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Author Topic: Peyronie's Disease Clinical Trial  (Read 4920 times)

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FD_Study

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Peyronie's Disease Clinical Trial
« on: May 17, 2018, 09:04:00 AM »
If you have one of the following fibrotic disorders - Peyronie’s disease, Dupuytren’s contracture, frozen shoulder or Ledderhos’s disease - and would like to participate in a clinical trial, please click here to learn more or call 914-683-0000. No visits required, compensation offered.


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WhatNext81

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Re: Peyronie's Disease Clinical Trial
« Reply #1 on: June 04, 2018, 12:14:50 PM »
Has anyone called or participated?
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curved

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Re: Peyronie's Disease Clinical Trial
« Reply #2 on: June 05, 2018, 11:39:43 AM »
I called last week and they were to send out the dna swab kit then.  I expect to receive it any day.  They are offering $100 gift card to participate.... although the findings are of what would be most interest.
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51 yrs old; diagnosed 3.5 yrs ago; 90 degree upward bend
But I had no Erectile Dysfunction
tried all pills, VED, traction, Xiaflex PRP, ESWT, H-100 & stem cells; IF diet. implant surgery with Dr. Eid 3/28/19
to correct deformity - 20 CM Titan 2cm RTE / 1 cm RTE

hope794

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Re: Peyronie's Disease Clinical Trial
« Reply #3 on: June 05, 2018, 02:37:24 PM »
Curved, good job. Keep us updates please.
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26 yo from Italy.
Peyronie's since abt 2014
Abt 20-25° bend, w/ a moderate twist to the left
Erectile Dysfunction for 4 years and getting worse
From pornstar-like to moderately depressed - still fighting for a solution.

blackdiamond

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Re: Peyronie's Disease Clinical Trial
« Reply #4 on: June 05, 2018, 03:40:50 PM »
Cruise is that you ????
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62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

blackdiamond

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Re: Peyronie's Disease Clinical Trial
« Reply #5 on: June 05, 2018, 03:45:49 PM »
I am a current patient of Dr. Werner and involved in the study..........
It's very Legit and professionally run......
All that can should try and participate....No visits needed as they send you all you need......
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62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

WhatNext81

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Re: Peyronie's Disease Clinical Trial
« Reply #6 on: June 05, 2018, 06:14:38 PM »
Thanks for the update. Has anyone shown this link/information to their treating drs to get their opinions on this test? It'd be interesting to hear what some of the top peyronie's experts think.
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Dressa

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Re: Peyronie's Disease Clinical Trial
« Reply #7 on: July 09, 2018, 09:18:53 AM »
Hi!

Do you know if there is a link between ehlers danlos syndrome and peyronies?
/Andreas
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Perceptible Curve

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Re: Peyronie's Disease Clinical Trial
« Reply #8 on: August 19, 2018, 12:22:29 AM »
Must be a connection somewhere I was wondering about this. I have Peyronies and Lederhose, my father had the Dupuytren's contracture that as I understand could pass genetically.
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Age: 54.
Onset of Peyronies ~16 years ago.
~45 Degree bend upwards and a bit to the left.
Completed all cycles of Xiaflex as of April 2019. Slight improvement from Xiaflex and now had a Penile Prothesis implanted Sept 9th 2019.
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