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[Mike_1024]

Hi guys. 

I've been wondering about this for a long time, but I never had anyone to ask.  The basic question is:  is any pain in a penis "normal"?  I never had sex before I was married, but I did masturbate regularly (just about every other day on average, I'd say).  Sometimes twice a day.  Very rarely 3 times.  If I went for it 2 or 3 times, there might have been some very mild discomfort afterward (general soreness?) But nothing I'd call pain, and it definitely would be gone by the next day.

When I got married and started having sex (25 yrs old), it was way more intense than masturbation, obviously, and anything more than one round per day would leave me sore (just a light soreness, but definitely noticeable) for the next day or so.

20 years later, when I just started noticing something was wrong with me, after sex I would have actual inflammation, even after just one round of sex.  My flaccid penis was puffy, generally sore, and somewhat itchy for a day or so.  Looking back, I'm sure it was an early indication of Peyronies Disease setting in.  Back then I even wondered if it was some kind of STD.  Got tested and everything.   The urologist was like, "eh...stuff happens sometimes."  The puffy, itchy soreness would only happen if I got exceptionally aroused or had prolonged sex.  Like a dummy, I didn't pursue it further but chalked it up to getting older. 

After a year of that happening occasionally, the bumps, bends, and real pain began. 

So...with that I ask you, gentlemen, at what point would you consider pain/discomfort to be abnormal?  Before Peyronies Disease, did you guys ever have any pain after sex?  After 2 or 3 rounds of sex?  Should I have seen this coming years earlier?  I mean, clearly, I should have dug deeper when the actual inflammation set in.  I'm kicking myself for that.  But I don't know if I would have been able to do anything about it at that point anyway.

I'd be grateful for your thoughts.

[Lostandsad]

Before Peyronie’s, I’d never have any kind of pain whatsoever after sex or masturbation. There would only be some sort of soreness if I went on marathons, such as masturbating three times in a row, or having sex and climaxing 3 or more times in a row. This seems to be in line with what you were experiencing when younger.

Now after ejaculating, there’s always a little bit of lingering pain, whether it’s sex or masturbation. I can’t even fully grip my penis during masturbation anymore, some parts of my penis are just sore/painful to the touch, especially when erect.

I don’t think you should be kicking yourself for that, you didn’t know it was Peyronie’s. If you were starting to get inflammation even after just one round of sex, it seems that Peyronie’s had already been triggered and there was no stopping it. Just my opinion of course.

[Mike_1024]

Yup.  The occasional marathon always left me with some minor discomfort afterward.  Now, the most mild 1-time climax leaves me feeling that way.   The longer it takes, the more it hurts afterward.

At least I'm not having the searing pain at each area of plaque like I was several months ago.  Sex was like trying to have sex with a cactus.  I still feel some general pain just before/while I ejaculate.  I can live with it for now I guess. 

Thx for the hit back.

[Lostandsad]

Have you tried any supplements/creams/hyperthermia for the pain? Would you consider yourself in the chronic phase now?

[Mikel7]

After reading through your past history I ask you the question have you ever had your hormone levels checked? Especially your free testosterone and your estradiol levels (E2) for men. Low T levels will play havoc on your penis. I know from experience in my case.

[Mike_1024]

@lostandsad I've tried a few things with a decent level of commitment (1 month, typically - vitamin E, pentox, collagen).  The only one that I felt like had some impact was collagen.  But I can't prove anything.  I didn't find much clinical evidence to support even trying stuff.  Anecdotal evidence was hit or miss too.  Hyperthermia I never looked into but I will.  It sounds like traction is the only approach that consistently gets results (even if they are mostly mild...although some have had a dramatic impact, but I just can't be doing traction for literally hours every day...I dunno).  I think I'm in the chronic phase but I know that can change literally any day.

@Mikel7 yes, I had my hormones checked a few years ago because I have narcolepsy.  Had to rule out hormone imbalances before I  could get a sleep study/other treatment.   Had a couple tests done over a few months and everything looked OK.  But I always wondered if "ok" for one guy is different than ok for me.

Sorry I didn't get back to you guys sooner.  I had shoulder surgery this week so my thoughts have been elsewhere.   I really appreciate your input.
Mike

[Mikel7]

@Mikel7 yes, I had my hormones checked a few years ago because I have narcolepsy.  Had to rule out hormone imbalances before I  could get a sleep study/other treatment.   Had a couple tests done over a few months and everything looked OK.  But I always wondered if "ok" for one guy is different than ok for me.

   When they see that you are in the "range" for your hormones they never take into account your subjective feeling.  I had to go through about 4 endocrinologists and urologists until I actually found
a real hormone Dr for men. Some men do well with a medium range hormone level as to where other men feel the best at high T.  The range is very well distributed. My total T was 400 but my free T was less that 10.1 in 2004. My Dr's all said I was normal and that it was all in my head. I still had a ton of symptoms though.    I feel normal with total T around 700 and free t normal. 

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