Tracking my Peyronies journey with RestoreX

[sammysosa17]

I've purchased a RestoreX device and I'm committed to using it twice a day.  I am going to start tomorrow (Feb 1st) and document my recovery journey here.  

I'm 26 years old and have a pretty significant downward curve as well as a slight curve to the left.  I would estimate my downward curve to be somewhere between 55-70 degrees.  I will record specific measurements and provide pictures tomorrow.  I don't have any hour-glassing or hinging from what I can tell.  I also haven't experienced any Erectile Dysfunction (yet, and hopefully not ever) but on rare occasion my penis will go into a weird 'semi-hard' state before going fully erect.

I have always had a very slight downward curve to my penis (maybe 15 degrees max) for as long as I can remember.  I think it was due to the way I would masturbate when I was in middle school.  I would grab the top half of my penis with my right hand over the top of my penis and stroke in that motion.  This put a weird pressure on the top half of my penis.  I never had a specific incident during that time where I felt like an injury occurred but I suspect that slowly over time I continued to cause small amount of damage to my penis.

In 2021 I was masturbating and all of the sudden I felt a really sharp pain on the left bottom side of my penis.  I went to the bathroom to check things out and thats when I noticed that my semi-flaccid penis had a curve to the left.  This obviously was a pretty traumatic experience and I thought I broke my penis. The following few days I noticed that I had what felt like a solid chord running through the left bottom side of my penis.  To this day I'm still not sure what that chord was..

Within a week of that incident I scheduled a doctors appointment with my normal physician and he said that my penis looked normal.  I assured him that there was an issue and he referred me to a urologist.  The urologist he referred me to was an older man in his 60s.  When I had my appointment I explained the situation and had him feel for the chord I was referring to before.  He said he couldn't really feel it and that my penis appeared normal so he thought everything was fine.  He told me I could apply heat or use an ice pack to help with the pain.  Whatever felt better.  I told him that I suspected that I had peyronies and he dismissed it quickly.  He said that peyronies is rare and that even if I did have it, I don't want to mess with a 24 year old's penis because it isn't worth the risk. I didn't want to argue with him so I just went home feeling defeated and like there wasn't a solution.  At this point I felt helpless.  

The pain lasted about a month before it slowly faded away.  I felt a constant pain even when I was flaccid.  As my penis began to heal I started developing a much more severe downward curve and still have a slight leftward curve.   If I stand square with the toilet and pee, my stream is at a 45 degree angle to the left (while flacid).  As I mentioned before the downward curve is much worse than the curve to the left.  While the downward curve is between 55-70 degrees, I think the leftward curve is only about 20 degrees.  

It's been about 3 years since this happened.  My symptoms now include the curvature, hard bumps running up the left underside of my penis as well as a some slight discoloration on the head of my penis after sexual activity.  The chord-like thing is no longer there.  I have not been officially diagnosed with peyronies disease but feel very confident that I do have it.  I also believe that I had a congenital curve prior to getting peyronies.  Due to the fact that my urologist didn't seem to care, I haven't gone back.  If I do return I will update this thread with what I learn.

I'll be posting updates here as I go on my journey of attempting to restore my penis.  This disease has been tough to handle mentally but I have found comfort in reading posts on this forum.  I hope that this thread will be something that gives someone hope in the future as they read through my recovery journey.

In addition to using RestoreX I will be using an infrared heating pad, taking CoQ10 and vitamin e.  I have seen several posts about the benefits of using a VED so I want to incorporate that into my routine eventually.  I just need to do more research first.  If anyone has any questions feel free to ask.  Pictures and measurements to come tomorrow!

 

[Mikel7]

Welcome Sammysosa17 to the forum and thank you for filling out your signature line. If haven't done so please download and study our survival guide -->Survival Guide . This will give you a comprehensive list of peyronies and it's different treatments.

Congenital curvature is normal and varies in the way a penis bends or curves. Traction devices usually don't correct this. In your case it sounds like you have had an injury of some kind dues to the deformity you describe.

As far as your urologist is concerned I would seek out another one. Peyronies isn't rare as any man young or old is subject to it and many Dr's are clueless with it's diagnosis and treatment. There are a lot of the members here who have had to do the Dr switching routine. Don't waste your money or time with your old Dr.

Restorex does work but just remember to give yourself a break in period. It is aggressive with it's pulling forces and you should limit your time just starting out until you get use to it.

Heat therapy does help with healing as does Cialis or like meds. They reduce inflammation and provide added fresh oxygenated blood. Also adding in VED does help, the forum will give you more info regarding our protocol to prevent injuring yourself.

Supplements can help your body in reducing inflammation if incorporating a healthy lifestyle along with it. You are young and can heal faster than us older guys here.
You need to adopt the mentality that this is a marathon and not a sprint. Keep your worrying down to a minimum and stick with your game plan and you will feel better in the long run. This is a mysterious disease and you need to be better educated then your Dr as many of them are not experienced with it.  

Mikel7
 

[sammysosa17]

I'm not seeing where to add an attachment.. I took the photos today.  It was a weird experience because I am not used to seeing my penis from the different angles.  My condition seems worse than what I thought.  My curve looks to be nearly 90 degrees in some of the photos.  It was difficult to take good pictures but I want to post my starting point.  Will update once I get it figured out.  Thanks Mikel7 for the reply.  I am definitely reconsidering going to a different urologist.  

[sammysosa17]

Well its been 2 months and I haven't been using RestoreX.  I went to a urologist for an unrelated reason and at the end of the appointment he asked "Is there anything else I can help you with?".  I decided to go ahead and talk to him about my current condition.  I told explained that I am pretty confident that I have Peyronies disease and described the downward and slight leftward curve of my penis.  He asked me if it was affect my ability to have sex and I told him that I don't know because I have been avoiding it for the past few years.  He got very serious with me and told me that I should try to do something to improve it.  He was really encouraging with me and made me feel like my situation can be improved.  He felt for plaque in my penis and said he felt some on the left side near the urethra.  Due to the location he said that he wanted to reccomend me to someone who specializes in stuff like this and referred me to someone nearby.  He told me that he recommends Xiaflex.  I have read plenty about it on this forum and was immediately overcome with anxiety.  The shots seem pretty painful and there are the obvious risks of further damage, fracture etc.  I think I want to go ahead and try the Xiaflex because people do seem to show improvements, but I want to make sure I am doing it with someone who REALLY REALLY knows what they are doing.  My thought is to travel out to Utah and have it done by Dr. Trost.  I'm not sure how I would be able to make that happen with work, and especially if I will need to continue to go out there for follow up shots.  But  it doesn't seem worth the risk to have it done anywhere else.  I will eventually provide an update here with whatever I decided to do.  I still plan to document my journey and will definitely be posting before pics as well as any progress once I move forward with whatever I decide.  If anyone has advice or any thoughts please let me know.  No one besides myself and my urologist knows that this is even going on and its a lot to take on mentally

[Mikel7]

If you choose to go down the Xiaflex route then having Dr Trost perform the procedure is what I would highly recommend. If I owned a Porsche and it needed a special engine overhaul I would take it to the dealer who specializes in repairing it.