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Xiaflex if under 30 degrees?

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Xavier99

It seems Xiaflex is more cosmetic if your peyronies is under 30 degrees.. I'm not through the acute phase but I could be on pace to just fall under the 30 degree mark.. Is it possible to get insurance to still cover this? Has anyone had a Urologist that's a little lenient on the degree of curvature for coverage? I'd rather have potential gains with xiaflex than a loss with plication.
35 yrs old
Onset 05/01/20 diagnosed 05/14/20. Taking Pentox, trental, multivitamin, Zoloft & Tylenol
Traction was painful and made it worse
Lateral plaque by glands 20 degrees left/ narrowing
Lost about 2cm length

Shane43

Is less than 30 degrees really worth the trouble and pain and possible complications? You can always find a urologist (in the US) who will be "lenient", but if sex is still pretty good with less than 30 degree, I would hold off. I am on third series of Xiaflex to help correct hourglass indentation that made any sex impossible at all. I would never go through this for "cosmetic" reasons or if I could actually still have decent sex. Xiaflex is helping me, but not without a lot of pain and complications.
62YO, hourglass indent/hinging at base 30deg bend up 3cmx2cm hard plaque at dorsal base. No Erectile Dysfunction. 3 rounds Xiaflex decreased plaque/indent/hinge/bend. 1 year later, penis went from 7.5 to 5.5 in, but only 15 degree bend and no hinging.

Shane43

And I would not even be considering plication at this point. Is this what you have been advised by your doctor/urologist, or are you just reading what others have done? I advise you to be very careful with taking Xiaflex injections and it doesn't sound at all that surgery is indicated in your case.
62YO, hourglass indent/hinging at base 30deg bend up 3cmx2cm hard plaque at dorsal base. No Erectile Dysfunction. 3 rounds Xiaflex decreased plaque/indent/hinge/bend. 1 year later, penis went from 7.5 to 5.5 in, but only 15 degree bend and no hinging.

Xavier99

Yeah I have seen two urologists. One thinks being at 20 degrees Now  5 months in i prob won't need any treatment.. The other says if it bugs me  plication or xiaflex (if I hit 30) ..It's the narrowing that bugs me the most but nothing will bring that back unfortunately. Sex is still ok but I def feel that head going left.  Maybe when the pain goes away from acute stage I won't notice it as much
35 yrs old
Onset 05/01/20 diagnosed 05/14/20. Taking Pentox, trental, multivitamin, Zoloft & Tylenol
Traction was painful and made it worse
Lateral plaque by glands 20 degrees left/ narrowing
Lost about 2cm length

peter123

Quote from: Shane43 on September 15, 2020, 07:01:50 PM
Is less than 30 degrees really worth the trouble and pain and possible complications? You can always find a urologist (in the US) who will be "lenient", but if sex is still pretty good with less than 30 degree, I would hold off. I am on third series of Xiaflex to help correct hourglass indentation that made any sex impossible at all. I would never go through this for "cosmetic" reasons or if I could actually still have decent sex. Xiaflex is helping me, but not without a lot of pain and complications.

Shane I think you need to differentiate here. think about it, it just depends on multiple factors


1) there might be curvature in multiple directions leading to rotation effect of the penis and general instability. studies have shown people with curvature in multiple planes have more problems

2) there might be other types of deformities like hour glassing, narrowing or indentations that make the penis less stable, take volume from it etc

3) some men might have rather short penises. when you have 4 inches, a curvature of 20 degrees is much more prominent than on a longer penis. it really does make a difference. and keep in mind many people are in their twenties and have much more rigorous sex where small deformity is already an issue and makes prone for further injury. and 25 degrees is more than enough to cause issues especially when lateral or ventral

THIS USER HAS BEEN BANNED FROM FORUM FOR REPEATED RULE VIOLATIONS He never had Peyronies Disease but has body dysmorphia and his pastime was to attack all treatments, medical resources, and opinions.

TonySa

To treat the narrowing I'd add low dose nightly generic cialis (2.5-5mg) and VED to help remodel the fibrous plaque causing the narrowing to healthy tissue.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Shane43

peter123 - I agree with you on all of those.
62YO, hourglass indent/hinging at base 30deg bend up 3cmx2cm hard plaque at dorsal base. No Erectile Dysfunction. 3 rounds Xiaflex decreased plaque/indent/hinge/bend. 1 year later, penis went from 7.5 to 5.5 in, but only 15 degree bend and no hinging.