Does an implant stop Peyronie’s from getting worse?

[Michiganguy19]

Okay so here's the deal. I'm suppose to get an implant on the 28th. I'm thinking of canceling.

I Peyronie's disease from a jaw infection causing reactive arthritis. A jaw infection I still have and will have for many more year. Osteomyelitis is hard to go away completely. As such I've been in the active phase since 2015.

I've gone from 7.25 erect in length and about 6.5 in girth erect, flaccid over 6in, to in 2018 6in erect in length and only 4in in girth. 2018 was the last time I could get an erection. Now I can only get halfway at 5.5in. Flaccid hanging I'm only at about 2.5 lol to the point I've lost my job because it's so uncomfortable. Pulled as they do in office it's at 11cm.

With these measurements what is my realistic expectations with an implant. My urologist really doesn't answer any questions. Hasn't told me what implant as he doesn't know yet just thinking about it. Just says that an implant supposedly will stop the Peyronie's from shortening more.

My concerns are 1. I'm still in active phase, and just as erections, stretching, and vacuum pumps damage my penis worse, so will each time I pump up the implant for an erection, then it will heal in flaccid Uninflated state and continue to get worse. Even as I sit here now typing this, my penis "pops" in different spots. Like when your joints crack. And I continue to get worse every month.

Does anyone here have extreme shortening and continue to get worse after implant? Does an implant stop shortening even if still in active phase?

Does the girth you lost with Peyronie's come back with an implant?

I don't see this working out well for me either way. Last time I could get an erection I was only 4in in girth and not enough to even wear a condom anymore.

Seriously considering suing my doctor for medical malpractice and extreme neglect. They lied to me and said I would never be approved for an implant until I was at least 50 years old so don't bother going to another urologist and I believed them. Said if cialis or injections didn't work I was SOL.

I requested an implant back in 2018 when it stopped working. I was still over 6in flaccid, not pulled just hanging, just 2.5 inches less in girth erect. I could of had a great implant then.

Now they told me if I would of got one then it would of stopped my Peyronie's from getting worse. Now I'm walking around with nothing. They waited till I had nothing left. I feel extremely wronged. If I had known me not being approved till 50 was a lie or opinion I would of gone to another urologist.

This whole last couple years I was planning physician assisted su*cide in Belgium. Told my primary car I would be leaving and a week before my flight he got my approved for an implant. That's the only reason they're doing an implant now.

I feel extremely wronged. As they didn't do an implant that was medically necessary back in 2018 and now so much worse feels pointless. Unless it increases girth to the point I can throw on a condom again no point as I won't be having sex with it anyways.

I requested a penectomy from my urologist. Was denied obviously. But I would honestly take it and be happier.

I really want to sue them for neglect. If I cannot get back to a suitable size and girth, or a penectomy (yes I will truly take that, would rather have nothing and saw I lost it because of my health than something embarrassing) that I will be going through once again with my plan to head to Belgium.)

Thanks for answering any questions.  

[Sonic]

I remember you from long ago. you have not been here for 3 years but I remember your posts and all your pics. It's absolutely horrible that the doctors didn't do anything soon to prevent this but that's doctors for you, many of them are vile scum. In your situation there is probably nothing that can be done other than an implant. There are very good doctors available in the US. If you have the money try have the procedure done by them. Dr Francois Eid, Dr Clavell and Dr. Hakky. Those 3 are top quality!

I don't think it's possible that Peyronies can get worse with an implant or at least I've never read about such a case. If done by a good surgeon you can definitely regain size both in lenght and girth with years of cycling. Please for christ sakes do not go and take your life over this I know your situation is awful but with a good surgeon you can definitely still salvage things by preventing further size loss and also REGAIN size!!!

The key is to make sure you perform the procedure with a top quality surgeon as that will give you the absolute best results. In your situation having an implant done by some half assed surgeon could potentially only add furter problems.

Prayers for you.

[jj21]

Reading your post, I felt both fearful and worried for you my friend.

Please do not do anything drastic! You do not want to have a penectomy and remove your penis when an implant could regain your sex life and return some of your size. I know you may be talking out of desperation, but please stay calm and think rationally.

Read some journals here please, and you will see, most people regain their girth with a titan, some regain length.

To answer your main question, generally, peyronies will not progress after an implant. The rare cases where people had continuous peyronies or other symptoms after an implant involved complicated scarring, undiagnosed nerve issues, and/or very inexperienced surgeons. I have had issues with my implant too, but my girth and length is returning, so, if that is your main concern, there is hope.

If your main concern is regaining girth and length, most high volume surgeons will agree, that most girth can be regained with a titan, length maybe.

Book in to see one of the recommended surgeons, Eid, Hakky or Clavell.

Read the journals on this forum, keep your head up, you will be okay

J

[Michiganguy19]

I do have lots of scarring. I assume it will only get worse after implant erections then heal in a flaccid state.

Was looking at the ams700. Does anyone have this?

I am on Medicaid. I cannot choose my surgeon. Right now my surgeon is Dr. Ahmed Muzzamil of Comprehensive Urology in Dearborn Michigan.

Also, just knowing the head does not get hard with an implant. Makes me not want one at all.  

[Hawk]

Hello Michiganguy,

I, too, remember you well and remember your many struggles.  First, I will give a direct answer to your question.
A Titan implant should stop any size loss.  While we have a few members who have had botched surgeries, we have never had a member with an implant who continued to lose size.  We have had two members who received significantly undersized implants and needed revisions. Even deflated, an implant continues to exert some nominal stretch to the penis 24/7.  Your flaccid or deflated penis will never draw up or experience what some refer to as the "turtle effect."  I think any concern that cycling will reactivate Peyronies Disease and then you will scar in a shortened state when deflated, is totally unfounded.  Even if cycling triggers inflammation (which I doubt), it will not result in scarring in a shortened state.

I cannot promise what portion of your lost size you will regain.  Much depends on how aggressively your surgeon sizes the implant and your surgeon's skill level.  It also depends on many individuals' physical issues.  I do think your choice boils down to this.
1.  Do nothing and hope that your penis does not continue to shrink.  Experience shows the odds are against you.
2.  Get an implant from a skilled High-volume surgeon - stop size loss and reverse it to some degree.
_________________________________________________

Now to address the Psychologic issues.  Please correct me if I am wrong.  It is difficult to remember thousands of member stories, but I think I recall that you dealt with significant mental health issues before Peyronies Disease.  I remember you once saying that your motive to have your old penis back was not for sexual activity with a partner but only for your own personal state of mind.  You might have even expressed celibacy.  I also wonder if I recall some issues of body dysmorphia. My worry is that regardless of the outcome, your perception of the outcome will be negative.  No surgeon can guarantee a psychologically satisfactory outcome, especially for a patient who struggles with pre-Peyronies, depression, anxiety, OCD or body dysmorphia.

Finally, all implant surgeries are not equal.  The biggest determining factor is the surgeon.  Do not expect the ultimate outcome from a low-volume surgeon.  Also, if you do not have the best communication with your surgeon now, do not expect it to improve after surgery.  The most important decision you have is picking the right surgeon.

Best wishes, and welcome back.

[Michiganguy19]

Before Peyronie's? No psychological issues or dysmorphia, great dick not to brag lol, great body, going through my first bodybuilding competition, great life. My life was perfect.

I was asking for an implant in 2018, if one was done then I could of had a great implant.

As of now, I'm not worried about the implant causing inflammation, but what I'm saying is my inflammation is constant, it will never go away. I've had this jaw infection for so many years and it's not going to stop.

Really worried the scar tissue gets worse and shortens me, and then the implant pushes through the head of my penis. Is there really no one in this group who's gotten worse after implant?

Asking for the AMS700 as it's the only one to expand in length. Also looking at your guys signature, I research the tunica expansion. Really thinking of asking for this.

My surgery on the 28th and I still am thinking of canceling.

Some days my penis is 2.5 flaccid, other times if I'm wearing right underwear it warms up and will be 5in flaccid. Can be pulled to 6in. But as soon as I take my underwear off and it gets cold tightens up again. If urologist does it in tightened state I know it's permanent and I'll be stuck that way. Idk what to do.  

[Hawk]

I would not lie to you about no one having progressive shrinkage after an implant.  You are not going to continue to shrink.  I don't speak in absolute terms about things I am unsure about.

You could be unhappy with your 100% totally deflated shape
You might get an infection (less than 1-2% with a top surgeon)
You might get undersized (very rare with a high-volume surgeon

You will NOT continue to shrink.

The AMS 700 will give you no more length than the Titan.  It will give you a larger pump in your scrotum. Its main feature is that it shrinks in length when deflated and gives a more natural deflated penis.  It is less stable and has less POTENTIAL girth expansion.  Both of these are main considerations if your penis is:
1. Bent or otherwise deformed
2. Length over 6.75"
3" Girth over 5.4"

The key factor is the skill and volume of surgeries your surgeon does.  There are botched surgeries, OK surgeries, and amazing surgical outcomes.
Hidden tubing, aggressive sizing, well placed pump and reservoir
 

[Michiganguy19]

Right now the doctor said he wants to do the AMS700CX.

I read the AMS700LGX expands 25% in length, the CX does not.

Right now flaccid I have two states, tightened hard flaccid, only pullable to 11cm, and relaxed floppy hangs at 4.5 and pullable to over 6in but very thin.

I got an erection today with l arginine, 4.5in in girth and 6.25 in length.

If the doctor did surgery in hard flaccid and only pulled to 11cm and that was new erect I'd be absolutely devastated. But if he could get to 6in I would be happy.

I also asked him about tunica expansion procedure in email, he didn't respond yet. Here is his response to implant choice.  

[Sonic]

Dude the penis shrinking technically has nothing to do directly with the Peyronies but more indirectly if that makes sense. I also suffer from this since I got Peyronies. I used to walk around with a meaty flaccid hang 24/7 only time it would shrink would be if I was very cold or about to take a dump. Now it can shrink at the slightest sign of nervousness or just randomly throughout the day it shrinks to the point where I am embarrassed.

This is most likely because our body is in a high adrenaline state due to our inability to relax. First of all adrenaline commonly shrinks the dick as blood gets prioritized to other areas but it also tightens our pelvic muscles and also the cremaster reflex which is responsible for retracting our balls.

Do you ever get this turtling/shrinking effect at night when you are relaxed? I would bet not. I do not. It's because adrenaline levels go down at night as we are relaxing and preparing for sleep.

On operation day your doctor will give you general anesthesia. While you are asleep your body will be completely relaxed and the hard flaccid will go away do not worry about that. There is a reason we practically never get the turtling effect while we are asleep or why we never wake up in a dream with a retracted dick because when we are relaxed so is the penis and the pelvic area.

You are about to have a very complicated surgery done in 4 days and you are thinking about cancelling. This is not good. You can't go into an implant surgery that hesitant you have to be dead certain. The only thing that can save you is an implant. An implant will completely remove the turtling/retracting effect. If your surgeon is a good one and you have confidence in him your best shot will be to do it.

[Hawk]

You never mentioned who your surgeon is, how long they have done implants, or the annual volume of implants.  These are the most important factors.  Will your surgeon go into the OR with more than one implant, or will the surgeon decide what implant you are getting before internal measurements are even assessed?  

The AMS700CX has the larger pump of the AMS but is closer to the Titan otherwise.  It has less axial rigidity than the Titan.  Another issue is that the Titan comes in 2 cm increments that allow it to be sized without requiring as many rear tip extenders that add un-inflatable length to the rear of the implant.

Does this surgeon use a scrotal approach or a retropubic approach?

In any case, if the surgeon is a great surgeon, you will be better off than doing nothing, no matter the model of the implant.

I agree that you should be committed to this surgery or call now and do not cancel at the last minute and waste the surgeon's slot and an OR scheduling slot that someone else can use.  

[Michiganguy19]

No man i literally fracture my penis on a daily basis. A very loud popping. And Harding of the scar tissue. I've lost 2.5 inches in girth erect because of scar tissue and about a inch and a half I'm length. Can assure you it's the scar tissue. Flaccid wise, The past three months I'm losing about a quarter inch every month.

There was times in 2018 of you look at my old posts where I was still 6in flaccid that I'd damage it and it would tense up, but my new permanent flaccid penis is almost completely gone.

Dude the penis shrinking technically has nothing to do directly with the Peyronies but more indirectly if that makes sense. I also suffer from this since I got Peyronies. I used to walk around with a meaty flaccid hang 24/7 only time it would shrink would be if I was very cold or about to take a dump. Now it can shrink at the slightest sign of nervousness or just randomly throughout the day it shrinks to the point where I am embarrassed.

You are about to have a very complicated surgery done in 4 days and you are thinking about cancelling. This is not good. You can't go into an implant surgery that hesitant you have to be dead certain. The only thing that can save you is an implant. An implant will completely remove the turtling/retracting effect. If your surgeon is a good one and you have confidence in him your best shot will be to do it.

[Michiganguy19]

Yeah I only want the ams if it's the LGX. The CX seems to be the worse option.

But if he's only planning to put the implant in at the flaccid length, I guess I have to cancel. I'm not going to live with a 4 inch penis ridiculous and I would rather end it

The AMS700CX has the larger pump of the AMS but is closer to the Titan otherwise.  It has less axial rigidity than the Titan.  Another issue is that the Titan comes in 2 cm increments that allow it to be sized without requiring as many rear tip extenders that add un-inflatable length to the rear of the implant.

Does this surgeon use a scrotal approach or a retropubic approach?

[Sonic]

No man i literally fracture my penis on a daily basis. A very loud popping. And Harding of the scar tissue. I've lost 2.5 inches in girth erect because of scar tissue and about a inch and a half I'm length. Can assure you it's the scar tissue. Flaccid wise, The past three months I'm losing about a quarter inch every month.

There was times in 2018 of you look at my old posts where I was still 6in flaccid that I'd damage it and it would tense up, but my new permanent flaccid penis is almost completely gone.

That is the weirdest case I've ever heard about and also the first one. Your penis is getting fractured every day? What did the doctor say about this.

[Hawk]

Michiganguy,

You do not understand this process. IF you have a skilled high-volume surgeon, Your penis will be sized to the max during surgery.  A skilled surgeon is not confused or fooled by the state of your flaccid penis.  The size of your flaccid has NO BEARING on the size of your implant.  They will stretch the penis to the max, measure it internally, insert the implant, and inflate the implant, then if necessary the surgeon will hand mould the penis and/or make relief incisions in the tunica if there are dents or bends.

You do not sound committed or ready for this surgery to me.  Maybe you should cancel first thing in the morning.

You need to understand however that cancelling surgery is NOT going to prevent you from having a smaller penis.  It mean's your penis will likely be smaller a year from now.

[Michiganguy19]

Are photos allowed in this part of the group?

[Hawk]

yes

[Michiganguy19]

He measured me at 11cm flaccid pulled and said this is what my new erect penis would be. Whatever my flaccid penis pulled is the day of surgery is my new erect length.

As far as having a highly skilled volumed surgeon, I have one option and only one option. I have Medicaid. I cannot switch. It's Ahmed Muzamil In Michigan.

Depending on the time my penis flaccid can be tensed up and 2in flaccid and 4 inches or less pulled or 4.5 inches flaccid and 6in pulled.

It used to hang over 6 in 2018 all the time besides damaging it right after sex.

This would be easier to explain if I could post pictures but not sure how to post pictures here  

[Sonic]

I read in your post from years ago that you can't get natural erections is this still the case? That would explain the significant loss in length and girth. When impotence becomes reality loss of size in both lenght and girth will follow and this will happen for every man in the world. They should have installed an implant long ago. Honestly it's your only choice.

Your other choice is to have no implant and lose even more size than you have now.

[Michiganguy19]

That is the weirdest case I've ever heard about and also the first one. Your penis is getting fractured every day? What did the doctor say about this.

That there's nothing that can be done to stop inflammation. Control my arthritis or see an infection disease doc for my jaw infection or whatever is causing inflammation in my body but from a urology standpoint nothing can be done.

He thinks it should stop after getting an implant but he doesn't know for sure.

The best way I can explain it is this, if your penis was filled with bubble wrap on the inside and you popped one bubble of the bubble wrap on different spots, like 1-15 times every hour. Sounds just like your joints or knuckles popping.

Used to sting, like a bee sting, then whole penis felt like pins and needles when your foot falls asleep. Then I got scar tissue and lost all feeling and the pain went away.

For context I have a jaw infection, had it since 2015. Cause reactive arthritis which also causes urinary and eye inflammation. Had inflammation ever since and nothing can be done.

 

[Michiganguy19]

I read in your post from years ago that you can't get natural erections is this still the case? That would explain the significant loss in length and girth. When impotence becomes reality loss of size in both lenght and girth will follow and this will happen for every man in the world. They should have installed an implant long ago. Honestly it's your only choice.

Your other choice is to have no implant and lose even more size than you have now.

Sort of. Obviously normally you can get an erection just thinking. If I constantly stroke it I can get an erection. The second the stroking stops it goes down.

Also, I've lost 2.5inches in girth and 1.5ish in length off my normal erections.


 

[Sonic]

Very sorry that you are going through this. You are very tough and I truly wish you the best. Based on your info there really is no other alternative but an implant but based on what you have written about your doc it seems he doesn't have a clue about much in your case. Has he even done an ultrasound to see how much fibrosis is present? If there is too much fibrosis it can become problematic to install an implant.

I think you are aware of the fact that carrying on like this will only lead to further size loss with time.

[Michiganguy19]

Can anyone remind me how to post pictures?

[Michiganguy19]

Last time they did an unltrasound it was 2016. Only time. To diagnose Peyronie's. No follow up ultrasound.

 

[Pfract]

Hey Michiganguy... I read your post and I share the same sentiment as others. This is beyond disheartening. Something you can do that helps maintaining penis size and hopefully regain some that you lost is using a VED and following a protocol.

Any good implant doctor will tell you to do vacuum and traction first for some months, in conjunction with Ed medication and then go for an implant.

Also... You have to look around, see what your insurance and finance options are and get in touch with a reputable doctor that will leave you in a better situation. Having an implant installed will definitely stop peyronies and preserve your length.

Could you reach out to Dr Hakky in Atlanta by video call to see what he has to say?

[Michiganguy19]

Unnecessary quote removed by Administrator

Maybe I'll see about a video call. Doesn't hurt to try.  It because of my arthritis I'm still in active phase, vacuum pump damages it just like getting an erection does. Doesn't matter how gentle I pump, unfortunately. Even taking cialis damages it. I can only hope the pump overpowers the damaging and fibrosis and if I pump everyday it will stop the shortening.

But pretty sure I'll continue to damage it and it'll heal in a flaccid state and continue to shorten.

If anyone can lmk how to post pics I will


 

[nevertheless]

Hit user actions and then it will be an option under the text box.  

[Michiganguy19]

Don't see it under user actions. I see a spot by YouTube I'm quick replies but it just asks for a link url.

Hit user actions and then it will be an option under the text box.

[Michiganguy19]

Apparently can't upload jpeg. And converting to png file too large smh

[Michiganguy19]

Here's a Google drive link.

Erect, as of this morning, length and girth measurement, then flaccid relaxed, pulled, then what I am flaccid tightened, and tightened pulled how I will be if i spelled operating room table with no warm underwear on.

https://drive.google.com/drive/folders/1LMdvRPLz6mARc9mMyJenS2ypcswQs998

According to urologist, my new erect penis will be same size as flaccid length pulled. He thinks I should be happy with a 4in penis erect.

 If you look in my Peyronie's getting worse help thread, you'll see in 2018 when I was begging for an implant I was over 6in flaccid and a lot thicker. I believe this is severe neglect but I contacted an attorney, they said didn't meet requirements, didn't tell me why.

If they did it in 2018 I could of been happy.

To compare, 2 pics of 2015 pre Peyronie's and one 2017-2018 when I requested an implant. Also a flaccid in 2018 when implant was requested.  

https://drive.google.com/drive/folders/1-2ceIqUO2DbGQuKJ9i1kuKlXlAlyjMWj

[Paul80]

Hello friend, I'm sorry about your situation, my situation is similar to yours because of everything I've read in your thread. I think you are not psychologically ready at the moment for an implant and I also think you should find a better surgeon from what I have read about the 4 inches. look, taking trazodone 25 mg at night for erections and to calm the mood is working for me, I also add 5 mg of cialis, and on Thursdays and Saturdays I also take 50 mg of viagra to masturbate, with these things I have recovered a size that I thought I had lost, and I had not. What happened is that I did not have good, strong and lasting erections, although I only have them when I am lying down, it is a good training for the tissues. Try a couple of months or as long as you think is convenient to relax to have better erections being calmer since you are very stressed (as always I am too) and find a better surgeon, but give yourself a little time.
I also believe that even if you tell the surgeon about the penectomy or the suicide, neither this current surgeon nor any other will operate on you. because one of the requirements for this operation is that you be a mentally stable person. So easy bro, try to get good boners for a while anyway, like you have to take 100mg of viagra every day, but stretch those tissues and do some training with them in a calmer frame of mind. a hug friend
ahh friend I forgot that manual stretching also worked for me. Everything else, as much traction as you can see, hurts me more.
 

[Sonic]

On those newer pics from 2023 yes there is visual size loss especially girth wise but you are still above average. I do not know why you are thinking about killing yourself over this. You still have the chance NOW to get an implant before you lose even more size. With this current size an implant will definitely help you regain both girth and lenght but a TITAN implant would be the most ideal. Ask your surgeon if he can install a Titan.

It is very important both of you are in agreement of which implant should be used and which Implant that would suit you the best. I'd say a Titan as that would help you regain the most size and I think even Hawk would agree with me.

[Michiganguy19]

According to the urologist, if I got an implant, the erect penis would be the same size as the tightend flaccid I posted a pic of pulled to 11cm.

And as far as ending my life, because my flaccid penis is now so small I cannot even walk barely. I cannot work. I cannot lift anything heavy. My underwear does not fit. And idk anyone can say above average, if you check the pics again, my flaccid penis in 2018, is bigger than my erect now. My current flaccid penis is not above average, there is barely anything there. When I say I can't walk, I'm literally basically bedridden. My flaccid penis doesn't even hang down, literally just a lump of scar tissue sticking straight out.

And as it stand right now, I'm losing about a quarter inch a month off my flaccid penis. Past three months since agreeing to an implant I've lost over an inch flaccid

On those newer pics from 2023 yes there is visual size loss especially girth wise but you are still above average. I do not know why you are thinking about killing yourself over this. You still have the chance NOW to get an implant before you lose even more size. With this current size an implant will definitely help you regain both girth and lenght but a TITAN implant would be the most ideal. Ask your surgeon if he can install a Titan.

It is very important both of you are in agreement of which implant should be used and which Implant that would suit you the best. I'd say a Titan as that would help you regain the most size and I think even Hawk would agree with me.

[Sonic]

I'm not talking about flaccid size friend I'm talking erect. You don't have sex flaccid your erect size is what matters. On the erect pics you are 100% above average even with the size loss counted. A good surgeon will not make your penis smaller. Your erect lenght is definitely not 11 cm it's more than this.

Also with an implant the size you have post surgery doesn't necessarily mean that's the size you will be stuck with. There are videos online from top surgeons who have cycling protocols. You inflate as much as you can and hold it for a certain time to allow the implant to expand the tissues as much as possible and within a year or two this will lead to size gain.

Should you get an implant? 100% yes. The only problem here is judging by what you are saying your surgeon does not seem to be the optimal choice.

I just want to add when it comes to flaccid shrinkage, again I want to repeat I am in the same boat as you. The only thing that pretty much eliminates the constant shrinking and retracting is when I go multiple days only consuming water, aka water fasting but this is not sustainable long term. Every time I do a 3 day water fast the shrinking completely goes away and the balls and dick hang like normal 90% of the day.

[Michiganguy19]

According to the urologist, my new erect penis will be the same exact size as my flaccid penis pulled. I see you keep saying it won't be but he assures me the implant does not expand in length and only girth, so length wise my new erect penis will only be 11cm.

I sent my doctor pictures yesterday same ones I've shown here still 6in erect. Also called today. Left a message requesting the Titan or LGX only and will not accept the CX. Also requested the tunica expansion procedure.

Both by phone and online portal message.

No response. Very worried now and not sure what to do. Don't want to cancel and don't want to be a no show. Not sure what to do. Someone please give me some advice, don't want to be disrespectful and be a no show, and now it's the weekend and idk what to do. Surgery suppose to be Monday and I do not want the CX implant.

Thanks so much for the help.

Also, I get you not caring about flaccid but I do. It's more important than erect. My underwear no longer fits. I can barely walk it's so uncomfortable. I get that's it's not important to you but it's 10000x more important to me than an erection. I cannot live like this or work. It's literally a micropenis flaccid. In order for me to live it needs to hang at at least 4.5in. I cannot hold down a job being like that.

I'm not talking about flaccid size friend I'm talking erect. You don't have sex flaccid your erect size is what matters. On the erect pics you are 100% above average even with the size loss counted. A good surgeon will not make your penis smaller. Your erect lenght is definitely not 11 cm it's more than this.

Also with an implant the size you have post surgery doesn't necessarily mean that's the size you will be stuck with. There are videos online from top surgeons who have cycling protocols. You inflate as much as you can and hold it for a certain time to allow the implant to expand the tissues as much as possible and within a year or two this will lead to size gain.

Should you get an implant? 100% yes. The only problem here is judging by what you are saying your surgeon does not seem to be the optimal choice.

I just want to add when it comes to flaccid shrinkage, again I want to repeat I am in the same boat as you. The only thing that pretty much eliminates the constant shrinking and retracting is when I go multiple days only consuming water, aka water fasting but this is not sustainable long term. Every time I do a 3 day water fast the shrinking completely goes away and the balls and dick hang like normal 90% of the day.

[Hawk]

Lets get specific:

1. How many implants has your surgeon performed?
2. How many did he do in the last 12 months?
3. What brands and models has he implanted?
4. Does he use a scrotal or retropubic approach
5. How many implant devices will he have with him in the OR?
6. What is HIS PERSONAL infection rate?
7. Have you spoken to any of his past patients?

8.  One additional question - Do you hope to have a sexual relationship(s) down the road or not (I am trying to remember your history)

Please answer these for us.  A botched implant job is not good.

You do not have to have one of the top 10 surgeons in the world, but you need someone who is very experienced at doing a competent job at preventing infection, sizing, hiding tubing, and placing reservoirs.  I would be very hesitant if I did not get either a Titan or an AMS LGX.  

On the positive side, If you can get an erection through stimulation, then you will have an added bonus of even a rounder penis with a larger glans after an implant.  

[Michiganguy19]

I do not know the answer to any of these questions. His name is Ahmed Muzzamil.

I cannot switch surgeons. I have Medicaid. It's either him or nothing lol.

I've requested the Titan and LGX and a tunica expansion. No response and surgery Monday. Not sure what to do. Weekend now and idk how to get in touch with him.

Also let me ask, what happens if after I get an implant my flaccid penis goes into tightened retracted hard flaccid mode, how is the implant not going to burst through the head of my penis? Also sonic you say you have an implant right? This retracted mode still happens even with implant?

Quote removed by administrator as a violation of forum rules

[Sonic]

Is there no possibility you could postpone it until you have had a discussion with him?

[Stabler]

I feel it is more important that you get the answers to Hawks question list before allowing a surgery to be done. Rushing to have surgery could be more problematic than successful, especially if the surgeon does not have the experience.

Stabler

[Michiganguy19]

Well I mean tbh, the answers to those questions don't change anything. I'm on Medicaid. It's either I get the surgery by this urologist, or I don't get it at all. Literally don't have a choice. This is the surgeon accepted by my insurance. I would have to wait till next year to change insurance and urologists.

As it stands right now I waited three months for this appt. And now he not responding to my questions and my appt is on Monday. Idk what to do, idk how to even cancel. And if I did cancel, if he makes me wait three months for an appt again, it will be the end of my life.

The last 3-4 months I've been loosing a quarter inch of my flaccid penis every month. To put it bluntly, I don't have enough to wait 3 more months, or switch urologists.

 

[Michiganguy19]

What should I do? Call Monday morning and say I know my surgery is today but we need to talk in person? Cancel at the last minute? I messaged him on Thursday saying I wouldn't be happy with his implant choice and if I'm truly only going to be 4in erect, what I am flaccid I wouldn't do it. He didn't respond

Is there no possibility you could postpone it until you have had a discussion with him?

[GaussRifle]

MichiganGuy, sorry if I missed a post of your in case you mentioned. But you did not mention anywhere that you did Penile Traction with a device like RestoreX to try and maintain length ( Only 2 30 minutes session a day) or use it to recover it. It is a proven way of preventing or recovering size loss. In fact, at the very least an implant specialist will tell you to do traction for a couple of months to retain as much size as possible and then put in a bigger implant.  

[Michiganguy19]

I'm honestly at the point where I'm just going to go through with my plans to end it in Belgium. The truth is I won't accept anything less than 6in erect. I don't care what anyones opinion is on it.

According to the urologist my new erect penis tomorrow will be what is is flaccid.

Right now my flaccid penis is nothing. 3in flaccid and 3.5 pulled. according to my urologist that is the length of what my new erect penis will be.

But I'm not going to go from 6in erect in length to 3.5 no matter how screwed I am. I don't care. I'd rather just end it to be honest.

I would of taken a penectomy but he refuses. And if I cancel Monday he's going to make me wait 3 months to reschedule. And right now I'm losing a quarter inch per month of my flaccid penis.

This is me 5 minutes ago.

https://drive.google.com/drive/folders/1-8lp1qu1WUkTLuZ4JXX08ulmrcVMemVg

Idk what to do. But it's far too late for an implant. I wish I had time to stay alive and sue for neglect. It could of been done when I was over over 6in flaccid

[RexRG]

Uh, that photo, if it's flaccid, is perfectly normal. You're not even turtling up. I frequently turtle up.

I'd be more focused on how sex feels than how you 'measure up' to some arbitrary scale. There are some very unhappy eight-inchers here and super happy four-inchers who look at different things entirely.

In my opinion you need psychiatric help more than medical assistance. Life is WAY more than measuring your friggin penis.

 

[GaussRifle]

Michigan guy, which traction device did you try ? Was it restore X , you should still be able to use it in active phase. How do you know it was not VED only causing damage if you tried them both around same time period. I do know that VED is something you need to be careful of otherwise it can damage, so I am not talking about that. Also are you taking daily 5mg cialis/ tadalafil. It helps specially in active phase to calm down any pain and to stop progression. Moreover how are your T levels, do you have belly fat ? That is the number one predictor more than weight for causing low T levels. My dick turtles up all the time and sometimes flaccid is only 2 inches or so, but if I make Sure to do traction and do a pull test it expand normally as to my erect size. I have noticed RestoreX significantly makes your stretched flaccid penile length close to your Erect length . When I'm not using it , my dick turtles up too and maybe a stretch test then is not an accurate erect length for me as well. Please calm down though. We are here to help and support you. I find it highly likely that you would be able to restore lost size through traction and maybe over years through
implant upsizing.  

[Sonic]

This is a hopeless case. A guy who wants to end his own life because his penis no longer is over 6 inches.

You are not listening to anyone we are giving you advice but it's hopeless. Who said it's too late for an implant, why would the surgeon book you for a surgery if it was too late? You want to take your life when your situation has a solution. Maybe you would even be more satisfied with the implant result than you know.

Why give up so easy? You are 1 day away from surgery and don't know what to do. All I can say is keep on fighting and don't give up it is NOT too LATE for an implant, I believe you would be more than happy with the outcome providing you had a good surgeon.

I can't offer any more opinion or advice.

Best of luck.

[Michiganguy19]

Man I've had my penis 32 years. That's not normal. My normal flaccid penis hangs over 6inches soft. This is my flaccid penis in 2018

https://drive.google.com/drive/folders/1-HQ4cT-GKmfH4Jr1UhkFkSfbe7moOX9H

My entire flaccid penis now is now smaller than just the head of my flaccid penis before. And my 2018 flaccid penis is nowhere near what it was flaccid before. I used to hang over 7 flaccid and much thicker than in 2018 lol.

My current flaccid is less than a newborn child. Idk how anyone can say that's normal. 😰

Uh, that photo, if it's flaccid, is perfectly normal. You're not even turtling up. I frequently turtle up.

I'd be more focused on how sex feels than how you 'measure up' to some arbitrary scale. There are some very unhappy eight-inchers here and super happy four-inchers who look at different things entirely.

In my opinion you need psychiatric help more than medical assistance. Life is WAY more than measuring your friggin penis.

[Pfract]

Well... Michiganguy... ending your life over this is pointless. You are more than your penis, regardless of how small it can become. There are plenty of people in a worse position than you, say bedridden all their life that would probably trade of your problem for theirs if they could.
You have to take things into perspective. And you are not. You have been freaking out and saying you are going to end your life. You have also been saying that traction and vacuum cause more problems and aggravate your condition. I doubt it.

It seems that you have not had a plan to deal with this. You need mental help and support from a therapist, more than you need your penis fixed for now. And then, with the help of a sex therapist you would proceed towards getting an implant.
You don't know much about your surgeon and you state that you have only that option through insurance. It is somewhat of a gamble. If he leaves you in a worse condition, then you will freak out for sure.

But it would definitely stop the progression of peyronies. Provided you would cycle everyday.

[Hawk]

You say that the answers to my questions are pointless, but that is FAR from the truth.

If the answers are bad, then you can opt out of the surgery, which could end up worse than no surgery.  If the answers are impressive, then you celebrate and have the surgery, and your problem will be LARGELY SOLVED.  If the answers are mediocre, then you have some serious options to weigh on taking the roll of the dice.  

Also, there is no chance this surgeon can do tunica expansion surgery if he is unknown.  That is a new surgery performed by very few surgeons.

You should have been on the forum communicating before you ever scheduled for surgery.  Ignoring our input and jumping on the forum days before surgery makes it difficult for us to be of any help.

 

[jj21]

Let me add some insight:

1. I had the Tunica Expansion Procedure, it's really not all it's made out to be. It may add 1-2cm length, at the risk of permanent nerve damage, necrosis, ischemia, and increased risk of infection. Is it really worth a 'maybe' 1-2 cm? Plus, it will require circumcision, if you are not already circumcised, this can add to recovery, and require quite a bit of adapting.

2. Flaccid penis can be important. There are some people whose flaccid angle does not drop, in a smaller guy with a larger implant, this can cause quite some issues. For example, I have a 23cm titan, at about 5 foot 7, when wearing looser clothes, my implant sticks out. If I am with kids, or in the gym, I avoid standing up because certain standing positions could make it look like I have an erection. If I forcefully point it down, this results in pain. The dog ear can be painful, look ugly, cause your flaccid to point to the left or right, which can be uncomfortable.Just remember, it is unlikely that these things will happen to you, but they are possible. This could influence someone to choose an AMS over a Titan. Regardless, a larger implant (larger flaccid), on a smaller guy, can be uncomfortable and tricky to maneuverer in every day life, especially if you are regularly active. Although, if you have peyronies, a titan is your best bet. A lot of people don't have these issues, usually people who chose high volume surgeons. For example, Merrix (read his journal) flaccid points perfectly down at 6 o clock and he was able to wear tight suits 6 weeks post-recovery, with no affect on erection angle. Myself currently, my flaccid sticks out at 4 o clock at 7 months post-surgery, a suit would be painful.

3. Yes, it is disheartening losing size, watching your penis shrivel away day after day. Especially, when you had an above average penis, and were otherwise good looking and sought after. Unfortunately, we just have to remember, as men, the size of our penis isn't what makes us manly, or the reason to live. You can still have great sex, and who knows, maybe in the future there will be advancements in medicine that will allow us to regain our lost size (stem cells, tissue engineering etc). Acceptance really is key here.

Also, in regards to TEP, consider, it can require a sub-coronal incision, which is risky as well, my pump was not placed correctly, I also have chronic pain towards the frenulum where I had circumcision. I had a top surgeon (for Australia), and still ended up with these issues.

Advice

If size is that important to you, you could give it 3-6 months, get into a stable state of mind, during that period, try VED and maybe restorex to restore size. It's never good to make a decision out of desperation. Once you feel that you have accepted the implant, the possible repercussions etc, and you feel mentally prepared - you know you are ready.

I also strongly suggest that you go to a high volume surgeon in America, one of the recommended ones on the forum. I believe Dr Hakky also does a procedure which is similar to TEP but safer.

Please consider all this before moving forward, a smart decision now, may prolong your implant, but also could save you a lot of problems down the road. Even if you have to wait and save up. I am not sure if you mentioned your age, but if something goes wrong, consider that you will be living with it for the rest of your life. In younger guys, this can be 30, 40, 50+ years.

J

[Michiganguy19]

All do respect, I'm sure you're a great guy, but you can doubt it as much as you like but it is still the truth. I appreciate the input but the fact is any manipulation of my penis, pulling, stretching, vacuum pumping, traction etc makes it worse. Just pulling on it in the office makes it worse. It pops, like when your joints or knuckles pop.

This isn't about penis size or insecurity. I'm at a point I've gone from having over 7 inches both flaccid and erect to currently after trying to stretch tissue out for implant, which I cancelled from being scared today less than an inch.

Now I have to wait another 3 months for an implant and currently losing a quarter to half inch every month off my flaccid penis the past three months.  I'm currently to the point it's just a bunch of scrunched up skin and sticking straight out.

This isn't about size, it's about the fact it's not stopping at all and now having nothing left and it still doesn't stop. If I'm at an inch now and lose a quarter inch every month, what's going to happen in 5 months?

A penectomy is the only way to save my life.

This isn't about insecurity or penis size. If it was I would of ended it along time ago, this is about the fact this isn't stopping and I'm doing to be inverted into my pelvis soon if it doesn't stop. I'm already to the point I can barely urinate. Going to be needing a permanent catheter if it doesn't stop.

If you read the new post by addboy it seems even an implant doesn't stop Peyronie's in extreme cases. I'm screwed. https://www.peyroniesforum.net/index.php/topic,19474.0.html

Im not sure what to Do now. Im extremely scared for my life. This isn't about penis size. You just don't get it at all.