Last week has been rough - awaiting a consultation with Dr. Ralph

[ohnoohno]

Awaiting a consultation with Dr Ralph (via video call) this upcoming week and also a therapy session to just speak to someone.

Overall my life is good right now. I'm in the best health of my life APART from Peyronies. I have severe peyronies at this point. Completely deformed and major shrinkage. Sex impossible.

I think I've put it to the back of my mind whilst trying to fix it but it's gotten so much worse my mindstates so messed up these last few days. I should've somehow got a loan out and just got an implant earlier to not let it get to this point.

I feel like there's no way escaping this. Only way is being rich and getting implant ASAP. If I can get ralph to even suggest putting me on implant list it could be a long time whilst my penis deteriorates more.

I'm hoping someway I can get booked in for an emergency surgery with him.




One of the worst things is people asking me about dating/girls etc. I want to connect in that way again now but I don't until it's somewhat fixed. I am so depressed it's hard to go do things in life.

I live a very healthy, active lifestyle and I love my work. It's like everything else is looking good for me apart from Peyronies which is detrimental to the highest degree right now.


I'm hoping for a miracle and I pray daily

[GaussRifle]

Good thoughts and prayers for you. I am also young and a sufferer of Peyronies  so I know how it feels to avoid girls because of this. It really sucks. I am taking daily tadalafil and doing traction, just doing what's in my hands and praying for a miracle as well.

[ohnoohno]

Thanks Gauss. It's a tricky one being at this age where everyones dating and you want to but peyronies.

I feel I'm at least entering my prime right now too so want to make the most of it.

Think my protocol is just stick with cialis now until I can get an implant. I truly do not know what to do as I've tried everything the urologists have said and it's just got worse.

I'm trying to find a way to get into debt and get 20,000usd out of nowhere (which would be the most I'd ever have in my bank account in 29 years) it just seems so unfathomable.

I do think though if the implant fixes all my peyronies problems, regains some length to be an average penis that I can use and get on with my life, it'll be wrth the peacer of mind.  

[ohnoohno]

I think it's goign to be a shock when I eventually post photos of my situation.

I hate to be so negative today people but think everything is worth documenting at least in some way. I will hopefully come back to this one day and all my posts and be able to reflect differently and hopefully better life.

If anyone knows any posts they can link where someone has had a very deformed/messed up penis (w photos) and then things have gotten better with implant or omsething please link, I can't find any which adds to the anxiety.

[ohnoohno]

Apologies for all the complaining recently, it's getting to me and have used this place to let it out a bit.

Got to accept it all and move on.

[Pfract]

You don't have to apologize for anything. This takes a toll on any man. There is no question there. You say that you wonder about financing for your implant and that you should do it. That is in fact a real possibility for some people here in the US. Or some travelers from Canada to the US.

If you have some savings already and you get access to credit from a financial institution then why not see what kind of loan you can get? If you are dead set on having an IPP, despite the risks then there's no point in waiting. Provided you can have an implant in the private healthcare.

[Sonic]

Sounds like you have taken the decision to procede with the implant in which case all these thoughts should start getting out of your head now. I don't think there is any reason to keep thinkig about it daily if you are set for an implant. If you are really worried about losing more size leading up to it just keep up with the VED or traction.

[Hawk]

Ohnoohno,

Look at the first post on this topic and the link to the video in that first post.  Severe curve treated with an implant.  Some of our own implant journals document significant curves fixed by implants.https://www.peyroniesforum.net/index.php/topic,11204.new.html

I am posting this here for your reference.  If you want to discuss the details of an implant.  Do that on the implant board.

[ohnoohno]

Thanks all, took a break from the forum for a bit. Despite that things have been pretty depressing for me, like right now at 1 AM and can't sleep.

I'm in chats with Dr Ralph, he's called my case severe and quite a "rare" case which isn't great lol. It's hard to do literally anything at the moment. Feel my whole body is heavy and no where to turn. I definitely can't continue like this for too much longer. Praying for a route to an implant via the NHS.

Will update soon.
 

[Hawk]

Keep in mind that often doctors emphasize how complicated a condition is so you are more impressed and more satisfied when they fix it.  

You are going to be fine.

[Mikel7]

You're going to make it through all of this!! Don't despair!

[ohnoohno]

Haha, good way to look at it.

Thanks to you both fellas. I need to keep my head up for sure. Today is a lot better than the previous weeks.

I received a letter from Dr Ralph today, quote:

"Perhaps we can avoid a penile implant at this stage and just straighten the penis with a Nesbit plication"

Now, from what I have seen on the forum people get the Nesbit and are not happy + lose length so I'm going to do some more research on this whole topic the next few days before replying.

Bare in mind also, he hasn't felt my penis or have we done any scans because I am abroad. It is being judged from photos/video so far, just worth noting.

Initial thought is I'm still interested in the implant despite it being invasive/life long thing of likely revisions later on etc.  

[GaussRifle]

I would stay away from Nesbit or any kind of plication if you have Erectile dysfunction or trouble staying hard. Most of the people who get peyronies do report having troubles at some point. Moreover, if you do have significant shortening , it would already make you smaller ?  

[ohnoohno]

Both the same concerns Gauss.

I've lost length already and I have erectile dysfunction.

Bare in mind I never had Erectile Dysfunction before Peyronies. In my 10+ years of being sexually active before this disease.

Now I have to be constantly stimulated with cialis to stay somewhat hard.

I wonder how to navigate telling the DR I don't want what he recommends and I want an implant instead. Especially if it's via the NHS (Free healthcare)

[Sonic]

I am in the same boat as OP since day one curve never been my biggest issue yes there is a tilt towards the right but sex would be no problem with the angle. It's the Erectile Dysfunction and dent thats what ruined me. According to Dr Trost Peyronies rarely causes progressive Erectile Dysfunction which is what I am going through and based on OP's post this seems to be what he's gone through as Well. Although his curve is more bothersome for him than mine I see in his post his ED has gone downhill with time.

[Dent4ever]

I hope for our sakes AI will come out and cure this ailment with a better solution than this "3-5yr implants. Anecdotally the ones lasting 7+years -10 are sparsely used. This WILL be a thing of the past I believe at one point in our lifetime (not soon) perhaps next decade but hold off obi the implant if its in a "relatively" working phase so to say.

[305made]

im only 21 and how would i ever get an impant wouldnt  they have to replace it like 4 times this crap is so terrible

[Stepone]

Hey guys, I am sorry you are experiencing problems with your penises at such a young age. I was in my mid 50's before I started having issues. St first I started losing my erections. The doctors said I had venous leak, but viagra worked most the time.
But one time while having incredible sex, I broke my cock and that's when Peyronie disease started.
From that point I suffered with injections and bad sex for almost 5 years before I discovered implants.
I wished I had known about implants sooner.
So I am older and now I have sex 2-4 times a week, with my spouse limiting the number of times.
The lifespan of an implant varies based on usage, but I've seen anywhere from 10-20 years. I seldom see any numbers information based on usage.
But my point is "who cares"!
If you are not having any sex now and sex is impossible, I would rather have sex for 8 good years, than no sex.
I can only assume that as time goes on, things will get better for replacing as needed.
On the other hand if sex is ok and you only have problems sometimes I would not get an implant yet.
It's a decision you have to make.
Good luck and I hope this helps.
StepOne  

[IwillbeatPD]

Great insight, Step.

I can relate some here being somewhat younger at 37. Many surgeons or people will dismiss the idea of an implant for someone young, especially as young as you. But my advice is, you need to use your own logic here on what makes sense.

First of all, I'm really sorry you're experiencing this at your age. It's unfortunate, but also not the end of the world. There are solutions. I'm only going to speak about an implant and my decision to get one at a young age. I will also assume you have tried everything else listed here for at least a year without improvement.

This was my case. Joined this forum a year ago with zero symptoms other than a small bump on my shaft. Aside from that, everything was normal. 2 months later went to a urologist who said I had Peyronies Disease. A year after that, I was implanted because everything else didn't work and my condition worsened to where I couldn't have sex. So like you, I was faced with the decision of implant or not. As Step mentioned, I would rather gave 40 years of sex starting at 21 than 40 years of sex starting at 40. One, we're never promised tomorrow so you have no idea how many days you'll even be here. Two, as Step mentioned, there will likely be advances in implant technology, so the hope would be by the time you need a revision, there's a better solution. And three, I think this condition takes a toll on men more than some realize. At your age, you should be enjoying life and growing into the man you'll be as you age.

Don't be afraid of an implant because of your age if you've tried everything else and can't have sex. Dr. Hakky just implanted me and made a comment he's implanted people your age. Don't let this define your life.  

[IwillbeatPD]

I think it's goign to be a shock when I eventually post photos of my situation.

I hate to be so negative today people but think everything is worth documenting at least in some way. I will hopefully come back to this one day and all my posts and be able to reflect differently and hopefully better life.

If anyone knows any posts they can link where someone has had a very deformed/messed up penis (w photos) and then things have gotten better with implant or omsething please link, I can't find any which adds to the anxiety.

Hey bud-

Take a look at my photos in my journal. I had severe hour glass and narrowing. My dick wasn't too curved but it looked terrible. Once I got implanted it immediately looked better than it ever has. As long as you go to an high volume/ experienced surgeon, you will be just fine. If there's any possible way to get the money, I'd say do it sooner than later.  

[Hawk]

I hope for our sakes AI will come out and cure this ailment with a better solution than this "3-5yr implants.

This quote needs a direct response because it is blatantly false.  Men and couples would read this and walk away more ignorant than when they came here.  The purpose of the forum is to provide a source of accurate information.

I have had an implant for 5 1/2 years, and it has not been treated gently.  There is not one man on this forum who has had a properly installed implant that worked after surgery that later broke or wore out.

No knowledgeable person would ever even suggest that the useful life of an implant is three years.  Some men have implants they use for over 20 years.  A realistic estimate would be 7-15 years.

[ohnoohno]

And three, I think this condition takes a toll on men more than some realize. At your age, you should be enjoying life and growing into the man you'll be as you age.

Definitely! I was OK at first, like it was all bad but it got seriously bad on my mental over last few months. I have just been reffered to the hospital though, it's quite a long process of back n forth when you don't have the upfront $$$. So I'm praying I get the all clear. I will push until I get it.

My main issue now is how much I've shrunk. At least 2 inches, maybe 3. I'm basically average size now. I never measured before but there was a photo when I first got peyronies with a slight bend and comparing it to now it's quite extreme. Doctor mentioned they might be able to make incisions in plaque along with graft whilst doing implant (I think thats what they said anyway).

Anyways this has probably been the toughest bit for it for me now. Not much I can do but divert my attention. Cheers all, these forums always good to come on when you're feeling it on the mental.

 

[IwillbeatPD]

(unneeded quote removed by Admin)

Hey, bud, tried to reply to your message but your inbox was full.

My journal is called "37-year-old Athlete Implant Journal" or something like that. I posted pics pre Peyronies, and then after Peyronies. But the pic is added inside a link so gotta look close. Couldn't figure out how to post the photo otherwise.

I haven't posted any post-implant pics, but I will soon. Kinda wanna save the big surprise for 3 months out to show the massive transition. 2 weeks out my dick looks better and thicker than it ever has. Very happy so far.

[Hawk]

Not much I can do but divert my attention.

This statement is not true.  You can use a VED and/or traction to try to regain size or at least prevent further loss between now and a potential implant.  It very well might help you to get a larger implant.

[ohnoohno]

This statement is not true.  You can use a VED and/or traction to try to regain size or at least prevent further loss between now and a potential implant.  It very well might help you to get a larger implant.

IwillbeatPD: I found two links, niether seem to work though, maybe my computer..

Hawk: Do you think this still works despite being in chronic phase? Plaque super hard and doesn't feel like it's stretching really.

I was doing VED at the beginning and felt it working but at this point it doesn't feel that way, it feels like I have plaque wrapped around my shaft and it doesn't stretch beyond that point. I'll give it another shot though.



Update: Still waiting on hospital to decide whether I can have surgery... ⏳
 

[Hawk]

Whether it feels like it is working or whether it feels like it is not working is completely irrelevant.  Whether it looks like you are regaining some size or slightly reduced the curvewhether it looks like you have made no gains is completely irrelevant.

The most basic concept taught on this forum is that you track your progress with objective measurement over the course of a marathon.  That means months of regular trial, not weeks.  If your objective measurement shows signs of improvement, you continue.  If not, then try another plan.  That's how it's done.