Fractionated C02 Laser for Peyronies Clinical Trial - ASAP help needed!

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Mentos

Hello folks,

I really appreciated any immediate feedback and wisdom as I have 2 days before I accept myself into a clinical trail using Fractionated C02 Laser or not.

This is a year long clinical trial, 3 laser beams 6 weeks apart. I'm just beginning my research into this type of laser, but apparently it has good results with the hand condition that is similar to peyronies. 

However, I am really concerned about any potential negative side effects. The only ones the doctors stated were things that would go away shortly.
But they could not gauruntee no long term issues because this is the whole point of the clinical trial, to determine its efficacy and safety.

Has anyone here on the forum received this type of treatment, or does anyone have any resources or wisdom to share?


howtheheck

I would do it.  If your looking for support...I would say try it.  As long as it is done by a professional organization and real doctors not just cosmetic ones, try it.  The same treatment is done on burn victims and facials.  I think next to the penis everyone worry's about facial features and it is very commonly used there I believe. 
56 years old.  Westerner (Expat) living in China, Single, 4/21 start. Various natural topicals & orals, will use home ESWT machine.  05/24 started TCM with TCM herbs acupuncture.  06/02/21- Restorex, also noticed slight dorsal curve late 06/21

AverageBloke

Hey mate,

I would suggest that you try it. It seems promising, I would enrol in the study myself if I lived in Canada.
Peyronie's Disease
Titan Touch 22cm - Dr Clavell 06/04/22

Hazelboy98

Quote from: Mentos on September 29, 2021, 03:18:57 PM
Hello folks,

I really appreciated any immediate feedback and wisdom as I have 2 days before I accept myself into a clinical trail using Fractionated C02 Laser or not.



I think you're a lucky guy to have a chance to be apart of something so experimental. Can you elaborate on some of the risks and side effects they told you about?
26 yrs old    Descended from Heaven on 11/27/97

Severe pain and shape changes started on Nov 30th, 2020 from injury

Shape was back to normal by December 2021
Pain has now gone away and I'm mostly recovered January 2024

Chicago!

Pfract

@Mentos

Hey man... I was surprised and interested to read about the clinical trial. I was not aware of it. It was good to know. As with everything in life, there are risks and benefits to things. I thought this was going to be from some shady place but turns out it is from the University of British Columbia.

I would not have the courage to do it if it was me. But all the power to you, if you decide to go through. I will ask the staff if we should get this link sticky so it raises a bit more awareness.

Tobyg

Are you sure this treatment is new? , I did laser treatment, ultrasound and magnetotherapy with a physiotherapist 4 years ago, and I did not notice any changes. it only temporarily relieved the pain.
I can't confirm if the laser was the same, I don't remember
32 years,injured at 25.
Slight curve, narrowing and retraction in flaccid and semi-erect.
Loss of sensitivity due to peyronie and circumcision  moderate erectile dysfunction, pain.
I improved the pelvic floor with kinesiology.
Frequent urination.

projectpd

Age 57, Onset 2010, 2" shortening, shrinking and angulation of glans, weaker erections, 30 degree bend. Mild pain few months, but far from worst symptom. Tried many ideas, not just from here, but not consistently. Moderate improvement, maybe 40%

GaussRifle

26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

john.doe.550

Age: 65. Peyronies Disease in MAR 2019. 90 dgree upward curve.. Immediate &  severe. Xiaflex, APR 2019 to early 2021, slow but minor improvement through 2021. Incisional corporoplasty surgery completed in late 2022.

Solo93

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benneb

Peyronie since 2020. Inflammation started probably after microtrauma. Almost no curvature. Still a weak spot with  scarring. At this point biggest issue is ED and once in a while recurring inflammation.

Dabbydu

That was run by my doc, I haven't seen him in over a year but I'll see if I can get another referral and I'll question him more when that happens. Referrals and appointments are slow af in canada so I can't promise any quick info but I'll do what I can
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benneb

Peyronie since 2020. Inflammation started probably after microtrauma. Almost no curvature. Still a weak spot with  scarring. At this point biggest issue is ED and once in a while recurring inflammation.

benneb

Peyronie since 2020. Inflammation started probably after microtrauma. Almost no curvature. Still a weak spot with  scarring. At this point biggest issue is ED and once in a while recurring inflammation.

lsssr

He linked the trial and that was the last thing he ever posted. Hasn't come back in almost 2 years since then lol

Either it worked and he stopped coming to the forum, or it killed him
27.
Masturbated a lot (5+ hours) for years. Possible fracture as a teen, never treated.
Flaccid pain since 5 Jun '23. Flaccid indent. Fills out. Huge veins.
First ultrasound in Aug. I bounce between theories what it is.
Celexa for depression/anxiety.

Bluepy

Now the link says says it ends December 31st 2023 (estimated) 
late 20's
severe ED
semi erect curve

Trying to cope with the situation (with ups and downs)