Pain on natural erections. what can I expect with an implant in regards to pain.

[Aussiemale]

Hello everyone. I am in Australia . I'm 50 and have lived with type one diabetes for nearly 30 years. In 2022, I contracted COVID and developed Peyronie's immediately. It may be a co-incidence but I believe, though can't prove it was an auto immune reaction to the virus.

8 moths ago I had an incision and graft performed. This did not completely straighten me so my surgeon also did a small nesbits at the same time.

I have since found, that I reacted to the trauma of the surgery with what feels to me like global hardening all over my penis. Loss of length,a  new indentation, still have glans mobility and now pain on erections as well as a reduced quality of erection and a dramatically reduced ability to maintain an erection. Curvature also returned.....I was 45 left....now about 25 left again.

Can I add a psychological component, Peyronie's has been a huge factor in the break down of my long marriage......

I am considering an implant. I have a consultation in March. I also add because this gives me hope, I don't get pain when stretching my penis....but I do on the natural erections..... this has made me adverse to erections and when they do happen, can't be maintained.

My Question is....can I expect pain following implant when activating the implant in the same way I get pain on erections now?

Or is there some hope that the fact I don't get pain when performing stretched penis length check etc.....means something?

Look forward to your thoughts.

[Stepone]

Aussie,
I am so sorry what you have gone through. Sadly I had a modified Nesbit to correct a 90 degree curve and fix a hinge on my penis. I believe this surgeries should not be allowed as from what I have read and experienced, this surgery shortens length and girth and with other complications, etc., is just not the way to go.
I can't really comment on your current pain, as it sounds to me the surgeon did not do a very good surgery.
That being said, we can't change the past, but I believe somehow surgeons should not be allowed to perform this archaic surgery.
Since I too had both surgeries I can easily say, that the implant pain was no worse, but it continued for a longer period of time.
My implanted device has returned my sex life and actually improved my length and girth.
But, DO NOT USE THE SAME SURGEON.
You need to find a surgeon that does over 100 implants per year. I believe someone in your country has been on this site, that had an implant. I don't recall the outcome, but finding a qualified quality high volume surgeon is what you need.
Hopefully someone else can provide you with an excellent surgeon.
There is hope, A new high volume  surgeon was able to restore some of my length and actually increased my girth.
Stay in touch and don't go back to the same surgeon.
Best wishes, stay in touch, and think positive.
So sorry for this.
StepOne
 

[DaneS89]

Hi Aussie and welcome. I'm from Australia too. I hope you get the answers you're seeking here.

Interesting that you mention Covid as a possible connection. My mind has wandered into that territory too in trying to identify a cause. I got the Moderna shot as a booster and developed Peyronie's, Sciatica and had a case of Shingles all within the same year...in my early/mid 30's. Remarkably I've never had Covid itself, or tested positive/shown symptoms at least. Maybe it worked too well...an overreaction of the immune system much like the virus itself. So there could be a common thread there. Or not. It could just be purely coincidence. I'm neither anti-vax or a conspiracy therorist...but secretly I wish I could "un-vaccinate" myself just to know or make sure.

Sorry to derail your post, I just wanted to acknowledge your concern/thoughts around that. Sorry also to hear about your marriage difficulties and the psychological impact this condition has had on you. Many here can relate I'm sure.

[Hawk]

Welcome to the forum AussieMale.

It is difficult for any of us to say what you will or will not experience in your specific case with a known, much less with an unknown, surgeon.  

What we do know is that men who get an implant typically do not experience continued pain even if they had pain on erection up to surgery.  I would also say that you have few other options if you do not have reliable erections.  

We also know that while one Titan is pretty much just like another except for size, all surgeons are NOT alike.  Picking the most experienced surgeon who has the confidence and commitment to size you aggressively and give you the very best odds of a good surgery with no infection is CRITICAL.  You do not want a surgeon who, once he gets in there, finds he has never handled a case quite like yours.  This means a surgeon who does between 100-300 implants a year and who has seen EVERYTHING, not one who does three a month along with treating kidney stones, prostate cancer, and a dozen other conditions.  Far too many men have to follow up a grafting surgery with an implant. I would not let your grafting surgeon do an implant for a few reasons.  First, if he were a good implant surgeon, he would have gone there first and saved you all of these unfortunate problems.  It would cause one to question his judgment.   Secondly, if he performed a serious surgery like grafting and then had to resort to a Nesbit to finish the job, it raises questions about skill and judgment.

Finally, I would inquire as to whether the surgeon is willing to remove the Nesbit stitching and let the implant do the straightening.  That would likely increase your chance of regaining some size and diminish the chance of pain.

[Aussiemale]

Hi guys and thank you for the support and replies.

I'm not going to blame my surgeon.....he is a very experienced and competent surgeon and I read his operation report and it was uncomplicated and had me straight on the table. I had bad luck in that my body responded to the trauma of  surgery and the disease progressed. I only blame this terrible disease and now I have to focus on what I do next.

My surgeon is a Peyronie's expert and an implant specialist.....how many each year I'm not sure.....and I have to factor in I am 4000km away from Sydney/Melbourne and I am better off seeing some one here in Perth should I have a complication or infection.

At this stage it's a consult only.

I'm now armed with some great questions (how many per year , and can the stitches be removed).

Let's see how the consult goes in the first place.

Thank you for everyone who replied.
 

[Aussiemale]

Welcome to the forum AussieMale.

It is difficult for any of us to say what you will or will not experience in your specific case with a known, much less with an unknown, surgeon.  

Hi Hawk and thank you. I have a stretched length of 15 cm for the rest of the world  or 6 inches in American (lol).

I'm wondering what size titan would be considered good size to discuss with my surgeon (I'm going to see a few, having taken advice from the above comments).

Regards Aussiemale.

 

[Aussiemale]

Hi Aussie and welcome. I'm from Australia too. I hope you get the answers you're seeking here.

Interesting that you mention Covid as a possible connection. My mind has wandered into that territory too in trying to identify a cause. I got the Moderna shot as a booster and developed Peyronie's, Sciatica and had a case of Shingles all within the same year...in my early/mid 30's. Remarkably I've never had Covid itself, or tested positive/shown symptoms at least. Maybe it worked too well...an overreaction of the immune system much like the virus itself. So there could be a common thread there. Or not. It could just be purely coincidence. I'm neither anti-vax or a conspiracy therorist...but secretly I wish I could "un-vaccinate" myself just to know or make sure.

Sorry to derail your post, I just wanted to acknowledge your concern/thoughts around that. Sorry also to hear about your marriage difficulties and the psychological impact this condition has had on you. Many here can relate I'm sure.

Hi Aussie and welcome. I'm from Australia too. I hope you get the answers you're seeking here.

Interesting that you mention Covid as a possible connection. My mind has wandered into that territory too in trying to identify a cause. I got the Moderna shot as a booster and developed Peyronie's, Sciatica and had a case of Shingles all within the same year...in my early/mid 30's. Remarkably I've never had Covid itself, or tested positive/shown symptoms at least. Maybe it worked too well...an overreaction of the immune system much like the virus itself. So there could be a common thread there. Or not. It could just be purely coincidence. I'm neither anti-vax or a conspiracy therorist...but secretly I wish I could "un-vaccinate" myself just to know or make sure.

Sorry to derail your post, I just wanted to acknowledge your concern/thoughts around that. Sorry also to hear about your marriage difficulties and the psychological impact this condition has had on you. Many here can relate I'm sure.

Yeah thanks mate. I guess we will never know....just that Peyronie's happened as soon as I caught the virus in 2022......and as I work in health  I was forced to take 4 vaccines or lose my job. Having an autoimmune condition like Type one diabetes, put me at risk.....look we will never know and also it's what I do next that counts.

I'm in Western Australia and would prefer to do the implant here as don't fancy a 8000km round trip for follow up if something goes wrong......

There are still some great Urologists here in WA and I guess my mission now is to find the right one.

 

[GrownMan2024]

Hello! I'm sorry to hear about everything you're going through. It's truly a challenging situation. It's positive that you've already scheduled a consultation in March to discuss the option of a prosthesis with your surgeon. However, regarding post-operative pain related to the activation of the prosthesis, that's a specific question to ask your surgeon during the consultation. The answer will depend on several factors, and your surgeon will be better equipped to explain what you can expect based on your specific situation.
The fact that you don't feel pain during penis stretches may indicate that the tissue is not as affected during those specific movements. However, surgery for prosthesis implantation can have its own effects and post-operative requirements. Don't hesitate to share all your concerns, including psychological aspects, with your surgeon. They will be able to provide personalized information and help you make an informed decision considering your unique situation.

[Aussiemale]

Thank you Grown man. For sure these questions will go on the list I'm making to ask him.

Hopefully he can answer, on top of this I was hoping to hear from mens own experience, men who have been implanted and perhaps had some pain prior. Hawk mentioned some evidence of men having pain on natural erection and no pain on activation of device.....this gives me great hope.....Hawk are you able to elaborate?

With thanks.  

[Aussiemale]

I guess I'm bumping my question up to the top again.....but does anyone have some more information on pain on natural erections and resolution of pain once implanted?

Thank you again..

[Pfract]

Aussimale: To the best of my knowledge, having an implant inserted normally results in peyronies pain and flareups being resolved. But even if they are not, you would have a device inside of your penis that you can use daily to stretch out the tissues. The improvement after a successful IPP surgery to correct ED and deformity from peyronies is normally dramatic.  Please check this diary: https://www.peyroniesforum.net/index.php/topic,18639.0.html

jj21 is also from Australia and had his done there.

[Aussiemale]

This quote was removed by the administrator because it violated forum rules.  Do NOT quote posts that occur immediately before the post you are making.  It clutters the forum.  To post clck on "REPLY" NOT "quote"

Hey thank you Pfract.
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JJ21 is indeed in Australia and has been very helpful.

Thank you for the reply. Very good to know .