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Author Topic: Corporal Fibrosis / Peyronies  (Read 762 times)

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Perspex

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Corporal Fibrosis / Peyronies
« on: May 17, 2018, 02:03:21 PM »

Hi

I am finding it difficult to find decent information, in plain English about Corporal Fibrosis.

Can anyone point me in the right direction


I am interested in

1) what it is..

2) how it is identified without scans (also how different to peyronies)

3) how likely it will progress

4) what happens if it progresses / how bad is the prognosis / what are the sequence of symptoms to be expected

5) What do people do to attempt to prevent progression, do they succeed?

6) personal experience from members here


I try not to think about the condition I have too much (peyronies and potentially Corp Fib). Otherwise it becomes the centre of everything. After a period of maybe a year putting it to the back of my conciousness, I want to revisit briefly. Without terrifying myself too much

There have been changes in this time

Comments welcome
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TonySa

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Re: Corporal Fibrosis / Peyronies
« Reply #1 on: May 17, 2018, 07:00:03 PM »

I just read my medical notes and as well as having a significant plaque I have corporal fibrosis-both identified on the ultrasound he did.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3rte

Jscout

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Re: Corporal Fibrosis / Peyronies
« Reply #2 on: September 14, 2019, 02:36:12 PM »

I realize this is an old post, but it's the first time I've seen posts on Corporal Fibrosis.

Have your symptoms changed? Does having Fibrosis change what treatment options are available? One of my Doc's didn't want to do the Xiaflex injections because of the proximity of the plaque to the urethra and Corporal Fibrosis. The other Doc wants to start Xiaflex asap.

Do either of you have fibrosis extending into the Glans/Head?
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~Diagnosed Nov 2018, right before my 40th B-day
~Frustrated loving Wife
~Pain w erections
~NO medical progress
~Was naturally curved up like 🍌, straight at initial diagnosis, now curved right & twisted 😢
~Denial/Depressed cycle 😭
~Mass growing!!

smashin

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Re: Corporal Fibrosis / Peyronies
« Reply #3 on: September 15, 2019, 11:12:25 AM »

I have a hardening at the very end of the corpora spongiosum/cavernosa, almost inside the gland. I was wondering if their is any chance once this feels slightly hard if it can disappear at all?
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Jscout

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Re: Corporal Fibrosis / Peyronies
« Reply #4 on: September 16, 2019, 03:06:36 PM »

Mine extends approx 1/4" into the Glans. Def has me a lil freaked out. It's very sensitive to pressure.

Unfortunately I do not know if it will go away once it hardens (per your question)
Logged
~Diagnosed Nov 2018, right before my 40th B-day
~Frustrated loving Wife
~Pain w erections
~NO medical progress
~Was naturally curved up like 🍌, straight at initial diagnosis, now curved right & twisted 😢
~Denial/Depressed cycle 😭
~Mass growing!!
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