Li-ESWT - your opinion is very welcome

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Rince

As I have already written in my imagination, I am now faced with the decision of whether to have a ESWT performed or not.
I feel torn, on the one hand it costs me 250€ (~280$) per session and I would have to travel 600km totally each time. Then there aren't really many reports of successful treatment, at least not as far as bending the penis, pain relief isn't my concern.

But then there is hope for the doctor who is treating me, who really is a specialist in peyronie disease. He also does a lot of research in this area and has published this study, among other things, for me as an absolute layman it at least sounds like there is hope (~50% that there is an improvement in bending).

https://www.sciencedirect.com/science/article/pii/S2050052120300317?via%3Dihub

Long story short, I don't know what to do :(

As English is not my mother tongue and it is difficult to fully understand the study, I would like to know your opinion, would you give it a try?
50 years, Peyoronie since July 2021, left 20 degree/dorsal 40 degree, sandglas - Tadalafil 5mg, Osbon ErecAid, PMP
Colitis Ulcerosa patient

Afeb1996

what doctor is it? Where would you have to travel to? Have you tried anything else yet like pentox, cialis, l-arginine, or VED? Private message me
03/06/2018: Forceful-downwards [from the penile base] injury) > Affected PSL (Penile Suspensory Ligament) > Pelvic Floor Dysfunction > ED (tentatively assumed venogenic) > Peyronies (07/01/2018)

Mikel7

In my opinion I would say that you are wasting your money. You should look into VED therapy and possibly traction. Restorex has helped improve curvatures and has been tested. Supplements can also be a benefit also. I hate to see anyone waste their hard earned money on something that is so controversial .
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Rince

I already use the Osbon for VED and PMP for traction. Unfortunately, RestoreX is not readily available here in Europe.
In his reports, Dr. Porst speaks of improvements "only" in 47% of the patients.
I'll wait a little longer and if the situation continues to deteriorate, I might try.
50 years, Peyoronie since July 2021, left 20 degree/dorsal 40 degree, sandglas - Tadalafil 5mg, Osbon ErecAid, PMP
Colitis Ulcerosa patient

Peyrat79


Would be nice to read about your experiences, once you startet the ESWT. There are some doctors, that charge a bit less money. The cheapest offer was about 160€, usually it's about 200€ per session. Among german urologists Prof. Porst is generally being said to have gathered the most expertise, since he has been using a large number of different devices for a long time now. He definetly knows how to work together with manufactures and pharma industry. Nethertheless, I'd recommend to be cautious, even with him. I personally made both, good and bad experiences - however I have not tried ESWT yet.
innate lateral curvature, distal plaque in septum with one-sided hourglassing in 2011, rupture during SKIT with lesion/scarring in 2020

Bud luck

The Shockwaves made my erections and deviation slightly worse
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Trapper

I only had 2 sessions. The first seemed to help the 2nd I couldn't really tell much of a difference.  
33 years old, symptoms started early 20's but never really bothered me until the last two years
Trimix worked well but caused more scarring.  
Titan 24CM XL+ 1 CM RTE'S Dr. Hakky 4/4/23
Hyaluronic acid penis filler by Dr. Hakky June 2023

VentosP

Quote from: Bud luck on January 31, 2023, 06:23:43 PMThe Shockwaves made my erections and deviation slightly worse

Have you tried any other treatments recently (or are you on the way to another one?)
I have a similar condition with my penis, as you described in your "foot description" (I'm 40s too) so I'm interested in following your treatment journey.

I visited a doctor here in Argentina a couple of weeks ago who offered me a treatment with LI-ESWT, but it's really expensive (USD 3,300x 6 sessions). Now I'm in doubt and unsure if it's worth it.

Thanks!
 
I don't remember when my Peyronie started. But I've been dealing with it for at least 5 years now.
I only try with cialis and acetyl l-carnitine (without improvements)
I have a curvature to the left side (of around 40º)
I'm currently 42 years old

Bud luck

VentosP, I also did a O Zone therapy combined with PRP injection that caused me more damage, do not try anything that is nor proven to work, because every single thing that I tried it made my penis worse
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

VentosP

Quote from: Bud luck on September 05, 2023, 12:08:03 AMVentosP, I also did a O Zone therapy combined with PRP injection that caused me more damage, do not try anything that is nor proven to work, because every single thing that I tried it made my penis worse

 :-\ What about PTT (like RestoreX), Have you tried it? I'll travel to NY in october so I'll be taking advantage of my travel to buy it. I'd prefer to avoid invasive treatments like injections (at least for now!).

thanks a lot!
I don't remember when my Peyronie started. But I've been dealing with it for at least 5 years now.
I only try with cialis and acetyl l-carnitine (without improvements)
I have a curvature to the left side (of around 40º)
I'm currently 42 years old