Curious about causes

[RexRG]

My first post. I'm curious about how you first noticed this condition.

I'd been on TRT for a couple of years and had recently adjusted the dosage up from 0.5 mL to 0.75 mL/wk. About two weeks later I noticed I was having nocturnal erections almost every night between 1am and 5am, which was pretty rare before. They were very strong and awakened me due to pain at the base on the left side. That was six months ago. It turned out to be common to experience pain in Peyronie's acute phase.

So, I'm wondering if anyone else sees a connection (real or imagined) between Testosterone therapy and Peyronie's, or even frequent erections and the onset of Peyronie's.

[Mikel7]

Welcome RexRg to the forum! First thing you should do is fill outyour signature line -->https://www.peyroniesforum.net/index.php/topic,10819.0.html . Doing this will give you a better member response.  Then you need to download our survival guide -->https://www.peyroniesforum.net/index.php/topic,3180.0.html.  This will give you a better understanding about peyronies and it's different treatments.

So first I will tell you that TRT will not cause peyronies. Low testosterone is one actual association with it though. If you were on .5ml I assume that is 100mg per week from a 200mg per ml bottle. You had it upped a bit which should not hurt you, but watch your hematocrit and RBC. I can say this because I have been on full TRT replacement for 19 years and cannot live without it. I did have some estrogen also with it. I developed peyronies in 2020 and my Dr cannot say what actually caused it since my hormone levels at the time were normal.

I would not say to quit your therapy because low T has been shown to cause hypertension, arthritis, low libido, etc..There has to be another thing causing it. You need to find a peyronies Dr and before you go in make a list of questions you can ask.Remember that erections provide new oxygenated blood and keep your penis stretched out. It is the aggressive sex during the acute phase of peyronies that can cause more trouble.    Mikel7

[RexRG]

Hey, thank you Mikel7. My endocrinologist is keeping track of the TRT and blood workups. I've been donating blood (double red) to the Red Cross to keep the RBC down. I'm not real happy with the urologist however. He seems pretty cavalier about it - and he only sees about one case per year. Trying to locate a specialist.

I feel a bit guilty complaining about it since the curvature isn't severe. Being at the base of the penis, the dorsal curve isn't detectable. And since I've always drooped a bit, it's now parallel to the floor and looks fine. But the shortening, banding,  and intermittent pain IS a problem.

Thanks again.  

[Mikel7]

You are in no ways complaining. Your symptoms do describe peyronies and if you can get a correct diagnosis from a peyronies specialist then do so. I see Dr Levine in Chicago. There is also Dr Trost who is in Utah. You may want to consider purchasing a traction device and possibly start VED on your own. Read up and study about it here on the forum. If you are in pain then you are in the acute phase. You want to try and stop/reduce any further length loss and curvature; traction and VED therapy can reduce this.    

[RexRG]

Thanks again, Mikel7. I'm in SoCal and should be able to find someone nearby. My urologist told me he wasn't going to do anything for 6 months when it becomes chronic. I went back and he admitted he didn't even treat Peyronies because he didn't get enough cases to get up to speed. But he did examine me and diagnose it early, within a few weeks of my finding two lumps on the left side.