Intro - 31yo, peyronie only when flaccid!?

[Keanureevesjr]

Hi all.
Noticed curvature in penis starting two years ago only after sexual intercourse. Normal erection is straight. Over the course of the two years, it has started to form a default curve when flaccid, and also shrunken a bit while flaccid so the skin bunches up (uncircumcised), but erection is still straight (until after intercourse). There is a severe hourglass effect in the transition between flaccid and erection. Only recently I've been feeling some pain at the point of curvature (left side, middle).
The most unbearable thing is that at almost all times while sitting down, the feeling of the sideways position and the skin bunching up makes me constantly conscious of my penis at all times, squirming in my seat to get it into a comfortable position and sometimes pulling it the other direction to prevent it from rubbing against my left thigh. This, and the recent sporadic pain, is getting on my nerves to the point of near insanity.

I've been to two doctors. One at the beginning who just told me "it's Peyronie's and there's nothing you can do about it" and the second one recently who after I told about the pain gave me a quick check and said "you're totally healthy, this is normal. Peyronie's is not a real disease and there's nothing you can do about it".

I'm kinda at a loss here. Need some encouragement at least if not advice.

Thanks in advance  

[Stabler]

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Stabler

[Keanureevesjr]

I've added the signature, and read the introductory documents. Thank you for sharing.  

[LWillisjr]

You have been to 2 doctors who know nothing about Peyronies Disease. It amazes me that there are now ads on TV and some doctors still dismiss Peyronies. You need to find a urologist who is familiar with and knows how to treat Peyronies. We have several doctors we recommend depending on where you live.

[Keanureevesjr]

The first doctor I went to was a so-called Peyronie's expert who had actually published research papers on the subject. But since I'm young and she saw at not severe enough apparently, she dismissed me.
I'm now studying abroad in a country where it's probably not as well researched so the doctors here don't see it as a real disease. I'm kind of screwed. Are there any off-the-shelf remedies I can consider? I've been taking vitamin E regularly, but I've read that when taken on its own, it has little effect.