Hello Introduction

[SquareEfficient7618]

I am 54 years old and I have been diagnosed with Peyronie's Disease.  Honestly, I did not need a doctor's diagnosis to know what I had.  I developed a full 90 degree upward bend.  I swear it looks greater than 90 degrees curving backwards its that severe.  It was obvious.  When the bend popped up, I went from being perfectly straight to a 90 degree bend inside of 48 hours.  It took me around 5 days before I realized what was really going on.  I made an appointment with my urologist around after 2 weeks after the bend popped up and confirmed.

I already have an urologist since I have been treated for psychological ED for years and I am already on a Cialis prescription.  Although my urologist doesn't treat Peyronie's, I was switched to the other doctor in the office who is experienced with Xiaflex.

While most guys do not remember what was the trigger for their Peyronie's, I have a fairly good idea.  In Aug 2022 I was playing with my new puppy, who is a hyper Tasmanian devil.  I had a toy sitting in my lap.  She jumped on my lap and lunged at the toy and bit me in the dick by mistake.  She got me good and it did hurt for 10-15 min or so, but she never broke skin or drew blood.  I was wearing just a thin pair of shorts I sleep in.  It was almost like she bit my bare skin.  Had I been wearing jeans, she likely would not have bit me as hard and would not have been able to get a grip on what she bit.

Around Nov/Dec 2022 (don't quite remember when it started), I noticed some hardness in my dick and questioned myself "What is this?  Has it always been like this?  Is there something wrong?"  I had considered making an appointment to see my urologist right then, but I didn't since there didn't seem to be anything wrong.  In Feb 2023 I had a vasectomy.  Even though I was at the urologist for that, I did not mention the hardness I felt since I still didn't think anything was wrong.  In the beginning of March 2023, my bend popped up.  I went from being perfectly straight to a 90 degree bend inside of 48 hours.  It was that fast.

My urologist diagnosed the Peyronie's.  The second urologist confirmed it.  He said I was in the acute stage and prescribed Pentox.  In Sept 2023 I received my 1st round of Xiaflex.  I am now in the weeks after my 3rd round of Xiaflex.  I still have a full 90 degree upward bend with no improvements.  I believe I have taken to the treatments well.  They were completely painless or at least no worse than the sting of a novacaine shot.  I believe I have not lost any length.  If I have it is very slight.  The plaque has been reduced a good amount and my doctor says it feels much softer, but I have had no improvement at all. The only improvement I can state is the hourglass indentation is mostly gone.

I have a couple more weeks for my follow up appointment with my doctor to report that after 3 rounds, I still have not a single ounce of improvement.  I bought the RestoreX and started doing traction before my 1st Xiaflex treatment.  After watching one of Dr Trost's videos, I question whether or not my doctor is doing things right and if he can help me further.  How can Dr Trost see immediate improvement in his patients from a single treatment and I am still the same after 3 rounds?  Though after watching Dr Trost's video I did discover I am not quite using the RestoreX properly and to its full potential.  I will moving forward.

Things I question, my doctor never injected me to physically see and examine the bend himself.  He merely relied on pictures I provided.  I question where he is injecting the shots, especially after see Dr Trost's video on the subject.  My doctor also did the injections while I was fully flaccid, unlike what Dr Trost does. I asked my Dr about the traction device and he seemed indifferent to me using it.  The stretching routine they sent me home with seemed very light and I can't see how it can be very effective.

So I am here on these forums seeking direction on where I go next.  Do I move forward with a 4th round of Xiaflex?  I cannot leave this alone with a 90 degree bend.  Sex has only happened once since this happened.  It is beyond difficult and not even enjoyable.  Since I already have psychological ED, dealing with this issue has made it worse.  To make matters worse, I am single.  This has destroyed any attempts at even trying to date.  I have a lot hectic and bad things going on in my life and this just made things worse.  I'm slowly fixing the other things going on while dealing with this.

Most further Peyronie's treatments just reduce your length and size. Plication can't be an option since I'm at 90 degrees. I would never choose this option anyway.  Grafting reduces length and size and even erection strength.  This also does not seem appealing.  Do I go straight to an implant now?  Would any doctor recommend it when my natural erections are usual fine, as long as my psychological ED doesn't give me fits?

That's a lot of info, but I think it covers almost everything.  Hopefully my story wasn't too scattered and all over the place.

[Mikel7]

Welcome to the forum SquareEfficient and thank you for filling out your signature line. Hopefully you have read our survival guide -->Survival Guide . This is a comprehensiv e;ist of peyronies and it's different treatments.

Sorry to hear about your puppy accident. A 90* bend is definitely unusable in intercourse and needs some form of treatment. Traction and VED therapy is a good start that needs looking into. One thing you must understand about Xiaflex is the proficiency and experience of the Dr administering it. Dr Trost has an excellent patient success rate with Xiaflex because of his own developed treatment protocol. Also traction therapy is a must with Xiaflex, it stretches out the penis while letting the medication do it's job. If you haven't had any success so far I would wonder if you should actually continue with them with your current Dr?

Gong for an implant now is probably off the table because you can achieve an erection on your own. Surgery will reduce your size and since you are in the acute stage now you should wait until things slow down. I would start some form of traction with the Restorex and or PMP. Also implement VED therapy. Has your Dr talked to you about Cialis for erections? Search the forum and read some of the success stories surrounding Xiaflex and it's different outcomes.  

Mikel7

[SquareEfficient7618]

It doesn't sound like you properly read what I wrote.  I did not just recently discover I have Peyronie's.  It's been close to 2 years since I was injured, 1.5 years since I noticed the plaque forming, and more than a year since the bend started.  I am past the acute stage.  I started using a VED 1 week after the bend popped up when I realized what I had.  It was one of the things I could immediately do before I went and saw my urologist for an official diagnosis.  After diagnosis, I was prescribed Pentox last summer during the acute phase.  I started using the RestoreX months before my 1st round of Xiaflex in Sep 2023.  My doctor did not even recommend traction, though he said I could do it if I wanted.  I have been doing it ever since last summer.  I have already done 3 of 4 rounds of Xiaflex.  I can hardly see how 1 more round of injections could help me, even if I went to a new doctor.  I have been on Cialis for over 10 years, so that is not an issue.

[Mikel7]

I am sorry but It was difficult for me to understand what you wrote, it was as you say, "scattered all over the place".

So basically you have tried Restorex and VED therapy have been on Cialis for over 10 years and just finished your 3rd round of Xiaflex. You do have questions on the Dr's actual procedure with the injection protocol he used on you.  Pentox now is even questionable if it even works. You say your only improvement now is that the hourglass indentation is gone. You are now questioning a fourth round of Xiaflex. I personally would not go forward with this Dr.

Have you read any of the success stories from Dr Trosts's patients on Xiaflex? He actually invented his own personal protocol and has great success with it. Many men have been very pleased with their final result. My first concern was where you said your urologists didn't even recommend traction. That for me would be a red flag on changing Dr's.  If I was in your position I would at least have a consult with Dr Trost to discuss his personal opinion on the matter. Yes you could go forward and try for an implant but I would be very careful in my selection of a surgeon. Only choose a highly qualified one surgeon who has done thousands of them, Dr Eid in NY is one of them.