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Author Topic: Multimodal Treatment  (Read 2641 times)

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Nolte94

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Multimodal Treatment
« on: February 07, 2021, 03:28:16 PM »

At the beginning
35° curvature to the left, because of a plaque right under the glans. Worsen after 3 months with no real treatment to 45°, hinge effect and pain (while flaccid and errected).

First try on treatment
First urologist recommended Potaba, which I took for 30 days. I also took many supplements (Serrapeptase, Nattokinase, Acetyl-Carnitine, L-Arginine, Coq10, Omega 3 Caps and Curcumine). The progression maybe slowed down and the symptoms are stable.

Basic treatment with success
I joined this forum and read studies on PTT and oral treatments. Many supplements are just waste of money and could lead to other issues. So I decided to speak with another urologist and start a "basic treatment" like it's written in the "survival guide":

PTT with PMP up to 8 hours (average maybe 4-6 hours)
after traction simmondsia chinensis seed oil with macadamia ternifolia seed oil (just for skin care)
Tadalafil 5mg
Acetyl-L-Carnitine
L-Citrullin
Coq10
Patience

I've always been sporty and eaten healthy, so I don't have to focus on this two. I don't smoke and drink alcohol.

Improvements
The worst symptome for me was the pain. Hopefully I just feel a tension, because of the curvature, but no real pain anymore.
The curvature itself improved to ~35°.
Errection quality improved. Nightly errections are back and sex is possible without huge risks of injuring again.
The beginning of a depression could be stopped and I don't think always about this disease. My girlfriend is a great support.

Targets left
Get rid of the hinge effect
Curvature ~10-20° (100% straight is not my target)
Keep smiling :)

I don't want to experiment with questionable supplements or drugs anymore. This multimodal treatment seems to help me and I don't have any sideeffects. My urologist supports me, too, so I shouldn't get other health issues, because of experiments without medical knowledge like a few desperate members do.
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

postrocker

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Re: Basics
« Reply #1 on: February 07, 2021, 04:40:48 PM »

Great progress!!

"after traction simmondsia chinensis seed oil with macadamia ternifolia seed oil (just for skin care)"
what exactly is that? you apply on the glans?
Logged
35yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021 onwards (curve now ~22/25degrees)

GaussRifle

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Re: Basics
« Reply #2 on: February 07, 2021, 05:09:02 PM »

Nolte , the approach you are taking is very similar to mine. I consider my urologist to be very knowledgeable  considering he is from Mayo Clinic here in the states and he told me to focus on traction and daily tadalafil 5mg for 6 months. He has told me to try restore x for a few months before considering Xiaflex. If the hinge buckling continues, I will consider Extra Tunical grafting. I do not have a girlfriend, consider yourself very lucky to have a partner when this struck you. It certainly helps mentally talking to someone about this. At this age, not even our friends would understand, they would think it’s something funny, and I can’t even talk to them about it. I hope you and I are happy at the end. One step at a time.
Logged
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

NeoV

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Re: Basics
« Reply #3 on: February 07, 2021, 10:41:34 PM »

Great post!

Nolte94

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Re: Basics
« Reply #4 on: February 08, 2021, 02:22:30 AM »

@Postrocker
This is a product from the company behind PMP. Just for skin care. I wear the device many hours and use the oil to keep my skin of the penis smooth and healthy. I think, you can buy other and cheaper products for skin care...

@gaussrifle
Same as I do. Focus on the basic treatments, which studies confirmed to help. Xiaflex isn't authorized in Germany and in my opinion questionable like Potaba. Surgery is the last option, but I don't thinking about it much at the moment. Step by step :)
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

treeza1

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Re: Basics
« Reply #5 on: February 08, 2021, 04:55:58 AM »

Wonder if it’s time to jump in on the under 30 club action regarding traction (although only 29 for a few more months!) Have been stable since onset almost 8 years ago - feels like a long time now 😲

After losing almost 2 inches in length, some girth and suffering all the other effects - Hinging, some indentations, 35 degree bend upwards slightly to left and hard flaccid due to multiple plaques and a hard thinkened cord that runs along the shaft and can be felt by pressing in both thumbs from either side and running them along the length of the penis.. Feel like maybe I should buy a RestoreX and give something a crack as I have just come out of a relationship and have hardly been single since onset!

Does anyone think Traction without Xiaflex to soften the plaques and cord would be worth it to try and get some sort of straightening and length improvements nearly 10 years into the onset or wishful thinking??

I feel for you guys as I remember things being pretty good down there prior to taking a huge hit in a sporting game - luck of the draw unfortunately. But definitely sucks to cop this crap in your 20’s.

Well done on both your efforts 👏
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postrocker

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Re: Basics
« Reply #6 on: February 08, 2021, 06:00:15 AM »

@Nolte94, just found the product on PMP website. do you apply it directly on your glans (everywhere?) after finishing using PMP? it's quite expensive indeed.
if anyone has any other suggestions, I would also be interested.
Logged
35yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021 onwards (curve now ~22/25degrees)

Nolte94

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Re: Basics
« Reply #7 on: February 08, 2021, 06:48:22 AM »

@treeza1
I have multiple plaques, too. But only the one right under my glans causes the curvature, a little dent and the hinge effect.
Just read the studies about traction and multimodal treatments (everything is posted multiple times in this forum) and you will see, that's never too late for starting treatment.

@postrocker
I apply it everywhere. Why not? My whole penis is covered with skin. But I think, you focus too much on this oil, which ONLY is for skin care. There are so many cremes, lotions and oils for skin care, so it doesn't matter what you use.
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

Juan

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Re: Basics
« Reply #8 on: February 08, 2021, 07:19:02 AM »

Nolte, as you are very young I wonder why you take 5mg of tadalafil instead of 2,5mg. Did your uro recommended 5 for a certain reason?
What time do you take it?

Last time I used pmp I used castor oil and it worked very well. Both for get the glans in the chamber and for the skin care.
Logged
39 yo. Onset Oct/20. 25º dorsal bend 1cm before glans + high erection angle.
Pentoxifiline 400x3. Tadalafil 2,5. Vit E, D3, K2. Zinc.Omega3. Ubiquinol. ALCAR.
Traction with PMP.

postrocker

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Re: Basics
« Reply #9 on: February 08, 2021, 11:02:40 AM »

I will try castor oil to use after/during the use of PMP.
Logged
35yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021 onwards (curve now ~22/25degrees)

Nolte94

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Re: Basics
« Reply #10 on: February 08, 2021, 11:30:23 AM »

@Juan
My urologist prescribed Tadalafil 5mg to me. I take it in the evening, but the time doesn't matter. You only should take every day at the same time.

Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

Nolte94

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Re: Basics
« Reply #11 on: February 28, 2021, 04:32:37 AM »

Update
The PeniMaster Pro works very well. I've increased the hours of wearing the device in general per day and the curvature improves more and more. Size of my penis is bigger than before Peyronies Disease.
Soft glans because of the hinge effect gets better, but not perfect yet. Therefor I've added VED sessions, but I don't use exactly the 26 weeks protocol. In combination with the supplements and others in my signature I have to say: multimodal treatment works for me so far.
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

postrocker

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Re: Basics
« Reply #12 on: February 28, 2021, 12:48:44 PM »

great to know!

what is Tensiologes and contratubex?
Logged
35yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021 onwards (curve now ~22/25degrees)

Nolte94

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Re: Basics
« Reply #13 on: February 28, 2021, 02:22:10 PM »

Tensiologes is a supplement and Contractubex a scar gel.
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

Nolte94

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Re: Basics
« Reply #14 on: March 11, 2021, 05:06:19 AM »

Update
Hinge effect doesn't exist anymore. Glans gets hard again with an erection.
Curvature improvement to 20-25° to the left.
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

postrocker

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Re: Multimodal Treatment
« Reply #15 on: March 11, 2021, 05:53:58 AM »

Amazing!
Logged
35yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021 onwards (curve now ~22/25degrees)

markdubby

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Re: Multimodal Treatment
« Reply #16 on: March 15, 2021, 06:58:28 PM »

hi nolte

is the scar treatment decreasing your plaque size?

thanks!
Logged
30, ~20-30 degrees right bend beginning of 02/2021. Small plaque under gland on right side of the shaft
04/21 Plaque right side under glans
07/21 plaque by base
25 deg curvature at base + narrowing
1.8 g Citrulline 2-3 g ALCAR, 6-8h daily with PMP

Nolte94

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Re: Multimodal Treatment
« Reply #17 on: March 16, 2021, 01:22:51 AM »

The multimodal treatment decreases my plaque size, yes.
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

markdubby

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Re: Multimodal Treatment
« Reply #18 on: March 16, 2021, 05:09:47 AM »

sorry let me rephrase:

are you noticing a big difference since you added contractubex to the treatment? am looking into some topical creams as well!

thanks!
Logged
30, ~20-30 degrees right bend beginning of 02/2021. Small plaque under gland on right side of the shaft
04/21 Plaque right side under glans
07/21 plaque by base
25 deg curvature at base + narrowing
1.8 g Citrulline 2-3 g ALCAR, 6-8h daily with PMP

Mikel7

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Re: Multimodal Treatment
« Reply #19 on: March 16, 2021, 05:29:05 AM »

sorry let me rephrase:

are you noticing a big difference since you added contractubex to the treatment? am looking into some topical creams as well!

thanks!
I am also interested in Contractubex - we need a new posting regarding this cream.
Logged
Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Nolte94

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Re: Multimodal Treatment
« Reply #20 on: April 06, 2021, 05:54:26 AM »

Update
I'm feeling well. I continue with the treatment, because I'm very happy about the good shape of my penis. After many hours of tracrion and VED, my penis has become bigger than before Peyronies Disease and my erecrions are stronger than before Peyronies Disease.
I still have a little curvature, but that doesn't bring any problems or disadvantages with it.

Good luck to everyone out there!
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

Mikel7

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Re: Multimodal Treatment
« Reply #21 on: April 06, 2021, 06:15:32 AM »

If it is  working don't change a thing - "if it ain't broke, don't fix it. "   :)
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

postrocker

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Re: Multimodal Treatment
« Reply #22 on: April 06, 2021, 07:43:33 AM »

That's really great, man.

Do you know how many hours of traction do you have? I am approaching 300h with no noticeable improvements in curvature  :(
Logged
35yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021 onwards (curve now ~22/25degrees)

Nolte94

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Re: Multimodal Treatment
« Reply #23 on: April 07, 2021, 07:02:57 AM »

@postrocker
I guess around 400 hours with 600g tension.
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

Realvinni2000

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Re: Multimodal Treatment
« Reply #24 on: May 24, 2021, 07:49:41 AM »

You may add flavonoids.
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pauli

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Re: Multimodal Treatment
« Reply #25 on: July 02, 2021, 04:31:53 PM »

I want to try your Treatment. Can you Share Details on the Supplements:

Acetyl-L-Carnitine
L-Citrullin
Coq10

How much did you take?
Where did you buy it?

Thanks, Pauli
Logged
31 yrs old; in a supportiv relationship
first symptoms and diagnosed in february 2018
severe progression since spring 2020
several plaque/indentations and currently 40° up curve

Nolte94

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Re: Multimodal Treatment
« Reply #26 on: July 29, 2021, 02:30:18 AM »

I found a video on youtube, which describes my multimodal treatment I use:

https://youtu.be/-JcW6feoXjM
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

postrocker

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Re: Multimodal Treatment
« Reply #27 on: July 29, 2021, 04:49:16 AM »

Very nice video
Logged
35yo
Congenital curvature plus injury during sex - dec.2019
Curve to the left increase plus pain ~35degrees - nov.2020
Pentox (400mgx3) + Cialis (2.5mg/day) + supplements - dec.2020
Traction - jan.2021 onwards (curve now ~22/25degrees)

cdub

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Re: Multimodal Treatment
« Reply #28 on: August 08, 2021, 05:27:39 PM »

Nolte94,

How often do you add to the rod length?  Or maybe you've stayed at the same rod length and only increased tension?
Logged
Age: 42
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (ventral). Penis is straight & erections are good

Nolte94

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Re: Multimodal Treatment
« Reply #29 on: August 09, 2021, 07:18:20 AM »

Nolte94,

How often do you add to the rod length?  Or maybe you've stayed at the same rod length and only increased tension?

I add a new piece, if I need more length. The screws are only for little adjustment. I try to keep 3 visible rings (~690g).
Logged
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

Primus89

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Re: Multimodal Treatment
« Reply #30 on: September 22, 2021, 10:19:24 AM »

Hey Nolte,

cheers from Berlin ;)

I am in for a multimodal treatment as well, but haven't started the VED yet, but got the device.
My doctor recommended me to alternate VED with Traction (daily). But he also recommended that
I only need to use traction for around 3-4 hours daily and need not to overdo it.. so I am a bit sceptical
about his advice because from the studies and everything I read in this forum I get: the more traction, (usually) the better!

So how did you do it with the VED? You added that to your daily traction? Did you use it daily as well?
And why did you go for tensiologes instead of taking Arginin, Citrulline and Carnitine seperately. Do you
think there are any benefits from taking those three seperately over taking tensiologes + Carnitine.
Would be nice to get your point of view on it :)

Great stuff with your progress too!
Logged
31yrs,
First symptoms mid January 21
March 21:Diagnosed w. Peyronies+Benign Prostate Hypoplasmia+strong Vit. D deficiency.
35°up-,15°side-bend. Calcification.
Meds:
Cialis 5mg/d
L arginin, L-Carnitine, L-Citrulline, CoQ10, Vit E,
Traction with PMP
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