120 day mission

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Vincent2023

I have Peyronie's disease. It started during the pandemic and has now fully developed with approx 95% curvature. Sex is now impossible.

I have the scar tissue/ plaques on the dorsal. They are approx 3 mm thick in places. I also have a thick cord/band from top to bottom. I have no real pain.

My uncle has told me that he also has the disease..

Last year I had an inguinal hernia operation on my right side. I have also had a large cyst taken out of my scrotum 7 years ago (size of a small avocado) it was there for 10 years. All my health problems have been in the groin area. All with minimal pain to date.

Possible reasons have been by keeping my mobile phone in my trouser pocket for 20 years (cyst).

I was online during the pandemic with my laptop on my lap for 8 hours a day/ for 2 years so had approx 1000 hours of direct EMF radiation . I always felt very hot in that area but never realized that the heat came from the radiation.  

Doctors have told me this is the possible cause for these problems. I no longer work or use these technologies in this way.  

I have tried various medicines such as dmso, bromelain, acetyl l-carnitine, ginkgo biloba, gotu kola, gamma e tocopherols & tocotrienols, chelated copper, vitamin b, digestive enzymes (all recommended in the book overcoming Peyronies).

I haven't been consistent with this medication. However nothing has worked to date.

My new 120 day plan of attack is daily oral/topical Ayurveda medicine (direct from India), red light therapy, magnets attached (whilst sleeping), meditation and positive thinking.

My situation is VERY difficult to reverse apparently.  

I´ll keep you informed on any progress.
 
Stable (18+ months) advanced Peyronies Disease (95% curve) no pain, various thick plaques on the dorsal.  Started during the pandemic and has now fully developed with approx 95% curvature. Sex is now impossible. I also have a thick band from top to bottom.

Mikel7

Welcome Vincent2023 to the forum and thank you for filling out your signature line. If you haven't done so please download and read our survival guide -->Survival Guide .

So I first ask if you have had an ultrasound and you have a Dr that is a peyronies specialist? Peyronies is a beast of a disease and a mysterious one as it affects each one of us differently. You possibly could have developed it from the radiation or just from internal radiation or the hernia operation - who really knows. I have also had 2 hernia operations before my peyronies developed but I don't have proof that this is what started it all.

Have you looked into our VED protocol and use a good traction system like Restorex or PMP? A 95* curvature is extremely bad - or are you saying you have a 5* curvature instead? Are your erections firm and consistent? I have heard of some improvements with traction and VED to help out some serious curvatures so it may be worth a try. I am not sure if the Ayurveda medicine will do any good at all. It may help with inflammation at the least. The meditation will help you in not worrying and stressing out about this. The very last resort would be an implant in your case if things are as bad as you say, but remember that a high volume extremely skilled surgeon is what you need for the procedure.

I would say for you to continue to read the forum from other members experience as we have well over 20,000 members here. They have their experiences documented and you cannot refute that. Consider what I have said with VED and traction.

Mikel 7  :)

 
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Vincent2023

Yes its 95% so not good, doctor confirmed, no pain or hassle just can´t use it at this angle.  I´ll stay from surgery if at all possible, and I´m too slack to use traction or VED devices.  Hopefully my plan will improve it, nobody seems to have tried Ayurveda on this forum, so I´ll be the first.  
Stable (18+ months) advanced Peyronies Disease (95% curve) no pain, various thick plaques on the dorsal.  Started during the pandemic and has now fully developed with approx 95% curvature. Sex is now impossible. I also have a thick band from top to bottom.