What can we do to bring awareness to this condition?

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I have an appointment with a Peyronies specialist at the state's Uni. I plan on asking how I can bring more awareness to this condition and ways to expedite the research. And ask what the clinic is doing to help the research.

Age 24. Complications and worsening, age 22. 
ED. Estimate curvature 40 degrees upward. Shortening in
length. Narrowing in width.
Treatments; Cialis. Pentox. Stretching. Pump.
Dr. Levine 9-3-21 no help


Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums