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Author Topic: WARNING - You can make your condition worse if you try too hard to cure yourself  (Read 497 times)

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Ballasto

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18 months ago I was a normal sexually functioning man. I could get rock hard on the spot and have sex 3-4 times a day if I wanted to.

I felt a tear with my girl on top in April of 2021. Ultrasound confirmed I had scarring mid-shaft a few weeks later. What I should have done immediately is:

1. stopped jerking off
2. limited sex to once every 2 weeks and limited that to slow and careful, no girl on top
3. accepted the doctors word that I would be fine and that the pain would go away within 12 months

Maybe the pain would not have gone away in 12 months and maybe it would have gotten worse, but at the time those words were said to me I was getting hard, aroused by visuals and cialis worked very well (even though I did not really need them at the time.)

But what I did is, I OBSESSED over this. I came on here multiple times a day looking for a quick fix. I also kept jerking off and having sex frequently. I had a high libido so this was challenging, but still I could have been stronger and resisted.

But I kept thinking supplements would help and I also wanted to keep getting erections but once I did I usually kept going until I blew a load instead of just gently getting aroused for blood flow.

Again, though my obsession kept me thinking about my dick all day everyday and wanting things to be back to normal immediately. I definitely made things worse by jerking off and overdoing it with sex.

The thing that ultimately ruined me as many of you know was trying something not FDA or doctor approved and explicitly described as not meant for the penis. I tried Hirudoid cream based on the words and videos of people here. This ruined my erections immediately and 15 months later my erections are horrible.

So my whole point is this. Anyone who has this condition and is new:

- Do not try anything suggested by an anonymous poster before consulting a doctor and getting their approval
- More importantly, get off the internet and  try to focus your mind elsewhere
- Stop jerking off
- Limit yourself to sex no more than 2x a month
- Only do slow, gentle missionary if you do have sex
- Know that the pain issue is a long journey an you need to accept that
- Believe that there is a very strong chance YOU WILL NOT GET Erectile Dysfunction if you do all of the above
- Get a sex therapist to help you manage this mental challenge

I gave myself Erectile Dysfunction. There is no doubt about that.

I had Peyronies Disease and the curve wasn't all that bad. IT WAS MY INABILITY TO HANDLE THIS MENTALLY that got me where I am today. I got rock hard with cialis before I tried that stupid cream. Things were going to be ok. I just had to stay the course. I should have been smarter and stronger. But I panicked and wanted a quick fix.

So, anyone new, please heed my advice. Breathe, take care of yourself and do anything you can to avoid obsessing over this.

There is no quick fix, fellas. You have  to deal with the pain.
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Bud luck

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I agree with you 100%. After my incident I got a slightly deny and lateral deviation, I became completely obsessed with it and I did use a traction device for 7 months, then I got a deeper dent, then I did more intense traction and my penis became narrower, then I got the P-shot that cause more narrowing, then I got the Shockwaves and then again more problems. I wish I didn't do anything
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Ballasto

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PRP made it worse? I've been thinking about getting it since the Hirudoid seems to have loosened and shrunken my tissue. I figure the PRP can help with girth and tissue regeneration - at least that's what it is supposed to do.

Did you get any better at all? It made your dick skinnier? Flaccid and erect?
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Bud luck

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The two weeks after the injection I had very strong erections and increased sensitivity, but about the 3rd week I experienced soft nocturnal erections and little later I developed a slightly torsion, and then more narrowing and lateral deviation, there was another man on this forum  that also got worse, you never know with our condition, every case is different, we all have different types of scaring and our bodies react differently, the reason because I did it was because I read "good reviews", oh well, live and learn.
Good luck
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Sonic

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I also wanted to keep getting erections but once I did I usually kept going until I blew a load instead of just gently getting aroused for blood flow.

I laughed when I read this because this is pretty much what I have done and still do till this day for the past 2 years.

I keep erection checking and in many cases end up blowing a load because of the anxiety.

My erections have undoubtedly become significantly softer over the years and I have no idea if it's pshycological or if it's to do with the disease progressing.
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28 years. Started to develop a rightwards curve in June 2020.
narrowing on right side and about a 20-25° curve to the right.
Weakened erections and instability due to narrowing.

Mostek

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PRP made it worse? I've been thinking about getting it since the Hirudoid seems to have loosened and shrunken my tissue. I figure the PRP can help with girth and tissue regeneration - at least that's what it is supposed to do.

Did you get any better at all? It made your dick skinnier? Flaccid and erect?

hey Ballasto how does PRP work for girth and tissue regeneration? can you send me a private message would like to know more about your progress. I've read shockwave therapy could help you recover from erectile dysfunction if done for 12 weeks
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Bud luck

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My penis got worse after the PRP injection, got softer nighttime erections, more narrowing, torsion... P-shot was really bad for me
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Trapper

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Hey Budluck,

How are you so sure the P-shot made you worse? You stated that you got great erections for 3 weeks afterwards. I had a similar experience the P-shot helped with my erections for a few weeks then things went back to normal. Could it be that you just progressed?
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33 years old Peyroines HG deformity when semi erect 2013 slow progression more prounounced dent on left side physcological Erectile Dysfunction reinjured plaque 2022
PDE5's, Traction, VED, PRP, ESWT, Trimix

Bud luck

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It wasn't just PRP, she also added O Zone therapy, the O Zone was probably what destroyed me.
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46
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