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Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

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Author Topic: Just diagnosed and I know next to nothing. I have a few questions…  (Read 222 times)

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Winterecho

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I was just diagnosed with Peyronie’s disease and this is all new to me. My urologist suggested Restorex to try.
I don’t have much money so I’m worrisome on getting this.
Also I’m looking to use this only for curvature, not lengthening or anything else.
I’ve been reading many posts on here, but still have questions.
I don’t know the curvature degree, but it basically looks like my elbow fully bent. It gets further bent the more erect I am. But I have no dents or hour shaped look nor any lumps.
When I am not erect then there is absolutely no curvature.

So I don’t get how this could work for me unless I was erect when I put it on and stay erect while it stays on. It doesn’t seem it could help in any way while I’m flaccid. Are you supposed to use this while flaccid only?
Also I don’t know the angle it bends. It’s to the left, but I think it’s more straight up but just kinda falls to the side,
Again I don’t really know about this disease much so I’m not sure if everyone has a curve like mine that is like a broken bone or a line that curves from that point. It’s not like the whole thing curves from the base.
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chrisaaa7

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Re: Just diagnosed and I know next to nothing. I have a few questions…
« Reply #1 on: July 06, 2022, 02:46:35 PM »

Hey! Yes you’re only supposed to use when flaccid, using it while erect will cause much more damage. While you are flaccid the machine helps stretch out the scarring that you have which is creating the curve. Once you stretch it out, it may help straighten the curve while erect. Once again, only do when flaccid.
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M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),Erectile Dysfunction for 2.5 years

Mikel7

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Re: Just diagnosed and I know next to nothing. I have a few questions…
« Reply #2 on: July 07, 2022, 06:24:49 AM »

Welcome Winterecho to the forum.  The first thing you need to do is to fill out your signature line and here are the instructions how to do this --> https://www.peyroniesforum.net/index.php/topic,10819.0.html . Then to give you a better education about peyronies you need to study the survival guide --> https://www.peyroniesforum.net/index.php/topic,3180.0.html .  This will help you understand more about it.

So it sounds like you have a 90 degree bend.  How did you get this deformity?  Your penis can appear fine when it is flacid but when you get an erection that is when the deformity shows up because of the scar tissue inside restricting engorgement. The traction can help straighten out your penis and also help prevent any further damage. It was good that your urologist suggested this. You might want to read up on the survival guide and ask your Dr some further questions. Do you have insurance?  Maybe an ultrasound to get a clearer picture of what's going on.  :)  Mikel7

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Lump April 2020, age 61 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Winterecho

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Re: Just diagnosed and I know next to nothing. I have a few questions…
« Reply #3 on: July 07, 2022, 07:37:47 PM »

Welcome Winterecho to the forum.  The first thing you need to do is to fill out your signature line and here are the instructions how to do this --> https://www.peyroniesforum.net/index.php/topic,10819.0.html . Then to give you a better education about peyronies you need to study the survival guide --> https://www.peyroniesforum.net/index.php/topic,3180.0.html .  This will help you understand more about it.

So it sounds like you have a 90 degree bend.  How did you get this deformity?  Your penis can appear fine when it is flacid but when you get an erection that is when the deformity shows up because of the scar tissue inside restricting engorgement. The traction can help straighten out your penis and also help prevent any further damage. It was good that your urologist suggested this. You might want to read up on the survival guide and ask your Dr some further questions. Do you have insurance?  Maybe an ultrasound to get a clearer picture of what's going on.  :)  Mikel7

I’ve been trying to follow those instructions but it doesn’t let me do any of that. I can’t even modify my profile. I’m using an older iPhone so I’m not sure if it’s that.
I honestly don’t know how or when I got this deformity. I haven’t been in a relationship in years and I just wasn’t getting erect much at all. I’m also a diabetic so I figured it was Erectile Dysfunction since it’s kinda common with that. It wasn’t I till a few months ago I noticed it curving. I went to a doctor for Vosges to try, but that wasn’t really doing anything. I more just noticed that I wasn’t getting that erect anymore, like half an eee too and it would go away fast. So I honestly can’t say when it started
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Bud luck

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Re: Just diagnosed and I know next to nothing. I have a few questions…
« Reply #4 on: July 07, 2022, 10:41:27 PM »

All the "experts" have different opinions about our "disease", I went to 3 or 4 different ones and none of them helped me improve my penis, actually is been getting worse after all the "therapies" I tried. I believe it all depends on your physiology, some guys improved, some stayed the same and some get worse like me.I wish you good luck
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46
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