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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: Should I leave my penis with a 45 degree bend or have an operation?  (Read 159 times)

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JamieKer56

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Hi All,

I've not been on this forum for a while now.

I was first diagnosed with Peyronies in October 2020.

I eventually (!) got referred to a urology consultant, who I saw in April 2021.

Following that I was advised to use a VED, and I also bought a Penimaster Pro (with usual advice to use 6 hours a day!)

As maybe many people understand, life gets in the way of doing what we need to for our health (usually ends up at the bottom of the pile). I'm 57 years old, have a family (wife and an active 8 year old son with many interests), work is hectic, I have a father with dementia who needs a lot of support, and two houses to maintain and run (my Dad is still in his own place). Plus a lot of additional things that need dealing with after my mum died (Feb 2021).

Naturally, I couldn't manage 6 hours a day using a Penimaster Pro and VED device. At the start (April 21) I did my best using both the VED (adhoc days) and the PMP (2-3 hours on adhoc days), but the frequency became less due to life and many responsibilities.

My current situation is I have a 45 degree curve to the right, which also dips downward. I have scarring at the base of my penis (on the right side) and also scarring on my shaft, which causes hour-glass pinching on both sides of my shaft. My consultant feels the penis curvature has probably stabilised now (but who knows).

I've had a meeting with the consultant again today.

He's recommended surgery to help straighten the penis; but he said there are risks. I've not been told what procedure they recommend (maybe the consultants follow-up letter will advise this), but reading general information provided it may be Plication (?)

One issue is the hour glass pinching on the shaft of my penis. If I have surgery, due to the pinching apparently there's a risk the penis could become less stable after undertaking the procedure on the left side of my penis, which may accentuate the hour glass pinching and could make erectile dysfunction worse. There are some other general risks associated with these procedures.

So now I have to decide whether to live with a penis with a 45 degree bend (and downward dip), or risk a surgical procedure. If I have surgery and things are made worse, that won't be good for my mental health.

I've been asked to read a datasheet compiled by the British Association of Urological Surgeons (BAUS) which explains the procedures and the risks involved:

https://www.baus.org.uk/_userfiles/pages/files/Patients/Leaflets/Penile%20straightening.pdf

One question I asked the consultant was if I give the PMP and VED another go over the next 12 months, could that help reduce the curve? He said probably not. Has anyone done this after nearly two years after first symptoms are visible (and after being advised to have an op), and achieved a good result to justify not having the op?

For those that have had surgery, were you happy with the results?

Has anyone decided to live with a pronounced curve (45 degree) to avoid the risks? Are you happy with this decision?

I suppose this also depends on whether sex with my wife is still acceptable and possible with a 45 degree bend (we've not had sex for a while; I've been a little embarrassed!).

Any feedback that might help me make a decision either way would be appreciated.

To be honest, both options are not great...

Thanks for your support.


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Age 56. First noticed Peyronies Disease Oct 20.
Referred to specialist Feb21; first appointment April 21. Have mid-shaft hour glass pinching. Have pronounced bend to right plus downwards.
Currently using VED. No medication as not prescribed by urologist

Sebtp1973

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Re: Should I leave my penis with a 45 degree bend or have an operation?
« Reply #1 on: July 15, 2022, 10:51:55 AM »

You may want to try Restorex. Less of a time commitment. 30-60 minutes a day. You can get up a half hour before everyone and knock out a 30 minutes session each morning. Do they have xiaflex in your country? I finished my first round two weeks ago, and with daily Restorex , I see noticeable improvement.
Logged
57 yrs old.
45 degree upward bend initially. Seeing improvements now with Xiaflex and traction.
Finished round one of Xiaflex July 1, 2022. After round 1, my doctor estimates my curve is 30 d. Completed round 2 on August 26, and see more improvement.

JamieKer56

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Re: Should I leave my penis with a 45 degree bend or have an operation?
« Reply #2 on: July 15, 2022, 10:58:24 AM »


Hi There,

Thanks for the information.

I've read a lot about Restorex.

One issue is the company that supplies this product doesn't allow orders to be shipped to the UK / Europe.

I may investigate further, as I have a friend in Texas.

I appreciate the thought to post

 :)

Logged
Age 56. First noticed Peyronies Disease Oct 20.
Referred to specialist Feb21; first appointment April 21. Have mid-shaft hour glass pinching. Have pronounced bend to right plus downwards.
Currently using VED. No medication as not prescribed by urologist

blex

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Re: Should I leave my penis with a 45 degree bend or have an operation?
« Reply #3 on: July 15, 2022, 11:02:50 AM »

I talked to a german surgeon and he said it basically comes down to this:

Can you have painfree and pleasurable sex?
If yes - don't do surgery.
If no - do surgery.

He said surgery makes the penis straighter, not better!

Logged
36 years old, married
---
Symptoms since trauma in July 21:
Calcified nodule in septum near glans
Calcified plaque almost circumferential
Pain (flaccid/erect), 45° upwards curvature, hourglassing
---
Nothing helped, looking for surgery now

JamieKer56

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Re: Should I leave my penis with a 45 degree bend or have an operation?
« Reply #4 on: July 15, 2022, 12:51:57 PM »


Thanks for the advice.

I suppose that makes good sense.

Logged
Age 56. First noticed Peyronies Disease Oct 20.
Referred to specialist Feb21; first appointment April 21. Have mid-shaft hour glass pinching. Have pronounced bend to right plus downwards.
Currently using VED. No medication as not prescribed by urologist
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