Hello All

[tdp1976]

Hello All,
This is my 1st post so please bear with me. I am 37 years old and have had peyronies disease for almost two years and was formally diagnosed last summer. I have so many concerns I don't know where to start. The curvature is about 45 degrees up. I have lost considerable length and girth, and achieving an orgasm is difficult. When I saw my urologist last year he mentioned collagenase as a possible treatment option but did not prescribe any of the treatments I have read about here.  I am a single guy and this whole thing has absolutely devastated me socially. I feel embarrassed and ashamed; I don't know what to do.
Tim

[whiterol]

tdp1976,

I am newly diagnosed as well and I have had my bouts with depression also but this forum has given me hope.  And as an added bonus I have just caught the attention of a young female who likes me enough to help me through this. Yes I was afraid to tell her at first but I'm glad I did. She has been very supportive and even wants to help me with my VED therapy.  So don't automatically assume that this is the end of your social life because there are woman out there that would be sympathetic and supportive to your situation.  I can attest to that and have read of similar experience on this forum.  So get informed, take action, and keep your head up.  A large percentage of us go on to have active, normal sex lives.  You could be one of them.  Keep you head up!

[james1947]

tdp1976

I split your post that you can have your own topic.
You will get more attention like that from other forum members.
Regarding your post, yes, this disease is devastating and sometimes the consequences are very hard.
My advice to you is to take your time and read what others have done to improve they situation.
My first advice is to start with Pentox as soon as you can.
As whiterol has wrote, VED may help also.

Welcome to the forum
James

[inkhorn]

tdp1976- Where have you been for 2 years? Welcome, do your research, ask questions, experiment a little bit and be patient. You will overcome because you seem to have a humble and teachable spirit. Regards Inkhorn

[tdp1976]

Thanks everyone. I have made a new appointment to discuss Pentox. I will continue reading and educating myself further. I will be in touch soon.

[james1947]

tdp1976

Don't forget to take with you to the appointment printout regarding Pentox.
You may find the information in the library.

James

[funnyfarm]

please do not be embarrassed or ashamed, I am in the same situation and we are all in this together

[tdp1976]

Hello,
I am not able to see my Urologist for another 2 weeks. In the meantime I have a few more questions. I have suffered from delayed ejaculation for my entire adult life, I just assume it was from aggressively masturbating and loosing sensitivity. I'm not sure if anyone else here has this problem, I think that's how I injured myself and got Peyronies to begin with. Anyway, could the Peyronies have made this condition worse? And, do you think If I leave my penis alone I can recover sensitivity?

On another note, I have alcoholic peripheral neuropathy (APN). It causes numbness and pain in both feet. Even though I haven't had a drink for over a year, but my doctor says I'm stuck with the nerve damage. My urologist did say that he has never heard of a correlation between APN and the nerves associated with the perineum (penis). But I don't know what to think anymore. I just wish I had a normal life

tdp1976

[inkhorn]

tdp-I don't know anything about APN, but I have a problem with the nerves in the cock area and lack of feeling in general when I drink too much alcohol. In terms of permanent damage, haven't heard about that. Regards Inkhorn

[jackp]

tpd

I was also having problems with difficulty/delayed ejaculation. Before my first back surgery in 2008 I talked with my neurosurgeon. He said it could be from nerve damage. I asked if he could test for it. He said even if we found it there was nothing we could do about it.

I had my implant in October 2008. I asked Dr. Milam and Todd Doran about it. They said it was a little studied subject. Gave me a prescription for daily Cialis to see if that would help. It did not. Then about 16 months after my implant my glans started becoming erect again. The blood flow that normally goes to the corpus cavernosum (CC) redirected to my Corpus sponglosum (CS). Most of the feeling in my glans returned then.

After my back injury of 11/11 I was put on neuronitin, for nerve pain. That also helped!! Now ejaculation is much improved.

Jackp
http://jackp-penileimplant.blogspot.com