication. I used to be a healthy 284 lbs, I am nowadays 340 or so. Ty for reading my post. Like I said, dear mikel7 you're a stand up guy while others sit down lol.

[Mikerey]

Why is it not healing??? So you know, I defeated a penile fracture... Now I don't even want to talk about the angle of the dangle (peyronnies lol) instead this is my problem: I keep hearing an audible crack in my right groin and it causes loss of sensation in my right leg. My right quad is tingling. I am so fed up about not being able to pump iron at the gym because it might get worse. In fact I've heard and felt about 15 pops in the last few months, more closer to 20. I am in great despair over this. I see my uro by phone on July 16th while I'm on vacation but this really hurts. The cracking was very more louder and persistent in the beginning, I don't know if that is grounds for improvement as it is still chronic. Just numbness in the right leg.

[Mikel7]

This does need investigating. Any numbness or tingling could mean a possible pinched nerve, muscle tightness or blood flow issues. Also any pelvic issues can seem like prostate or penis related problems. Remember that getting older can slow down on our bodies healing process sometimes. Also worry and anxiety can do a lot of damage too.

[Mikerey]

Full previous quote removed - Please use REPLY instead per the forum rules

Hi mikel7, my uncle thinks it's an impinged nerve. I am praying like crazy. My gp will not help me, was gonna go to er for this. I've been having some suicidal thoughts, I am not a threat for self harm. I will give you an update when it gets better!