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Author Topic: Stem Cells & Adult stem cell injections for Peyronie's  (Read 207610 times)

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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #850 on: October 09, 2018, 11:43:59 PM »

I never mentioned anything about freezing cells. My fat was removed, my stem cells were collected and it was re-injected into me with PRP. That is what gave me my results. The banking process is simply them taking some of the cells they extracted from me and culture-expanding them in a lab over the course of a few months. The ice i mentioned is something on top of which they put the cells during shipping to keep them cool, if I so choose to have them shipped to me. Normally if one chose this they would have it shipped to a doctor, but I also reserve the right to have it shipped to my house and experiment with self-injection, which is dangerous and I do not suggest. That is where my figure of $1000 comes from. I could also fly back to Florida or find a local doctor to pay for injection, which is the suggested route.
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pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #851 on: October 10, 2018, 12:56:13 AM »

- Where do you store the stem cells? In your fridge? How long do they survive?

- How do you perform your own injections? How many at a time? In which points? At what angle?

- What gauge syringe needle do you use?

- How often do you do this?

- Did they perform any filtering on your stem cells to weed out the mutated ones?
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #852 on: October 10, 2018, 02:28:27 AM »

If I were to go through with this process, I would call the clinic and have them ship them to my house on ice via next day delivery. You do not store them, you must use them immediately upon receiving them. So even if you have them sent to a local doctor, they must be used immediately. As far as performing my own injections, I got the idea from Ben Greenfield (google him) who goes to the clinic I go to and now self injects every few months into the penis. He's kind of crazy though (there's nothing wrong with his penis, he's just trying to make it bigger lol). That combined with the fact that there is self penile injection training available for Erectile Dysfunction leads me to believe I can save money and do it myself. It would be a lot safer to do it with a doctor though. I do not know what gauge needle to use. I haven't self injected yet. In terms of filtering, I don't know but they are autologous, meaning my own, fwiw. I'm essentially just trying to do everything myself without proper certification because I believe I am smart and capable enough to and want to save money and time/convenience. I have the benefit of a compliant clinic that is willing to FaceTime me through the process.
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #853 on: October 17, 2018, 05:34:39 PM »

Here is an update guys, since it's been a while from me: Size seems to be stable since my gain of just under half an inch girth, I'll have to measure again to be sure. The one deep dent I had, which was literally as deep as the letter 'U'. Is now about half that. This was definitely my worst affected area; it had the roughest feel to it. Overall these gains were all in the top third/worst portion of my penis. Although I missed my target date of late September/early October for another round of injections, I am still planning to get them in November. I'm either going to get a local doctor to inject into the penis + do an IV myself, or I might just get 3 IV's (you can get 3 doses administered max, as a health precaution) in a row injected into myself. Both of these options would come literally the day or two before I start an extended water fast so I can mix the regeneration of stem cells with the waste removal of autophagy. If I go the triple IV route, I would use shockwaves to home the cells into my penis.
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Gabriel

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #854 on: October 20, 2018, 04:17:49 AM »

Hey JS,

Excellent post, fantastically interesting and hope-bringing, thank you!!!

As you know, I'll follow with as much interest your posts on your water fasting. I just wanted to warn you about a precaution I think you should take, from what I went through with my 3 days monodiet (which induces some of the benefits of a real fasting): on day 2 (but this can vary from person to person), I was feeling really, really bad, at a weakest, with a huge burst of all my inflammatory symptoms (prostate problems, pelvic pain, asthma, and of course my Peyronies Disease, with an almost permanent pain and metabolic panic in my penis).

I was then hugely surprised to see that all these symptoms disappeared on day 3, where I had NO penile pain/inflammation feeling AT ALL, and was full of energy. Maybe all this was just chance, but I read in many places that during a fast, some old conditions can rise again with a vengeance on days 1 to 3, when the body pours old "toxins" in circulation systems and "eliminates" them (no studies on this, so I'm being very cautious). Anyways this seems to be what happened with me, and trust me, on day two I would NOT have had ANY injection done in my miserable penis, nor would I have liked to have my swelled "nuclear pumpkin" post-injections penis... So maybe better you get injected a little sooner my friend!

Good luck to you!

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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #855 on: November 02, 2018, 05:16:08 PM »

"Autophagy is required for human umbilical cord mesenchymal stem cells to improve spatial working memory in APP/PS1 transgenic mouse model": https://stemcellres.biomedcentral.com/articles/10.1186/s13287-017-0756-2

This study was for Alzheimer's treatment. My clinic HIGHLY recommended a keto diet and they encouraged me to fast (neither of which I did). I really believe autophagy and stem cells have great synergy.

Gabriel, from my research that burst of inflammation seems to be the body reactivating the healing process in any chronic issues we might have. And thanks for the advice, I'm considering avoiding injections and going with the IV + shockwaves.
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TonySa

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #856 on: November 02, 2018, 09:33:57 PM »

A keto diet w IF is highly recommended for alz and dementias, one of the many potential benefits.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #857 on: November 29, 2018, 05:25:44 AM »

Just wanted to update that after 5 months, the tissue in the top 1/3 to 1/4 of my penis no longer has a sandpapery feel to it, and is almost completely smooth aside from a few minor spots. This is by touch, it is still scarred, but definitely an improvement. I have been using VED on and off since August, so that might have contributed, but if I had to guess I would say it was the treatment I received.

Edit: Another update (11/30/18): Contacted all of my local clinics, the pricing is ridiculous ($750-$1000 per injection) so I've decided to go ahead with self-injection. Also going to have my friend who is a nurse give me an IV.

My next treatment will be within the next six weeks, I'll keep everyone updated.
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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #858 on: December 01, 2018, 05:01:13 PM »

JS1991

I read some posts down but I din't find what you are injecting, how and how much it cost injecting yourself.
I will appreciate your answer

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #859 on: December 01, 2018, 05:57:24 PM »

Hey james, I am injecting stem cells pulled from my own fat, which are currently being cultured in a lab (I paid to have them banked). I initially had the procedure done in June, it cost $6000 for the treatment and $3000 to have my cells banked. I went to the US Stem Cell Clinic in Florida, and I can now have them ship me my banked/culture-expanded stem cells to a local doctor for $500 per dose (plus cost of injection, which I stated in previous posts). Or, I can have them shipped to my house and do it myself if I want to save the money I would have paid for injections, which is what I will be doing. Definitely experimental and partially dangerous; I won't recommend anyone self-inject themselves without training because of risk of injury.
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #860 on: December 01, 2018, 06:09:51 PM »

I'll repeat what I told a few people who private messaged me. My take on stem cell is that they are effective, yet over-priced. There is a risk they will do nothing, there is also a chance you will have spectacular results, but most people fall in the middle (at least, according to the research I've done plus my own experience). I regained a little girth and got smoother tissue, but it was not a cure; you can get pretty much the same results with VED. I do have a theory that the mechanism of action in stem cells is different than the mechanism of VED in regaining girth, and so you could potentially stack the effects (which I will try), but unless I get cured I will continue to call it an effective, yet overpriced treatment. I do still have more injections to go and more time to heal, so my opinion will probably fluctuate (I am expecting to see more results in the future, so we'll see). Overall though, I am personally satisfied with my decision to go through with treatment, hence my next round of experiments with self-injection (which is way cheaper than going back and having them inject me).

If you have the extra cash, I would advise it. If you don't (one person that messaged me was a young college student with $0 prepared to take out a $10k loan) then I would go with all of the cheap/free treatments. As the price comes down I expect it to become a dominant field of medicine, especially as technology advances.
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james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #861 on: December 03, 2018, 05:28:42 AM »

Thanks for the replay JS1991 :)

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Gabriel

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #862 on: December 06, 2018, 02:55:37 PM »

And thanks for your updates, it's always a great pleasure to follow you :-)
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

james1947

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #863 on: December 20, 2018, 05:10:34 PM »

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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #864 on: December 21, 2018, 09:45:16 PM »

I have actually injected stem cells into patients. For joints. Not the penis.

With that said - I do believe penile stem cells to be effective.

pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #865 on: December 23, 2018, 07:28:05 PM »

so, @JS1991: are you injecting them yourself, or using the help of a local doctor?
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #866 on: December 26, 2018, 10:04:52 PM »

pey ron, a few things. First, I have not had any luck finding a local doctor to inject me. Second, after hearing multiple accounts of injury from injections including someone who recently went to Landers’ clinic, I am hesitant to self inject. Third, I would like to combine IV stem cells with Christipher1’s at home shockwave therapy, but I’m currently convinced that fasting will heal me up for free.

So once I’m done with that experiment, I’m going to reassess, but until then I’ve cut all treatments including physical therapies and I’m also doing strict NoFap/No PMO.
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Tony52

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #867 on: December 27, 2018, 05:42:31 PM »

JS1991,

What kind of fasting?

Tony52
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #868 on: December 28, 2018, 04:39:00 PM »

Currently Water Fasting and eventually Dry Fasting on the Snake Diet. Check it out: Water fasting. - Peyronies Society Forums [Page 2]

There's also some info in the ketogenic diet threads in the same subforum (Alternative Treatments). I'll have an update on my current water fast and I'm also going to start dry fasting around the New Year.
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Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #869 on: December 28, 2018, 05:54:03 PM »

Good luck with the fast.

My record is 4 days. (And stay away from coffee!)
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