Seems there's a lot of people who have worsening from VEDs??

[HeyThereYou]

Hey,

So i spoke to someone from IMEDIcare who seemed very knowledgeable about the VED devices.

I've just received the SOMAcorrect device: https://www.mypelvichealth.co.uk/en/men/erectile-penile-health/penile-curvature/somacorrect/

...

Now the way he's described it is the first month of use is to get the penis back healthy/fuller and then future months are to target Peyronies Disease.

He explained that if for example my erection quality gets to 80% normally and no more (due to Peyronies or other reasons causing erection problems). Then my first month of daily sessions should involve going over my normal 80% by a little bit and then holding it for 5-10 seconds AND he said i will experience pain/stinging  etc but he says this is fine and literally said 'no pain no gain'. He explained this is to stretch out the penis to it's original size, make the thinner areas thicker etc. So basically everyday or ever week for the first month, gradually increasing that percentage i can get my penis up to until i'm close to 100% or my original healthy penile erections.

Then when i've got this first month down to get the penis normal and healthy, the next part is to target the Peyronies disease.
He explains how the mechanism behind it is that the plaque stretches out and then kind of breaks apart when penis is pumped up and at a full erection. Now this sounds pretty gnarly to me, to be messing with it like that. I'm scared of doing stuff like that. Whats everyones opinions on doing this?

....

If you look at my recent diagnosis post, i've only got an apparent mild case with a bit of thickening that is apparently 8mm big that can't be felt by touch (only on US) I have mild curvature which honestly could just be congenital but biggest issue for me is the deformity/shape issue/bottle necking when semi erect and then when erect these areas fill in better but they have thinned out overall but have not been progressing at all it seems like. (Had this thickening potentially 7 years ago!, If you see my history post linked below, i had injury/pain 7 years ago, didn't do anything at all to treat it and carried on masturbating a lot).


- This whole idea of stretching the penis out past it's capacity just doesn't sound natural and normal to me. The fact we're using that negative pressure to induce blood flow into the penis when at no point in history have we ever done anything other than achieve an erection the natural/normal way, theres got to be downsides to doing this?

- What about this whole idea of stretching out the plaque and causing it to break up, is that okay?

- This guy said that pain is okay, Through previous threads here i've seen a lot of people mention that pain means to back off, so what is it? The guy only said to hold it for like 5 seconds.

- Guys i'm guess i'm just scared of making a mild case potentially worse. I'm so willing to take this very lightly to avoid problems. It seems soo many people here have worsening from VED?!

-RELIANCE? is that possible with VED?

[bustedchubb]

I definitely can't speak for everyone, but I can say VED usage with the Somaerected 3 cylinder device with the protocols posted in the VED section, and is the ONLY thing I done so far that has made any improvement.  First, it stopped progression dead in its tracks, reduced flaccid pain to be darn near non-existent, and just this week after using for 8 weeks, noticed my left bend is nearly gone.   It has done a little on my dents / indentations, but still a little is better than nothing.    

[Federer1981]

I would be careful with VEDs. I am only 27 and was prescribed a medical grade VED (Soma device) by a London Consultant for some narrowing on the right side at the base of my penis. I had perfect erectile function prior to using the pump, and after using the pump exactly as directed by the Doctor and the Somaerect team, I now have severe erectile dysfunction.

It isn't worth the risk as I have paid the price even after going through all the right avenues and using the device as instructed!
Treat your one body with utmost respect and try not to subject it to anything artificial or unnatural (using negative pressure to generate an erection is not biological no matter what the leaflets say).  

[peter123]

you seriously can't make this crap up. two replies, one suggesting it s the only thing that helped, the other suggesting ved miraculously got him ED which is unheard of in medical circles basically. that is the same thing with every other treatment. in my opinion especially for young men like me the only real solution is an implant. because every treatment seems to be a hit or total miss. I pray everyday that I got cancer instead of peyronies.

to answer the question, as you have seen, there is no answer to that. and yes, in this forum a lot of people always get worse from conventional treatments like verapamil injections, traction, ved, xiaflex, I haven't seen a single treatment where a significant portion on this forum didn't say it got worse.


i do also believe though that there is a lot of BS being posted here as well. like what is the mechanism by which "Federer" got "severe ED" after using a medical grade penis pump using the device "as instructed"? you're just literally getting an erection.

my Peyronies is literally progressing week by week and nobody is able to help. its pure hell but im "still" alive

[Federer1981]

you seriously can't make this crap up. two replies, one suggesting it s the only thing that helped, the other suggesting ved miraculously got him Erectile Dysfunction which is unheard of in medical circles basically. that is the same thing with every other treatment. in my opinion especially for young men like me the only real solution is an implant. because every treatment seems to be a hit or total miss. I pray everyday that I got cancer instead of peyronies.

to answer the question, as you have seen, there is no answer to that. and yes, in this forum a lot of people always get worse from conventional treatments like verapamil injections, traction, ved, xiaflex, I haven't seen a single treatment where a significant portion on this forum didn't say it got worse.

i do also believe though that there is a lot of BS being posted here as well. like what is the mechanism by which "Federer" got "severe Erectile Dysfunction" after using a medical grade penis pump using the device "as instructed"? you're just literally getting an erection.

my Peyronies is literally progressing week by week and nobody is able to help. its pure hell but im "still" alive

Hey Peter, I agree it seems inconsistent the responses people have to these treatments but I am just going by what I have experienced. I am a Doctor myself in the UK (albeit in haematology so I am not by any means well-versed in urology) and I struggle myself to explain what the pump may have done to me in terms of mechanism of injury/damage. Trust me when I say I would not be on this forum if I didn't feel I had something to offer in terms of my personal experience - I wish I could go back 6 months and never even have come across such forums.

Nevertheless, I just want people to think carefully about the treatments suggested by clinicians as, whilst there are those who respond well, there are those who may not (example myself). Whilst I understand the pump is inducing an erection, it is not doing so in a physiological way as blood is being brought to the penis through both arteries and veins under the influence of negative pressure. Furthermore, you are creating more 3D stretch on the tissues than you would do with a physiological erection. Again, I am not saying this inevitably equals damage, just theorising that perhaps there is potential for injury if you have a predisposition or are just unlucky.

As a caveat, I never had a formal Peyronie's diagnosis; as I said, it was prescribed for narrowing at the base but no plaque was felt. The Doctor suggested I may have had a subclinical fracture as I had a blunt force injury to my penis when I was 18 and just becoming sexually active with my first girlfriend. Therefore, I don't want those with Peyronies Disease to potentially miss out on helpful corrective VED therapy because of my personal experience  

[Federer1981]

that is exactly what is happening though and why op has made this post. people are and have been using VED for treating Erectile Dysfunction and after surgery for decades, if that was a common oberverance.. and I dont think there actually has to be much difference in terms of putting stress on certain tissues, if you dont over do it. by that logic, traction is also out of the question, the manual modeling they use in the xiaflex treatment plan as well. all of it is unnatural stress to the penis. but the likelihood of developing straight on Erectile Dysfunction from that? have you actually ever seen a doctor about the Erectile Dysfunction issue if you haven't for the peyronies? some doctors like kuehnas are recommending VED precisely because of the 3 D expansion which as he says can be useful in particular for hourglass and narrowing

the beauty of peyronies is really that it hits you right where it hurts the most, the very core of your sexuality, its not something you can talk about with friends and garner support as is the case with other diseases, there is no real treatment for it, the data is really poor and everyone of them apparently can make it worse which takes you into a mentally paralyzing situation of not doing something due to fear of it getting worse while its actually getting worse due to natural progression and no treatment. its a dilemma. and doctors usually dont care about it, they'll just casually say crap like "sex is not that important bro" or "you just have to have a different sex life now" to a 22 year old. but maybe thats fair enough and just being realistic.

Hmm I see what you're saying. I just think when the Doctor, pump advisor and pump instructions all instruct to pump to max erection, or the point at which you feel slight discomfort/stretch but no pain, that leaves a lot to interpretation and is a bit subjective. Who is to say that what I felt was slight discomfort could be pain to another (and vice versa).

I have seen two Doctors about the erectile dysfunction actually, both of whom have said they haven't seen cases of the VED worsening erectile function. Whilst they have seen non-response, they haven't seen deterioration. Again, I believe them when they say this, I am just going by my own experience. Nevertheless, I am waiting for a doppler USS (booked for this Wednesday) in which they are looking for any evidence of fibrosis caused by the pump.

The point you make about the insidious nature of Peyronies Disease, the way it isolates you and leaves you paralysed, that is all very true. For all that life can be great, diseases and ill healthy are truly horrible things but I guess as humans we have to work around them. From what I have read, and from speaking to Doctors, it seems that oral therapy such as daily cialis +/- l-citrulline/l-arginine (for NO upregulation and oxygenation of penile tissues), pentoxifylline (for its well described anti-fibrotic effect), vitamin E (on account of it being safe and potentially helpful), diet + sleep + general wellbeing, time, generating regular erections (if possible) and a helping of luck seem to be a possible cocktail for success in Peyronies Disease (as well as other pathologies for Erectile Dysfunction). I don't know, I wish there were more concrete answers but there rarely are in many aspects of medicine.  

[hope794]

Peter, bro, having ED from VED is totally possible. It's called "overpumping" and it may happen sometimes. Remember that we're not all the same.

[HeyThereYou]

I would be careful with VEDs. I am only 27 and was prescribed a medical grade VED (Soma device) by a London Consultant for some narrowing on the right side at the base of my penis. I had perfect erectile function prior to using the pump, and after using the pump exactly as directed by the Doctor and the Somaerect team, I now have severe erectile dysfunction.

It isn't worth the risk as I have paid the price even after going through all the right avenues and using the device as instructed!
Treat your one body with utmost respect and try not to subject it to anything artificial or unnatural (using negative pressure to generate an erection is not biological no matter what the leaflets say).

Thanks for your input Federer! Sorry to hear that it's given you severe erectile dysfunction, Do you mind explaining your usage leading up to this? How long was you using it for/Was you pumping to 100%, 90% etc? and was it the SOMAcorrect?

I totally agree with your points, I'm really not keen on the unnatural idea of inducing an erection through negative pressure.

[Federer1981]

Thanks for your input Federer! Sorry to hear that it's not given you sever erectile dysfunction, Do you mind explaining your usage leading up to this? How long was you using it for/Was you pumping to 100%, 90% etc? and was it the SOMAcorrect?

I totally agree with your points, I'm really not keen on the unnatural idea of inducing an erection through negative pressure.

To explain the chain of events:
- I was initially prescribed the VED in December 2019. I was told to use it like this (the manual with the SOMA device also says the same): 10 minute sessions; during the sessions pump up to a point of stretch/mild discomfort but not pain, hold for no longer than 5 seconds and then release; 3 pumps every 5-10 seconds whilst pumping (no faster than this); then repeat this process during the 10 minute session of generating an erection and releasing
- I performed the exercises exactly like this: pumped up to the point where I felt a good stretch/slightly uncomfortable feeling but never had pain. Only held at max pump for 1-2 seconds before releasing vacuum. Never went longer than 10 minute session. Never had bruising or petechiae.
- I initially used the pump for around 2 and a half to 3 weeks from December 2019 to January 2020. My erections were very good at this point, with regular morning erections and I left the pump alone because it became inconvenient. I then had a follow up with the urologist in April 2020 and he told me I should still be using the pump to try and help with the narrowing at my base. Therefore, I returned to using the pump for 8 days in a 10 day period, only this time (unlike in Dec/Jan) I was also having regular sex with my girlfriend. After those 8 days, I suddenly noticed a drop off in erectile quality and so I stopped using the pump. Ever since then, I have not been able to get a normal erection as I did before.

I have no idea what has happened or what the mechanism is, but that is the situation. Why the pump seemed to do no harm on my first use in Dec/Jan which was actually for longer than I used it in April I cannot explain. Yes, the pump was the 3 cylinder SOMAcorrect device.  

[HeyThereYou]

To explain the chain of events:
- I was initially prescribed the VED in December 2019. I was told to use it like this (the manual with the SOMA device also says the same): 10 minute sessions; during the sessions pump up to a point of stretch/mild discomfort but not pain, hold for no longer than 5 seconds and then release; 3 pumps every 5-10 seconds whilst pumping (no faster than this); then repeat this process during the 10 minute session of generating an erection and releasing
- I performed the exercises exactly like this: pumped up to the point where I felt a good stretch/slightly uncomfortable feeling but never had pain. Only held at max pump for 1-2 seconds before releasing vacuum. Never went longer than 10 minute session. Never had bruising or petechiae.
- I initially used the pump for around 2 and a half to 3 weeks from December 2019 to January 2020. My erections were very good at this point, with regular morning erections and I left the pump alone because it became inconvenient. I then had a follow up with the urologist in April 2020 and he told me I should still be using the pump to try and help with the narrowing at my base. Therefore, I returned to using the pump for 8 days in a 10 day period, only this time (unlike in Dec/Jan) I was also having regular sex with my girlfriend. After those 8 days, I suddenly noticed a drop off in erectile quality and so I stopped using the pump. Ever since then, I have not been able to get a normal erection as I did before.

I have no idea what has happened or what the mechanism is, but that is the situation. Why the pump seemed to do no harm on my first use in Dec/Jan which was actually for longer than I used it in April I cannot explain. Yes, the pump was the 3 cylinder SOMAcorrect device.

Oh wow, it sounds like you used the device exactly how i was told to use it! i'm totally on the fence now. Thanks for bringing this to my attention though as i bet you could go back and not use it now..

SO that was in april you did this, and since april you;ve had erectile dysfunction ?  

[TonySa]

Fed, when pumping would you say you reached 100% or somewhat beyond the length of your normal previous erections?

[Federer1981]

Oh wow, it sounds like you used the device exactly how i was told to use it! i'm totally on the fence now. Thanks for bringing this to my attention though as i bet you could go back and not use it now..

SO that was in april you did this, and since april you;ve had erectile dysfunction ?

It's ok, just don't want you to go through something similar to what I've experienced. It's really soul destroying when you follow advice of a medical professional and it actually leads to a much worse outcome. I wish I'd never gone to see him and never been suggested the idea of a pump.

Yeah the end of April, I stopped using it on 30th April which was the 8th day over a 10 day period that I had used it. Since then, I have never had an erection comparable to what I had experienced before the pump  

[Federer1981]

Fed, when pumping would you say you reached 100% or somewhat beyond the length of your normal previous erections?

I reached 100% I imagine (which is what I was told to do). I didn't measure the length, I went by feel as I was advised so maybe I even went a mm or so over normal erections - I can't be completely sure. I always just went to the point where I felt introducing more pressure or size would be painful

[Monty]

Hi, i have used the Soma VED for over 2.5 years without any major problems, it as helped in my Peyronies Disease & ED and i still do a daily session to keep things stable, I'm no Urologist or Doctor i think the biggest mistake is starting your VED session to early, you should give it a year and make sure your penis is stable, until then you don't know for sure what the problems is, i can't see how a VED can damage your penis if use correctly, that does not mean following a protocol word for word, each of us are different and need different treatments, you have to try out many protocols and maybe take a bit from each, you may find the first one you try is just what you need, i would always recommend that you try the 3 cylinder protocol from this site, works wonders for most, not all but most get a good start to their VED experience.
just remember take it easy all the time, do not over pump, and remember this is not a quick fix.  

[TonySa]

Fed, I know one of the studies indicated to pump to full erection and it sounds like you didn't over pump if no discomfort or visible effects.  From what I've heard and read you're the first where the VED seems to be correlated w Erectile Dysfunction.  Any chance it was coincidental?

Monty, why wait one year?  That's news to me.

[Monty]

I was informed that in Uk doctors like to make sure what they are dealing with, until your penis becomes stable who knows what treatment to give you, you may fing that by using a VED or traction device could do more damage.
so my advice, for whats it worth would be keep a photo record of your progress, this you could show your Doc and Uro that its stable.

[sky43diver]

My experience with the SomaCorrect was to pump until my blood vessels were busting just to prove to myself that i still had a big dick and that Peyronies wasn't going to stop me.
Well suffice to say this didn't help me much and i went from a <70 degree curve to the left to a almost 90 degree curve to the left. Whilst it is very likely that this was mainly caused by natural peyronies disease progression, i can imagine that my over zealous use of the VED likely didn't help much.
I am now 4 weeks post Lue procedure and things are healing very well indeed, i now have a completely straight erection. Nevertheless, i have lost a little length and once again i will do anything to get this back (must be a toxic masculinity thing) and i will stretch it, bend it and yes i will use the SomaCorrect, however with much less haste.....i Hope

[Federer1981]

My experience with the SomaCorrect was to pump until my blood vessels were busting just to prove to myself that i still had a big dick and that Peyronies wasn't going to stop me.
Well suffice to say this didn't help me much and i went from a <70 degree curve to the left to a almost 90 degree curve to the left. Whilt it is very likely that this was mainly caused by natural peyronies disease progression, i can imagine that my over zealous use of the VED likely didn't help much.
I am now 4 weeks post Lue procedure and things are healing very well indeed, i now have a completely straight erection. Nevertheless, i have lost a little length and once again i will do anything to get this back (must be a toxic masculinity thing) and i will stretch it, bend it and yes i will use the SomaCorrect, however with much less haste.....i Hope

Hi Sky42diver,

And this level of pumping up to "bursting" never affected your erectile function? Never caused erectile dysfunction or worsening erectile quality?

For how long and how regularly did you use the pump like this?

[sky43diver]

Having Peyronies knocked my confidence when having sex so i would take a Viagra before sex and therefore i didn't suffer with erection issues. Having said that there were times when the magic pill wasn't around and yes i did notice that i would struggle to get a proper erection.
It is difficult to say whether my crazy use of the SC compounded my issues, however what i can assure you is that the penis is an amazing thing and with the right treatment, patience and support of your loved ones you can heal and get back to some kind of normality, which is where i am now.

[Federer1981]

Having Peyronies knocked my confidence when having sex so i would take a Viagra before sex and therefore i didn't suffer with erection issues. Having said that there were times when the magic pill wasn't around and yes i did notice that i would struggle to get a proper erection.
It is difficult to say whether my crazy use of the SC compounded my issues, however what i can assure you is that the penis is an amazing thing and with the right treatment, patience and support of your loved ones you can heal and get back to some kind of normality, which is where i am now.

And how are your erections now? Back to normal or a good level at least?

How long did you use the SC for (overall and also each session)?

[sky43diver]

Sorry didn't completely answer your question:
I bought from Medicare in Jan and used sporadically (thankfully) for 4 months, before giving up on it.
Since then i have listened to my consultant Mr Ralph and i have taken the time to read the VED protocol and am now using only very gently and actually not even to full erection.
Right now post op the main thing is the health of the penis to aid recovery...along with daily Cialis which is helping a lot.

[sky43diver]

Erections are really good now, the main thing is that it is completely straight, even after only 4 weeks post Lue procedure, which is some ordeal!
The daily Cialis of course is helping a lot and also a very supportive and tantalising wife....only another 2 week before i can have intercourse

[Federer1981]

Sorry didn't completely answer your question:
I bought from Medicare in Jan and used sporadically (thankfully) for 4 months, before giving up on it.
Since then i have listened to my consultant Mr Ralph and i have taken the time to read the VED protocol and am now using only very gently and actually not even to full erection.
Right now post op the main thing is the health of the penis to aid recovery...along with daily Cialis which is helping a lot.

Ah I see, so you never used it daily for a consistent period? Was just now and then? were you just doing 10 minute sessions each time cycling up and down producing full erections?
I'm glad you're doing so well post-op!

[sky43diver]

I would try and get 20 erections as per advice from medisure rep. This would normally take about 20 - 30 minutes.
Now I use for about 10 minutes per day, albeit very gently.
I thing the ideal recipe here is to take it easy and listen to others advice and not be pig headed and ignorant like I was

[Federer1981]

I would try and get 20 erections as per advice from medisure rep. This would normally take about 20 - 30 minutes.
Now I use for about 10 minutes per day, albeit very gently.
I thing the ideal recipe here is to take it easy and listen to others advice and not be pig headed and ignorant like I was

Thanks for the advice
Last question I promise! What is the longest period of time you used it regularly consistently (e.g. every day or most days)? Few weeks?

[sky43diver]

No worries, I love to share my experience so others can learn. Please ask away
When I first got it was using it every day for about 2 weeks and then sporadically after this and at times I would miss weeks.