Cause of my Peyronie's?

[dc123]

I am 72 years old with Peyronie's (40° dorsal curve, hinging and indentation) diagnosed Apr 27, 2022. Prior history of ED and use of Viagra for over 20 yrs. Started Trimix injections Apr 29, 2021 after a year of celibacy due to ineffectiveness of all PDEs. Also, history of numerous kidney stones, including 3 surgeries and 4 lithotripsies to remove avg 1cm stones. On March 3, 2022, 8 weeks before my Peyronie's diagnosis, the same urologist did surgery on me to remove a kidney stone stuck in my ureter. The procedures were: cystoscopy, left retrograde pyelogram, ureterscopy, stone extraction, and uretal stent insertion. My question is could the cystoscopy under anesthesia have caused my Peyronie's disease? I have had the same procedures two times before with different surgeons but no ill efffects.

[Mikel7]

Welcome Dc123 to the forum. The first thing you to do is to fill out your signature line -->Signature Line . Then please download and read our survival guide -->Survival Guide . This will give you a comprehensive list regarding peyronies and it's treatments.

So with your diagnosis did you have an ultrasound? I also have had 4 kidney surgeries and my last one was a cytoscopy which was in 2013. It probably did not cause my peyronies because of it being so long ago. That is not saying that it didn't cause yours.  It is a known fact that Trimix injections can cause peyronies. The question now is where do you go from here.

So it sounds like you have ED 100% and do not have any morning erections at all? Do you have a peyronies Dr?  If you cannot achieve an erection for penetrative sex then it is time for you to consider an implant. This is by all means not a last ditch effort as implants are successful when performed by the right surgeon. Read the forum and you will get a day by day history of successful implants performed and what they went through. Don't let your age stop you - or your history of kidney stones. Just drink more water.

Depending on where you are located I would suggest Dr Eid for an implant. Study up on him as he is a high volume qualified expert implant surgeon who is a really nice guy. He is also a surgeon on our forum who answers questions for our members. If I was in your shoes I would not hesitate getting an appointment with him. Our best and you are here among a lot of great men and some women who really care. There isn't another forum on the internet like this one providing the information we have.  

Mikel7




 

[dc123]

I get occasional morning erections and I can have intercourse with Trimix, although not to orgasm (mine) lately. I have been seen/treated by 5 urologists for Peyronie's/Erectile Dysfunction: Eid, Valenzuela, Berookhim, Chubak, Mulhall (from MSK, where I was treated twice for Leukemia, who says Trimix 100% doesn't cause Peyronie's, FWIW). They all suggest either implant or plication. I already tried ESWT, Verapamil and Xiaflex with Restorex. No improvement of my Peyronie's, in fact, indentation started after Xiaflex. I won't have a prosthesis implanted but I might consider plication if I was 100% sure the permanent sutures wouldn't decrease my quality of life. Sorry for your sensorineural hearing loss. Is it treatable? What did Dr. Levine do for your Peyronie's and have you had any improvement? What degree and kind of curve? Any hinge or indentation like me? Thanks for your help.

[dc123]

PS - I have had 5 ultrasounds, incl 3 with peyronie's: plaque on the dorsum, more prominent on the left corpus, no venous leak.

[Mikel7]

Dr Levine was the first who correctly diagnosed me with peyronies. He started me on Pentox and the PMP. He also suggested Cialis which was the drug that caused my SNHL. It is a rare occurrence but now I'm just one of the statistics. The PMP really improved my lost length. I was about 7 1/2 to begin with and I lost about 1 1/2 inches. I am currently now at 7 which for my wife is ok with.

I then purchased the Restorex to help with my dorsal curvature. I had a 40 degree curve that has gone down to almost 25 now. I still use it every other day now. I did have some mild indentations which have resolved them selves. So why are you not opting for an implant?  

[dc123]

As I said, Xiaflex and Restorex did nothing for me but pretty impressed that Restorex alone helped you. Great! I won't do an implant for a variety of reasons: it's permanent, no going back; it's artificial, mechanical, a prosthesis; it's pretty obvious, especially when flaccid; I have no doubt it's uncomfortable, including when you're flaccid; I have read about the extreme pain shortly after implantation, no thanks. However, If I was a young man with no other choice, I might be willing to tolerate all the negatives (which are highly subjective and, no doubt, vary with each person). But I'm 72 and it's too much for me to contemplate. I might try plication, which I thought you got from Dr. Levine, oops. But you do have ED (like me)?

I've taken Cialis, along with every other ED drug, with no ill effects. Pretty shocking your hearing was damaged by it but weirder things have happened with other drug side effects. My knee replacement recovery roommate said he became legally blind after an arrhythmia medication iv drip following his quadruple bypass. Coincidentally, I had the same bypass. BTW, do you use a hearing aid? Response optional, of course.

[Mikel7]

No I don't and wont use a hearing aid. I suffer a lot from hyperacusis and tinnitus. I am pretty much disabled from it.

[dc123]

I've had tinnitus for years. The way I deal with it is to ignore it, which psychology seems to work. It sounds like crickets playing fiddles. BTW, Viagra worked great for me for about 20 years. I was on 100mg before it eventually stopped working, about a year before I got Peyronie's. Now, I think of that time as my "good old days."