Introduction & Hello

[Gutted]

I am totally gutted about this condition. I had not even heard about it before getting it ! The only upside I guess, is another mind to contribute to the Forum !!

I am self-diagnosed. Absolute classic symptoms. Hourglassing midway along length and approx 35deg upward curve from the top end of the hourglass. Plus minor hinging at the hourglass

Extremely little pain currently, however, there was an uncomfortable-ish 'ache' getting erections for about a couple of months after the cause of my Peyronies Disease - I had NO idea at the time what this discomfort was and what it was leading too  

Diplomatically put, the cause was a single 'miss thrust' during sex which caused me to impact (stub) myself. That did hurt a bit at the time but I thought nothing more of it. Likewise, as I said above, getting erections after the accident, there was a noticeable ache for a couple of months at most. I just dismissed the discomfort as nothing .... it would go away in time .... it was just a temporary symptom of the accident I thought !!

I'm not really sure how long after the accident I got my Peyronies Disease as described above (totally coincidentally, I stopped seeing the girlfriend shortly after the accident). I reckon 2/3 months later, I woke up one morning and happened to see the state of it. I guess you all know how that first sighting of the condition feels !

Very fortunately for me, being used to useless NHS 'specialists' and having to self-diagnose a number of other conditions during my life. I immediately took to the internet for answers ( I studied Pharmacology at University, so am not intimidated reading research papers and can generally understand them)

I would say within 6 weeks of first seeing my condition I had found out what it was, what the realistic outlook is and what 'treatment' to start ASAP. I have the Andromedical traction device, take ALC 1g 2x/day and Ubiquinol 100mg 3x /day. I have been on this regime for about 2 months. There has been no improvement so far. However, it has not got worse.

Having sourced much information from this site as well, I would like to take this opportunity to thank all those that set it up and those that contribute constructively and continue to do so even if they are improved or Peyronies Disease free now ! This is a shocking and emasculating condition that all men should know about.

Pentox has a high profile on here and that is the next thing I wish to add to my regime. In doing that obviously, I will need to start seeing a Urologist. I have spent the last few weeks researching who in the UK is actually an expert on this. I have narrowed it down to one Dr whom every corner of the internet suggests is a sympathetic expert in Peyronies Disease. So I will book in with him for an initial consultation. Ideally, I would like him to refer me back to himself on the NHS  

If anyone has any comments, suggestions, advice I would be grateful to hear it otherwise I will contribute and report back as I go

Many thanks

[LWillisjr]

Sorry you have joined us. Sounds like you are pretty well educated now regarding the disease and what to do. Hopefully you will see some improvement without the need to tack any drastic measures.

[kuaka]

Also consider Magnesium Chloride.  Magnesium deficiency is prevalent with fibrosis issues.

[QuackAttack]

Why Mag Cloride? I thought Mag Citrate was more bio available.

[kuaka]

mag Citrate tends to be a bit laxative in nature.  I actually use both, but more Mag Chloride...

[LWillisjr]

This topic is locked as an introductory topic. Feel free to post in other boards on the forum.